iiinova — where your digital self keeps evolving

hypermobility.org @hmsacharity.bsky.social · 04/06/2026

#VolunteersWeek We're recruiting. Your experience can make a difference. Helen (Helpline) says: “I get the strongest connection when I share my own personal journey… any level of knowledge and skill will always be valuable.” 💜 Apply: hypermobility.org/volunteer 🔄 Repost to help spread the word.

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hypermobility.org @hmsacharity.bsky.social · 28/05/2026

We’re hosting a free online education session for clinicians on using the Spider Tool to support holistic assessment and treatment planning in hypermobility. 📅 17 June • 19:00–20:15 BST 🎙️ With Kathryn Langman 🔗 Register: www.hypermobility.org/events Repost to help us reach more clinicians!

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hypermobility.org @hmsacharity.bsky.social · 22/05/2026

One of those weeks where lots gets done but progress isn't obvious. Thankfully, wins are there if you know where to look. Wildlife stole the show here, fledglings everywhere, a bold young fox, bees and butterflies, and little patches of rewilding starting to take hold. What joy was in your week?

An adult blue tit with bright blue and green feathers and a white face marked with black stands on a curved metal rod. It reaches toward a juvenile bird beside it, placing food directly into the younger bird’s open beak. The juvenile has muted yellow and grey plumage and a slightly fluffier appearance. Behind them is an out‑of‑focus green background, suggesting a garden or natural outdoor setting. Photo by @TheOtherKev.

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hypermobility.org @hmsacharity.bsky.social · 21/05/2026

The heat is already hitting some of us hard, and the bank holiday weekend looks even hotter. We swapped heated blankets for cooling towels last week. Anyone who melts over 20°C, it's not too late to join us at 7pm tonight for Ask the OT, we'll dust off the fans! www.hypermobility.org/events

A flat‑lay arrangement of heat‑relief items sits on dark blue fabric decorated with small white cat illustrations. The items include a large woven sun hat with alternating blue and white bands and wooden bead accents, a light blue handheld fan, a blue zippered pouch, a neatly folded pale blue towel, two circular light blue cooling pads, and a clear bottle containing an “Instant Cooling Towel.” The overall setup suggests preparation for hot weather and staying cool outdoors.

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hypermobility.org @hmsacharity.bsky.social · 17/05/2026

It’s #SelfCareSunday! 🎉💜 Carve out a little time just for you. As it’s also #CraftHour, we’re picking up our hooks, needles, puzzles, games, whatever feels soothing. Have you pottered in the garden, listened to the birds, or curled up with an audiobook? How are you self‑caring today? Kim 💜

A promotional graphic for the Hypermobility Syndromes Association. The top text reads “Hypermobility Syndromes Association” and “Self‑Care Sunday” with the hashtag “#CraftHour.” The background is a close‑up photo of a crochet hook resting on pink, yellow, and white crocheted fabric. A small crocheted flower sits in the bottom right corner. The website “Hypermobility.org” appears at the bottom.

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hypermobility.org @hmsacharity.bsky.social · 11/05/2026

Relaxation is hard. When you use half your energy just holding it together, “rest” isn’t simple. It takes practice and that can be stressful! Hence our weekly members' sessions with Kim (Mon 8pm). How do you relax? I’m a water baby, in it, near it. Forest light comes a close second! :)

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hypermobility.org @hmsacharity.bsky.social · 11/05/2026

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hypermobility.org @hmsacharity.bsky.social · 05/05/2026

We’re hosting an online Self‑Compassion Workshop with Kim Clayden on 6 May, 18:30–20:30 (BST). A gentle, supportive space to explore being kinder to yourself and finding small, achievable next steps. 📍 Zoom Register at hypermobility.org/events

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hypermobility.org @hmsacharity.bsky.social · 30/04/2026

Fantastic end to an amazing 3 days at #BSR2026. Lisa chaired a brilliant session on multidisciplinary hypermobility assessment, improving treatment, and overcoming barriers. Huge thanks to everyone for the engagement all week — the conversations continue.

A presenter stands at a podium in a conference room, giving a talk. In the foreground, a laptop and large monitor display a slide titled “Spider Tool,” listing key features of the tool for assessing multisystemic symptoms in hEDS and HSD. Rows of chairs, ceiling lights and a modern conference setup are visible in the background.

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hypermobility.org @hmsacharity.bsky.social · 30/04/2026

Busy day at the #BSR2026 yesterday: awareness‑raising, a packed talk, and great discussions with clinicians. Today we’re back at the stand, and Lisa is chairing a hypermobility session later.

A busy conference scene at the British Society for Rheumatology Annual Conference. Attendees sit facing a presentation stage where a large screen displays the event name and dates. A person near the screen holds papers, appearing to prepare for or deliver a talk. People in the audience wear conference badges, some with headphones, and several are talking with each other. The venue has high ceilings with metal beams and professional lighting, creating a lively, engaged atmosphere.

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hypermobility.org @hmsacharity.bsky.social · 28/04/2026

New for 2026: the HMSA’s updated booklet Hypermobility and how to manage it is now in stock. A practical guide covering symptoms, self‑management, flare‑ups, stress, relationships, and navigating NHS support. 📘 Available now: Hypermobility.org/shop #Hypermobility #HSD #EDS #HMSA

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hypermobility.org @hmsacharity.bsky.social · 23/04/2026

We're hosting a Free Online Self‑Compassion Workshop on 6 May (18:30–20:30 BST) with psychotherapist Kim Clayden. Expect a warm, supportive space to explore practical, solution‑focused tools for being kinder to yourself, especially during challenging times. www.hypermobility.org/event-detail...

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mike @staykinduniverse.swifties.social · 23/04/2026

daily sparrows

two sparrows at a feeder one looking at one eating

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hypermobility.org @hmsacharity.bsky.social · 07/04/2026

‘All About Hand Therapy for the Hypermobile’ Gentle, practical session with specialist Nicola Goldsmith. Newly dx & old hands welcome. Hand pain, instability or fatigue making tasks tough? 🗓️ 8 Apr 2026 ⏰ 19:00–20:00 BST 🏆 £250 voucher to be won ❓ Q&A 💻 Zoom www.hypermobility.org/event-detail...

A promotional poster for an HMSA Hand Therapy Webinar featuring hands forming a heart shape at the top. The design uses purple, teal, and green graphics. Text announces a session with clinical specialist hand therapist Nicola Goldsmith, taking place on 8 April 2026 from 19:00 to 20:00 BST on Zoom, with Hypermobility Syndromes Association branding.

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hypermobility.org @hmsacharity.bsky.social · 06/04/2026

No relaxation this evening as it is a bank holiday and Kim is glued to NASA TV watching Artemis 2 flyby the moon and is getting #MoonJoy! How about you?

A NASA spacecraft with radial solar panels travels through space toward the Moon, shown on the left against a black star field. On‑screen graphics display its velocity and distance from Earth and the Moon.

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Reposted by hypermobility.org

Patients Association @patients-association.org.uk · 23/03/2026

Your feedback, whether positive or negative, is essential to providing safer, better care. Take three minutes of your time, and help us improve care for you, your family and your community. #ShareForBetterCare buff.ly/sW6kJ2k

A young woman sits on a bus. She is wearing a headscarf. She is looking down at a mobile phone that she is holding in her hand.

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hypermobility.org @hmsacharity.bsky.social · 26/03/2026

Is your GP unsure how to support your hypermobility? We’ve made a one‑page Quick Reference Guide to help. It’s free, printable, and links to our full Clinician’s Guide. More info: hypermobility.org/post/a-quick-reference-guide-a-year-on

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hypermobility.org @hmsacharity.bsky.social · 20/03/2026

Miss last night's show? It's ok, we got you. One viewer said they could listen to Jo all night. A wave of the LinkFairy's wand & w cane absolutely make that happen. Last night, and an extensive back catalogue are on our website and YouTube so if you want to binge, you can! absolutely do that!

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hypermobility.org @hmsacharity.bsky.social · 19/03/2026

Tonight! Free 'Ask the OT' session with JBOT - Jo Southall . Brand new and need a basic pacing primer? Got a burning occupational therapy question, something you want to do but can't quite figure out how to make it manageable or safe? We got you! Everyone welcome, register on the website. 1/2

A person with long wavy red hair and red‑tinted glasses smiles while holding a white mug that reads “KEEP CALM AND CALL AN O.T.” They are indoors with a colorful circular wall decoration and a plant behind them.

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hypermobility.org @hmsacharity.bsky.social · 03/03/2026

Need a little extra focus or company while you work? Join one of our Online Body Doubling Sessions — a supportive space to get things done alongside others. 🗓️ 8 March, 14:00–15:00 🗓️ 1 April, 19:00–20:00 More info: hypermobility.org/events

A purple promotional flyer for the Hypermobility Syndromes Association advertising “Online Body Doubling Sessions.” At the center is an illustration of a tablet showing four people on a video call, each in their own quadrant, smiling and waving. Decorative leaves surround the tablet. Text reads: “Online Body Doubling Sessions. Come and join us to find out more. Sunday 8th of March 14:00–15:00 & Wednesday 1st April 19:00–20:00. Hypermobility.org.”

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hypermobility.org @hmsacharity.bsky.social · 18/02/2026

Mini e-news out now with links to info about, and registration for, sessions over the next few days. Yet more will be added to the website over the next few days, and a longer bulletin with more information about those and our other activities will follow. www.hypermobility.org/so/ffPnmshUC...

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hypermobility.org @hmsacharity.bsky.social · 16/01/2026

📣 FREE clinical education event! Navigating Craniocervical Instability (CCI) in Hypermobile Patients 🗓 28 Jan & 11 Feb 2026 | 19:00–20:30 GMT 💻 Online 2‑part er Free to attend For physios, GPs, OTs, rheumatology, neurosurgery & more. 👉 Register (free): hypermobility.org/event-detail...

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hypermobility.org @hmsacharity.bsky.social · 08/01/2026

Happy New Year! We’re back, refreshed (promise!), and ready to roll out a whole bundle of free events for members, the public, and professionals. Pacing may be mentioned… behave yourselves, we rested over New Year! Juicy details: tinyurl.com/4dj6jucc FOMO? Add e-mail to the box at the bottom!

Alt text: Promotional flyer for the Hypermobility Syndromes Association’s “Living Well With” Patient Education Series. Features headshots of Jo Southall (Independent OT) and Kim Clayden (Hypno/Psychotherapist). Text announces the series starts Saturday, 10 January 2026, running weekly for five weeks, with sessions from 20:00 to 21:30 PM. Includes a note about a dedicated support forum between sessions and a “Register Now” call to action with the website hypermobility.org/events.

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hypermobility.org @hmsacharity.bsky.social · 19/12/2025

Ask the Experts replay up tinyurl.com/56sj496y & we’re wrapped for 2025! Memberships are automated if you want to join or gift one. We’re back Mon 5 Jan with MellowMonday; Living Well starts 10 Jan.. Solstice Greetings, Merry Christmas, Happy Hannukah & Hogmanay, or 'Restival' Till 5/1/2026!

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hypermobility.org @hmsacharity.bsky.social · 18/12/2025

Jo and Kim run our final session of 2025 tonight at 7pm GMT ✨ Ask the Experts Christmas Special ✨ Festive Q&A with Jo Southall (OT) and special guest Kim Clayden (Psychotherapist). 🎁 Free tickets ▶️Busy? Register for replay link. 👉 Register here: [tinyurl.com/543u3…

A holiday-themed promotional flyer for the “ASK THE EXPERTS” patient event featuring Jo Southall and Kim Clayden. The background includes snowflakes, evergreen trees, and festive decorations like poinsettias, pine branches, and red ornaments. At the top, the title “ASK THE EXPERTS” is in bold purple uppercase letters, followed by “-PATIENT EVENT-” and “JO & KIM ARE PROFESSIONALS & EXPERT PATIENTS.” Circular portraits of Jo and Kim are centered: Jo is smiling with orange-tinted glasses and a mug, framed by Christmas lights; Kim is smiling in front of a festive hamper filled with wine, Panettone, pinecones, and a gold gift box. The event date is listed as “18th Dec 2025” and time as “19:00–20:00.” A red “REGISTER NOW” button and the URL hypermobility.org/events appear at the bottom. The flyer invites viewers to join a webinar Q&A in a cheerful, seasonal style.

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hypermobility.org @hmsacharity.bsky.social · 16/12/2025

Last minute gift to accompany a membership? These axolotl keyrings are colourful, durable, and full of personality! 💙❤️💜 They (and our fidget disks) are in stock. Clip to a bag, keys, or lanyard and carry a little splash of joy wherever you go. ✨ Hypermobility.org/shop (last post Thursday morning!)

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hypermobility.org @hmsacharity.bsky.social · 13/12/2025

🎄 Feeling overwhelmed this festive season? Join our Ask the Experts: Christmas Special with Jo Southall & Kim Clayden. 🗓️ 18 Dec | ⏰ 19:00 GMT 🎥 Live Q&A for patients via Zoom – no app needed! 🔗 hypermobility.org/event-details/ask-the-experts-christmas-special-with-jo-southall-and-kim-clayden

Promotional graphic for The Hypermobility Syndromes Association featuring two speakers. On the left, Jo Southall is shown in a circular frame with the label “Occupational Therapist.” On the right, Kim Clayden appears in a similar frame labeled “Hypno/Psychotherapist.” The background includes purple and white design elements, with the heading “The Hypermobility Syndromes Association PRESENTS.”

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hypermobility.org @hmsacharity.bsky.social · 05/12/2025

💜 The Integral Movement Method (IMM) by Jeannie Di Bon launch! A new approach to hypermobility management, focusing on accessible and mindful movement. ✨ Read the blog, catch the Q&A replay, and discount code: www.hypermobility.org/post/celebra... #Hypermobility #IMM #Accessibility #MovementMethod

Jeannie Di Bon sits on a black cushioned bench indoors, smiling and holding two copies of her new book titled The Integral Movement Method for Hypermobility Management. She wears a black long-sleeve top and black pants. Behind them is a wall chart labeled “Pilates Reformer Exercises,” showing various movement positions. The setting suggests a professional or educational space focused on physical therapy or movement science.

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hypermobility.org @hmsacharity.bsky.social · 02/12/2025

Prepping for this evening's Book Launch with @jeanniedi.bsky.social we're a little bit excited and have copies to give away, so register to be in with a chance of winning one! We'll be live from 7pm (GMT/UST). If you can't make it, we'll send you a link to catch up later. *returns to homework*

Alt text: Flyer for a book launch event hosted by the Hypermobility Syndromes Association. The title reads “Jeannie Di Bon Book Launch Exclusive.” It announces the launch of Jeannie Di Bon’s new book, The Integral Movement Method for Hypermobility Management, with a foreword by Lara Bloom. The flyer includes a photo of a woman in a stretching pose overlaid with a digital mesh design, and the book cover showing a person in motion with a similar mesh motif. Event details: Tuesday, 02 Dec 2025, 7:00–8:00pm GMT, online via Zoom. Includes a “REGISTER NOW” button and the website hypermobility.org/events. A note at the bottom says attendees will have a chance to win free copies of the book.

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hypermobility.org @hmsacharity.bsky.social · 15/11/2025

The first of our winter 'Ask the OT' sessions & Jo is joined by Joy Mason, of Mast Cell Action. Please note: in the UK clocks went back since last month! Session is at 7:00 GMT/UST on Thursday the 21st of November. Register here: www.hypermobility.org/event-detail... for live/replay link.

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hypermobility.org @hmsacharity.bsky.social · 13/11/2025

🚨 Overwhelmed by hypermobility referrals? GPs in the UK are turning to The HMSA's Quick Reference Guide, an essential resource devised by Dr Philip Bull & Kim Clayden with the HMSA. Clear. Practical. Game-changing. Support patients to start managing their condition right away. t.co/ROdXJpU8DL

Poster titled “The Hypermobility Syndromes quick reference guide” for GPs, showing Beighton Score criteria, key symptoms and signs, associated conditions like PoTS and MCAS, and diagnostic and management steps.

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hypermobility.org @hmsacharity.bsky.social · 07/11/2025

Trustees’ Week is a time for us to celebrate the achievements of nearly one million trustees across the UK. Thank you for the time, commitment, and effort you bring to your charities to help them thrive. You can find out more about our trustees here: hypermobility.org/team #TrusteesWeek

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hypermobility.org @hmsacharity.bsky.social · 04/11/2025

Do you know someone who looks great in Red? 🎅 Run, jog or walk through London dressed as Santa, all in aid of the HMSA! 📅 2nd–4th Dec | 🕖 7PM | 🎽 Santa suits for adults provided! 💜 Support hypermobility awareness 🔗 Sign up: runforcharity.com/hypermobility-syndromes-association/santa-in-the-city

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hypermobility.org @hmsacharity.bsky.social · 31/10/2025

Just published: a new study on the Integral Movement Method (IMM) for hypermobility! Developed by Jeannie Di Bon, IMM offers a gentle, whole-body approach to movement for people with hEDS and HSD. Participants felt safer, stronger, and more connected. 🔗 www.hypermobility.org/post/moving-...

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hypermobility.org @hmsacharity.bsky.social · 20/10/2025

🌤️ Bluesky PoTS UK & HMSA team up for a joint webinar Oct 23 at 7:30pm BST! Learn about links between PoTS & hypermobility, hear from expert panellists, with live Q&A. Speakers inc: Jo Bullingham, Lisa Bone, Dr Helen Eftekhari, Dr Philip Bull & Kim Clayden. Register: us02web.zoom.us/webinar/regi...

Promotional flyer for a webinar hosted by PoTS UK and the Hypermobility Syndromes Association (HMSA), scheduled for 21 October 2025 at 7:30 PM. The flyer includes a purple-themed design with a “WEBINAR” label and play button icon at the top. Main text explains the webinar will cover PoTS, Hypermobility, the link between the conditions, charity support, and a Q&A. Logos for PoTS UK and HMSA appear at the bottom.

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Reposted by hypermobility.org

Stickman Communications @stickmancomms.bsky.social · 13/10/2025

Sometimes I look absolutely fine - but I am never symptom free. Understanding my hypermobility and all its effects have helped me build a life that works for me. This card is from our website - www.stickmancommunications.co.uk/hypermobility - and follow @hmsacharity.bsky.social for info& support

stickmancommunications.co.uk

Hypermobility | Stickman Comms

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hypermobility.org @hmsacharity.bsky.social · 10/10/2025

The HMSA Journal 2025 has arrived for UK members who opted in for printed copies! This edition covers sleep, Long COVID, lung pathophysiology, pain management, headache disorders, and more. We’re so grateful to our team and contributors. Digital version available in the patient members area.

Alt text: A person holds a newly printed copy of the “Hypermobility Syndromes Association – Journal 2025,” shown inside an open cardboard box. The cover features a photo of a child sleeping with a stuffed animal under a colorful blanket. Listed topics include sleep and hypermobility, Long COVID and HSD, lung pathophysiology, pain management priorities, headache disorders in EDS/HSD, associations between POTS, HSD, and MCAS in young patients, and neural links between joint hypermobility and anxiety.

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hypermobility.org @hmsacharity.bsky.social · 08/10/2025

🎤 Ask the Experts: Hypermobility Edition 🆓Event🗓️ 16 Oct⏰ 7pm BST📍 Zoom + ▶️ 👩‍⚕️ @Jo Southall (Occupational Therapist) + Reema Chadha (Physio + Bollywood dancer!) share their tips on pacing, joint protection, mobility aids & more 🔗 hypermobility.org/events #Hypermobility #AskTheExperts #JointWellness

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hypermobility.org @hmsacharity.bsky.social · 08/10/2025

🎤 Ask the Experts: Hypermobility & PT 🆓Event🗓️ 16 Oct⏰ 7pm BST📍 Zoom + ▶️👩‍⚕️ Jo Southall and Reema Chadha (Physio + Bollywood dancer!) share their tips on pacing, joint protection, mobility aids & more. Advance questions? @/DM us 🔗 hypermobility.org/events #Hypermobility #AskTheExperts #JointWellness

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Cheryl Rosbak @csrosbak.bsky.social · 02/10/2025

The combination of a firm mattress and a body pillow works best for me.

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hypermobility.org @hmsacharity.bsky.social · 01/10/2025

What kind of mattress works for a hypermobile body? No simple answer, but we ask now and then because tech and trends evolve. Memory foam, hybrid, futon, smart-bed, or a stack of layers like the princess & the pea? Share your wins, fails, and top tips. #BendyBeds #Hypermobility

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hypermobility.org @hmsacharity.bsky.social · 24/09/2025

ICYMI, Thursday's 'Ask the OT' session is up for replay on the site. We're prepping tonight's session with @stickmancomms on communicating hidden symptoms and disabilities. We face many, which are your most frequently encountered, most annoying and/or most difficult to resolve?

Two people use a toy-style string telephone made from plastic cups. The woman on the left shouts dramatically into her cup, while the man on the right looks shocked, holding his cup to his ear and his cheek in disbelief. Their exaggerated expressions highlight the chaos of miscommunication. Plain grey background.

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hypermobility.org @hmsacharity.bsky.social · 17/09/2025

"My partner listened to the webinar, it really helped him understand.” Communicating the reality of dynamic chronic illness is tough when others don’t see the shifts. Join us Wed 24 Sept, 7pm BST to learn how to bridge that gap with clarity and compassion. Register at: hypermobility.org/events

Image description: Creating understanding of hidden symptoms and disabilities WEBINAR. 3 panel cartoon: panel 1. Stickman 2 saying "Push yourself, you can do it!" Stickman 1 "But..." Stickman 2 "No buts!". Panel 2: Stickman 1 is exhausted and silent, with spinning, crossed eyes. Stickman 2 with much enthusiasm "See, you did it, you can do more than you thought". Panel 3: Stickman 2 has almost exited the frame - stickman 1 gently keels over into an exhausted heap. Text: Tips and strategies for communicating about our disabilities and symptoms,for people who live with pain and/or fatigue.Webinar by Hannah Ensor, 19:00 24th September 2025

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hypermobility.org @hmsacharity.bsky.social · 17/09/2025

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hypermobility.org @hmsacharity.bsky.social · 15/09/2025

It's September, the wind's howling, fluffy socks and cosy blankets call. On Thursday we'll be live with Jo Southall at 7pm. It's a free show (register oneve nts page), and recorded, so if you've an Occupational Therapyquestion, just let us know! We can't promise to answer them all, but we'll try!

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hypermobility.org @hmsacharity.bsky.social · 08/09/2025

"How do I make them understand?" It’s one of the top questions we hear — and Hannah’s running a workshop to help you tackle it. Whether you’re new or just need a refresher, it’s packed with practical insight. 🎟️ Free for members (just log in!) 📹 Yes, it’s recorded 👉 hypermobility.org/events

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hypermobility.org @hmsacharity.bsky.social · 26/08/2025

Cat is helping me pick which of my WIPs comes to tomorrow evening’s members’ drop-in craft and chat social, anybody want to share a sneak peek of what they’re working on? Can’t wait to see what our members are all working on! hypermobility.org/so/eaPZcyK_b...

Cat stirring the Tea
- A white polka-dotted tabletop holds stainless steel containers — a teapot, sugar bowl, and canister — arranged neatly.
- A white ceramic cup filled with a light brown beverage (likely tea or coffee with milk) sits in the foreground.
- A cat reaches up with its paw, touching or holding the cup’s handle, adding a playful and whimsical touch.
- The scene blends domestic coziness with a dash of feline mischief

Crochet Project in Progress
- A purple-handled crochet hook is actively inserted into variegated yarn that shifts through shades of blue and purple.
- Beneath the work lies a printed instruction sheet with detailed crochet directions, adding a layer of technical insight.
- The visible pattern text includes stitch counts and chaining instructions, hinting at a moderately complex design.
- This image beautifully captures the intersection of creativity and precision in crochet

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hypermobility.org @hmsacharity.bsky.social · 21/08/2025

We return to our usual schedule this evening with a @JBOccyTherapy live Q&A on all things hypermobility, register at hypermobility.org/events and we'll see you later on, and send you the replay too. Questions by message or e-mail titled 'AskJo'.

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hypermobility.org @hmsacharity.bsky.social · 30/07/2025

We spent the muggy afternoon catching up on last week's heatwave masterclass session in preparation for tomorrow's event with @jboccytherapy, while failing to nap. There's still time to register, you'll get a catch up link and we'll see you at 7pm (BST). ☺️

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