iiinova — where your digital self keeps evolving

Helen Hassell @helenhassell.bsky.social · 09/09/2025

On my way to @thekingsfund.bsky.social to join a panel with the fab @jacoblant.bsky.social talking all things 10 yr plan and people &communities. Thanks Jacob for leading by example and sharing the power with lived experience @nationalvoices.bsky.social

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Helen Hassell @helenhassell.bsky.social · 15/08/2025

Great opportunity for #LivedExperience There's a great group of us and we can't wait to meet new people

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National Voices @nationalvoices.bsky.social · 15/08/2025

🚀 We’re recruiting! National Voices is looking for more Lived Experience Partners to help shape and influence our work with their unique insights and expertise. 🔗 Find out more here: tinyurl.com/5n7xh4k8 📆 Apply by Friday 12 September.

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Helen Hassell @helenhassell.bsky.social · 24/07/2025

Strikes tomorrow mean my son's surgery has been cancelled. He's an incredibly stressed young man with learning disability who has built up to this surgery all week. Seizures ⬆️and now has to reset to a new date in 4 weeks time.Remember unseen impact on patients when striking @rachel-p.bsky.social

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Carers UK @carers-uk.bsky.social · 09/07/2025

We need to hear from as many carers as possible to help shape our future policy and campaigning work. Please take our survey and tell us what needs to be done: www.surveymonkey.com/r/QNPDKV2?utm_…

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Helen Hassell @helenhassell.bsky.social · 09/07/2025

www.wm-adass.org.uk/improvement/... Such a sad but not surprising report

wm-adass.org.uk

Autism and parental blame research | WMADASS

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Carers UK @carers-uk.bsky.social · 03/07/2025

NHS 10-Year-Plan is out!📣 We are pleased to see the ambition for carers to be actively involved in care planning and welcome the new section for the NHS app called ‘My Carer’. Without carers the healthcare system would collapse we must see them supported in all areas

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Helen Hassell @helenhassell.bsky.social · 02/07/2025

Honest discussion between @rachel-p.bsky.social and Jim Mackey in @patients-association.org.uk webinar. Curiosity is key. Working in a meaningful way with patients

White lady on left of screen and white man on right of screen

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Think Local Act Personal @tlap.bsky.social · 30/06/2025

It's #CoProWeek25 ❗ This year’s theme is Innovation through Co-production. A reminder that when people with lived experience shape solutions, we get innovation that works. Looking forward to the activities this week as we continue to work towards people being at the heart of care and support.

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Helen Hassell @helenhassell.bsky.social · 14/06/2025

Really interesting to read this

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The King's Fund @thekingsfund.bsky.social · 12/06/2025

Unpaid carers contribute the equivalent of four million paid care workers to the social care system. Without them, the system would collapse. But over the past 10 years, the number of carers receiving support has decreased – find out more in Social Care 360: buff.ly/BOSpLAG

buff.ly

Social Care 360: Workforce And Carers | The King's Fund

What's happening to staff vacancy rates and pay in the adult social care sector?

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NHS Confederation (now known as The NHS Alliance) @nhsconfed.org · 12/06/2025

At #NHSConfedExpo today, Victor Adebowale explored the complex relationship between the NHS and adult social care, highlighting the urgent need for collaboration to enhance care delivery.

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Helen Hassell @helenhassell.bsky.social · 16/05/2025

youtu.be/xVWJhlTw2oU?... Fab new video coproduced in Nottingham/shire to support person centred care using a one page profile

youtu.be

What to include in an ABOUT ME

YouTube video by NHS Nottingham and Nottinghamshire

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Bild @bild.org.uk · 08/05/2025

The refreshed Good Lives Framework shared by @learningdiseng.bsky.social lays out what people with learning disabilities say they want and need to live well. Read the updated framework and easy read version here: www.learningdisabilityengland.org.uk/the-framework/...

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Helen Hassell @helenhassell.bsky.social · 10/05/2025

Amazing to see in the blueprint for ICBs that working fully with people and communities is vital. Really pleasantly surprised to read the document and see how often coproduction and codesign feature. Hopefully the ICBs will develop plans that reflect this @jacoblant.bsky.social @rachel-p.bsky.social

Screenshot from the ICB blueprint from NHSE outlining user involvement and codesign as a key enabler

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Helen Hassell @helenhassell.bsky.social · 10/05/2025

Spontaneous trip to the beach was so good for us all. Finished off with chips overlooking the sea

Man in wheelchair holding a white cockapoo dog. 3rd wheel attachment on the wheelchair. Taken at the beach with sea in the background

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Helen Buckingham @hbuckingham.bsky.social · 29/04/2025

Amongst many issues with this whole process is the point that there are no perfect footprints for NHS organisations. We do not live our lives in neat boxes, and wherever a boundary is put there will be cross border issues. We'd make so much more progress if we could pick a structure and stick to it.

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Helen Buckingham @hbuckingham.bsky.social · 15/04/2025

And maybe because so often social care is seen as an adjunct to the NHS, something to get frail older people out of hospital, rather than as it should be, the support which enables people - including those frail older people - to thrive in their community.

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Helen Hassell @helenhassell.bsky.social · 31/03/2025

189.6 #NHS1000miles this month. Spring has arrived and birdsong all around. So much to be thankful for in our troubled world @kathevans2.bsky.social @firogers3.bsky.social

Photo collage. Top left bright yellow daffodils. Top right pale yellow daffodils in foreground with trees and house in background. Middle, white blossom. Bottom left red blossom. Bottom right pale pink blossom

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Dr Habib Naqvi MBE @drhnaqvi.bsky.social · 30/03/2025

Eid Mubarak to those celebrating today and over the coming days. A time for celebration and for reflection. A time to remember the vulnerable and marginalised - those suffering in conflicts and from natural disasters.

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Helen Hassell @helenhassell.bsky.social · 25/03/2025

A really good reminder to keep it simple

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Create the Ripple @createtheripple.bsky.social · 20/03/2025

“Be an encourager. The world has plenty of critics already.” Dave Willis The world doesn’t need more people pointing out what’s wrong - it wants even more people lifting others up. Use your own light to brighten other’s path! 🧡 #kindness #positivity Picture by Joyfulsmolthings

Blowing out someone else’s candle doesn’t make your shine any brighter. Picture of a candle with a flame burning green background black writing.. picture by joyfulsmolthings

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Cathy Dean @cathypsych.bsky.social · 19/03/2025

Every #unpaidcarer needs to contact their MP and tell them exactly what will happen to them and the person they look after if these changes go ahead.

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Helen Hassell @helenhassell.bsky.social · 19/03/2025

This is really concerning.We already save the government the same as the NHS budget for the year. Not only us but the people we care for are likely to come to harm as we juggle all those balls that no one seems to recognise. @jacoblant.bsky.social @neilgchurchill.bsky.social @firogers3.bsky.social

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Fiona Rogers QN @firogers3.bsky.social · 16/03/2025

😊 32 #NHS1000miles inc swimming twice but this week is all about #Parkrun From turning up & going home 6 yrs ago feeling I didn’t fit in .. fast forward to Sat & completing no 25 & an advocate #Parkrun is for everyone walk, jog or run 😊 @kathevans2.bsky.social @smithjax.bsky.social #loveparkrun

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Patients Association @patients-association.org.uk · 13/03/2025

"The Government must ensure this transition delivers tangible improvements and doesn't divert attention from urgent priorities like reducing waiting times and improving access to primary care" @rachel-p.bsky.social Read our full statement: buff.ly/2kON0DM

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Helen Hassell @helenhassell.bsky.social · 13/03/2025

Feeling concerned abt news 4 NHSE & ICBs.50% reductions will cause great anxiety 4staff. Difficult to 👀 how partnerships with people & communities & coproduction will happen under these monumental changes. Hope Wes Streeting remembers importance of working together with lived & learned experience

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Helen Hassell @helenhassell.bsky.social · 09/03/2025

37.5 #NHS1000miles this week. Gorgeous daffodils on my walk today. Have a fabulous week everyone @firogers3.bsky.social @kathevans2.bsky.social

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Graham Martin @instagraham.bsky.social · 07/03/2025

Striking from the #ntsummit session on Continuing Health Care is the amount of 'lived' experience in the room - and quite how complex people with atypical expertise in the intracicies of health and care funding have found it. Even without data, one suspects inequities of uptake are huge.

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Nuffield Trust @nuffieldtrust.org.uk · 03/03/2025

At the heart of #NHS Continuing Healthcare services are people faced with a daunting process at an intensely challenging time. @julietbou.bsky.social, Rachel Hutchings, @jessmcp.bsky.social & @drjanetownson.bsky.social will shine a light on CHC at our #NTSummit. Watch here: buff.ly/3EMgXuR

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Sibs @sibs.org.uk · 03/03/2025

Free art sessions for young siblings of disabled children, to celebrate #NationalSiblingsDay2025 Join us online on Saturday 12th April for squishy making! 11-17 age group still has places (Ages 4-10 session now fully booked) www.sibs.org.uk/sibs-worksho...

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Helen Hassell @helenhassell.bsky.social · 03/03/2025

For those needing a joyous picture, here's my niece loving life! I need to be more free and childlike sometimes ❤️

Little girl on a Tigger rocker. Leaning back with both legs off the floor and out in front of her. Clearly loving it

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National Voices @nationalvoices.bsky.social · 03/03/2025

We'd like to congratulate Dr Penny Dash on her appointment as the new Chair of NHS England - we are looking forward to working with her. www.gov.uk/government/n...

gov.uk

Dr Penelope Dash confirmed as new chair of NHS England

Dr Penelope Dash has been appointed by the government as the next chair of NHS England.

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Kath Evans @kathevans2.bsky.social · 02/03/2025

Looking forward to catching up on #NHS1000miles posts! Thank you for lighting up social media with positivity 😉💫 Mainly walk/commuting for me with ParkRun & a lovely walk around Panshanger park today enjoying snowdrops & daffodils 🌼 🏴󠁧󠁢󠁷󠁬󠁳󠁿

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Fiona Rogers QN @firogers3.bsky.social · 02/03/2025

Reaching out hoping to connect #NHS1000miles community here as this is where now posting. An active week 9 with 25miles and fun amongst snowdrops Fountains Abbey #ParkRun, HIIT class, swimming & family fun 😊 @kathevans2.bsky.social @smithjax.bsky.social @tonywarne.bsky.social

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Helen Hassell @helenhassell.bsky.social · 19/02/2025

I believe personalised care is far from business as usual and should be a key component of the 10 year plan. Working with people and communities and the VCSE where the solutions are, is the only way the NHS should be working but there needs to be resources available

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Jacob Lant @jacoblant.bsky.social · 19/02/2025

The Health and Wellbeing Alliance (funded by DHSC @england.nhs.uk @ukhsa.bsky.social) is an essential platform for some of our most marginalised communities to have their say on national policy making. Proves people aren’t “hard to reach” when you work with them, on topics that matter to them.

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Helen Hassell @helenhassell.bsky.social · 19/02/2025

This is great. Please circulate widely

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Neil Churchill @neilgchurchill.bsky.social · 18/02/2025

Refreshed Experience of Care Improvement Framework now live, reflecting new priorities. Includes focus on learning from people who do not use services as expected, building on Trusts' efforts to understand and report actual vs expected access. www.england.nhs.uk/publication/...

england.nhs.uk

NHS England » Experience of care improvement framework

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Jacob Lant @jacoblant.bsky.social · 12/02/2025

So proud of my team and all our @nationalvoices.bsky.social lived experience partners who helped bring this all together. And thanks Helen for taking part in the launch event too. So impressed we had over 400 delegates! :) Friends, colleagues, stakeholders read below … you have been dared.

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Helen Hassell @helenhassell.bsky.social · 12/02/2025

Live now! For all ICS leads, vcse and communities, this is a fantastic framework to work together and start doing the work rather than talk or 'engage' This has been codesigned in a collaborative approach with wide range of stakeholders. I dare you to take a look! @jacoblant.bsky.social

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Helen Hassell @helenhassell.bsky.social · 12/02/2025

Carol Hill from @nhsconfed.org shares her thoughts on how frameworks can link together to reduce health inequalities @nationalvoices.bsky.social

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Helen Hassell @helenhassell.bsky.social · 12/02/2025

Bola Owalabi says that there are 3 key shifts needed to tackle health inequality.. using data, appreciative enquiry and policy to practice. She talked about strength in people and communities using co-production to solve issues and drive improvement @nationalvoices.bsky.social

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Helen Hassell @helenhassell.bsky.social · 12/02/2025

Really looking forward to the launch of this framework. Delighted to work alongside other lived experience partners with @nationalvoices.bsky.social to take this from concept to reality. A real opportunity to 'do' something about health inequality rather than just 'talk' about them

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National Voices @nationalvoices.bsky.social · 11/02/2025

Tomorrow, 1:30pm 📆 CQC, in partnership with National Voices and @pointofcarefdn.bsky.social will be publishing a self assessment and improvement framework for ICSs* to address inequalities through engagement with people and communities Join us for the launch event 👇 events.zoom.us/ev/Agp7ki6bh...

events.zoom.us

ICS health inequalities assessment framework launch event

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Helen Hassell @helenhassell.bsky.social · 09/02/2025

32 #NHS1000miles this week in some gloomy weather. Super cold on Thursday morning and no heating either! Looking forward to a brighter week hopefully @kathevans2.bsky.social

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Helen Hassell @helenhassell.bsky.social · 04/02/2025

Great presentation from Debbie Draper from Notts ICB today. She looked at findings from the personalised care institute It is a buzzword in my experience and is being thought of as business as usual. Reality is that there's loads more to be done.

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