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Heidi La Paglia

@heidilapaglia.bsky.social
106 followers 97 following 105 posts

Autistic, disabled lived X consultant. Unapologetic rights activist. Feminist. Board member. Mum. Based in Lutruwita.

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Heidi La Paglia @heidilapaglia.bsky.social · 20/10/2025
[1/3] Been a bit quiet on here lately — but a lot’s been happening behind the scenes. Today I’m speaking at the Parliamentary Thriving Kids hearing on behalf of @everyaustcounts.bsky.social , alongside Nick Avery (1:45–2:30). 🎥 Watch: www.youtube.com/watch?app=de...
youtube.com
House Standing Committee on Health, Aged Care and Disability | Melbourne, VIC | 20/10/2025
YouTube video by Australian Parliament House Streaming Portal
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Heidi La Paglia @heidilapaglia.bsky.social · 06/10/2025
On #Oct27 I’ll be speaking at #ParliamentHouse, #Canberra for #StopTheCuts #MakeTheNDIS #Safe #Fair & #Forever. #Disabled people, families & allies are saying: #EnoughIsEnough. We deserve an #NDIS for all of us — not one that cherry-picks who gets rights. #NDIS #StopTheCuts #DisabilityRights
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Heidi La Paglia @heidilapaglia.bsky.social · 25/09/2025
I’ve not published a #LinkedIn article before, but #misogyny in how #autism is talked about — here & globally — needs air time. 👉 From Trump to Thriving Kids: Misogyny, Autism & the Politics of Blame www.linkedin.com/pulse/from-t... #DisabilityRights #GenderEquality #NDIS #HumanRights
linkedin.com
From Trump to Thriving Kids: Misogyny, Autism, and the Politics of Blame
When Donald Trump stood at a podium last week and claimed that autism is caused by mothers taking Panadol in pregnancy, the reaction from many Australians was disbelief (May, 2025). How could a politi...
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Heidi La Paglia @heidilapaglia.bsky.social · 23/09/2025
I’m quoted in this #ABC piece on #Trump’s #autism whack claims. “We’re framed as a problem to be fixed, instead of people who need support to be included.” Grateful ABC gave #ActuallyAutistic people a voice. 🔗 www.abc.net.au/news/2025-09...
abc.net.au
The 'terrifying' notion underneath Trump's unproven autism claims
The Trump administration's rhetoric only adds to the noise around autism and will make it harder for the community to feel understood and accepted, write Nas Campanella and Evan Young.
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Heidi La Paglia @heidilapaglia.bsky.social · 23/09/2025
#Trump says he’s “found the answer to #autism” — blaming women for taking #Tylenol in #pregnancy. 🙄 Same old #misogynist BS!! Autism doesn’t need a cure — #autistic kids & mums need real supports and #HumanRights. What a waste of airtime.
media.tenor.com
a man with a towel wrapped around his head is asking if we just not
Alt: GIF of David Rose from schitt's creek with a towel wrapped around his head. Text reads; "Can We Just Not?"
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Heidi La Paglia @heidilapaglia.bsky.social · 16/09/2025
Grateful to contribute to the Spring 2025 #CanberraDisabilityReview with @sarahlangston.bsky.social from #ANPA. We unpack the $2B stripped from the NDIS & the risks of block programs. Rights, not retreat. 🔗 advocacyforinclusion.org/cdr/ Starts pg 18. #NDIS #DisabilityRights
advocacyforinclusion.org
» Canberra Disability Review
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Heidi La Paglia @heidilapaglia.bsky.social · 27/08/2025
1/5 I was interviewed by @9news.bsky.social about the @ausgov.bsky.social plan to push kids with so-called “mild” or “moderate” #Autism off the #NDIS into the new #ThrivingKids program.
9news.com.au
'A betrayal of our children': NDIS autism changes slammed by parents, expert
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Sirius Star 🍉 🍉 🍉 @siriusstar3.bsky.social · 21/08/2025
Autistic children are not driving #NDIS costs. What is driving costs is the explosion of administrative churn, endless reassessments, & ballooning legal expenses [3] as the NDIA fights & polices participants through tribunals & courts. Billions are wasted every year. #Auspol #Autism
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Cat @kelpieunicorns.bsky.social · 21/08/2025
The sustainability maths behind this foundational support fantasy just isn't adding up. #NDIS #Auspol #Autistic #Disability
linkedin.com
Labor's $2bil fantasy: Socialising autistic kids into thriving neurotypical adults
I wrote most of this piece in early 2024, in reaction to rollout of the Inklings program. Because I know how getting “socialised” into meeting neurotypical standards - in schools, or otherwise - works...
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Heidi La Paglia @heidilapaglia.bsky.social · 21/08/2025
1/ The govt’s Thriving Kids plan risks dismantling what makes the NDIS work. RAEN and ANPA are leading a campaign against these harmful reforms ⬇️
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Heidi La Paglia @heidilapaglia.bsky.social · 19/08/2025
[1/6] The federal Economic Reform Roundtable starts today. According to the @abc-news.bsky.social, the #NDIS is on the chopping block, with cost-cutting high on the agenda. See: www.abc.net.au/news/2025-08... yet, not a single #disability advocate has been invited. #Zero #NothingAboutUsWithoutUs
abc.net.au
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Heidi La Paglia @heidilapaglia.bsky.social · 28/07/2025
1/2 Just filmed my promo for the 5th #WorldConferenceOfWomen’sShelters #5WCWS 💜 I’ll be doing a keynote on #GBV against #disabled women & #gender-diverse people & the urgent need for inclusive, rights-based responses. #5WCWS #DisabilityJustice
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Heidi La Paglia @heidilapaglia.bsky.social · 28/07/2025
1/7 I've een quiet on here lately (and in general)... life’s been full. I've barely looked up Between running #Neurodiversity training, #advisory meetings, a quick Melbourne trip that was well overdue & a state election campaign (!), I’ve also been deep in #NDIS policy submissions 👇
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Heidi La Paglia @heidilapaglia.bsky.social · 12/07/2025
Relatable!
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everyaustcounts.bsky.social @everyaustcounts.bsky.social · 02/07/2025
New Section 10 rules are already shaping what the NDIS funds. Some participants are seeing changes to supports or funding decisions. We’re preparing a submission to government and want to hear your experience. Survey: forms.office.com/r/N8H4hxGdmR #ProtectOurNDIS #EveryAustralianCounts
A sharpened red pencil ticks a checkbox on a white background. The border is red and textured. The Every Australian Counts logo is at the top. The text reads: “What’s Your Experience of the Section 10 Rules?” with “Section 10” in red and the rest in black.
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everyaustcounts.bsky.social @everyaustcounts.bsky.social · 04/07/2025
Help power the campaign for a fairer NDIS. Every Australian Counts is community-led and community-funded. Donations over $2 are tax deductible. Donate now: everyaustraliancounts.com.au/donate/ #EveryAustralianCounts #ProtectOurNDIS
A white and red graphic with the EAC logo at the top. It encourages people to support the campaign for a fairer NDIS. There is a red donate button with a hand cursor icon clicking on it. Text at the bottom says: “everyaustraliancounts.com.au/donate. Donations over $2 are tax deductible.”
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Heidi La Paglia @heidilapaglia.bsky.social · 07/07/2025
🖤💛❤️💚💙🤍 Happy NAIDOC Week 2025! This year marks 50 years of #NAIDOC, a time to honour the strength, culture & resistance of First Nations peoples. #NAIDOCWeek2025 #50YearsofNAIDOC
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Heidi La Paglia @heidilapaglia.bsky.social · 05/07/2025
1/3 Deeply disturbed by today’s @Satpaper report: the #NDIA CEO personally intervened to remove a #disabled person from the #NDIS after they spoke on talkback radio. No due process. Just 7 days to respond. It took 10 months to get support back. 🔗 bit.ly/3XDzdJD
bit.ly
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Heidi La Paglia @heidilapaglia.bsky.social · 01/07/2025
1/5 It’s Disability Pride Month. But this year, pride feels harder than it should. NDIS reform is being sold as a “reset” — but for many of us, it’s a slow narrowing of who is seen as deserving of support. #DisabilityPrideMonth #NDISReform
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Heidi La Paglia @heidilapaglia.bsky.social · 30/06/2025
(1/7) A few people have asked for my thoughts on the #GrattanInstitute #NDIS report that dropped today. While I haven’t read every page, here are some initial concerns based on what I’ve seen. #NDIS #DisabilityRights #NothingAboutUsWithoutUs
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Heidi La Paglia @heidilapaglia.bsky.social · 14/05/2025
(1/2) And here it is. The NDIS has officially been moved into the Department of Health, Disability and Ageing. www.pmc.gov.au/resources/aa... #NDIS #DisabilityRights #NothingAboutUsWithoutUs
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Heidi La Paglia @heidilapaglia.bsky.social · 13/05/2025
Welcoming Jenny McAllister & Mark Butler MP to NDIS & disability roles. Broader oversight beyond the NDIS is vital—most disabled people aren’t on the Scheme. But PM’s comments on moving NDIS into health portfolio are deeply concerning. www.pm.gov.au/media/press-... #NDIS #NothingAboutUsWithoutUs
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Heidi La Paglia @heidilapaglia.bsky.social · 02/04/2025
(1/4) #WorldAutismDay 2025: Advancing #Neurodiversity & the #UN #SDGs Since 2007, World Autism Day has been a reminder that awareness isn’t enough. Real inclusion is dismantling systemic barriers & ensuring #Autistic people are actively shaping the policies that affect us.
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Heidi La Paglia @heidilapaglia.bsky.social · 20/03/2025
(1/4) Today is #NationalCloseTheGapDay—a time to act on the inequities #FirstNations people face in every setting. It’s also #NeurodiversityCelebration Week, making it critical to highlight the experiences of #FirstNations neurodivergent and #disabled people. #CloseTheGap #NeurodiversityWeek
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Heidi La Paglia @heidilapaglia.bsky.social · 20/03/2025
Newly out! A new Reasonable & Necessary podcast episode with #NDISCommission leaders Louise Glanville & Natalie Wade. They dive deep into the future of the #NDIS #Commission, the upcoming changes to NDIS regulation and more. 🎧 Listen now: www.youtube.com/watch?v=H3qS...
youtube.com
Exclusive first interview with NDIS Commissioners Louise Glanville and Natalie Wade
YouTube video by Summer Foundation
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Heidi La Paglia @heidilapaglia.bsky.social · 18/03/2025
(1/2) On day 2 of #ND week, I had the opportunity to deliver an adapted version of AFDO's #Disability training to #ToyLibrariesAustralia's Disability Team Through DSS ILC funding, TLA is helping toy libraries better support families with disabilities. #DisabilityAccess #ToyLibrariesAustralia
toylibraries.org.au
DAIS program project sites announced
Please join us in our excitement announcing the nine toy libraries who have been chosen for the DAIS project.
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Kelly @broadwaybabyto.bsky.social · 17/03/2025
Can we please stop telling disabled people to “just leave” the US? Generally speaking it takes money, privilege & good health to immigrate to another country. It’s not an option for most disabled people. We need solutions to protect as many people who are trapped in the fascist regime as possible
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Heidi La Paglia @heidilapaglia.bsky.social · 17/03/2025
(1/2) It's #Neurodiversity Celebration Week! 🎉 A time to recognise, uplift, and advocate for #neurodivergent people. But inclusion isn’t just about celebration—it’s about changing systems. What are you doing this week? #NeurodiversityWeek
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Kelly @broadwaybabyto.bsky.social · 08/03/2025
This International Women’s Day I’m saying Merci Gisele. Her unwavering commitment to ensuring rape & abuse victims know that the shame is NOT theirs has inspired countless women to come forward & share their own stories. Abuse, neglect & medical misogyny are serious issues we must address #IWD2025
disabledginger.com
Gisele Pelicot, Medical Misogyny and How Disabled People Face Increased Risk of Abuse
Most of us have heard Gisele's story. It's a reminder that even men you trust can harm you. Did you know that she went to her doctors for help? A look at how medical misogyny contributed to her abuse.
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Heidi La Paglia @heidilapaglia.bsky.social · 07/03/2025
1/3 This IWD, I don’t really feel like celebrating. While some toast to “progress” at morning teas and breakfasts, women around the world are still fighting for basic rights. From taking away WFH, to denying women the most basic rights in #Palestine&#Ukraine, its not the time to grateful #IWD2025
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Heidi La Paglia @heidilapaglia.bsky.social · 06/03/2025
Thinking of everyone in #QLD and northern #NSW as severe weather rolls in. Too often, #disabled people in particular, are left behind in emergencies—power loss cuts off vital equipment, and evacuations aren’t always accessible. Inclusion isn’t optional—it’s life-saving. #StaySafe all! #CycloneAlfred
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Heidi La Paglia @heidilapaglia.bsky.social · 06/03/2025
Glad to see this ep of the #ReasonableAndNecessary podcast out! As a fellow #EAC Committee member, I know securing #NDIS #Minister Amanda Rishworth MP is thanks to Dr George Taleporos’ tireless advocacy. Thanks, George, for asking the tough questions! Watch here: youtu.be/JrNaYm9E8AY?...
youtu.be
Exclusive interview with the Minister for the NDIS Amanda Rishworth | Reasonable & Necessary
YouTube video by Summer Foundation
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Julia Métraux @juliametraux.bsky.social · 01/03/2025
Today is Disabled Day of Mourning, to honor disabled people killed by caregivers. Fellow journalists, when we write about these situations, we need to clearly call it murder, and not through a"poor caregiver" lens.
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Kelly @broadwaybabyto.bsky.social · 01/03/2025
The Covid pandemic accelerated this. It supercharged the idea that there are entire groups of people who are not worthy of protection. Not worthy of life. Acceptable losses. If we don’t start acknowledging that and changing the narrative, the hate and division will only continue to grow.
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Heidi La Paglia @heidilapaglia.bsky.social · 26/02/2025
(1/3) In other, very quiet news, the National Roadmap to Improve the Health and Mental Health of Autistic People 2025–2035 launched yesterday. See: www.health.gov.au/resources/pu...
health.gov.au
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Gives No Spoons @givesnospoons.bsky.social · 23/02/2025
#NDIS How it's going. NDIA: Here's a plan that doesn't cover everything that you need. Me: Ok, I'll work creatively to find cost effective solutions to get the most out of my funds. NDIS changes 2024: You can't have anything that's outside the box! That's cheating. We'll fine you 👮. 1/2
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Heidi La Paglia @heidilapaglia.bsky.social · 26/02/2025
I wrote for #EAC about Autistic kids being cut from the #NDIS before #FS exist. “We don’t ‘grow out’ of being Autistic. Our needs don’t disappear because a bureaucratic process says they should.” everyaustraliancounts.com.au/opinion/foundational-supports-a-new-lifeboat-or-a-disguise-to-capsize-us
everyaustraliancounts.com.au
Foundational Supports: A new lifeboat or a disguise to capsize us? - Every Australian Counts
Every Australian Counts is here to make sure the National Disability Insurance Scheme (NDIS) is delivered as promised and is the best it can be. Find out how the NDIS process works and hear real stori...
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theanpa.bsky.social @theanpa.bsky.social · 11/02/2025
Federal policy makers truly do not grasp the exhaustion #Neurodivergent mothers with their own Disability needs experience, just trying to survive/ #parent their Neurodivergent chn. We see zero knowledge of this reflected in the approach #DSS takes to #policy with our families. #Disability #AusPol
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Asher Wolf @asherwolf.bsky.social · 05/02/2025
Re: non-NDIS Foundation supports due to start later this year: what supports? There’s no public signs of program development and no workforce recruitment at this point
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Kelly @broadwaybabyto.bsky.social · 06/02/2025
Living with disabilities is a masterclass in how to handle gaslighting You get it from everyone. Doctors, family, friends, bosses, colleagues A neverending litany of people telling you “it can’t be THAT bad” or “you should just do this” We are the experts in our bodies. Respect us. Listen to us.
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theanpa.bsky.social @theanpa.bsky.social · 05/02/2025
Just a PSA, can everyone please be more disciplined in the language used to describe #Trump? Ableist: stupid, retard, dumb, idiot, madman, nutjob Non-ableist: tyrant, despot, fuck-knuckle, dickhead, clown. Thank you. Apologies to our clown followers. 🤡 #AusPol #USPol #FuckTrump
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Heidi La Paglia @heidilapaglia.bsky.social · 05/02/2025
Led by Every Australian Counts, 254 disability orgs are calling on Minister Rishworth to stop #NDIS rushed reforms. We need genuine co-design & a phased approach with testing before rollout. Sign: everyaustraliancounts.com.au/in-the-media... #NDIS #DisabilityRights #CoDesign
everyaustraliancounts.com.au
Media Release: Take the Time for Codesign: 254 Organisations Demand More Time to Codesign NDIS Reforms - Every Australian Counts
Every Australian Counts is here to make sure the National Disability Insurance Scheme (NDIS) is delivered as promised and is the best it can be. Find out how the NDIS process works and hear real stori...
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Heidi La Paglia @heidilapaglia.bsky.social · 03/02/2025
(1/3) At risk of promoting Sky News (FYI don't follow it), I want to comment on an interview the new NDIS Minister did on the w/e re. #FoundationalSupports. While we all know #FS are needed, the new minister appears to be continuing the harmful rhetoric re. using FS to prevent NDIS Access.
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Tania @tania007.bsky.social · 24/01/2025
“Those attacking the NDIS for supposedly rampant levels of fraud or its impact on the private sector should be more honest about why they really oppose disability spending: because they don’t want to pay the higher taxes that a broad-based care scheme requires.” Absofuckinglutely!
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Ben Eltham @handle.invalid · 24/01/2025
I’ve got a piece up at Crikey today on the NDIS. There’s been a concerted campaign to attack the NDIS in recent months, and it’s been massively dishonest www.crikey.com.au/2025/01/24/b...
crikey.com.au
No, the NDIS is not ‘strangling’ the economy
Accusations against the NDIS are fuelled by a worldview that sees supporting the most vulnerable in our community as an unaffordable cost, while tactically ignoring the benefits.
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Heidi La Paglia @heidilapaglia.bsky.social · 21/01/2025
Wrote a blog on the new #NationalAutismStrategy through a #gendered lens. While critiques are valid, I see some promise for Autistic women & girls I thought worth raising. Have a read at: australianwomenshealth.org/2025/01/21/n... #NAS #ActuallyAutistic #NDIS
australianwomenshealth.org
New National Autism Strategy – a life boat for Autistic women and girls - Australian Women's Health Alliance
This week, Australia’s first National Autism Strategy (NAS) was launched, along with its First Action Plan; and it’s a milestone worth celebrating.
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Heidi La Paglia @heidilapaglia.bsky.social · 16/01/2025
The Hon. AmandaRishworth is the new Minister for the NDIS, now overseeing both disability policy & NDIS. While this could create alignment, past ministerial changes suggest it may not lead to the reform disabled people need. Will be watching closely. Read more: teamdsc.com.au/resources/br...
teamdsc.com.au
Breaking: New NDIS Minister - Team DSC
Amanda Rishworth to replace Bill Shorten as NDIS Minister.
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Heidi La Paglia @heidilapaglia.bsky.social · 16/01/2025
Yesterday, I got home after the #NationalAutismStrategy launch, culminating years of advocacy & 2 years work on the NAS Council. But this is far from the end. I didn’t do 2 years work for the NAS to gather dust. I’ll be working to hold the #Gov accountable. Join me! #DisabilityRights
Photo of National Autism Strategy (NAS) Oversight Council members at the launch of the NAS.  From left to right, photo shows: Andy Shim, Jenny Karavalos, Clare Gibellini, Sebastian Charl Fourie, Heidi La Paglia Reid (me), Josie Barbaro, Victoria GottliebsenPhoto of a copy of the National Autism Strategy first action plan sitting on my lap at the launch. The front cover shows white heading text: ‘National Autism Strategy 2025-2031. First Action Plan 2025-2026. ‘ against a purple background with a colourful line below it. Below the heading is a photo of two people having coffee outside at a table, smiling. In the top left hand corner is the Australian Government logo in white Sitting over the bottom of the First Action Plan booklet is a piece of white paper with black and purple text which reads: ‘RESERVED. Heidi La Paglia Reid.’
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Greg S. @brismarsci.bsky.social · 10/01/2025
NDIS/NDIA seems to be morphing into a new #RoboDebt, with automated form letters & falsely recovering $$ from participants. Kicking people off the scheme while acknowledging there are no alternatives in place yet (or ever?) is pathetic & cruel. www.thesaturdaypaper.com.au/share/19960/...
thesaturdaypaper.com.au
Exclusive: Children targeted in NDIS crackdown
Despite claims the government’s reform of the National Disability Insurance Scheme is focused on fraud, a third of the savings will come from pushing children off the scheme.
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