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International Heart Spasms Alliance

@heartspasms.bsky.social
97 followers 201 following 28 posts

We are a group of patients working with patients & clinicians. We aim to educate, inform & enlighten on the topic of non obstructive heart disease. #ANOCA #INOCA #MINOCA Based in Australia, USA & UK www.internationalheartspasmsallianc…

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INOCA 🫀 Insight & News @inocabelgium.bsky.social · 08/02/2026
#ANOCA 🫀 #Endotypes #Prevalence ❗ #Diagnosis #Treatment #CAS #VSA #CMD #MVA ❤️‍🩹 #EndothelialDysfunction #MixedEndotypes #CoronaryFUNCTIONtesting #Adenosine #Acetylcholine 2/2
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The BMJ @bmj.com · 30/01/2026
Clinical Review: Evaluation and management of chest pain from cardiovascular causes in female patients www.bmj.com/content/392/...
Summary of chest pain from cardiovascular causes in female patients. ACE=angiotensin converting enzyme; AI=artificial intelligence; CTA=computed tomography angiography; DAPT=dual antiplatelet therapy; ECG=electrocardiography; hs-cTn=high sensitivity cardiac troponins; IHD=ischemic heart disease; INOCA=ischemic non-obstructive coronary artery disease; MINOCA=myocardial infarction with non-obstructive coronary arteries; PCI=percutaneous coronary intervention
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INOCA 🫀 Insight & News @inocabelgium.bsky.social · 08/12/2025
‘The monthly curse’: ‘De maandelijkse vloek’: menstrual-associated coronary artery vasospasm in a #premenopausal woman— a case report #catamenial #coronary #vasospasm🫀 #perimenopause #HRT #estrogen #refractory #angina #ischemia #ANOCA #INOCA #MINOCA 🫀 #NOCAD academic.oup.com/ehjcr/articl...
academic.oup.com
‘The monthly curse’: menstrual-associated coronary artery vasospasm in a premenopausal woman—a case report
AbstractBackground. Catamenial coronary vasospasm has recently been recognized as a refractory form of vasospastic angina, characterized by recurrent episo
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International Heart Spasms Alliance @heartspasms.bsky.social · 18/09/2025
'Your Heart Speaks' ANOCA patient survey. Abstract presented at ESC congress 2025
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International Heart Spasms Alliance @heartspasms.bsky.social · 05/09/2025
'In conclusion, ANOCA progressed from the initial scepticism of the scientific community regarding its existence to the demonstration of its clinical relevance and the need for a standardized diagnostic algorithm (as recommended in current ESC Guidelines)' academic.oup.com/eurheartj/ad...
academic.oup.com
Angina with non-obstructive coronary arteries: a success story
This editorial refers to ‘Coronary function testing vs angiography alone to guide treatment of angina with non-obstructive coronary arteries: the ILIAS ANO
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International Heart Spasms Alliance @heartspasms.bsky.social · 03/07/2025
Registration is OPEN for #INOCA2025! 🗓️ 25–26 Sept | 📍 London Two days of cutting-edge insights into Coronary Microvascular Dysfunction. ✅ Live cases ✅ Patient stories ✅ Tech & trials ✅ Real-world clinical tools Register here: www.millbrook-events.co.uk/event/INOCA2...
millbrook-events.co.uk
INOCA 2025. Online registration by Cvent
INOCA 2025 | Millbrook Medical Conferences
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Sarah Brown @sarahfbrown.bsky.social · 03/07/2025
academic.oup.com/eurheartj/ad...
academic.oup.com
Refractory angina: mechanisms and stratified treatment in obstructive and non-obstructive chronic myocardial ischaemic syndromes
Abstract. The diagnosis of refractory angina has conventionally been limited to patients with angina and ischaemia secondary to obstructive atherosclerotic
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Ordo Fraterna Fibonacci @ordofibonacci.bsky.social · 08/05/2025
The Role of Myocardial Bridging in Anoca Jennifer A. Tremmel, MD, MS Emory Cardiology youtu.be/0DgL9GqHv8o?...
youtu.be
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Gabriela Melo Ghisi @gabrielamghisi.bsky.social · 14/05/2025
Last month, I had the pleasure of welcoming Dr. Dinah van Schalkwijk and Mariëlle Hartzema from the Netherlands to our Cardiac Rehabilitation Program. They’re doing important work on women-focused rehab, especially for patients with ANOCA. Excited for our continued collaboration!
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International Heart Spasms Alliance @heartspasms.bsky.social · 13/05/2025
Thank you to everyone who passed on the details of our survey. CONGRATULATIONS to all who took Survey 1! You are, in part, going to the ESC (European Society of Cardiology) Congress with Sarena La on August 29th in Madrid. surveys.adelaide.edu.au/redcap/surve...
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International Heart Spasms Alliance @heartspasms.bsky.social · 09/05/2025
Congratulation to Her Heart Australia on their 10year Anniversary Event in Melbourne. Our Co Founder Cindy McCall was honored to be on a panel sharing her experiences, creating awareness of what heart disease truly looks like.
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International Heart Spasms Alliance @heartspasms.bsky.social · 06/05/2025
Happy Nurse’s Week! Thank you to all the nurses who advocate for patients and watch out for them in vulnerable moments! They are the backbone of our care.
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Lauren Kriger Groner @laurengroner.bsky.social · 28/04/2025
Awesome presentation about #SCAD at #ARRS25 🔑 points: 🫀Difficult dx but not rare— 40% of MI in 🚺 <50 🫀3 types (top L photo) 🫀A/W FMD + vasculopathy 🫀#yescct helpful for initial eval, work up new dx, clarify susp. dx 🫀#whycmr well-established for MINOCA/INOCA 🫀🔗 to AHA guidelines in reply
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 29/04/2025
My podcast interview with Golda Arthur on "OVERLOOKED: Women's Health Can't Wait": We cover implicit bias in cardiology, male-centric health care and why in 2025, we're still seeing women's heart disease "UNDER-researched, UNDER-diagnosed and UNDER-treated overlooked.simplecast.com/episodes/sur...
overlooked.simplecast.com
Surviving a ‘widowmaker’ heart attack, with Carolyn Thomas | Overlooked: Women's Health Can't Wait
Carolyn Thomas was having a heart attack when an emergency room doctor diagnosed her with acid reflux and sent her home.
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 27/04/2025
In medicine, the opposite of kindness is not cruelty. It's dismissal. "I cannot accurately express in mere words how demoralizing being abandoned by the experts you have turned to for urgent medical help can be..." myheartsisters.org/2025/04/27/i...
myheartsisters.org
In medicine, the opposite of kindness is not cruelty. It’s dismissal.
Six types of simple kindness in the practice of medicine can improve outcomes for patients.
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 26/04/2025
Cardiac College for (Freshly Diagnosed) Women: "I spend about one hour per year checking in with my cardiologist but like many/most heart patients, I spend 8,765 hours per year managing the day-to-day reality of cardiac symptoms/concerns/meds on my own. myheartsisters.org/2024/03/03/c...
myheartsisters.org
Cardiac College for (Freshly Diagnosed) Women: “Your heart is like a house”
The more heart patients learn about heart disease, the better we can manage the 8,765 hours per year we aren’t spending with our cardiologist. Here’s how ‘Cardiac College for Wome…
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International Heart Spasms Alliance @heartspasms.bsky.social · 26/04/2025
Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban. youtu.be/UM8ZobLBA30?... Part 2: patient perspectives from two men experiencing Coronary Vasospasm. It's not just women who live with #ANOCA Direct link: www.youtube.com/watch?v=EV44...
youtu.be
Interview on Sex Differences in Microvascular Disease Parameters with Dr. Michel Corban
YouTube video by International Heart Spasms Alliance
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 20/04/2025
Patient "stories" vs. medical "reports": The Patient Experience Library If a doctor speaks up when something goes terribly wrong at work, it’s called an incident report, but when a patient speaks up when something’s gone wrong, it’s a complaint. Words do matter." myheartsisters.org/2024/09/22/p...
myheartsisters.org
Patient “stories” vs. medical “reports”: The Patient Experience Library
“All too often, patients are the first to know when something has gone wrong with their medical treatment.”
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 20/04/2025
Just because I can lift it, doesn't mean it's not heavy. "Invisible illness: Few of us can tell just by looking at a person if they are suffering or not. Even the sickest among us can often look surprisingly "normal..." myheartsisters.org/2025/04/20/j...
myheartsisters.org
Just because I can lift it, doesn’t mean it’s not heavy
Invisible illness: Few of us can tell just by looking at a person if they are suffering or not. Even the sickest among us can often look surprisingly “normal”.
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Barbra Streisand Women's Heart Center @womensheart.bsky.social · 04/04/2025
Join us for the 19th Annual Women and Ischemic Heart Disease Symposium on Friday, April 11th — a day dedicated to advancing knowledge, research, and care in women’s heart health. 💓🧠 #Cardiology #MedicalConference #CardiologyConference #MedicalEducation cedars.cloud-cme.com/course/cours...
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Smidt Heart Institute @smidtheart.bsky.social · 29/03/2025
A packed room to see results from the largest trial in the #INOCA field, presented by Dr. Eileen Handberg. Congrats to the investigators, including Drs. Bairey Merz and @janetweimd.bsky.social of the @womensheart.bsky.social #ACC25 #cardiosky
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Eric Topol @erictopol.bsky.social · 31/03/2025
Important paper on rethinking heart disease, with a focus on atheroma and primary prevention, not just blood supply impairment (reactive, today's mode of secondary prevention) A @thelancet.bsky.social Commission www.thelancet.com/journals/lan...
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Joshua Thornsberry @thornsberryjd.bsky.social · 29/03/2025
Dr. Eileen Handberg: Women with non-obstructive disease are highly symptom burdened, use significant system resources, and need to be treated. We must drop bias, recognize their pain, and ensure proper follow-up care. There’s real room for improvement. 💙 #ACC25
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Janet Wei, MD @janetweimd.bsky.social · 31/03/2025
Invasive coronary function testing determination of #INOCA endotypes impacts medical management in patients with angina and no obstructive CAD #ACC25 @smidtheart.bsky.social @womensheart.bsky.social @drmarthagulati.bsky.social
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International Heart Spasms Alliance @heartspasms.bsky.social · 30/03/2025
WARRIOR trial results 'neutral' "Intensive medical therapy did not significantly impact the rate of serious cardiovascular events at five years in women with suspected ischemia with nonobstructive coronary arteries (INOCA)" www.acc.org/Latest-in-Ca...
acc.org
WARRIOR: Intensive Medical Therapy vs. Usual Care in Women With Suspected INOCA - American College of Cardiology
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American College of Cardiology @accintouch.bsky.social · 29/03/2025
Intensive medical therapy did not significantly impact the rate of serious CV events at five years in women w/ suspected INOCA, according to findings from WARRIOR presented during a #LBCT session at #ACC25. Learn more: bit.ly/44a7uYO #MedSky #CardioSky
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David Winchester @drdavemd.bsky.social · 29/03/2025
UF Cardiology research stalwart, Dr. Eileen Handberg presents the first late breaking trial at #ACC25, the WARRIOR trial @accintouch.bsky.social #cardiosky
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Women As One @womenasone.bsky.social · 29/03/2025
🌟 Women have been trailblazers in the fields of medicine and science, making lasting impacts that shape our world today. 🇺🇸 🇨🇦 🇵🇱 Discover the stories of some of the women physicians & scientists who changed the game! 👇🧵 #WomensHistoryMonth #WomenInMedicine #MedSky
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TCTMD @tctmd.bsky.social · 29/03/2025
#ACC25 coverage has begun! First up: API-CAT and WARRIOR. Head to TCTMD for all the details: tctmd.com/conference/a... #cardiosky
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 28/03/2025
Advancing women’s heart, brain and vascular health together: Don't miss the 5th Canadian Women's Heart Health Summit in beautiful Ottawa 🇨🇦 April 25-26: FREE virtual registration for heart patients! cwhhs.regfox.com/2025-canadia...
cwhhs.regfox.com
2025 Canadian Women's Heart Health Summit
Registration is open for the 5th Canadian Women's Heart Health Summit on April 25-26, 2025. Join us and help improve women's heart, brain, and vascular health together. Register at womensheartsumm...
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International Heart Spasms Alliance @heartspasms.bsky.social · 19/03/2025
We were privileged to be able to contribute to this consensus document of expert clinicians and patients with lived experience, setting out the case for clinical standards for multidisciplinary, patient-centred services for #ANOCA/INOCA www.internationaljournalofcardiology.com/article/S016...
internationaljournalofcardiology.com
Clinical standards in angina and non-obstructive coronary arteries: A clinician and patient consensus document
Patients with angina and non-obstructive coronary arteries (ANOCA) or myocardial ischaemia with non-obstructive coronary arteries (INOCA) comprise a relatively large subgroup within those with ischaem...
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International Heart Spasms Alliance @heartspasms.bsky.social · 17/03/2025
"Patients with ANOCA warrant more appropriate diagnostic and management pathways to improve the outcomes of these often overlooked individuals." academic.oup.com/ehjqcco/adva...
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American Heart Journal @americanheartj.bsky.social · 05/11/2023
Open Access: The coronary microvascular angina cardiovascular magnetic resonance imaging trial: Rationale and design. pubmed.ncbi.nlm.nih.gov/37657593/ #CardioSky 🫀 🩺 Cardiology
Background: Coronary microvascular dysfunction may cause myocardial ischemia with no obstructive coronary artery disease (INOCA). If functional testing is not performed INOCA may pass undetected. Stress perfusion cardiovascular MRI (CMR) quantifies myocardial blood flow (MBF) but the clinical utility of stress CMR in the management of patients with suspected angina with no obstructive coronary arteries (ANOCA) is uncertain.

Objectives: First, to undertake a diagnostic study using stress CMR in patients with ANOCA following invasive coronary angiography and, second, in a nested, double-blind, randomized, controlled trial to assess the effect of disclosure on the final diagnosis and health status in the longer term.

More here: https://pubmed.ncbi.nlm.nih.gov/37657593/Figure 1. Myocardial perfusion maps revealing normal perfusion and microvascular dysfunction.

More here: https://www.sciencedirect.com/science/article/pii/S0002870323002648?via%3Dihub#fig0001Figure 2. Study design.
Figure 3. Recruitment sites for the CorCMR trial. Three recruiting hospitals with a catchment area which covers West and Central Scotland.

More here: https://www.sciencedirect.com/science/article/pii/S0002870323002648?via%3Dihub#fig0002Figure 4. CorCMR CMR protocol.

More here: https://www.sciencedirect.com/science/article/pii/S0002870323002648?via%3Dihub#fig0004
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Women As One @womenasone.bsky.social · 11/03/2025
Did you know that since 1901, only 13 women have been awarded the Nobel Prize in Physiology or Medicine? Only 5.7% of all laureates. Get to know the trailblazing women who have advanced medical science & let's keep advocating for gender equality! 💜 #WomensHistoryMonth #MedSky
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 11/03/2025
3-year study on patients with chest pain transported by ambulance to hospital: why were EMS paramedics "significantly less likely to turn on flashing lights/sirens if a heart patient was female compared to male patients?" myheartsisters.org/2019/01/13/f...
myheartsisters.org
Fewer lights/sirens when a woman heart patient is in the ambulance
If you’re a female heart patient in the back of an ambulance, this study suggests that you are less likely to receive recommended cardiac treatments (even aspirin) compared to male patients &…
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Women As One @womenasone.bsky.social · 08/03/2025
The future of medicine is brighter and bolder because of women physicians. On this #InternationalWomensDay, we celebrate the extraordinary women in the Women As One community — a force for change, today and always. 💜 #WomenInMedicine #WomenAsOne #IWD2025 #WIC #MedSky #CardioSky
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Amy Johnston, PhD CPH @amydjohn.bsky.social · 08/03/2025
Happy #IWD2025! From advancing health and education to driving innovation and building communities, women shape our world in powerful ways every day. Let’s keep pushing for equity, respect, and opportunities for all women—because when women thrive, everyone benefits. #WomensHealthMatters
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TCTMD @tctmd.bsky.social · 27/02/2025
ICYMI: Invasive Testing Safely Diagnoses Microvascular Dysfunction in ANOCA
tctmd.com
Invasive Testing Safely Diagnoses Microvascular Dysfunction in ANOCA
Invasive Testing Safely Diagnoses Microvascular Dysfunction in ANOCA sciprian@crf.org Mon, 02/24/2025 - 16:18 Michael O'Riordan Finding the cause of angina in patients without obstructed coronaries can reassure patients and lead to tailored…
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Patricia Rodriguez-Lozano @prodriguezmd.bsky.social · 28/02/2025
Deeply grateful to @accintouch.bsky.social Honored to be part of the #ACCCTR cohort—an incredibly transformative experience now coming to an end. What better way to conclude than receiving the ACC CTR grant for ‘NO-ANOCA: Inorganic Nitrate as a Treatment for ANOCA’? @chriskramermd.bsky.social
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International Heart Spasms Alliance @heartspasms.bsky.social · 28/02/2025
@heart-sisters.bsky.social
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International Heart Spasms Alliance @heartspasms.bsky.social · 28/02/2025
MEN (and Women) this is an IMPORTANT TOPIC!! HUGE Share! It is about yhe Sex Differences in Microvascular Parameters! It IS comprehensive. Around 45 min … sooooo much important info! Make some popcorn and have a listen! m.youtube.com/watch?v=UM8Z...
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David Winchester @drdavemd.bsky.social · 24/02/2025
A combination of biomarkers yielded AUC of 0.91 for distinguishing MINOCA from Type 1 MI, would be nice to have this in a usable bedside calculator for decision making in edge cases where cath is not a great choice onlinelibrary.wiley.com/doi/full/10....
onlinelibrary.wiley.com
“A Biomarker‐Based Scoring System to Assess the Presence of Obstructive Coronary Artery Disease in Patients With Myocardial Infarction”
Comparison of diagnostic performance in detecting obstructive coronary artery disease in patients with myocardial infarction: the biomarker-based index demonstrates outstanding discrimination compare...
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Yader Sandoval @yadersandoval.bsky.social · 23/02/2025
Does a "normal” microvascular function exclude ANOCA? See value of invasive evaluation. Normal CFR but evidence of spasm w/ ACH provocation. Join us in MSP June 5-6 for The Physiology Course - FREE registration for students, residents, & fellows! Secure your spot mplsheart.org/physiology #Cardiosky
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TCTMD @tctmd.bsky.social · 24/02/2025
Invasive Testing Safely Diagnoses Microvascular Dysfunction in ANOCA
tctmd.com
Invasive Testing Safely Diagnoses Microvascular Dysfunction in ANOCA
Invasive Testing Safely Diagnoses Microvascular Dysfunction in ANOCA sciprian@crf.org Mon, 02/24/2025 - 16:18 Michael O'Riordan Finding the cause of angina in patients without obstructed coronaries can reassure patients and lead to tailored…
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International Heart Spasms Alliance @heartspasms.bsky.social · 24/02/2025
Being a chronic heart patient means many things! You must listen to your heart. Check out our patient section for support: ✅triggers and coping strategies ✅patient stories ✅creative corner where patients sharing their art or words! www.internationalheartspasmsalliance.org/patients/
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International Heart Spasms Alliance @heartspasms.bsky.social · 20/02/2025
It’s so good to have beautiful open arteries! It’s great to have a good Ejection Fraction! However, is that the whole picture? #ANOCA matters! #HFpEF matters! www.internationalheartspasmsalliance.org/rethinking-t...
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Carolyn Thomas 🇨🇦 @heart-sisters.bsky.social · 20/02/2025
"it’s rare for a medical journal to invite a heart patient (who is not a doctor or a researcher or an academic) to write an Editorial in the BMJ Open Heart journal – but look what happened here... @bmj.com "Heart FAILURE: it's time to finally change the F-word" openheart.bmj.com/content/open...
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International Heart Spasms Alliance @heartspasms.bsky.social · 19/02/2025
#ANOCA causes chest pain when the coronary arteries are normal or not significantly blocked. It's a common condition that can be difficult to diagnose. Symptoms can be chest pain, indigestion, nausea, vomiting, weakness, and fatigue as well as referred pain.
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Amy Johnston, PhD CPH @amydjohn.bsky.social · 13/02/2025
If you missed today's National #WomensHeartHealth Webinar, you can view it on YouTube! #WearRedCanada Link: www.youtube.com/watch?v=JYdn... #WomensHeartHealth #HerHeartMatters #MedSky #EpiSky
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International Heart Spasms Alliance @heartspasms.bsky.social · 14/02/2025
Today we celebrate Love! Love your ❤️ as you remember in awe all that it keeps doing! Faithfully it keeps working to deliver nourishment throughout our body. It indeed is our amazing engine! Happy Valentine's Day to our hearts 💕
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