iiinova — where your digital self keeps evolving

Reposted by Fran H

Liz Nevra A. @nlizaki.bsky.social · 28/08/2025

The same post exists on FB, Twitter, Instagram, B$ky, and TikTok, so please consider boosting there so we can get out of the echo chamber! All hands on deck! #pwME www.gofundme.com/f/save-nevra

gofundme.com

Donate to Help Nevra Secure Surgery, Care, and Safety, organized by Adrian Bamforth

Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety

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Reposted by Fran H

Rose Mary @rose-mary-x.bsky.social · 10/08/2025

Thank you @natashadevon.bsky.social for hosting another excellent segment on #MECFS 💙 And thank you to @swastrosarah.bsky.social , @franhaddock.bsky.social & the other contributors for getting our stories out there. #MyalgicEncephalomyelitis is a serious disease that can happen to anyone.

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Fran H @franhaddock.bsky.social · 08/08/2025

Community video for Severe ME awareness day, please share and tag politicians and public figures who need to see this! All participants IG handles tagged at the end 💙💙 #SevereME #SevereMEAwarenessDay #MECFS #MillionsMissing #UnitedForME

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Reposted by Fran H

Liz Nevra A. @nlizaki.bsky.social · 21/07/2025

🚨 I have 10 days before August rent is due, I need 832.33£ or $1,131.18 This is an emergency, so few people have donated recently, I’m at risk of homelessness, I could not survive that Please boost/engage with this! 🚨 Rent PayPal: www.paypal.com/paypalme/Sav... GFM: www.gofundme.com/f/save-nevra

paypal.com

Pay Adrian Bamforth using PayPal.Me

Go to PayPal.Me/SaveLizNevra and enter the amount. It's safer and more secure. Don't have a PayPal account? No problem.

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Fran H @franhaddock.bsky.social · 18/04/2025

Please support my friend Esam

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Reposted by Fran H

Frances Ryan @francesryan.bsky.social · 17/03/2025

“In 2025, long Covid is the public health crisis no one wants to talk about, taking a wrecking ball to people’s lives, the economy and NHS while those with power pretend there’s nothing to see.” 5 years on, I wrote about long Covid and national denial. www.theguardian.com/commentisfre...

theguardian.com

Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan

Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan

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Fran H @franhaddock.bsky.social · 14/03/2025

#IsItOk for @alastaircampbell2.bsky.social to complain about how many disabled people are not working on #TheLastLeg without questioning why? Have you heard of #LongCovid Alastair? And the pandemic which is an ongoing mass disabled event? And that there’s no cure and virtually zero support?

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Fran H @franhaddock.bsky.social · 21/02/2025

A few days ago we heard the UK’s government delivery plan for ME will contain NO additional funding. How will this make a meaningful difference to #pwME? So @wesstreeting.bsky.social and @ashleydaltonmp.bsky.social , please listen our lived experiences, and #FundThePlan @thereforme.bsky.social

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Reposted by Fran H

Adam @abrokenbattery.bsky.social · 01/02/2025

Highlights from yesterday's ITV News Calendar segment on #LongCovid on the 5 year anniversary of the first case of Covid in the UK. Fran Haddock talks about how her life has been "decimated" by the condition.

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Fran H @franhaddock.bsky.social · 28/01/2025

I don’t want my friends to keep getting sicker 🖤❤️‍🩹🖤 Words on existing in the severe ME community, TW severe illness ⬇️

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Fran H @franhaddock.bsky.social · 27/01/2025

A few photos from our @rspb.bsky.social Big Garden Birdwatch yesterday. Before I had severe ME I was an avid environmentalist and nature enthusiast. The prior 2 years I’ve been too sick to look out of the window, or sit up, or look through binoculars, or open the curtain. So this was a joy

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Fran H @franhaddock.bsky.social · 20/01/2025

Please sign and share this petition for Line in Denmark, who is being threatened with involuntary psychiatric hospitalization if she doesn’t push through her very severe ME. Absolutely barbaric and could be life threatening www.change.org/p/prevent-fo... #SaveLine #SevereME

change.org

Sign the Petition

Prevent forced psychiatric hospitalisation of Very Severe ME patient in Denmark

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Fran H @franhaddock.bsky.social · 19/01/2025

I was able to spend an hour or so with my 2 year old nephew yesterday for the first time in over a year (due to a combo of me being too sick, him have Covid last time and them living the other side of the UK). It was so sweet and magical. He’d been told all about Auntie Fran and Uncle Dan so

Fran a white woman with brown hair and a tie due hoody on, opens a bag with the 2 year old nephew who has blonde hair and a pink jumper

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Reposted by Fran H

Alexis Gilbert @alexisme.bsky.social · 15/01/2025

Despite being severely unwell @katiamek.bsky.social spent her precious energy to speak out about this negligent treatment she’s been through in an effort to stop others experiencing the same. time.com/7206080/long...

A screenshot of the article with the text: Katiana Mekka, a 26-year-old Long COVID patient from Greece, says education is especially needed outside the U.S. Last fall, she says, she was involuntarily committed to a psychiatric ward and held for three days, until she passed a thorough screening test for mental-health disorders. The ordeal worsened her already severe illness, leaving her virtually unable to eat, move, or talk for days after.
"These illnesses are so mistreated and misdiagnosed," Mekka says, adding that so few doctors in Greece know about Long COVID that she has been forced to seek
virtual support from specialists in other countries. "The patients that I know, we all have so much will to live and so many
dreams. This is not a mental issue. We have severe symptoms."

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Reposted by Fran H

Frances Ryan @francesryan.bsky.social · 15/01/2025

The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland. Watch it in 7 minutes. V. important from my video colleagues. www.theguardian.com/society/vide...

theguardian.com

‘The pandemic isn’t over’: my year of long Covid – video

Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...

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Fran H @franhaddock.bsky.social · 14/01/2025

Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️

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Fran H @franhaddock.bsky.social · 07/01/2025

Thanks so much to everyone who responded re my very severe friend in the Netherlands’. An update is that her dietician has supported the idea of her having an NG tube placed at home by a home care company. However the GP needs to support this and is so far declining to /1

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Fran H @franhaddock.bsky.social · 02/01/2025

Callout for advice for very severe pwME in the Netherlands (my best friend) pls RT. Main concern is not currently able to keep food down and is too nauseous to eat. Not kept down anything significant since Sunday 29th. Severe nausea continues even when not attempting to eat. 1/

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Fran H @franhaddock.bsky.social · 04/12/2024

The @MEAssociation have not provided any adequate response to @alexisme.bsky.social’s open letter, therefore a collaborative of severe ME advocates have sent a follow up letter as well as creating a petition for Neil Riley to step down. Please sign and share: www.change.org/p/me-associa...

change.org

Sign the Petition

ME Association Chair Neil Riley must step down

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Reposted by Fran H

María Richardson @diatoma.bsky.social · 04/12/2024

(1/3)🧵 Check out this winter raffle created by #pwME to support @nlizaki.bsky.social! Organized by @franhaddock.bsky.social & other beautiful folks on IG. You can DM me a screenshot of donation here & say if you’re in UK or EU & I’ll pass on your info! Enter by Dec.22! #SevereME Part 1/2 of video 💜

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