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FMDSA

@fmdsa.bsky.social
5 followers 18 following 1 posts

The Fibromuscular Dysplasia Society of America (FMDSA) is a not-for-profit advocacy organization working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). www.fmdsa.org

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FMDSA @fmdsa.bsky.social · 05/08/2026
Ten Tips for the Diagnosis and Management of Fibromuscular Dysplasia, offers practical guidance to help improve recognition, diagnosis, and care for individuals living with FMD. We are grateful to the authors for continuing to advance education and awareness of FMD.
academic.oup.com
Ten tips for the diagnosis and management of fibromuscular dysplasia
ABSTRACT. Fibromuscular dysplasia (FMD) is an under-recognized, non-atherosclerotic, and non-inflammatory arteriopathy that predominantly affects women and
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JAMA Network Open @jamanetworkopen.com · 06/11/2025
In patients with spontaneous #CervicalArteryDissection, the presence of fibromuscular dysplasia was associated with distinct correlates and a 2.75x higher rate of recurrent dissection. ja.ma/3LnLjqZ
A Kaplan-Meier curve comparing patients free of recurrent dissection over time for those with and without fibromuscular dysplasia (FMD). The 'No FMD' group (orange line) shows a higher rate of remaining free of dissection compared to the 'FMD' group (blue line).
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International Society of Hypertension @ishbp.bsky.social · 19/01/2026
Fibromuscular Dysplasia – personal trajectory and joint achievements. Read a perspective piece from Alexandre Persu in the latest edition of Hypertension News. Read Hypertension News today: ish-world.com/ish-hyperten...
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hpd9999.bsky.social @hpd9999.bsky.social · 03/05/2026
portageonline.com/articles/you...
portageonline.com
'You’re not alone': Portage display shines light on rarely diagnosed condition
Familiar Portage la Prairie landmarks will carry a deeper meaning tonight as City Hall and the Island Park Causeway are set to be illuminated in red and blue to mark Fibromuscular Dysplasia (FMD) Awar...
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Vascular Medicine @vmj-svm.bsky.social · 26/05/2026
Online first: Pitocco and colleagues present ultra-high-resolution photon-counting CT images of a case of focal renal fibromuscular dysplasia. 🔗 doi.org/10.1177/1358...
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Therapeutic Advances in Neurological Disorders @taneuroldisord.bsky.social · 10/06/2026
New #SystematicReview online! Marion Boulanger and colleagues analyzed over 100 studies on cerebrovascular fibromuscular dysplasia and provide a synthesis of what's known about this overlooked disorder: journals.sagepub.com/doi/full/10....
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International Society of Hypertension @ishbp.bsky.social · 10/06/2026
A survey from the European Society of Hypertension is investigating global practice patterns in the screening and management of fibromuscular dysplasia (FMD). We encourage ISH members with relevant experience to participate: survey.sogolytics.com/r/4oPjg4 Responses are requested by 31 July 2026
survey.sogolytics.com
Survey Participation
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Pam Mace @pdmace2.bsky.social · 03/07/2026
Exciting news. The ALIGN-FMD international research network shares its vision for advancing our understanding of FMD through global collaboration and innovative research. FMDSA is proud to represent the patient voice Read the full article here: academic.oup.com/eurheartj/ad...
academic.oup.com
ALIGN-FMD Leducq funded network: Demystifying Fibromuscular Dysplasia
Fibromuscular dysplasia (FMD) is an under-studied medical mystery. Once considered rare, current estimates are that up to 3%–4% of adults have FMD.1–4 Impo
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 22/07/2025
Honored and grateful to receive transformative support from the 𝗟𝗲𝗱𝘂𝗰𝗾 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 of our research on 𝗙𝗶𝗯𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗗𝘆𝘀𝗽𝗹𝗮𝘀𝗶𝗮. Excited to begin work with our 𝗔𝗟𝗜𝗚𝗡-𝗙𝗠𝗗 Network and proud to partner with Jason Kovacic, Stéphanie Debette, Nabila Bouatia-Naji, Manuel Mayr, and Mark Lindsay. #FMD
linkedin.com
We are thrilled to share that Michigan Medicine has been awarded a new, international research grant for more than $8.5 million by the Leducq Foundation to advance research into fibromuscular… | Michi...
We are thrilled to share that Michigan Medicine has been awarded a new, international research grant for more than $8.5 million by the Leducq Foundation to advance research into fibromuscular dysplasi...
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 08/04/2026
Delighted to co-lead the first in-person ALIGN-FMD consortium meeting (Leducq Foundation for Cardiovascular Research) last week at Imperial College London. Excited for what this team will accomplish together in #FMD research and what this collaboration can mean for patients living with FMD.
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Santhi K. Ganesh, MD @santhikganesh.bsky.social · 18/07/2026
Honored to join Representative Ranjeev Puri in recognizing SCAD Awareness Week in MI. Thanks to patients, advocates, clinicians, and researchers, awareness has grown, enabling the cohorts and research transforming our understanding of SCAD and related arterial diseases. #SCAD #FMD
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