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Ernest:2026

@ernestsewell.bsky.social
978 followers 323 following 28K posts

Everything u believe is true. Fighting Hodgkin's Lymphoma. #FuckCancer Gen X, Navy vet w/ PTSD. | Quilter, writer. Trek/Wars, Prince, #JanFam, Michael Jackson, George Michael, Madonna, 80s stuff. Reader of 📚. 🩷 Ina Garten. linktr.ee/ernestsewell

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Ernest:2026 @ernestsewell.bsky.social · 08/06/2026
Thanks to the side effects of the chemotherapy, plus having two falls in two days (nothing broken, nothing bruised,) and now I’m basically bedridden… I’ve decided to discontinue any further treatments. It’s making my life worse and exponential ways and short periods of time. #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 06/06/2026
Chemotherapy side effects. It lowers your red blood cell platelet count and then you get these horrible things on the side of your body. It’s really rough skin, doesn’t itch, but good to keep it moisturized. I’m just very aware of it all the time. #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 27/05/2026
Forgot to update again. Took me only 4 days to read Carrie. I loved the layout of the narrative. I've since moved onto @stephenking.bsky.social's Fairy Tale. I'm 36% in so far. #BookSky
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Ernest:2026 @ernestsewell.bsky.social · 12/05/2026
So now I'm current. Kinda swung from one end to the other. Currently reading: @stephenfry.bsky.social - Carrie #BookSky
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Ernest:2026 @ernestsewell.bsky.social · 12/05/2026
After finishing that book, I moved on to another I've read once before. This time it was a comfort read. It was Proof of Heaven by Dr. Eden Alexander. I read it in four days. It's a book that changed my life, and I don't just throw that phrase around lightly. #BookSky
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Ernest:2026 @ernestsewell.bsky.social · 12/05/2026
I totally forgot to update my next book. I've already finished it, but I wanted to note it here. It was absolutely dismal and I wouldn't recommend it to anybody. It was Miss Austen by Gill Hornby. #BookSky
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Ernest:2026 @ernestsewell.bsky.social · 09/05/2026
Spending my Saturday afternoon writing my own obituary. How about you? #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 08/05/2026
While facing the last few weeks or months of my life, it’s hard not to sit around with a chip on my shoulder, looking at people that are still in shape, have their health, and are just out there, living their life with no worry of cancer whatsoever. #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 04/05/2026
A new update. #FuckCancer
open.substack.com
Ho'Spice
The past couple of weeks have been up and down.
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Ernest:2026 @ernestsewell.bsky.social · 24/04/2026
What's New And What's Familiar?
open.substack.com
What's New And What's Familiar?
I’ve not updated because I’ve been in a perpetual purgatory of waiting.
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Ernest:2026 @ernestsewell.bsky.social · 24/04/2026
Here we go again. The cancer is incurable but treatable. Two day short chemo, blood transfusion today, 28 days off, then immunotherapy. This beats the disease back to give me more time, considering I react well to it all.
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Ernest:2026 @ernestsewell.bsky.social · 24/04/2026
I have started chemo treatments as a precursor to immunotherapy. I had one yesterday and I’ll have one today. It’s a 28 day cycle. Fingers crossed. This is not curative. It is just treatment to push the disease back to lengthen my days. I feel OK for now. #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 17/04/2026
I probably will not make it through summer.
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Ernest:2026 @ernestsewell.bsky.social · 16/04/2026
In the hospital for a few days… #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 10/04/2026
Quality of life: 3.5
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Ernest:2026 @ernestsewell.bsky.social · 07/04/2026
Well, that fell flat.
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Ernest:2026 @ernestsewell.bsky.social · 07/04/2026
Still not a gay person. Still not a trans person. Still not a drag queen.
usmagazine.com
Expert on Christian Ethics in Marriage and Sexuality Arrested in Ohio for Raping Child
A former professor who wrote books on Christian ethics in marriage and sexuality has been accused in Ohio of raping child
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Ernest:2026 @ernestsewell.bsky.social · 05/04/2026
10 years ago - certainly in better days.
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Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
When the ink dries on our story What will history reveal Will we have been part of the problem or a part of how we heal? - Amy Grant
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Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
Words do matter, and I wanna get this right from yesterday's update. #FuckCancer
open.substack.com
Words Matter, So Let Me Get It Right
I recently sent out a text to folks saying my cancer was terminal.
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Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
Correction: it’s INCURABLE. Words matter and my nurse corrected me on it today.
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Ernest:2026 @ernestsewell.bsky.social · 29/03/2026
Angles in Oklahoma City.
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Ernest:2026 @ernestsewell.bsky.social · 28/03/2026
I may have accidentally taken 10 mg of oxycodone last night. I just know that I slept about 7 1/2 hours straight through. I also had a dream with a friend of mine who died last year. She was showing me around heaven. When I asked her who met her when she crossed over, I woke up. It's haunting me.
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Ernest:2026 @ernestsewell.bsky.social · 27/03/2026
I don't know what a bbno$ is.
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Ernest:2026 @ernestsewell.bsky.social · 26/03/2026
After a visit to my oncologist yesterday, I don't know that my life will play out as I had hoped. Just some up in the air stuff, and some subtle messaging of "do things now in case you can't later." Nothing final. But it was a fuck of a visit.
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Ernest:2026 @ernestsewell.bsky.social · 24/03/2026
I'm just sayin'... #FilmSky #Moana
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Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
I share a birthday with Sondheim, Andrew Lloyd Webber, Reese Witherspoon, and William Shatner.
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Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Boomer: You have no dignity. Me: It's pronounced no diggity.
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Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Well, it's past midnight, so I guess I've turned 58 today. This is 58 at 3am ET.
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Ernest:2026 @ernestsewell.bsky.social · 21/03/2026
I have a cousin who's dumb as shit. She posts on her FB about people liquifying the dead and feeding it to the living, sovereign citizen bullshit, the old "FB using your photos" racket, and human meat in beef products cuz Google said so. I troll her ass in the comments. She's nuts.
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Ernest:2026 @ernestsewell.bsky.social · 20/03/2026
Never planned on posting this; This is cancer. Hodgkin's Lymphoma rarely presents on the skin. Mine did. First pic is 9/2024 at its worst, first day of chemo. Last pic is two days ago. Yeah it's gross. Imagine living with it for over 2+ years. I'm fucking exhausted inside and out. #FuckCancer
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Ernest:2026 @ernestsewell.bsky.social · 19/03/2026
Still not a gay person. Still not a trans person. Still not a drag queen. But IS yet another Duggar offspring.
ew.com
'19 Kids and Counting' star Joseph Duggar arrested on child molestation charges
Former '19 Kids and Counting' star Joseph Duggar has been arrested on child molestation charges, authorities say.
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Ernest:2026 @ernestsewell.bsky.social · 18/03/2026
You can’t wait until life isn’t hard anymore before you decide to be happy.
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Ernest:2026 @ernestsewell.bsky.social · 17/03/2026
::::exhales::::
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Ernest:2026 @ernestsewell.bsky.social · 17/03/2026
And damn it: STOP POSTING 🟠'S PHOTO OR HIS TRUTH.SOCIAL BULLSHIT. Why do you fill our skylines and time with things you dislike? We don't need the reminder here. We see it everywhere else, all the time. Stop giving him oxygen.
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Ernest:2026 @ernestsewell.bsky.social · 17/03/2026
Guys, I'm so tired. I'm tired from radiation (which is over but still affecting me). I'm tired of having cancer. I'm tired of the world, the division, the constant, redundant, circular conversation about whatever. No one cares about anyone anymore. Why are we all still here, honestly?
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Ernest:2026 @ernestsewell.bsky.social · 17/03/2026
I had Thriller on cassette.
media.tenor.com
a man with curly hair is wearing a white jacket and black shirt
ALT: a man with curly hair is wearing a white jacket and black shirt
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Ernest:2026 @ernestsewell.bsky.social · 16/03/2026
I watched this great documentary last night about International Male, the catalog. I used to order clothes from them a lot in the late 80s. I visited stores in West Hollywood and San Diego, too. #FilmSky
youtube.com
All Man: The International Male Story
YouTube video by YouTube Movies
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Ernest:2026 @ernestsewell.bsky.social · 16/03/2026
Makes ya wonder if they're framing it like this because the cast is..... oh. Surely not.
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
Been thinking about joining the cicadas this summer and just screaming for six weeks.
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
🎼 Sunday afternoon listening. 🎶 IYKYK, if you don't - 🤷‍♂️ #MusicSky
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
Oh shit. My birthday is a week from today! I keep thinking I'm earlier in the month than we are. I'll be 58. I realized I moved to Albany when I was 29. That means this year I've lived in New York state half my life. I didn't even live in my home state for 29 years. Crazy how life plays out.
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
There is a god, and her name is Dana.
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
The Nickel Boys was a really good book, based on a real place with plenty of real things (quotes, reports, names, etc) used therein. My next read is The Book Thief by Markus Zusak. #BookSky
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
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Ernest:2026 @ernestsewell.bsky.social · 15/03/2026
Tonight's film selection was Secret Mall Apartment (2025, Netflix). A documentary about a group of eight artists who found a negative, unused space in a much-hated mall, and lived there for four years before being discovered. #FilmSky #MovieSky
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Ernest:2026 @ernestsewell.bsky.social · 13/03/2026
@margaretcho.bsky.social years ago I was chosen to watch a TV pilot of yours. It was about a girl who didn’t have a great relationship with her father. He got some sort of amnesia and only remembered her and the good things about her and nobody else in the family. It was such a good premise.
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Ernest:2026 @ernestsewell.bsky.social · 12/03/2026
Sometimes, it's just about needing some gospel music to wash over the soul. And I just happened to be at the recording of this. So I'm clapping, singing, and hollerin' on it somewhere. #MusicSky
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Ernest:2026 @ernestsewell.bsky.social · 12/03/2026
I slept until 1:49pm. Radiation fatigue is real. #fuckcancer
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Ernest:2026 @ernestsewell.bsky.social · 12/03/2026
my little gay thank you note
i once wore straightness like, a hand me down coat. it didn't really fit me, and everyone could tell.
a thank you from the deepest parts of me, to queers who said, softly and with grace:
"hey, that coat doesn't fit you, you don't have to wear
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