Sign in

Ernest:2026

@ernestsewell.bsky.social
979 followers 323 following 28K posts

Everything u believe is true. Fighting Hodgkin's Lymphoma. #FuckCancer Gen X, Navy vet w/ PTSD. | Quilter, writer. Trek/Wars, Prince, #JanFam, Michael Jackson, George Michael, Madonna, 80s stuff. Reader of 📚. 🩷 Ina Garten. linktr.ee/ernestsewell

PostsRepliesMedia
Ernest:2026 @ernestsewell.bsky.social · 08/06/2026
Thanks to the side effects of the chemotherapy, plus having two falls in two days (nothing broken, nothing bruised,) and now I’m basically bedridden… I’ve decided to discontinue any further treatments. It’s making my life worse and exponential ways and short periods of time. #FuckCancer
5100
Ernest:2026 @ernestsewell.bsky.social · 06/06/2026
I’m too for another blood transfusion so that will help quite a bit.
040
Ernest:2026 @ernestsewell.bsky.social · 06/06/2026
Chemotherapy side effects. It lowers your red blood cell platelet count and then you get these horrible things on the side of your body. It’s really rough skin, doesn’t itch, but good to keep it moisturized. I’m just very aware of it all the time. #FuckCancer
2110
Ernest:2026 @ernestsewell.bsky.social · 28/05/2026
He just got rid of Rumpelstiltskin so I’m pretty early in the book.
110
Ernest:2026 @ernestsewell.bsky.social · 27/05/2026
Forgot to update again. Took me only 4 days to read Carrie. I loved the layout of the narrative. I've since moved onto @stephenking.bsky.social's Fairy Tale. I'm 36% in so far. #BookSky
181
Ernest:2026 @ernestsewell.bsky.social · 12/05/2026
So now I'm current. Kinda swung from one end to the other. Currently reading: @stephenfry.bsky.social - Carrie #BookSky
050
Ernest:2026 @ernestsewell.bsky.social · 12/05/2026
After finishing that book, I moved on to another I've read once before. This time it was a comfort read. It was Proof of Heaven by Dr. Eden Alexander. I read it in four days. It's a book that changed my life, and I don't just throw that phrase around lightly. #BookSky
020
Ernest:2026 @ernestsewell.bsky.social · 12/05/2026
I totally forgot to update my next book. I've already finished it, but I wanted to note it here. It was absolutely dismal and I wouldn't recommend it to anybody. It was Miss Austen by Gill Hornby. #BookSky
050
Ernest:2026 @ernestsewell.bsky.social · 09/05/2026
Spending my Saturday afternoon writing my own obituary. How about you? #FuckCancer
260
Ernest:2026 @ernestsewell.bsky.social · 08/05/2026
Meanwhile, I’m sitting at home, I have to use a walker just to get to the bathroom or my bedroom, fight diarrhea every day, and a host of other bullshit things.
170
Ernest:2026 @ernestsewell.bsky.social · 08/05/2026
To be technical, that was the 12 inch cover. Not the album. But I always liked that picture of him.
000
Ernest:2026 @ernestsewell.bsky.social · 08/05/2026
While facing the last few weeks or months of my life, it’s hard not to sit around with a chip on my shoulder, looking at people that are still in shape, have their health, and are just out there, living their life with no worry of cancer whatsoever. #FuckCancer
180
Ernest:2026 @ernestsewell.bsky.social · 04/05/2026
A new update. #FuckCancer
open.substack.com
Ho'Spice
The past couple of weeks have been up and down.
160
Ernest:2026 @ernestsewell.bsky.social · 04/05/2026
You and me both, but this is definitely my last year here.
210
Ernest:2026 @ernestsewell.bsky.social · 24/04/2026
What's New And What's Familiar?
open.substack.com
What's New And What's Familiar?
I’ve not updated because I’ve been in a perpetual purgatory of waiting.
150
Ernest:2026 @ernestsewell.bsky.social · 24/04/2026
Here we go again. The cancer is incurable but treatable. Two day short chemo, blood transfusion today, 28 days off, then immunotherapy. This beats the disease back to give me more time, considering I react well to it all.
3100
Ernest:2026 @ernestsewell.bsky.social · 24/04/2026
I have started chemo treatments as a precursor to immunotherapy. I had one yesterday and I’ll have one today. It’s a 28 day cycle. Fingers crossed. This is not curative. It is just treatment to push the disease back to lengthen my days. I feel OK for now. #FuckCancer
3120
Ernest:2026 @ernestsewell.bsky.social · 17/04/2026
I probably will not make it through summer.
440
Ernest:2026 @ernestsewell.bsky.social · 16/04/2026
In the hospital for a few days… #FuckCancer
250
Ernest:2026 @ernestsewell.bsky.social · 10/04/2026
Quality of life: 3.5
030
Ernest:2026 @ernestsewell.bsky.social · 07/04/2026
Well, that fell flat.
030
Ernest:2026 @ernestsewell.bsky.social · 07/04/2026
Still not a gay person. Still not a trans person. Still not a drag queen.
usmagazine.com
Expert on Christian Ethics in Marriage and Sexuality Arrested in Ohio for Raping Child
A former professor who wrote books on Christian ethics in marriage and sexuality has been accused in Ohio of raping child
070
Ernest:2026 @ernestsewell.bsky.social · 05/04/2026
10 years ago - certainly in better days.
2130
Ernest:2026 @ernestsewell.bsky.social · 04/04/2026
Just the movie.
000
Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
When the ink dries on our story What will history reveal Will we have been part of the problem or a part of how we heal? - Amy Grant
030
Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
There is only one GIF that comes to mind whenever "neat" enters the ether. 🤣
media.tenor.com
a woman in a ponytail is standing next to a man in a black and white photo .
ALT: a woman in a ponytail is standing next to a man in a black and white photo .
110
Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
Words do matter, and I wanna get this right from yesterday's update. #FuckCancer
open.substack.com
Words Matter, So Let Me Get It Right
I recently sent out a text to folks saying my cancer was terminal.
040
Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
It almost sounds like spam, like last year when people were sending messages saying, "oops I accidentally reported your account." And then the person would actually get locked out of their account for a time. Block that number and reported a spam.
000
Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
I thought about you. I'd like to hear what kind of cancer you had, and what the lifelong treatments are, etc.
120
Ernest:2026 @ernestsewell.bsky.social · 03/04/2026
Correction: it’s INCURABLE. Words matter and my nurse corrected me on it today.
260
Ernest:2026 @ernestsewell.bsky.social · 01/04/2026
Find one that fixes cancer.
010
Ernest:2026 @ernestsewell.bsky.social · 01/04/2026
I don't know why but anytime I do something like this - NO ONE responds.🤷‍♂️
210
Ernest:2026 @ernestsewell.bsky.social · 31/03/2026
Opposed to just a little gay? How about not gay at all?
120
Ernest:2026 @ernestsewell.bsky.social · 30/03/2026
Agreed. It's just so lame and stupid anyway. But in these times - people can kick rocks with that mess.
000
Ernest:2026 @ernestsewell.bsky.social · 29/03/2026
Angles in Oklahoma City.
140
Ernest:2026 @ernestsewell.bsky.social · 28/03/2026
I may have accidentally taken 10 mg of oxycodone last night. I just know that I slept about 7 1/2 hours straight through. I also had a dream with a friend of mine who died last year. She was showing me around heaven. When I asked her who met her when she crossed over, I woke up. It's haunting me.
150
Ernest:2026 @ernestsewell.bsky.social · 27/03/2026
At least you're not on the floor.
010
Ernest:2026 @ernestsewell.bsky.social · 27/03/2026
I don't know what a bbno$ is.
010
Ernest:2026 @ernestsewell.bsky.social · 26/03/2026
After a visit to my oncologist yesterday, I don't know that my life will play out as I had hoped. Just some up in the air stuff, and some subtle messaging of "do things now in case you can't later." Nothing final. But it was a fuck of a visit.
070
Ernest:2026 @ernestsewell.bsky.social · 24/03/2026
They just announced the cast for the live action Scooby-Doo. Nobody asked for that either.
010
Ernest:2026 @ernestsewell.bsky.social · 24/03/2026
I'm just sayin'... #FilmSky #Moana
190
Ernest:2026 @ernestsewell.bsky.social · 23/03/2026
Yesterday was my birthday. My aunt in Oklahoma sent me a red velvet Nothing Bundt cake. I wasn’t very hungry for it last night. But I got up at 4 o’clock super hungry and had a small slice. Soooo good. I still stand by the fact that red velvet is a lie. It’s chocolate cake with red food coloring. 🙃🎂
011
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Thank you.
010
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Thank you. What ice cream?
100
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Thank you.
010
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
I share a birthday with Sondheim, Andrew Lloyd Webber, Reese Witherspoon, and William Shatner.
240
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Thank you.
110
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Thanks.
010
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Thank you.
010
Ernest:2026 @ernestsewell.bsky.social · 22/03/2026
Boomer: You have no dignity. Me: It's pronounced no diggity.
050