iiinova — where your digital self keeps evolving

Reposted by Dr. Elli Wilson

MND Education @mndeducation.bsky.social · 15/09/2026

Behavioural changes in #MND are difficult to identify and challenging for both HSCPs & families Join our workshop with former carer Sue Heal, who will share her experience of these changes' impact & Professor Mioshi who will discuss how to assess them Book👉 mndassociation.org/education-ev...

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Reposted by Dr. Elli Wilson

Dementia Researcher @dementiaresearcher.bsky.social · 25/08/2026

Clinical Community Lead role at MND Association supporting MND professionals through shared learning, service development and best practice. www.dementiaresearcher.nihr.ac.uk/job/mnd-clin...

dementiaresearcher.nihr.ac.uk

MND Clinical Community Lead

MND Association seeks a Clinical Community Lead to support MND professionals through shared learning, service development and best practice.

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Reposted by Dr. Elli Wilson

Dementia Researcher @dementiaresearcher.bsky.social · 13/08/2026

Head of Research role with My Name’5 Doddie Foundation leading funding programmes, drug discovery partnerships and impact evaluation for MND research. www.dementiaresearcher.nihr.ac.uk/job/head-of-...

dementiaresearcher.nihr.ac.uk

Head of Research - DEMENTIA RESEARCHER

My Name’5 Doddie Foundation seeks a Head of Research to lead funding programmes, drug discovery partnerships and impact evaluation for MND research.

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Reposted by Dr. Elli Wilson

Glenys Caswell @glenyscaswell.bsky.social · 07/08/2026

Do have a look at this animation, it's really informative and based on some excellent research.

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Reposted by Dr. Elli Wilson

NIHR ARC East Midlands @arc-em.bsky.social · 24/06/2026

⏰ Applications for our fully funded PhD studentship at University of Nottingham close this week on 28 June 2026. Focused on ageing and resilience in later life. 🗓 Interviews: 17 July 2026 Don't miss out 👇 arc-em.nihr.ac.uk/news/new-phd...

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Dr. Elli Wilson @elliwilson.bsky.social · 17/06/2026

📢Last 10 days! Closing 26th June 2026 Are you a Family living with MND in the UK? Research by @uniofleicester.bsky.social #OptiMND @nihr.bsky.social Family carers survey: app.onlinesurveys.jisc.ac.uk/s/leicester/... People living with MND survey: app.onlinesurveys.jisc.ac.uk/s/leicester/...

app.onlinesurveys.jisc.ac.uk

Opti MND survey family and friends | Jisc Online Surveys

Jisc Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, online surveys is used by over 300 different organisations in the UK...

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Reposted by Dr. Elli Wilson

Prof Katherine Sleeman @katherinesleeman.bsky.social · 16/06/2026

Very happy that the NIHR Policy Research Unit in Palliative and End of Life Care has been extended to end 2028! It’s a huge privilege to lead the Unit with Prof Fliss Murtagh, and working w brilliant colleagues at KCL, Universities of Hull, Lancaster, Leeds, Cambridge. www.kcl.ac.uk/news/nihr-po...

kcl.ac.uk

NIHR Policy Research Unit in Palliative and End of Life Care receives further £2m funding | King's College London

The NIHR Policy Research Unit (PRU) in Palliative and End of Life Care is funded by the National Institute for Health and Care Research (NIHR) and hosted by King’s College London in collaboration with...

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Dr. Elli Wilson @elliwilson.bsky.social · 16/06/2026

Want to know more about living with tracheostomy ventilation in MND? Check out our resource. #TVLife Funded by the MNDA @mndassoc.bsky.social @uonresearch.bsky.social @cmf64.bsky.social @mndeducation.bsky.social www.nottingham.ac.uk/helmopen/res...

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Reposted by Dr. Elli Wilson

Dementia Researcher @dementiaresearcher.bsky.social · 02/06/2026

Epidemiological Consultant role with the MND Association analysing UK datasets to produce national incidence and prevalence estimates for MND. Closing date: 11th June www.dementiaresearcher.nihr.ac.uk/job/epidemio...

dementiaresearcher.nihr.ac.uk

Epidemiological Consultant - DEMENTIA RESEARCHER

MND Association seeks an Epidemiological Consultant to analyse national MND incidence and prevalence using UK datasets and secure research environments.

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Reposted by Dr. Elli Wilson

MND Education @mndeducation.bsky.social · 01/04/2026

We've launched a new webinar on voice and message banking! Join to learn how to help people with #MND consider voice & message banking options. The session will also provide an overview of current providers & the process involved 🗓️30 April 📍Online & free Book on mndassociation.org/education-events

mndassociation.org

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

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Reposted by Dr. Elli Wilson

Dementia Researcher @dementiaresearcher.bsky.social · 26/03/2026

MND Association PhD studentships fund top UK and Ireland research into motor neurone disease. Four year awards. Summary applications due 1 May 2026. www.dementiaresearcher.nihr.ac.uk/funding/phd-...

dementiaresearcher.nihr.ac.uk

PhD Studentships (Biomedical and Healthcare)

MND Association PhD studentships fund top UK and Ireland research into motor neurone disease. Four year awards. Summary applications due 1 May 2026.

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Reposted by Dr. Elli Wilson

Dementia Researcher @dementiaresearcher.bsky.social · 26/03/2026

MND Association Healthcare Grants support research to improve care and quality of life in #MND #ALS. UK and Ireland applicants welcome. Apply by 1 May 2026. www.dementiaresearcher.nihr.ac.uk/funding/mnd-...

dementiaresearcher.nihr.ac.uk

MND Healthcare Research - DEMENTIA RESEARCHER

MND Association Healthcare Grants support research to improve care and quality of life in MND. UK and Ireland applicants welcome. Apply by 1 May 2026.

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Dr. Elli Wilson @elliwilson.bsky.social · 27/03/2026

Nicola Tuner is in Brighton at the @pccongress.bsky.social sharing two projects we have been working on funded by the @mndassoc.bsky.social - delighted to be able to share these posters

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Reposted by Dr. Elli Wilson

MND Education @mndeducation.bsky.social · 26/03/2026

On 19 May we're hosting the second competency builder session on Acceptance and Commitment Therapy! HSCPs from any discipline can join this online workshop & and learn to use ACT principles in their practice to help people with #MND consider therapies Book on mndassociation.org/education-events!

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Reposted by Dr. Elli Wilson

John MacArtney @johnmacartney.bsky.social · 29/04/2025

Join us to help develop recommendations to improve how "failure" is understood and experienced in HE! We want to hear from academic researchers at ANY career stage - PhDs all the way to established professors - in ANY department or discipline. *Please re-post to your networks!*

Join our study!
Are you a research academic based in higher education?

If so, we would like to invite you to an engagement workshop to discuss recommendations and accommodations that can be made to support researchers when navigating failure in higher education.

What is the research about?
Failure is often a predominant feature of academic research and can include things such as research grant paper rejections, non-promotion or supervision upgrades.

We are asking you to share your views on a framework of recommendations we have developed including the usefulness of the recommendations identified.

We would like to talk to research academics at any stage of their career (early, mid or late) who:
Hold a research post including – PhD students, Postdoctoral researchers, Research Assistants, Associates or Fellows, Senior Research Fellows, Readers, Assistant Professors, Associate Professors or Professors (clinical or non-clinical).

What will I have to do?
We would like to invite you to attend a focus group remotely over Microsoft Teams where you will discuss your experiences of failure in academic research culture. You will be asked:

Thoughts on accommodations to maintain wellbeing whilst navigating failure.

To feedback on a framework of recommendations developed by the research team and how it could be implemented across research cultures. This might include what works for whom and when in regard to this topic.

The focus group will take between 90-120 minutes and you will receive an e-voucher as a thank you for your time.

For further information, please use your institutional email address to contact us:
Dr Celia Bernstein
researchculturestudy@warwick.ac.uk

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Reposted by Dr. Elli Wilson

Dr Ben Bowers @drbenbowers.bsky.social · 26/11/2025

Sign up to hear about our latest research on improving end-of-life care and future projects and collaboration opportunities. Our research team is part of PELiCam in the Primary Care Unit, University of Cambridge. Sign up here: cambridge.eu.qualtrics.com/jfe/form/SV_...

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Reposted by Dr. Elli Wilson

Dr Ben Bowers @drbenbowers.bsky.social · 30/01/2026

Our new paper revealing the often under-reported harms in end-of-life care, within reported incidents. This inhibits systems learning and downplays the patient and family voice

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Reposted by Dr. Elli Wilson

Dr Ben Bowers @drbenbowers.bsky.social · 30/01/2026

Access our new research paper in BJGP on learning from injectable medication incident reports in the community. We highlight the potential of cross-organisational targets to visit within 2 hours in a crisis

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Reposted by Dr. Elli Wilson

Lucy Selman @lucyselman.bsky.social · 02/12/2025

📣Out today: “The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study www.tandfonline.com/doi/full/10.... Policy brief: tinyurl.com/34sh98ac

tandfonline.com

“The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study

People from Black and other minoritized ethnic communities are known to experience health and social care inequities, including barriers to accessing bereavement support. However, bereavement exper...

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Reposted by Dr. Elli Wilson

Annayah M.B. Prosser @annayahprosser.bsky.social · 03/12/2025

If you're an ECR who has done great work to promote open research, please consider applying for this excellent award! I recieved this earlier this year and my minifig sits proudly in my office 😊 A great way to recognise ECR contributions!

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Reposted by Dr. Elli Wilson

Dementia Researcher @dementiaresearcher.bsky.social · 12/11/2025

Vacancy for a Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults. Closing date: 5th January www.dementiaresearcher.nihr.ac.uk/job/professo...

dementiaresearcher.nihr.ac.uk

Professor: Old Age Psychiatry - DEMENTIA RESEARCHER

Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults.

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Dr. Elli Wilson @elliwilson.bsky.social · 11/11/2025

'The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision to suspend children’s nursing and mental health nursing programmes.' www.linkedin.com/feed/update/...

linkedin.com

Short term decisions – long term impact | Fiona Smith

Short term decisions – long term impact on children and young people The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision ...

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Reposted by Dr. Elli Wilson

Dr Rachel Clarke @drrachelclarke.com · 10/11/2025

"We would never tolerate a government that chose to defund 70% of neonatal services, gambling that charities would fill the gap. Yet this is exactly the situation for end-of-life care." Please read my piece on the travesty of NHS palliative care underfunding 🙏 www.theguardian.com/commentisfre...

theguardian.com

As a palliative care specialist, I’ve witnessed the human tragedy of our end-of-life care crisis | Rachel Clarke

While the government debates assisted dying, palliative care is an afterthought. And many more people face death without the care and support they need, says Rachel Clarke

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Reposted by Dr. Elli Wilson

John Burn-Murdoch @jburnmurdoch.ft.com · 10/11/2025

Quick thread on the BBC and the political and societal significance of recent developments: One of the main reasons the UK has historically been so much less polarised than the US, is that Britain has a shared source of information, consumed and trusted by most people regardless of their politics.

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Reposted by Dr. Elli Wilson

Wonkhe @wonkhe.bsky.social · 11/11/2025

NEW on Wonkhe: Little England’s splendid isolation in European HE looks increasingly absurd bit.ly/4i2SbpV

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Reposted by Dr. Elli Wilson

Dr Ben Bowers @drbenbowers.bsky.social · 21/10/2025

Research Associate (Fixed Term, full-time post). Come work with me and amazing colleagues at University of Cambridge. An excellent post for a dynamic post doctoral researcher and thinker... www.cam.ac.uk/jobs/researc...

cam.ac.uk

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Dr. Elli Wilson @elliwilson.bsky.social · 04/11/2025

📢New publication from the TVLife study: Living with tracheostomy ventilation for MND - Family member perspectives - important to understand both the challenges and joys. Families sharing their experiences on HealthTalk: healthtalk.org/experiences/... doi.org/10.1080/0963...

doi.org

Living with tracheostomy ventilation for motor neurone disease: a qualitative study of family member perspectives

To examine the experiences of family members caring for people with motor neurone disease (MND) who use tracheostomy ventilation.Drawing on a constructivist interpretivist approach, qualitative int...

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Reposted by Dr. Elli Wilson

Dr Rachel Clarke @drrachelclarke.com · 01/10/2025

Here I am in 2020 in the flimsiest, most pitful PPE - like so many other NHS staff, some of whom died from the Covid they caught in their hospitals. Tory peer Michelle Mone - who today lost her legal case & must repay the govt £122m - dares to claim she’s been ‘scapegoated’. What, Michelle? 🧵

Rachel wearing very flimsy looking apron, mask and visor in NHS setting

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Reposted by Dr. Elli Wilson

Dr Rachel Clarke @drrachelclarke.com · 24/09/2025

Superb news showcasing the wonder of medical science. Huntingdon's is a brutal terminal disease. This new gene therapy slows the disease's advance by 75%. One medically retired patient has now returned to work. Others, expected to need wheelchairs, are walking. www.bbc.co.uk/news/article...

bbc.co.uk

Huntington's disease successfully treated for first time

One of the most devastating diseases finally has a treatment that can slow its progression and transform lives, tearful doctors tell BBC.

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Reposted by Dr. Elli Wilson

Gillian @gilli-campbell.bsky.social · 30/03/2025

Thank you so much to all who have taken part in the EMPOWER survey to date! Only more day to go to register your views. We particularly want to hear from midwives and health visitors 👇 @rcn.org.uk @rcm.org.uk @nihrspcr.bsky.social @nihr.bsky.social @arc-em.bsky.social t.ly/pDJPH

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Reposted by Dr. Elli Wilson

Wendy J Chaplin @wendyjchaplin.bsky.social · 06/08/2025

We are seeking #hcps and #HR to take part in online interviews about supporting employees with pain.

Advert for research into supporting employees with chronic pain

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Reposted by Dr. Elli Wilson

Dr Ben Bowers @drbenbowers.bsky.social · 03/08/2025

Reframing resilience in community healthcare. Our latest piece in BJCN magonlinelibrary.com/doi/abs/10.1...

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Reposted by Dr. Elli Wilson

Dr. Elli Wilson @elliwilson.bsky.social · 24/03/2025

📢Publication alert! Delighted to have this available to read in full: Providing life-sustaining treatments at home for those with Motor Neurone Disease: A qualitative study of bereaved family members’ experiences of responsibility #VentMND doi.org/10.1177/0269...

doi.org

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

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Reposted by Dr. Elli Wilson

MND Education @mndeducation.bsky.social · 11/07/2025

Ensuring nutrition & hydration in people with #MND is crucial for their wellbeing & to prevent complications, but can be challenging Our revised infographic on dietetics & nutrition is a practical tool for HSCPs with a quick summary of NICE guidelines👇 mndassociation.org/propublicati...

Screenshot of infographic for health and social care professionals on dietetics and nutrition in motor neurone disease. The infographic is available at www.mndassociation.org/propublications

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Reposted by Dr. Elli Wilson

MND Education @mndeducation.bsky.social · 04/07/2025

We're thrilled to share our revised infosheet for HSCPs on dysphagia in #MND! It's designed to offer practical guidance to manage swallowing issues, prevent malnutrition & support decision-making Thank you to all the experts who helped us review it! Visit: www.mndassociation.org/propublications

picture with the screenshot of the front page of the information sheet for professionals "Managing dysphagia in motor neurone disease", slightly overlapped with a screenshot of another page of the same information sheet. Above, a quote from one of the professionals who reviewed the information sheet, says: “The content guides clinicians through the assessment and management of swallowing difficulties in a practical and supportive manner.
The resource would appeal to all levels of knowledge and experience, from the SLT student and the newly qualified therapist to the more experienced ones.”

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Reposted by Dr. Elli Wilson

Centre for Applied Excellence in Skin and Allergy Research @skinandallergy.bsky.social · 02/07/2025

Calling all dads! Click on the link below to say what your top 10 questions are for research in childhood food allergy. Don't miss the last chance to have your say! Survey closes 31 July. btcsurvey.bristol.ac.uk/redcap/surve... @nihrspcr.bsky.social @capcbristol.bsky.social @riddmj.bsky.social

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Reposted by Dr. Elli Wilson

Dr Ben Bowers @drbenbowers.bsky.social · 22/06/2025

Here is the evidence base for anticipatory prescribing in one place. It feels apt to share right now - what can be done to help with effective end-of-life symptom control too! new.express.adobe.com/webpage/8yok... @arceastofengland.bsky.social @pcucambridge.bsky.social @mariecurieuk.bsky.social

new.express.adobe.com

Anticipatory Prescribing at the End of Life

A story told with Adobe Express

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