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Dr Eleanor Roberts

@elbelbumble.bsky.social
987 followers 234 following 401 posts

Neuroscientist, writer, singer, artist, thinker, doer, laugher, unabashed lefty, feminist, ME/CFS absolute warrior, disability campaigner, 100% LGBTQI+ ally (and all-round Q), all from a small flat in noisy South London.

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Reposted by Dr Eleanor Roberts
AltSpaceForce 🚀🇺🇲 @altspaceforce.altgov.info · 6h
There would have been no successful Apollo program without the brilliance & dedication of Margaret Hamilton, who built the software from nothing. "We had to find a way, and we did. Looking back, we were the luckiest people in the world; there was no choice but to be pioneers.” Godspeed, Mrs Hamilton
news.mit.edu
Margaret Hamilton, computing pioneer who led software development for the Apollo program, dies at 90
Margaret H. Hamilton, a profoundly influential computer scientist best known for leading the software engineering team at MIT’s Instrumentation Lab during NASA’s Apollo program, died at age 90.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 14h
Finally diving in, 5 minutes into the first episode and I'm already hooked 🖤🖤🖤
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Dr Eleanor Roberts @elbelbumble.bsky.social · 15h
‘Neither war nor peace’: Palestinians in Gaza on existing amid disease, despair and ruins www.theguardian.com/world/2026/o...
theguardian.com
‘Neither war nor peace’: Palestinians in Gaza on existing amid disease, despair and ruins
People tell of lives changed beyond recognition after the 7 October attacks by Hamas three years ago and the subsequent Israeli offensive
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Dr Eleanor Roberts @elbelbumble.bsky.social · 07/10/2026
Great chat about governance needs for data centres to standardise resource use/safety basics, how they can be much more efficient, why they are in poorer rural locations and why, when the location of a new data centre is successfully protested, the community it then goes to also needs protection.
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Reposted by Dr Eleanor Roberts
billkittle.bsky.social @billkittle.bsky.social · 06/10/2026
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Reposted by Dr Eleanor Roberts
Cole Donovan @colesci.bsky.social · 04/10/2026
EXTREMELY IMPORTANT DATA CALL ALERT: The OECD is running a survey on researcher career intentions among the member economies. Right now, I'm told that the response rate on the US side is low (to the point that US data may not get published). We need inputs from reliable sources at this moment.
survey.oecd.org
OECD-EU Research and Development Careers Survey 2026
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Dr Eleanor Roberts @elbelbumble.bsky.social · 06/10/2026
I need a mnemonic to remember pneumonic is the same but different than the classic bubonic!
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Dr Eleanor Roberts @elbelbumble.bsky.social · 06/10/2026
Yep, all that plus measles!
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Dr Eleanor Roberts @elbelbumble.bsky.social · 05/10/2026
Türkiye raided homes overnight and jailed people for running LGBT+ organizations, calling their legal work a crime. Sign now and demand their release: a.allout.org/s/P3D8Q/
a.allout.org
Türkiye: Free the jailed LGBT+ activists
Police in Türkiye raided homes overnight and jailed people for running LGBT+ organizations, calling legal work a crime. Add your name and demand their immediate release.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 04/10/2026
There are links between gut biota and Parkinson's disease so not a stretch to find this as well www.parkinson.org/blog/science...
parkinson.org
Study Finds Potential Link Between Parkinson's and Gut Health
Inflammatory bowel disease (IBD) — conditions like Crohn's disease and ulcerative colitis — are linked to an increased risk of developing PD.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 04/10/2026
Yep, there's a line sometimes crudley misinterpreted line in Dracula that led me to find this out:"Holding his candle so that...the sperm dropped in white patches which congealed as they touched the metal, he made assurance of Lucy's coffin."
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Dr Eleanor Roberts @elbelbumble.bsky.social · 02/10/2026
Something lovely to listen to while coping with all this, some of my wonderful choir live on Radio 3 this avo
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Reposted by Dr Eleanor Roberts
Robin Ince @robinince.bsky.social · 02/10/2026
They’ve come from Palestine to perform this in London - on Saturday - please support , please share www.pleasance.co.uk/event/2077-w...
pleasance.co.uk
2077 who wants to survive | Pleasance Theatre Trust
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Dr Eleanor Roberts @elbelbumble.bsky.social · 02/10/2026
I've had ME for 18 yrs and the only thing that's helped is a very low dose semiglutide. As a scientist/medical writer, I read a lot of studies beforehand with the balance tipped by clinical trials being set up and physician/patient reports. Yes, there are mild AEs, but currently, they're worth it.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 02/10/2026
It's available on private prescription for pwME/LC. I have friends who it helped, though I found it horrendous. I'm on a semiglutide (Wegovy) for inflammation and after years of worsening ME have finally found something that helps, at least cognitively. There's clinical trials ongoing for both.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 02/10/2026
Huge hugs Darren, as a pwME for many years who's also had my career robbed, I know your pain. The grief associated with comparing who you 'should' be to who you actually are can be intense and crippling but let yourself mourn and shriek "it's not sodding fair" when you need to. More huge hugs ❤️
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Reposted by Dr Eleanor Roberts
BWJones @bwjones.bsky.social · 01/10/2026
This is a bit of a parlor trick and is being hyped. The images are not being generated de-novo. They are being matched with a known set of prior images or text, meaning that they reconstruct the signals recorded by brain when shown images during training. Verrrry different than reading thoughts.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 01/10/2026
Subscribe to the @meresearchuk.bsky.social newsletter for updates on all the research we fund and much, much more 💙💙
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Dr Eleanor Roberts @elbelbumble.bsky.social · 01/10/2026
Arsehole men are trying to find out the identity of the poor woman at Cornell who was s'ly abused by seven men who then got away with it both in law and by that abhorrent university. In solidarity of her wish to remain anonymous, we are surrounding her anonymity with this declaration.
I am Jane Doe
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Reposted by Dr Eleanor Roberts
Prem Sikka @premnsikka.bsky.social · 01/10/2026
9 years after Grenfell fire killed 72 people, Police pass files to the Crown Prosecution Service for possible charges against 54 individuals and 20 companies. How many will be prosecuted? Years of litigation will follow. Justice delayed is justice denied.
bbc.co.uk
Met Police submits Grenfell Tower fire investigation files to CPS
The force is seeking charges against 54 individuals and 20 companies over the 2017 tower block fire.
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Reposted by Dr Eleanor Roberts
Kat Abughazaleh @katmabu.bsky.social · 29/09/2026
I literally don’t know a single woman who hasn’t been raped, stalked, groped, harassed, or sexually violated in some way at some point in their life. If you choose to doubt and dox survivors, just know every woman in your life is disgusted by you.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 29/09/2026
Thanks for all the details Sarah, but also huge hugs to you for covering what must be a very difficult aspect of ME care, remembering Maeve, always ❤️
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Reposted by Dr Eleanor Roberts
Michael @shevekuk.bsky.social · 29/09/2026
Ridiculously there's bugger all to zero compulsory training in the NHS about ME/CFS. If it were, say, MS, people would be in uproar. So I'd appreciate it if you sign this futile attempt at chang- I mean, this petition c.org/t8D7hZ9Lh5
c.org
Sign the Petition
Make ME/CFS learning mandatory for NHS staff
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Reposted by Dr Eleanor Roberts
Marisa Kabas @marisakabas.bsky.social · 28/09/2026
i hope that men notice how whenever a rape story gets widespread coverage, women use it as an opportunity to vent about how fucking disgusting we think many of you are and how many have made our lives measurably worse, and take a few moments to deeply process that.
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Reposted by Dr Eleanor Roberts
Dawna and RealMonkeyCat @dawna9.bsky.social · 28/09/2026
Let’s put specific names & photos where they belong. Have these “men” no sensitivity to the girls & women in their lives? #Pinks
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Reposted by Dr Eleanor Roberts
Emma 🛏️♿🌱☮️♻️🍉 @veganmua.bsky.social · 28/09/2026
Make ME/CFS learning mandatory for NHS staff - Sign the Petition! c.org/JWKBhpJChX #MECFS
c.org
Sign the Petition
Make ME/CFS learning mandatory for NHS staff
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Reposted by Dr Eleanor Roberts
Jennifer O'Meara @jenniferomeara5.bsky.social · 26/09/2026
Gavin Bazunu is a hero 🇵🇸🇮🇪❤️ #StopTheGame #Speirgorm
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
I love her biography, what a life! 🥰🎶🐆
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
"Plus ça change, plus c'est la même chose," as my old (very socialist) Ma often repeated when watching the news.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
As for working with Wessley and Chalder, I was a science writer for Kings College London at the time, working on the REF impact cases. Wessley was actually quite lovely when I told him I had ME (but sometimes the devil takes that form), Chalder was cold and uncaring, never asked how I was doing.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
Despite me having proven that a quiescent brain virus (HIV) can cause inflammation even in 'asymptomatic' stages, i.e., one thing that seems to be happening in people with post-infection ME, this CBT still led to years of me doubting the validity of my illness and pushing myself to the point of PEM.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
I stuck with the CBT as some things did help (e.g., trying not to catastrophise when I had PEM), but stopped going, with no explanation to them, when she asked me to get to the psychological root of the trauma that was keeping me from letting myself get better.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
I was treated by Mary Burgess who wrote the ME CBT manual. During a session I told her I was taking supplements, she responded "but how will we know the CBT is working?," which struck me as odd if she wanted me to get better, until I realised I was not a patient, but an unconsented research subject.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 27/09/2026
Thanks again @georgemonbiot.bsky.social for your advocacy. A point about the PACE trial researchers wanting their therapy to be right struck home. I was treated at the Maudsley, workplace of Simon Wesley, and Trudie Chalder (who I was also working with in another capacity!) youtu.be/H2rRf_f2hJs?...
youtu.be
LBC | Natasha Devon interview with George Monbiot
YouTube video by Broken Battery
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Reposted by Dr Eleanor Roberts
Kelly @broadwaybabyto.bsky.social · 26/09/2026
Disabled people make society uncomfortable. Left or right…. It doesn’t matter. People want to believe it can’t happen to them. That if they become disabled there will be a magic “fix”. We challenge their denial, so they deny us solidarity and support. That’s ableism.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 26/09/2026
As a scientist, I studied HIV's actions in the brain when people are 'asymptomatic.' SARS-CoV-2, which causes CoViD, also gets into, and stays in, the brain. We showed inflammatory changes along with small, but measurable, cognitive and movement deficits. So yeah, it's very possibly behind this.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 25/09/2026
Remember Ukraine www.bbc.co.uk/news/article...
bbc.co.uk
Oleshky: Eating garden weeds to survive in Russian-occupied city cut off from food and water
The BBC has spoken to residents in the Russian-occupied Ukrainian town of Oleshky who say they are being "constantly shelled".
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Dr Eleanor Roberts @elbelbumble.bsky.social · 25/09/2026
Yeah but he's done so much for the world, there's the...um...the...ah...the time he...err...just give me a minute...
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Reposted by Dr Eleanor Roberts
ME Research UK @meresearchuk.bsky.social · 24/09/2026
In case you missed it - Sleep dysfunction can feel like a heavy weight on top of an already debilitating condition. We have drawn together some of the common themes about the experience of sleep dysfunction from our recent survey. tinyurl.com/sleepdysmeim...
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Dr Eleanor Roberts @elbelbumble.bsky.social · 24/09/2026
And I say "rolled up to him" because I'm a wheelchair user because of fucking ME. I bought my wheelchair after paying for a private consolidation with someone from Physios For ME who's the only person ever to discuss mobility aids with me. Everything I do to try and live with ME is self-advocated.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 24/09/2026
Thanks George, I didn't reply to your post as so many had. Every one of us has horror stories and it's not just medical abuse, but gross neglect in work, education, social, transport and benefit arenas as well. Hopefully your article will spark something, but my breath will not be held.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 24/09/2026
Other friends take low dose naltrexone, which I tried and it induced incredibly frightening suicidality so not for me. I dreamt last night I got myself back. I bounded up to a more recent friend with joy saying "I'm me again, this is the me you've never met" and danced around. This is all I want.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 24/09/2026
I've been completely abandoned by the ME service at UCH in London, the physio I saw at KCH was appalling, with no idea about ME and suggesting group exercises. I've had a MAJOR breakthrough this year with very low dose Wegovy for brain fog but as my BMI is <25, my GP won't prescribe it so I pay.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 24/09/2026
Thank you @georgemonbiot.bsky.social for again highlighting our plight. I rolled up to him a few years ago with a copy of the @meresearchuk.bsky.social magazine (who I'm a Trustee of) detailing the scientific research we fund with a very small budget per year (about the same my US lab had alone).
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PKs Powerfromspace1 🚀 Last Angry Bernie Brother cast adrift 😒 @powerfromspace1.bsky.social · 23/09/2026
@chuckpfarrer.bsky.social NOT NEWS: On a night where Russian attacks across Ukraine killed at least eight people and wounded 37 others, and ballistic missile strike in Dnipro killed four civilians. This is the BBC's home page. All the news that’s fit to ignore. x.com/chuckpfarrer...
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Dr Eleanor Roberts @elbelbumble.bsky.social · 22/09/2026
I have to point out (probably to nobody but myself) that as a medical writer, I hate not spelling out numbers under ten (except when they denote time, people) but character limits dictate ...
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Dr Eleanor Roberts @elbelbumble.bsky.social · 22/09/2026
As a neuroscientst, I joke we have 5 brains (with 2 hemispheres and the stomach as 1) to help people understand that the singular self is a myth, instead we are a collective that can sometimes badly fall out with each other! This proves I'm at least partially right! med.stanford.edu/news/all-new...
med.stanford.edu
Human brain is two separate organs, Stanford Medicine-led research finds
Stanford Health Care delivers the highest levels of care and compassion. SHC treats cancer, heart disease, brain disorders, primary care issues, and many more.
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Dr Eleanor Roberts @elbelbumble.bsky.social · 22/09/2026
I am more than happy to talk about anything but ME with my fellow lifers (while shouting loudly about what we go through to all those lucky enough to not have to live our lives), huge hugs Alem 🥰
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Dr Eleanor Roberts @elbelbumble.bsky.social · 20/09/2026
Joe McDonald, NHS IT expert: ‘We fix the problem the politicians are interested in, which may not be the problem the NHS is interested in...Sales staff from these...mega corporations get to the minister and he buys it...then he’s gone before long, and the NHS has to do something with what’s left.’
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