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The Ehlers-Danlos Society @ehlers-danlos.com · 02/10/2026

October is Dysautonomia Awareness Month. ⁠ ⁠ Dysautonomia, also called autonomic dysfunction, is a group of disorders that affect the autonomic nervous system.⁠ ⁠

Graphic titled “Symptoms of Dysautonomia” showing seven human silhouettes illustrating common symptoms: tachycardia (fast heart rate), hypotension (low blood pressure), dizziness or lightheadedness, gastrointestinal dysmotility (problems moving food through the digestive system), temperature and sweating dysregulation, sleep problems, and bladder issues.

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The Ehlers-Danlos Society @ehlers-danlos.com · 02/09/2026

Today is the final day to register for the Precision Medicine in Genetically Defined Ehlers-Danlos Syndromes event, taking place September 3-4.⁠ Join this event in Ghent, Belgium, or watch virtually worldwide in over 60 languages.⁠

Promotion graphic for the Precision Medicine for Genetically Defined EDS, September 3-4.

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The Ehlers-Danlos Society @ehlers-danlos.com · 29/08/2026

Dr. Mark Pimentel is the executive director of the MAST Program at Cedars-Sinai. Dr. Pimentel describes specific #gastrointestinal motility disorders associated with some types of #EDS and #HSD, such as #SIBO and gastroparesis, in a video now on our YouTube Channel: youtu.be/F3GKf_WotEw?...

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The Ehlers-Danlos Society @ehlers-danlos.com · 19/08/2026

☑️Take The Ehlers-Danlos Society 2026 Community Feedback Survey! ⁠ What matters most to you? We want to hear directly from our community about your experiences and priorities: wkf.ms/4ybTdrb #EhlersDanlossyndromes #HypermobilitySpectrumDisorders

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The Ehlers-Danlos Society @ehlers-danlos.com · 11/08/2026

📢Applications for #MCAS research funding opportunity close August 14⁠ ⁠ One of the biggest challenges for people living with #MastCellActivationSyndrome (MCAS) is getting an accurate diagnosis. Many experience years of uncertainty, inconsistent testing, and difficulty finding answers. ⁠ ⁠

Ehlers-Danlos Society graphic announcing a research funding opportunity for the development of objective diagnostic approaches and biomarkers for Mast Cell Activation Syndrome (MCAS). The blue-and-white graphic features scientific imagery including cells, molecular structures, a DNA strand, laboratory glassware, and a researcher in a white coat looking through a microscope.

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The Ehlers-Danlos Society @ehlers-danlos.com · 03/08/2026

We’re turning content into impact with Stream for Change all month! This creator-led fundraising campaign bringing together streamers, gamers, content creators, and online communities to raise awareness and funds for people impacted by EDS and HSD.

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The Ehlers-Danlos Society @ehlers-danlos.com · 03/08/2026

Some people with #periodontalEDS (pEDS), #hypermobileEDS (hEDS), or #hypermobilityspectrumdisorders (HSD) have trouble producing or sustaining their voice, also known as #dysphonia.⁠

Educational infographic from The Ehlers-Danlos Society about dysphonia (difficulty producing or sustaining the voice). It explains that some people with periodontal EDS, hypermobile EDS (hEDS), or hypermobility spectrum disorders (HSD) may have a hoarse, weak, breathy, or strained voice. Possible causes include poor coordination or hypermobility of the vocal cords, reduced vocal cord vibration due to tissue differences, and reduced movement of the cricoarytenoid joint, which controls vocal cord position and movement. An illustration shows a person holding their throat to indicate voice or throat discomfort.

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The Ehlers-Danlos Society @ehlers-danlos.com · 03/08/2026

The temporomandibular joint (TMJ) connects the lower jaw to the skull. It plays an important role in speaking and chewing.⁠ ⁠ Some people with #classicalEDS, #hypermobileEDS, or #hypermobilityspectrumdisorders may experience problems with this joint or the muscles and ligaments that support it.⁠ ⁠

Educational infographic from The Ehlers-Danlos Society about temporomandibular joint dysfunction (TMJ). The title reads "Temporomandibular Joint Dysfunction." The graphic lists common symptoms: clicking, popping, or grinding when moving the jaw; difficulty opening the mouth fully; jaw locking when opening the mouth; and pain around the jaw, ear, or temples. It notes that these symptoms can make speaking more difficult. Below the text is a side-view illustration of a skull with the temporomandibular joint highlighted in red to show the affected area.

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The Ehlers-Danlos Society @ehlers-danlos.com · 28/07/2026

Create. Stream. Change Lives. This August, we’re turning content into impact with Stream for Change, a month-long creator-led fundraising campaign bringing together streamers, gamers, content creators, and online communities to raise awareness and funds for people impacted by EDS and HSD.

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The Ehlers-Danlos Society @ehlers-danlos.com · 23/07/2026

⏰ Last chance to register! The 2026 Global Learning Conference starts tomorrow, July 24, and it's your final opportunity to secure your place. 🔗https://www.ehlers-danlos.com/events/2026-global-learning-conference/ #GLC2026 #EhlersDanlosSyndrome #HypermobilitySpectrumDisorder

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The Ehlers-Danlos Society @ehlers-danlos.com · 07/07/2026

Vascular Ehlers-Danlos syndrome (vEDS) is a heritable connective tissue disorder that makes the connective tissue very fragile, particularly in the blood vessels and hollow organs. vEDS can cause life-threatening complications. Learn more about #vEDS: www.ehlers-danlos.com/veds/ #VascularEDS

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The Ehlers-Danlos Society @ehlers-danlos.com · 06/07/2026

This week's research roundup includes research on fluoroquinolone use in #vEDS, and menopause research priorities in #rarediseases. Studies also investigated the cause of urinary symptoms in people with hEDS & barriers to care for people with #hEDS & #HSD: www.ehlers-danlos.com/research-rou...

Research roundup: New research in EDS & HSD

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The Ehlers-Danlos Society @ehlers-danlos.com · 06/07/2026

📢 New Research Funding Opportunity for MCAS Diagnostics One of the biggest challenges for people living with Mast Cell Activation Syndrome (MCAS) is getting an accurate diagnosis. Many experience years of uncertainty, inconsistent testing, and difficulty finding answers.

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The Ehlers-Danlos Society @ehlers-danlos.com · 01/06/2026

Not all stripes are black and white 🌈🦓⁠ ⁠ The Ehlers-Danlos Society recognizes and celebrates Pride Month with the LGBTQIA+ members of our dazzle! 🏳️‍🌈⁠ ⁠ #PrideMonth #EhlersDanlossyndromes #HypermobilitySpectrumDisorders

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The Ehlers-Danlos Society @ehlers-danlos.com · 26/05/2026

For many people living with #EhlersDanlossyndromes (EDS) or #hypermobilityspectrumdisorders (HSD), diagnosis is only the start. The next challenge is navigating care, being heard, finding support, and accessing joined-up services. ⁠

Promotional graphic for The Ehlers-Danlos Society Model of Care Listening Labs virtual event series. Large blue gradient banner reads “LISTENING LABS” above the title “The Lived Experience.” Icons and labels indicate this is a virtual event for participants in Canada, the USA, and the UK. The right side shows a woman wearing headphones during a video call at a computer. Blue and teal wave graphics run along the bottom.

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The Ehlers-Danlos Society @ehlers-danlos.com · 21/05/2026

The call for abstracts is now open for the 'Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes' event. The hybrid event will take place September 3-4, in Ghent, Belgium, and livestreamed globally. The deadline for abstract submissions is Sunday, June 7th: shorturl.at/LFKel

Promotional graphic from The Ehlers-Danlos Society encouraging abstract submissions for a conference titled “Precision Medicine for Genetically Defined Ehlers-Danlos Syndromes: Genetic and Allelic Variation in Decision-Making About Diagnosis, Natural History, and Treatment.” The design features purple and blue DNA-themed graphics on a light gray background. Large text reads “Submit Your Abstract.” A highlighted box states the submission deadline: “Sunday, June 7, 2026 at 11:59 PM ET (US and Canada).

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The Ehlers-Danlos Society @ehlers-danlos.com · 19/05/2026

🥡 One meal. Real progress. This Friday, May 22, your Panda Express order can help change the future for people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)!

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The Ehlers-Danlos Society @ehlers-danlos.com · 30/04/2026

🤳🏽Starting tomorrow, May 1st! Join the Social Media Challenge.⁠ ⁠ Use the 31 daily themes (shown in the image) as prompts for your social media posts from May 1-31st to share your journey and raise awareness.⁠ ⁠

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The Ehlers-Danlos Society @ehlers-danlos.com · 23/04/2026

Join The Ehlers-Danlos Society's Fundraising Challenge or the Walk and Roll Challenge this May to earn t-shirts, totes, and fun incentives! 🧡⁠

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The Ehlers-Danlos Society @ehlers-danlos.com · 20/04/2026

Research in the EDS and HSD community has been busy recently, with studies covering genetics, clinical features, and approaches to care. This week's Research Roundup includes eight studies.

Rsearch Roundup. New Research in EDS & HSD. Magnifying glass and survey papers are shown as examples of research context.

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The Ehlers-Danlos Society @ehlers-danlos.com · 27/03/2026

EDS ECHO at The Ehlers-Danlos Society invites applications for the EDS ECHO #HealthcareStudent Program for 2026–2027. This unique program is supported by a generous donation and is offered at no cost to participants: www.ehlers-danlos.com/eds-echo-hea... #EhlersDanlossyndrome #HSD

Infographic promoting the EDS ECHO Healthcare Student Program by the Ehlers-Danlos Society and Project ECHO. The left side lists program features: a monthly core learning program; access to EDS ECHO sessions for drop-in participants, clinicians, allied health professionals, and pediatrics; and access to events and resources including virtual learning events, programs reviewing the 2026 classification criteria, a library of past expert presentations, networking opportunities, and mentoring. The right side shows a world map with global connection points and two healthcare professionals, one examining a patient’s arm, symbolizing global collaboration in healthcare education.

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The Ehlers-Danlos Society @ehlers-danlos.com · 23/03/2026

We are proud to collaborate with the Program in Global Primary Health Care based at Harvard Medical School @harvardmed.bsky.social Office for Research Initiatives and Global Programs, and the Brigham and Women’s Hospital @brighamandwomens.bsky.social Division of Global Health Equity.

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The Ehlers-Danlos Society @ehlers-danlos.com · 22/03/2026

"Elliana was diagnosed with classical Ehlers-Danlos syndrome (cEDS) through genetic testing when she was 3 years old. We have learned a great deal through our own experience, research, and by connecting with other cEDS families." 🔗 www.ehlers-danlos.com/story/ellian...

Eliana smiles in a hospital bed in a princess dress.

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The Ehlers-Danlos Society @ehlers-danlos.com · 02/03/2026

Have you got your ticket for the #FemaleHealth Summit? It's coming up fast on March 7, and we have some incredible speakers joining us across a breadth of topics: www.ehlers-danlos.com/female-healt... #EhlersDanlossyndrome #HypermobilitySpectrumDisorder

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The Ehlers-Danlos Society @ehlers-danlos.com · 23/01/2026

The  EDS ECHO Health Advocacy Program  is a virtual program designed for health advocates who are committed to helping people with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

Banner for health advocacy featuring the Ehlers-Danlos Society ECHO and Project ECHO logos on the left, the headline “HEALTH ADVOCACY” across the center, and a photo on the right of diverse people stacking their hands together in a gesture of unity and support. Text at the bottom reads “Improving care in EDS & HSD.”

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The Ehlers-Danlos Society @ehlers-danlos.com · 20/11/2025

💜December 2nd is Giving Tuesday, & your gifts will have double the impact! We're thrilled to share that a donor whose family understands the journey of #EhlersDanlossyndrome (EDS) and #hypermobilityspectrumdisorder (HSD), is matching your generous donations— dollar for dollar—up to $400,000!

“Promotional graphic for The Ehlers-Danlos Society’s Giving Tuesday campaign. Text reads: ‘Giving Tuesday – December 2, 2025 – Two Weeks To Go!’ A stylized zebra heart replaces the ‘V’ in ‘Giving.’ On the right, a smiling woman holds a young child who has their arms around her. The background is white and purple with soft decorative shapes.”

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The Ehlers-Danlos Society @ehlers-danlos.com · 01/11/2025

🧠💗Today is the EDS ECHO Summit: Mental Health virtual event! 🌎We are joined by 431 attendees, including 228 healthcare professionals, representing 25 countries [Thread]

EDS ECHO Summit on Mental Health recordings. Virtual conference for community members and healthcare professionals. Includes Ehlers-Danlos Society ECHO and Project ECHO logos.

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The Ehlers-Danlos Society @ehlers-danlos.com · 21/10/2025

⁠ "Each splint we create at Splints by Evabelle is more than jewelry, it’s comfort, strength, and self-expression for people living with #EhlersDanlosSyndrome and joint #hypermobility.⁠ Partnering with clinicians, OTs, and EDS communities worldwide.⁠

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The Ehlers-Danlos Society @ehlers-danlos.com · 21/10/2025

#Ad The Ehlers-Danlos Society is delighted to welcome Splints By Evabelle as Sponsors of the EDS ECHO Summit: Mental Health, happening on November 1! ⁠

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The Ehlers-Danlos Society @ehlers-danlos.com · 03/10/2025

#Ad The Ehlers-Danlos Society thanks RTHM Health for sponsoring #ISS2025! [Thread] ⁠ "Living with Long COVID, ME/CFS, or EDS often means years of searching for answers and what to try next. Watch to hear Eliana’s experience with RTHM’s new intelligence platform and what it revealed for her.⁠

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The Ehlers-Danlos Society @ehlers-danlos.com · 01/10/2025

October is #Dysautonomia Awareness Month. Many people with #EhlersDanlossyndrome (EDS) or #hypermobilityspectrumdisorder (HSD) also have a type of dysautonomia. People with #EDS & #HSD most commonly have a form of orthostatic intolerance. Learn more: www.ehlers-danlos.com/dysautonomia/ ⁠

"Infographic titled 'Common Symptoms of Dysautonomia' by The Ehlers-Danlos Society. It shows seven illustrated human figures with icons representing symptoms: tachycardia (fast heart rate), hypotension (low blood pressure), dizziness/lightheadedness, gastrointestinal dysmotility (problems moving food through the digestive system), temperature and sweating dysregulation, sleep problems, and bladder issues."

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The Ehlers-Danlos Society @ehlers-danlos.com · 18/09/2025

#Ad The Ehlers-Danlos Society is delighted to welcome Zevra Therapeutics as Sponsors of the 2025 International Scientific Symposium! ⁠

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The Ehlers-Danlos Society @ehlers-danlos.com · 18/09/2025

🌎It’s Day 2 of the 2025 International Scientific Symposium here in Toronto, Canada! Today, sessions will cover classical EDS (cEDS), vascular EDS (vEDS), and research into rarer types of EDS.

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The Ehlers-Danlos Society @ehlers-danlos.com · 16/09/2025

#Ad The Ehlers-Danlos Society is delighted to welcome Body Braid as Sponsors of the 2025 International Scientific Symposium, September 17-21! ⁠[Thread]

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The Ehlers-Danlos Society @ehlers-danlos.com · 16/09/2025

"Patients can log daily symptoms, nutrition, and wearable data, while Guava organizes it into clear trends and insights. Providers get a more complete view of how their patients are doing between appointments, making it easier to spot patterns, measure progress, and guide care.⁠

Screenshot of the Guava app showing customizable daily check-in reminders. Users can snooze reminders or log symptoms such as fatigue, joint pain, food, energy, and activity. Text highlights that reminders help boost consistency and reveal symptom patterns.

Analytics view from Guava displaying a bar chart linking joint pain with caffeine consumption and cards showing correlations like laxity with higher heart rate variability and tachycardia with Ivabradine 7.5 mg. Caption notes that Guava surfaces statistically significant patterns to guide care decisions.

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The Ehlers-Danlos Society @ehlers-danlos.com · 16/09/2025

"For people with #EDS and #POTS, tracking symptoms and progress can feel overwhelming, and for providers, it can be hard to see the full picture in a short visit. Guava helps bridge that gap.⁠

Guava symptom logging interface with a body map highlighting joint pain locations and an entry form for severity, date, and time. Text states patients can record EDS and POTS symptoms such as joint instability, GI issues, brain fog, and tachycardia, with voice or photo input.

Guava food logging screen showing a photo of avocado toast with tomato, ingredient tags like gluten and high protein, and nutrient breakdown charts over several days. Description highlights AI-powered meal recognition and optional nutrient estimation.

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The Ehlers-Danlos Society @ehlers-danlos.com · 16/09/2025

#Ad The Ehlers-Danlos Society is delighted to welcome Guava Health as Sponsors of the 2025 International Scientific Symposium, September 17-21! ⁠[Thread]

Cover page with teal background and bold title: “How to Use Guava to Track Patient Progress – EDS, POTS, and beyond — one place for patients and providers.” Serves as the introduction to a guide for tracking patient health data.

Guava dashboard summarizing key metrics—sleep, HRV, hip pain, mood, blood oxygen, physical activity, walking, and heart rate—across weekly date ranges with trend lines. Description emphasizes a unified view of activity, nutrition, lab results, and wearable metrics.

Line graph from Guava integrating wearable device data such as sleep, daily steps, resting heart rate, and heart rate variability over time. Text explains support for Apple Health, Google Fit, Garmin, Oura, and more to track key activity and health metrics.

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The Ehlers-Danlos Society @ehlers-danlos.com · 12/09/2025

"Designed for people living with POTS, Syncope, Orthostatic Hypotension, and other forms of Dysautonomia, Lumia is the product of years of cutting-edge research to help you learn how to feel better!

Person stretching outdoors in athletic clothing, wearing the Lumia ear device. A graph labeled “Compression” shows an increase from 40 to 70. Text reads: “Find Compression That Works For You. Compression wear fits every body differently. Lumia helps you see which pieces support your Flow most, so you can do more of what’s actually helping.”

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The Ehlers-Danlos Society @ehlers-danlos.com · 12/09/2025

"Lumia is the first wearable that tracks drops in blood flow to the head - going beyond heart rate to show you what really matters for chronic symptoms like lightheadedness, dizziness, brain fog, and fainting.

Smiling person walking outdoors holding a coffee cup while wearing the Lumia ear device. A graph labeled “Dessert” shows values dropping from 70 to 40. Text reads: “Let Your Meals Lift Your Flow, Not Weigh It Down. Food is deeply personal. Lumia helps you see how food choices affect your Flow, helping you fuel and hydrate smarter.”

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The Ehlers-Danlos Society @ehlers-danlos.com · 12/09/2025

#Ad The Ehlers-Danlos Society is delighted to welcome @wearlumia.bsky.social as Sponsors of the 2025 International Scientific Symposium, September 17-21! [Thread]

Close-up of a person wearing a small metallic ear cuff device on the upper ear. Text reads: “LUMIA. Your Body Is a Story That Deserves to Be Seen. Meet the First Wearable That Tracks Blood Flow to Your Head. See What You Feel, Finally.”

Person lying on a bed with legs raised against the wall while holding a phone. A small graph labeled “Leg Raise” shows an increase in values from 40 to 70. Text reads: “Every Position Tells a Different Story. The way you sit or lie down can change how much blood reaches your head. Lumia helps you see these shifts, so you can better understand how to support your Flow.”

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The Ehlers-Danlos Society @ehlers-danlos.com · 12/09/2025

Less than 1 week to go until the 2025 International Scientific Symposium! An event for health professionals to hear the latest research in EDS and HSD, & September 21 will welcome the community and caregivers. Join us in #Toronto, Canada, or virtually worldwide: www.ehlers-danlos.com/events/inter...

Promotional banner for The Ehlers-Danlos Society 2025 International Scientific Symposium. Text reads: “PATHWAYS TO PROGRESS: A Decade of Insights and Innovations in EDS & HSD. 1 WEEK TO GO.” Event details: September 17–21, 2025, 9 AM–6 PM EDT, Toronto, Canada, and virtually worldwide. Background images show people viewing scientific posters and attending a conference, with a Canadian flag in the top right corner.

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The Ehlers-Danlos Society @ehlers-danlos.com · 09/09/2025

"Starting at $49 + the cost of medication, this is an ideal solution for patients seeking safe, accessible treatments from home, without waiting for appointments.⁠

Pyridostigmine for POTS
Pyridostigmine improves symptoms of POTS by enhancing nerve-to-muscle communication and autonomic nervous system tone in ways that stabilize heart rate and blood pressure with standing.

Pyridostigmine Study
A study from Toledo Medical Center found that 43% of POTS patients experienced significant improvements in orthostatic symptoms, namely "fatigue (55%), palpitations (60%), presyncope (60%), and syncope (48%)” while taking pyridostigmine.

https://doi.org/10.1111/j.1540-8159.2011.03047.x

RTHM Direct offers these treatments
While they are not cures, these treatments can improve the debilitating symptoms POTS, MCAS and EDS.
Access these and other medications at direct.rthm.com

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The Ehlers-Danlos Society @ehlers-danlos.com · 09/09/2025

"Discover RTHM Direct, a digital health platform that gives you access to affordable research-backed treatments for infection associated chronic conditions like Long COVID, ME/CFS, POTS, MCAS, and more, in as little as one business day.⁠

2. Ketotifen for MCAS
Ketotifen is often helpful for managing MCAS by stabilizing mast cells and reducing allergic symptoms.

43% of patients prescribed ketotifen through RTHM Direct saw improvements in their overall symptoms, and 36% of those reported moderate to significant benefits.

20% Experienced a decrease in GI issues

23% Saw improved tolerance of foods

23% Had reported better sleep

31% Saw decreased allergic symptoms

All data presented is based on internal patient outcomes from the RTHM Direct Clinic.

MCAS Review
This systematic review evaluates the effectiveness and safety of H1 antihistamines and mast cell stabilizers, such as ketotifen, in the treatment of MCAS. Ketotifen showed significant MCAS symptom reduction, however, it can cause tiredness that should be considered when dosing.

https://onlinelibrary.wiley.com/doi/10.1111/all.12672

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The Ehlers-Danlos Society @ehlers-danlos.com · 09/09/2025

#Ad The Ehlers-Danlos Society is delighted to welcome @rthm.bsky.social as Sponsors of the 2025 International Scientific Symposium, September 17-21! ⁠[Thread] ⁠

rthm DIRECT

3 Treatments for POTS and MCAS That Can Help EDS Patients

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1. Low-Dose Naltrexone (LDN)
LDN could be an effective option for both POTS and MCAS, helping to reduce inflammation and improve immune function.

53% of patients prescribed LDN from RTHM Direct saw overall improvements in their symptoms, and 39% of those reported moderate to significant benefits.

31% Experienced reduced fatigue

24% Had improved mental clarity

28% Saw reduced aches and pains

20% Experienced improved PEM

All data presented is based on internal patient outcomes from the RTHM Direct.

LDN Case Report
In a case report, a patient experienced a 7% decrease in POTS and a 17% decrease in MCAS severity scores while taking ultra Low Dose Naltrexone over a six week period prior to starting IVIG.

https://pmc.ncbi.nlm.nih.gov/articles/PMC5778345

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The Ehlers-Danlos Society @ehlers-danlos.com · 02/09/2025

Our Let’s Chat: Parents group is for parents with EDS or HSD or parents of children with #EDS or #HSD. Join other parents tomorrow on Zoom and meet others who understand. ⁠ ⁠ Date: Wednesday, September 3 Time: 12:00 pm ET forms.monday.com/forms/287901...

Graphic for 'Let's Chat: Parents' virtual support group. The design features a light blue world map background with a laptop displaying a video conference grid of blurred participants. Speech bubble icons with a person and a zebra are shown above the text.

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The Ehlers-Danlos Society @ehlers-danlos.com · 23/07/2025

Health Professionals - The Countdown to the 2025 International Scientific Symposium "Pathways to Progress: A Decade of Insights and Innovations in EDS & HSD⁠" Begins. Early bird pricing ends July 31, save $100!⁠ www.ehlers-danlos.com/events/inter...

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The Ehlers-Danlos Society @ehlers-danlos.com · 21/07/2025

The Ehlers-Danlos Society's global mission for EDS and HSD could receive a £2,000 boost with your help! 🧬👩🏽‍⚕️ 🦓 Nominate The Ehlers-Danlos Society in the Movement For Good Awards — You can nominate from anywhere in the world. Click here to nominate: movementforgood.com/index.php?cn...

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The Ehlers-Danlos Society @ehlers-danlos.com · 01/07/2025

💜 It’s Disability Pride Month! 💜 July is Disability Pride Month, a time to celebrate the EDS and HSD community and uplift disabled voices around the world.

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The Ehlers-Danlos Society @ehlers-danlos.com · 16/05/2025

Join the #REDS4VEDS campaign today Friday, May 16, and help to raise awareness of vascular Ehlers-Danlos syndrome (vEDS).⁠ ⁠ ⁠ To take part simply:⁠ ⁠ 🔴Wear something red⁠ ⁠ 🤳 Post a picture on social media with the hashtag #REDS4VEDS⁠ ⁠

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