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Reposted by EGFR Positive Lung Cancer UK

ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 12/01/2026

What if lung cancer wasn’t one of the less survivable cancers? This week is Less Survivable Cancers Awareness Week (12–16 Jan). #Lungcancer is one of these cancers, with outcomes still driven by late diagnosis, missed symptoms, & gaps in research & access. Earlier diagnosis can change survival.

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Reposted by EGFR Positive Lung Cancer UK

ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 27/12/2025

We’ve known for a while that some ALK- & EGFR-positive #LungCancer can change type over time, often to small cell. This study adds real-world data on how often it happens, when, & what treatment may work next - reinforcing why re-biopsy matters. #SCLC #LCSM 🔗 www.researchgate.net/publication/...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 28/11/2025

On 1st August my diagnosis changed from NSCLC to #SCLC, ending my time on Osimertinib and starting chemo & immunotherapy. My first diagnosis in 2021 came after months of pain and being told it was tennis elbow or sciatica, until further tests confirmed EGFR+ Stage 4 #lungcancer. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 23/11/2025

#Lungcancer wasn’t on my radar. I had no symptoms & my RET-fusion lung cancer was found by accident while I was in treatment for breast cancer. I also have bowel cancer - 3 primaries - which still feels surreal to say. Read Allison’s story ➡️ www.allyouneedislungs.org.uk/2025voices/a... #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 22/11/2025

Week 3 & we’ve passed 1 million views! 💟 Grateful to everyone who’s shared their #lungcancer story & everyone taking the time to read, like & share to raise awareness that anyone can get lung cancer. Read all 56 stories here ➡️ www.allyouneedislungs.org.uk/2025voices #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 20/11/2025

“Too many people like me are told they’re too young, too healthy, or too unlikely to have #lungcancer and that’s how cases get missed.” Debra, ALK+ UK Chair, shares why See Through the Symptoms is about being taken seriously, seen sooner, and diagnosed earlier. 🔗 seethroughthesymptoms.uk #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 19/11/2025

Since the early 1990s, #lungcancer rates in women in the UK have risen by around a third (34%). Lung cancer can affect anyone even younger people. Be alert to symptoms that don’t go away, like a cough that lingers, breathlessness, fatigue or chest/shoulder pain. Source: Cancer Research UK #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 17/11/2025

Catherine was diagnosed with stage 1 #lungcancer in 2019. She’d always been careful about her health, and it came as a big shock. In 2023 she was told it was stage 4 ROS1+ which meant her cancer could be treated with a daily targeted therapy. Thank you Catherine for sharing your story. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 15/11/2025

In loving memory of Sophie ♡ Diagnosed with stage 4 EGFR+ #lungcancer at 24. She died this September aged 28. Shared with her family’s blessing. Her only early sign was a crackle in her chest at night. She felt well. Months of tests followed before she heard the word “cancer.” #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 09/11/2025

Gini, part of our All You Need Is Lungs team, shared her story in today’s Mail on Sunday. Her shoulder pain was put down to breastfeeding discomfort - but it turned out to be stage 4 EGFR+ #lungcancer. By speaking so openly, Gini is helping raise awareness that lung cancer can affect anyone. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 08/11/2025

Too many families are affected by #lungcancer when it’s the last thing they expected. People doing all the right things & still missed. Deepa, from the Ruth Strauss Foundation, shares why See Through the Symptoms is about pausing, rethinking, and acting sooner. 👉 seethroughthesymptoms.uk #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 07/11/2025

Sylvie had back pain, shortness of breath & weight loss. She was told it was sciatica & sent home. A scan finally showed a mass in her lung - it was stage 4 ALK+ #lungcancer that had spread to her bones, liver, spine & lymph nodes. 💬 “I’d always assumed lung cancer & smoking went together.” #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 06/11/2025

Jaber was diagnosed with stage 4 #lungcancer at 37. His symptoms were breathlessness & a persistent cough. See Through the Symptoms is an award-winning lung cancer awareness campaign - helping healthcare professionals spot lung cancer early, even in people who don’t fit the usual profile. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 05/11/2025

Julia has been living with stage 4 ROS1+ #lungcancer for almost 10 yrs. It started with what she thought was a chest infection, then pneumonia put her in ICU for 8 days. She’d also had shoulder pain for months, which she put down to sleeping awkwardly. She didn’t know it could be a symptom. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 03/11/2025

#Lungcancer can affect anyone - even if it’s the last thing you’d expect. It doesn’t care about age, history or lifestyle. Symptoms aren’t always obvious they can be subtle & not always respiratory related. Don’t ignore signs that persist. Finding it early increases your options. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 02/11/2025

Emma’s first sign of #lungcancer was numbness in her fingers. She was pregnant with her second son when the symptoms got worse & she was admitted to hospital. Tests eventually found stage 4 ALK-positive lung cancer that had spread to her brain. www.allyouneedislungs.org.uk/2025voices/e... #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 01/11/2025

It’s 1 November - the start of Lung Cancer Awareness Month and the launch of the third year of #AllYouNeedIsLungs! 💟 We’re sharing over 30 real voices this year - all ages & backgrounds who want others to recognise the signs sooner. Because lung cancer doesn’t have one face. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 28/10/2025

Do you have #lungcancer & no smoking history? Uni of Southampton are running an interview study (funded by Ruth Strauss Foundation) to understand the experiences & needs of people diagnosed with LC who have smoked <100 cigarettes in their life. southampton.qualtrics.com/jfe/form/SV_... #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 28/10/2025

Shaun, 54, was diagnosed with stage 4 ALK+ #lungcancer in 2022. “There was a 3 month period in which I ping-ponged between my GP and the local hospital, as they tried to identify the cause of my deteriorating condition.” #LCSM Read Shaun’s story 🔗 www.allyouneedislungs.org.uk/2025voices/p...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 25/10/2025

Too many people with #lungcancer are diagnosed late - not because they didn’t ask for help, but because no one thought it could be lung cancer. Angela, EGFR+ UK Non-Executive Chair, shares why we need professionals to look beyond the usual risk factors. 👉 seethroughthesymptoms.uk #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 24/10/2025

‘I’d had a persistent cough & shortness of breath - symptoms that just wouldn't go away. Finding out it was stage 4 #lungcancer was overwhelming, but I've always believed it's not over till it's over! That philosophy has carried me through the toughest moments & continues to.’ Kirsteen #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 21/10/2025

New JAMA study shows #lungcancer in never-smokers is rising - esp among women - & often linked to EGFR & ALK mutations. Great visual by Dr Rishabh Jain 🙏 - featuring our campaigns All You Need Is Lungs & See Through the Symptoms. #LCSM allyouneedislungs.co.uk seethroughthesymptoms.uk

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 20/10/2025

“I’m Emma, 51, a celebrant, radio presenter & event host. I was told I had no risk factors for #lungcancer. Then in April, a liquid biopsy confirmed stage 4 ALK+ lung cancer. I’m still finding my way & realising how much love & support mean.” www.allyouneedislungs.org.uk/2025voices/e... #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 19/10/2025

GPs: did you know #lungcancer in never-smokers is now the UK’s 8th most common cause of cancer-related death? Our award-winning campaign See Through the Symptoms is back for 2025 - help spot the signs early. 👉 www.seethroughthesymptoms.uk #PrimaryCare #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 18/10/2025

“In 2023 I was diagnosed with stage 4 ALK+ #lungcancer while I was pregnant with my 2nd son. I’d been experiencing numbness in my fingers. At first I was misdiagnosed with neurocysticercosis in my brain & potential pneumonia. A follow-up chest X-ray led to the discovery of lung cancer.” Emma #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 16/10/2025

Debbie was diagnosed #lungcancer at 46. Her first symptom was a swelling in her neck. See Through the Symptoms is an award-winning awareness campaign from ALK+ UK, Ruth Strauss Foundation and EGFR+ UK - helping HCPs spot lung cancer early, even in people who don’t fit the usual profile. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 16/10/2025

🫁 Parents living with #lungcancer and their children (aged 11–24) are invited to take part in a research event in London this November. The Open University study explores wellbeing and family support needs. 👉 openss.qualtrics.com/jfe/form/SV_etf8nRP4PKwwMIu

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 13/10/2025

Polly, 64, was diagnosed with stage 4 EGFR+ #lungcancer in 2021. Gardening, knitting, & time with family & friends help her stay positive and enjoy the simple things in life. 🌿 She’s one of over 30 voices in our 2025 All You Need Is Lungs campaign for Lung Cancer Awareness Month. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 10/10/2025

The official photos are out! 💟 Still smiling from such a great night at the UK Social Media Awards this week. Our All You Need Is Lungs lung cancer awareness campaign was a finalist for Best Charity/Not-for-Profit Campaign. Thanks to Don’t Panic Events for a wonderful evening. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 09/10/2025

What a night 💟 #AllYouNeedIsLungs was a finalist for Best Charity/Not-for-Profit Campaign at the UK Social Media Awards. We didn’t take home a trophy (apart from best 360 booth dancing 🕺), but we don’t need one to know we’re making a real impact in #LungCancer awareness. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 08/10/2025

It’s a pinch me moment! All You Need Is Lungs is a finalist tonight at the UK Social Media Awards for Best Charity/Non-Profit Campaign 🎉 Our little team is heading there with some of the amazing voices behind this #LungCancer awareness campaign & thinking of those who are no longer with us. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 29/09/2025

Ruth Strauss Foundation have grants up to £50,000 available for research into Non-Smoking #LungCancer; to improve understanding, diagnosis & quality of life 🫁 🗓️ Apply by 10 Jan 2026 #LCSM ruthstraussfoundation.com/grants-progr...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 25/09/2025

🌍 Today is World Lung Day - a platform to advocate for better lung health. It’s also the next step in our 2025 campaign 💟 & 10 new voices are here! Thank you to everyone who’s taken part - together we’re shifting assumptions about #LungCancer & helping more people get diagnosed earlier. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 22/09/2025

🎉 Our official finalist blog feature is now live! All You Need Is Lungs is a finalist for Best Charity Campaign at the 2025 UK Social Media Awards. Our entry? 100% organic, 1st-person stories, created in partnership with our volunteers. #LCSM #LungCancer uksocialmediaawards.com/2025/09/10/a...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 15/09/2025

‘For decades, #lungcancer has been viewed as a disease of older men who smoked. Now, cases among young women are on the rise and doctors are baffled. Could air pollution be behind it?’ #LCSM www.theguardian.com/society/2025...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 12/09/2025

A cough that just wouldn’t go away was James’ first sign of lung cancer. “I’m a 45-year-old dad of 3 boys. I was diagnosed with stage 4 ALK+ #lungcancer in 2024 after a cough that got so bad I couldn’t hold a conversation.” #LCSM Read James story 👉 www.allyouneedislungs.org.uk/2025voices/j...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 26/08/2025

Alice was 39 when she learned she had stage 4 ROS1+ #lungcancer. Before that, she was told it was asthma, then pneumonia, & even spent 2 months in hospital. Lung cancer doesn’t discriminate - it can happen to anyone. #LCSM www.allyouneedislungs.org.uk/2025voices/a...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 24/08/2025

Sylvie’s back pain was dismissed as sciatica but it was actually a sign of #lungcancer. “I’m Sylvie, a 48 year old mum of 3 who adores travelling. In Nov 2023, I was diagnosed with stage 4 ALK+.” Sylvie is one of 10 voices in our 2025 campaign preview - showing anyone can get lung cancer. #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 12/08/2025

“I’m Eve, 44, French, & live in the North East with my husband & our 2 girls.  I was diagnosed with stage 4 EGFR+ #lungcancer in Jan 2023 after a year-long cough & being sent home a couple of times.” Eve 💟 is one of the voices in our 2025 All You Need is Lungs campaign. tinyurl.com/ysvuavmc #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 01/08/2025

Our award-winning See Through the Symptoms campaign is back! Launched today for World #LungCancer Day, the campaign returns with a brand-new website - ready to support early diagnosis in primary care. See Through the Symptoms is part of All You Need Is Lungs. www.seethroughthesymptoms.uk #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 26/07/2025

Tina 💟 was one of our brilliant volunteers for 2024 & found it a really positive experience for her & her family. It’s your last chance to send your #lungcancer story & be guaranteed to be included in our 2025 campaign. Portal closes 31 July. www.allyouneedislungs.org.uk/volunteer-hub #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 30/06/2025

Wow - blown away doesn’t cover it!! All You Need Is Lungs is a finalist in the 2025 #UKSocialMediaAwards! 💟 A campaign with no media budget, no agency - just real voices from people living with non-smoking #lungcancer. Thank you 🙏 to all our incredible ‘voices’ for making this possible! #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 15/06/2025

Tina, a mum & grandma, refuses to let Stage 4 ALK+ #lungcancer stop her from planning for the future. Being diagnosed in 2021 was a huge shock, esp as a never-smoker. Symptoms included a persistent cough & ongoing chest/upper back pain. #LCSM www.allyouneedislungs.org.uk/volunteers-v...

allyouneedislungs.org.uk

Tina — ALL YOU NEED IS LUNGS

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Reposted by EGFR Positive Lung Cancer UK

BTOG @btog.bsky.social · 10/06/2025

What #ASCO25 results could shift clinical practice in the UK? 💡 From immunotherapy breakthroughs to precision diagnostics—get the key insights in just 1 hour! 🗓️ Mon 16 June | 🖥️ Free BTOG webinar www.btog.org/asco-update-... #LCSM #LungCancer #ThoracicOncology #BTOGASCO2025Webinar

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 08/06/2025

📣 Our volunteer hub is now open! Share your story of living with mutation-driven #LungCancer 🫁 for this year’s Lung Cancer Awareness Month (November). We’re looking for real UK experiences to show: anyone can get lung cancer #AllYouNeedIsLungs. 👉 www.allyouneedislungs.org.uk/volunteer-hub

allyouneedislungs.org.uk

Volunteer Hub | Share Your Lung Cancer Story — ALL YOU NEED IS LUNGS

Take Part in the 2025 All You Need is Lungs campaign to raise lung cancer awareness through personal stories, photos, and videos. Share hope and inspire others.

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 06/06/2025

Gini & Deepa from our #AllYouNeedIsLungs team spoke at SELCA’s Early Diagnosis of Lung Cancer Community of Practice this week, highlighting our 2 campaigns: 💟 All You Need Is Lungs - for the public 💡 See Through the Symptoms - for HCPs Awareness is key to earlier #lungcancer diagnosis. #LCSM

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EGFR Positive Lung Cancer UK @egfrpositiveuk.bsky.social · 02/06/2025

🚴‍♀️ Mel, amazing member of our EGFR+ UK community, appeared on BBC Breakfast this morning alongside Sir Chris Hoy to talk about #TourDe4 & living with stage 4 #lungcancer. She shared her story, her strength, & why this ride matters. 📺 Watch here: youtu.be/HqGqmuL5Q7E #EGFRPositive #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 31/05/2025

Discover 26 powerful real-life stories from people living with #LungCancer - from first symptoms to challenging diagnoses to finding strength & hope. Showing the realities of lung cancer & the resilience of those affected. www.allyouneedislungs.org.uk/volunteers-v... #LSCM

allyouneedislungs.org.uk

26 Real-life lung cancer stories from our community — ALL YOU NEED IS LUNGS

Discover 26 powerful stories of individuals living with lung cancer. From the first symptoms and challenging diagnoses to finding strength and hope, these real-life experiences shine a light on the re...

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 30/05/2025

Facial paralysis was a surprising red flag of #lungcancer for Jenny diagnosed with Stage 4 EGFR+. Since she's embraced a new perspective, finding joy in life's little moments. Jenny’s story: www.allyouneedislungs.org.uk/volunteers-v... We're now accepting submissions for our 2025 campaign! #LCSM

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Reposted by EGFR Positive Lung Cancer UK

All You Need is Lungs @allyouneedislungs.bsky.social · 29/05/2025

It’s time to challenge the stereotypes & raise awareness that anyone can get #lungcancer regardless of age or smoking status. #AllYouNeedIsLungs We’re looking for ‘voices’ for our 2025 campaign. Help us change the narrative. #LCSM Submit your story: www.allyouneedislungs.org.uk/volunteer-hub

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