iiinova — where your digital self keeps evolving

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 02/10/2026

This guide is to help supporters and parents promote positive emotional well-being for people who have Down syndrome. It contains lots of ideas and strategies covering all aspects of life. Please access the online guide on our website: loom.ly/C_Emm74

Front cover of our online 'emotional well-being'resource. Image of a man who has Down's syndrome in a field of sunflowers.

021

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 03/10/2026

DSEngage LIVE | 4pm Disco🪩 Join people who have Down’s syndrome from all over the country for our 4pm Disco. Pick your favourite song, turn on your disco lights, and have a dance around your living room. Next Session: 6 October 2026. Time: 4 – 5pm. Please sign up here: loom.ly/HOSfvY8

Image of two young girls with Down's syndrome on our 4pm disco poster.

011

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 05/10/2026

Today (5th October) is World Teacher Day. To mark this, we thought we'd bring your attention to the resource 'International Guidelines for the Education of Learners with Down Syndrome' - published by DSi. If you're an educator, please click here to read the resource: loom.ly/FcRen4Q

Boy and girl in a secondary school class together, working from a textbook. The girl has Down's syndrome.

023

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 18/09/2026

Do you look after babies, children, young people or adults with Down Syndrome? Do you live in the UK or just live the idea of visiting Edinburgh? Come along in November to our Winter Meeting ❤️❤️❤️❤️❤️ #medsky #pedsky #DownSyndrome @dsa-uk.bsky.social

122

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 10/09/2026

Want to keep up to date with care of people with Down Syndrome? Come join us in #Edinburgh on the 20th of November for our Winter Meeting Tickets at dsmig.org.uk, join DSMIG at the same time and get a discounted ticket - making membership essentially free ❤️ @dsa-uk.bsky.social

dsmig.org.uk

DSMIG | Down Syndrome Medical Interest Group

012

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 10/09/2026

Looking forward to the DSMIG workshop at the #BACCH Annual Scientific meeting in wonderful Cardiff next week! 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @commchildhealth.bsky.social @dsa-uk.bsky.social

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 04/08/2026

It can be tricky transitioning from child to adult services. Our England guide simplifies the process, sets out key timescales and links to other useful resources and organisations. You can find it here: loom.ly/OhCFyMU

Images of pages from our 'Transition To Adulthood' resource.

042

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 12/06/2026

Researchers from the University of Manchester are looking for adults who have Down’s syndrome between the ages of 18-50 to take part in a study about testing people’s hearing using a test called Auditory Steady State Response or ASSR. Click here to find out more/take part: loom.ly/aeKlRn8

Image of someone getting a hearing test done.

001

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 13/06/2026

In this article by Dr Liz Marder she explains the different immunisations and why they are important as well as a useful schedule of when they should happen. Resource link here: www.downs-syndrome.org.uk/wp-conten…

Images of pages from our immunisation online resource.

022

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 16/05/2026

The Timms Review of Personal Independence Payment (PIP) is open for evidence until 28 May 2026. If you support a young person or adult with Down’s syndrome, you can share your experience of the PIP process. Call for evidence: loom.ly/JEUPq80 Submit your response: loom.ly/PSMq5mc

Image of a man who has Down's syndrome on his phone, alongside images of money and government related words.

022

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 13/05/2026

We are looking for parents contacts (on behalf of a parent) where an adult who has Down's syndrome, has a diagnosis of Type 1 diabetes. If you can help, please email stuart.mills@downs-syndrome.org.uk Thank you. 🙂

002

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Lord Sedge of Sedgley @lordsedge.bsky.social · 12/05/2026

Awesome to see Dr Liz Marder receive Honorary Fellowship of @rcpch.bsky.social at #RCPCH26 @dsmig.bsky.social @dsa-uk.bsky.social

161

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Brighton & Hove Albion Foundation @bhafcfoundation.bsky.social · 21/03/2026

Today we're celebrating #WorldDownSyndromeDay! 😄 These pictures are from our DS session last Sunday, taking place every two weeks at the Elite Performance Centre. #TogetherAgainstLoneliness | #WDSD26

A girl goes to play a pass with an orange ball, as a coach, holding a neon bib attempts to defend

A participant in a turquoise BHAFC Foundation top pumps his fist and smiles for the camera as another boy in a blue top behind him smiles

123

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026

Happy World Down Syndrome Day from all of us at the Down's Syndrome Association! 💚🧦 We hope you have a great time celebrating, however you're spending your day! Make sure to wear your #LotsOfSocks and badges to show your support for #WDSD! #WDSD26 #TogetherAgainstLoneliness #WorldDownSyndromeDay

Image of a young boy who has Down's syndrome - he is smiling on our poster for World Down Syndrome Day.

01312

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026

Happy World Down Syndrome Day! Let’s look back at where our special partnership all started as we hear from Remco Norden, Vice President of UK&I Operations and Alison Thwaite, Head of Employment Services at the Down’s Syndrome Association. Please watch the full video here: loom.ly/K4k9nnk

022

Reposted by Down Syndrome Medical Interest Group UK & Ireland

BAPT British Association Of Play Therapists @bapt.info · 21/03/2026

#WorldDownSyndromeDay This year’s theme: “Together Against Loneliness.” Children and young people thrive when they feel seen, valued, and included within their communities. Through play, children can build relationships, develop confidence, and express themselves in ways that feel natural to them.

023

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026

Thanks for getting your #LotsOfSocks on for #WorldDownSyndromeDay! #TogetherAgainstLoneliness

011

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Adam John Roberts @adamjohnroberts.bsky.social · 21/03/2026

Which odd 🧦 should I wear? 🤔 #LotsOfSocks #WorldDownSyndromeDay

011

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026

Happy #WorldDownSyndromeDay everyone! Fantastic photos...looks like everyone's having a great time.

121

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 17/03/2026

Our differences are natural and are what make this world beautiful. This World Down Syndrome Day, let’s foster neurodiversity affirming communities and work “Together Against Loneliness.” #DownSyndrome #WDSD

044

Reposted by Down Syndrome Medical Interest Group UK & Ireland

BACCH @commchildhealth.bsky.social · 16/03/2026

Booking is now open for the BACCH ASM 2026 in Cardiff! Reserve your spot now - discounted rates are available for BACCH members. For ticket options and other details see www.bacch.org.uk/pages/asm.

002

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 16/03/2026

Connecting with kindred spirits, or peers with similar experiences to your own, is vital for feeling seen, understood, and valued. As we approach World Down Syndrome Day, let's build these connections and come “Together Against Loneliness.” #DownSyndrome #WDSD

022

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 17/03/2026

The Down Syndrome Act statutory guidance consultation is seeking good practice examples and resources that can inform future guidance on adulthood, independence and employment. If you have materials or evidence that highlight what works, please contribute. Respond here: loom.ly/XurzOHM

Image of a WorkFit candidate (a man who has Down's syndrome) with his colleagues at his place of work.

033

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 16/03/2026

It's the start of Down’s Syndrome Awareness Week 2026! 🧦💚 Make sure to show your support and celebrate from the 16 to 22 March 2026 (World Down Syndrome Day is on the 21 March.) Join with us and with people around the world to stand Together Against Loneliness! See more: loom.ly/KpXtcgI

Image of a boy and girl at prom on our Awareness Week poster. The boy has Down's syndrome.

033

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 19/02/2026

Coming March 2: the Spring 2026 edition of 3.21: Canada's Down Syndrome Magazine - the Healthcare Issue. Subscribe for free today to receive a free digital copy in your inbox! DSRF.org/magazine 3.21 Magazine is co-published by DSRF and the Canadian Down Syndrome Society.

promotional image for the Spring 2026 issue of 3.21: Canada's Down Syndrome Magazine, coming Mar 2; magazine cover features a brown woman with Down syndrome, with black hair and wearing a red, flowered top; title: The Healthcare Issue

033

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 22/02/2026

Do you want to take part in Challenge 21?! 💚 Down’s syndrome is caused by the presence of an extra copy of chromosome 21. We have therefore come up with a selection of challenges for you all based on the number 21! Go to our website to find out more about getting involved: loom.ly/J1fnOag

Image of a young woman who has Down's syndrome. She is smiling and wears glasses. She is giving a younger boy a piggy-back.

032

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 04/02/2026

Join us at the RCPCH conference! The session will run jointly with the British Academy of Childhood Disability and the British Paediatric Respiratory Society “Bridging Disciplines: optimising outcomes for children with complex respiratory and neurodevelopmental needs” @bacdisability.bsky.social

media.tenor.com

a unicorn is running in a field with the words heute show on the bottom right

Alt: A very cool dancing unicorn

011

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 03/02/2026

We have another new team member to introduce - our newest Speech Language Pathologist, Aideen Sweeney! Aideen (she/her) completed her Master’s degree in Speech and Language Therapy at the University of Essex in the United Kingdom. Welcome to DSRF, Aideen!

021

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 04/02/2026

DSEngage Live | Dance Class 🎶 Join people who have Down’s syndrome from all over the country to Wake up and dance via Zoom! Next Session: Thursday 5 February 2026 (tomorrow.) Time: 9.30 – 10.15am. The sessions will be led by a Dance Leader from DanceSyndrome. Book here: loom.ly/fEn2yVs

Image of a teenage girl who has Down's syndrome, dancing, on our 'Wake Up and Dance' poster. She wears headphones and glasses and a striped t-shirt.

022

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 28/01/2026

A reminder that anyone aged 14 and over can request an annual health check at their GP practice. This should then result in any health needs being met and a plan for moving forward to ensure optimum health throughout the year. Find out more here: loom.ly/YQ8ENds

Image of a young man who has Down's syndrome at the doctor's surgery, with his doctor.

023

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 28/01/2026

We welcome the updated publication of the 8th LeDeR report for 2023. Although the report provides important insights, the pace of change remains far too slow. Response in full here: loom.ly/qgg6G1I

022

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 30/01/2026

Have you got your 'Lots of Socks' yet?! 🧦 Celebrate World Down Syndrome Day 2026 (21 March) the Lots Of Socks way! Please support the DSA and WDSD by getting your pair here: www.downs-syndrome.org.uk/product/l… #WorldDownSyndromeDay

021

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 06/01/2026

The current issue of 3.21 Magazine takes on the topic of housing for adults with Down syndrome. We asked some experts what skills are most important to maximize independence after moving out, how to cultivate them, and what forms of support can help fill the gaps. www.dsrf.org/resources/bl...

man with Down syndrome with short dark hair, black glasses, and green long-sleeve shirt takes toast out of a toaster in his kitchen

27927

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 07/01/2026

Parents and carers of children and young people who have Down’s syndrome - your voices matter. The Department for Education (DfE) says this national conversation on SEND will influence the next Schools White Paper. Click here: consult.education.gov.uk/send-refor…

Images of young children who have Down's syndrome in their school uniforms.

042

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 07/01/2026

We're sorry that this week's (9 January) 'Get Moving' session has been cancelled. Get Moving is the new name for Pilates Plus. 🤸 Please join us for the next Get Moving session on Friday 16 January instead. You can sign up here: loom.ly/-T0bZlY

Poster for our 'Get Moving' session. There's an image of a girl stretching in a gym class, she has Down's syndrome.

032

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 07/01/2026

We are delighted to introduce you to the newest member of the DSRF staff team: Occupational Therapist Devanshi Gupta. Welcome to the team, Devanshi!

053

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 03/01/2026

Supporting the well-being of adolescents and adults who have Down’s syndrome: Thursday 15 January 2026 | 10.30 to 11.45am | FREE In this webinar we will talk about what we mean by well-being. We also talk about the importance of self esteem. Book onto the webinar here: loom.ly/d5IbUjI

Image of two young women who have Down's syndrome. They are smiling and hugging and both have brown hair, fringes and glasses.

001

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Lord Sedge of Sedgley @lordsedge.bsky.social · 07/12/2025

The Down Syndrome Medical Interest Group no longer has a Twitter/X account, but we have moved to Bluesky ❤️ Could any lovely #paedsky #paediatrics folks give it some love? #paedsky #pediatrics It's @dsmig.bsky.social Also @rcpch.bsky.social - give it a follow 😁

096

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 06/12/2025

Yesterday, staff from the DSA attended The Down Syndrome Medical Interest Group UK and Ireland Winter Meeting at the Royal Society of Medicine, London. All of our staff members gave brilliant presentations - well done to all involved! @dsmig.bsky.social

Banner for the DSMIG event where the DSA gave presentations.

011

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down's Syndrome Association @dsa-uk.bsky.social · 07/12/2025

Our prize draw for the chance to win a signed copy of Ellie Goldstein’s book 'Ellie' is closing on the 12 December at 12pm! 💚 The main prize will now be the book AND a Barbie doll with Down's syndrome! As well as four Barbie's with Down's syndrome to give away. Enter here: loom.ly/U3J0Ceo

Front cover of Ellie Goldstein's book: 'Ellie.'

011

Reposted by Down Syndrome Medical Interest Group UK & Ireland

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025

Good morning all! A big hello to all attending the #dsmig winter meeting at the Royal Society of Medicine

162

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025

Women with high risk of CHD should avoid COCP. Epilepsy is more common in Down Syndrome and seizures can be worse premenstrually. Oestrogen and lamotrigine may interact VALPROATE REQUIRES EFFECTIVE CONTRACEPTION: see @mhragovuk.bsky.social #dsmig

100

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025

Treatment: Mild: TXA Mod: hormones Severe: higher doses of both #dsmig

100

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025

1st Yr after menarche only 15% of girls are ovulating regularly By 6th Yr 90% are ovulatory #dsmig

Detailed slide about heavy menstrual bleeding

100