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Down's Syndrome Association @dsa-uk.bsky.social · 10h

Help Shape the Future of Adult Social Care: Thousands of households across England are now being invited to take part in the Public Panel on Care, a key part of Baroness Louise Casey’s Independent Commission on Adult Social Care. Head to our website for the full article: loom.ly/xew5jV0

Image of a young man with Down's syndrome, with his carer, who is a man of a similar age. They are smiling/laughing.

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Down's Syndrome Association @dsa-uk.bsky.social · 29/09/2026

Families Share School Transport Experiences to Inform Law Commission Review: The DSA recently brought together parents and carers to share their experiences of school and post16 transport. To find out more about the findings, please read the full article on our website: loom.ly/5yNDWQg

Images of school children (boys and girls) on a bus to school. One of the boys has Down's syndrome. They are all waving out the bus window.

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Down's Syndrome Association @dsa-uk.bsky.social · 29/09/2026

The 29 Sep (today) is World Heart Day. About half of all children who have Down's syndrome are born with a heart condition, with heart conditions also occurring for some people later in life. For more info, resources and support on heart issues/healthy lifestyles, see here: loom.ly/3idpAMs

Image of a young male who has Down's syndrome getting his heart listened to by a male doctor using a stethoscope.

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Down's Syndrome Association @dsa-uk.bsky.social · 27/09/2026

Your baby’s communication development begins at birth and your Speech and Language Therapist can help you to support your baby’s development. Our resource guides you through the early stages of speech development and the role of the Speech and Language Therapist. See here: loom.ly/WgofaWA

Images of pages from our online speech and language therapy resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 26/09/2026

Caring for a baby who has Down’s syndrome is the same as caring for any newborn. 👶 As with all babies, enjoy them while they are little as they will grow up fast! Click on the link to read some stories from mums and dads about their new babies: loom.ly/KL6XEvw

Images of babies who have Down's syndrome.

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Down's Syndrome Association @dsa-uk.bsky.social · 22/09/2026

Eye Health Week: Sept 21–27. 👓 This awareness week highlights the importance of regular eye tests and vision care. People who have Down’s syndrome are more likely to have difficulties with their eyesight. Our eye webpage has resources and information available: loom.ly/3RVnk8k

Image of a young boy with Down's syndrome at the opticians, getting an eye test.

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Down's Syndrome Association @dsa-uk.bsky.social · 20/09/2026

We’re so close to an incredible milestone—our lottery has now raised over £45,000! For just £4.34 a month, you could be in with the chance of winning £25, £1,000 or even £25,000! Could you help us reach £50,000? Please join today: loom.ly/xLL-xTc *Must be aged 18 or over. T's + c's apply.

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Down's Syndrome Association @dsa-uk.bsky.social · 19/09/2026

On Wednesday 23rd September, we will be exhibiting information and delivering a presentation to midwives at the South Wales Maternity Festival, being held at the Cardiff City Football Stadium. If you are attending, do come along and chat with Kate and Julian on the DSA stand!

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Down's Syndrome Association @dsa-uk.bsky.social · 16/09/2026

The DSA New Parent pack contains resources to help you to get to know your new baby. Please get in touch by e-mailing info@downs-syndrome.org.uk if you would like a copy sent to you in the post. Click here for the online resource: loom.ly/DuRXgGY

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Down's Syndrome Association @dsa-uk.bsky.social · 15/09/2026

DSEngage LIVE | Five Year Celebration Disco 🪩🥳 Wednesday 16 September 2026. 6-7pm. Join us tomorrow to celebrate five years of DSEngage! This special DSEngage Disco session celebrates 5 years of weekly sessions and 5 years of you. Sign up on our website: loom.ly/wmXBCWk

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Down's Syndrome Association @dsa-uk.bsky.social · 15/09/2026

Help shape the future of adult social care. The Casey Commission is carrying out the biggest public conversation on adult social care for a generation and wants to hear directly from disabled people and their families. You have until the 23 September to take part: loom.ly/xQFQEC4

Image of a carer who is a young woman, with an elderly woman who has Down's syndrome.

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Down's Syndrome Association @dsa-uk.bsky.social · 13/09/2026

A free online support group for parents/professionals on Early Reading Strategies to support Speech and Language Development. We recommend that you attend all three sessions. Click here to find out more/sign up: loom.ly/d-ES6Ws

Image of a young boy who has Down's syndrome, going through a worksheet on the floor.

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Reposted by Down's Syndrome Association

Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 10/09/2026

Want to keep up to date with care of people with Down Syndrome? Come join us in #Edinburgh on the 20th of November for our Winter Meeting Tickets at dsmig.org.uk, join DSMIG at the same time and get a discounted ticket - making membership essentially free ❤️ @dsa-uk.bsky.social

dsmig.org.uk

DSMIG | Down Syndrome Medical Interest Group

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Down's Syndrome Association @dsa-uk.bsky.social · 08/09/2026

Are you are having a baby? If so, congratulations! 👶 If you know your baby will be born with Down’s syndrome or has a high chance of this, our ‘Looking Forward to your New Baby’ resource can help with questions you may have. Click on the link to access the resource: loom.ly/Corgvog

Images of pages from our 'looking forward to your baby' online resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 05/09/2026

Q&A Session: Common Ear, Nose and Throat (ENT) Issues in Children who have Down Syndrome Friday 6 November 2026 | 12 noon to 1.15pm | FREE In this webinar, Patrick Sheehan (ENT Consultant) will answer your questions about ENT issues. Please sign up here: loom.ly/MbfPMIw

Image of a young boy who has Down's syndrome. He is sat in a big armchair.

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Down's Syndrome Association @dsa-uk.bsky.social · 03/09/2026

Shape the Law Commission’s Review of Transport Accessibility School transport focus group (including post-16 and post-19 transport) 16 September | 6.00pm-7.30pm Wider Transport Accessibility (excluding school/college transport) 22 September | 6.00pm-7.30pm Register here: loom.ly/OyXpq1A

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Down's Syndrome Association @dsa-uk.bsky.social · 02/09/2026

DSEngage Live | Dance Class 💃🕺 Join people who have Down’s syndrome from all over the country to Wake up and dance with DanceSyndrome via Zoom! The next session is tomorrow and it's back to its normal time: Thursday 3 September 2026. Time: 9.30-10.15am. Sign up here: loom.ly/fEn2yVs

Image of a teenage girl who has Down's syndrome, dancing inside her house, on the poster for our Wake Up and Dance session.

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Down's Syndrome Association @dsa-uk.bsky.social · 01/09/2026

The month of September is Childhood Cancer Awareness Month.🎗️ Leukaemia is a cancer of the body's blood forming tissues that affects white blood cells. We have a Health Series resource on leukaemia in children who have Down's syndrome that you can find here: loom.ly/ZjEN1I0

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Down's Syndrome Association @dsa-uk.bsky.social · 01/09/2026

Final reminder for this research webinar taking place this week! 'Finding out About Research into Alzheimer’s Disease' Friday 4 September 2026 | 12 noon – 1pm | FREE To find out more information and sign up, click here: loom.ly/h1gpdwc

Background image shows an older woman who has Down's syndrome. She smiles broadly. Text reads: Finding out about Research into Alzheimer's Research event

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Down's Syndrome Association @dsa-uk.bsky.social · 29/08/2026

The Casey Commission is carrying out the biggest public conversation on adult social care for a generation and wants to hear directly from disabled people and their families. You can take part by sharing your own proposal for change/or vote for proposals submitted by others: loom.ly/xQFQEC4

Image of an elderly woman who has Down's syndrome, sat outside with her female carer.

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Down's Syndrome Association @dsa-uk.bsky.social · 29/08/2026

This comprehensive guide contains information on how to best manage change and help people cope with transitions in their life. Click here to read it: www.downs-syndrome.org.uk/wp-conten…

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Down's Syndrome Association @dsa-uk.bsky.social · 26/08/2026

Behind every person who has Down’s syndrome, there is often a whole circle of people who care. Parents, grandparents, siblings, aunties, uncles, cousins, friends and colleagues can all help support us by becoming members. Join today. 💚 Click here: bit.ly/4y0vjyM

Image of a man smiling whilst hugging a baby girl who has Down's syndrome, who is also smiling.

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Down's Syndrome Association @dsa-uk.bsky.social · 24/08/2026

Friday 4 September 2026 | 12 noon – 1pm | FREE Researchers at the University of Plymouth have carried out research into making new cognitive assessments, which can find early signs of Alzheimer’s Disease in people who have Down syndrome. Please sign up here: loom.ly/h1gpdwc

Poster for our 'Finding out About Research into Alzheimer’s Disease' webinar. A woman with Down's syndrome is pictured smiling.

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Down's Syndrome Association @dsa-uk.bsky.social · 21/08/2026

This easy read booklet explains what transition means as you get older and how to plan for the future. You can read it here: www.downs-syndrome.org.uk/wp-conten…

Images of pages from our online transition resource, for those who are 13+.

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Down's Syndrome Association @dsa-uk.bsky.social · 20/08/2026

Have you got an interesting story you'd like to share with us? 🤩 If so, we'd love to hear it and feature you in our Journal! 📝 Send in your stories here: loom.ly/OMQ15eo If you're not already a member, you can sign up here too: loom.ly/mt2nfgw

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Down's Syndrome Association @dsa-uk.bsky.social · 18/08/2026

The Government's is inviting disabled people & people with long-term health conditions to help shape its recommendations for the future of PIP. People who have Down's syndrome and their families should be part of this conversation. Find out more: loom.ly/EX5xwQs Reg closes 5pm, 21 August

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Down's Syndrome Association @dsa-uk.bsky.social · 18/08/2026

We welcome today's news that disabled bus pass holders in England will be able to travel free on local buses at any time of day from April 2027. Removing restrictions will help many people who have Down's syndrome live life more independently. loom.ly/1hs26Po #AccessibleTransport #WorkFit

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Down's Syndrome Association @dsa-uk.bsky.social · 11/08/2026

The DSA has submitted evidence to the DWP's call for evidence on Carer’s Allowance, drawing on our extensive experience supporting people who have Down’s syndrome and their families. Read the full response over on our website: loom.ly/rCMGYPM

Someone holding an elderly person's hand.

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Down's Syndrome Association @dsa-uk.bsky.social · 10/08/2026

Millions reminded to get £150 off energy bills this winter. Households eligible for the Warm Home Discount must be named on their energy bill by 23 August to receive it automatically this winter. Please head to the GovUK website to find out more: loom.ly/WcjCobc

Image of someone holding their hand against a radiator.

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Down's Syndrome Association @dsa-uk.bsky.social · 09/08/2026

DSEngage LIVE | 4pm Disco 🪩 Join people who have Down’s syndrome from all over the country for our 4pm Disco. Just to highlight - there is no disco on Tuesday 11 August but the disco is back with 4pm Disco on Tuesday 18 August. Please find the sign-up form here: loom.ly/HOSfvY8

Image of two young girls partying/dancing on our 4pm disco poster.

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Down's Syndrome Association @dsa-uk.bsky.social · 07/08/2026

Our guide to Social Care in England contains key advice about transition assessments and why they are helpful. Click this link for the resource: www.downs-syndrome.org.uk/wp-conten…

Images of pages from our online 'Social Care and Support' resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 04/08/2026

It can be tricky transitioning from child to adult services. Our England guide simplifies the process, sets out key timescales and links to other useful resources and organisations. You can find it here: loom.ly/OhCFyMU

Images of pages from our 'Transition To Adulthood' resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 03/08/2026

An introduction to the dual diagnosis of Down’s syndrome and autism: Thursday 8 October 2026 | 10.30am – 12 noon | FREE This first webinar of two is aimed at those who are wondering whether to pursue a diagnosis of autism. To book your place, click here: loom.ly/DlPF_mk

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Down's Syndrome Association @dsa-uk.bsky.social · 31/07/2026

💚⭐The finalists are in! ⭐💚 🎉Huge congratulations to everyone who has been shortlisted in this year's **My Perspective** Photography Competition! 🙏Thank you to everyone who entered. The standard was incredibly high. ✅Voting for the People's Choice Award opens next week. #MyPerspective

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Down's Syndrome Association @dsa-uk.bsky.social · 31/07/2026

DSEngage Live | Weekly Workout Get August off to a great start with a fun and enjoyable live workout! The live workouts can be easily adapted depending on your fitness level and will be fun for everyone. Next Session: Monday 3 August 2026. Time: 4 – 4.45pm. Sign up here: loom.ly/2UAgQ6Q

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Down's Syndrome Association @dsa-uk.bsky.social · 26/07/2026

Disability Pride Month Celebration Not long to go now - join us as we celebrate Disability Pride! Friday 31 July 2026 | 2-3pm | FREE DSA Inclusion advisors Joe and Catherine will be co-hosting this exciting and lively event for the Down’s syndrome community. Sign up here: loom.ly/2vyUhI8

Image of Joe and Catherine, who both have Down's syndrome, and work as Inclusion Advisors at the DSA.

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Down's Syndrome Association @dsa-uk.bsky.social · 25/07/2026

Self-talk is something that people who have Down's syndrome find helpful through their lives. In this resource we talk about why it is beneficial and how to respond. Click here: www.downs-syndrome.org.uk/wp-conten…

Images of pages and the front cover from our 'Self-Talk' online resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 24/07/2026

Final reminder to please take part in this study about pain in young adults who have Down's syndrome, if you can. Please scan the QR code or contact the email provided on the poster if you'd like to get involved/or pass onto people you know who might be interested in taking part.

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Down's Syndrome Association @dsa-uk.bsky.social · 23/07/2026

The DSA recently brought together families of children and young people with experience of Education Otherwise Than At School (EOTAS). The online focus group provided an opportunity for families to share their experiences of accessing EOTAS. Full blog on our website: loom.ly/RfmnbPs

Image of a young girl who has Down's syndrome, she is painting.

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Down's Syndrome Association @dsa-uk.bsky.social · 21/07/2026

Webinar Recording - Understanding Behaviour Part 2: In this recording of our webinar, we look at how to approach behaviour changes including strategies that might help. This webinar will also be delivered live on 3 December and can be booked on our training page. See here: loom.ly/klwLlNM

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Down's Syndrome Association @dsa-uk.bsky.social · 19/07/2026

Time is an abstract concept and one that many people can find difficult. For instance understanding how long is 10 minutes? In our resource, we talk about this more and what might help. ⏰ Click here for the resource: loom.ly/Emp0Gs0

The front cover and images of pages from our time resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 18/07/2026

Carers Allowance Call for Evidence: Last week, a six week call for evidence was opened to gather views on Carers Allowance. To read more on this, please head to our website. You can also find the consultation here too: loom.ly/KZWIG0Q

Image of a mother and two teenage girls who have Down's syndrome.

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Down's Syndrome Association @dsa-uk.bsky.social · 15/07/2026

DSEngage Live | Dance Class 💃🕺 Join people who have Down’s syndrome from all over the country to Wake up and dance with DanceSyndrome via Zoom! Next Session: (tomorrow) Thursday 16 July 2026. Time: 9.30 – 10.15am. Please sign up here: loom.ly/fEn2yVs

Image of a young woman with Down's syndrome, dancing in her house.

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Down's Syndrome Association @dsa-uk.bsky.social · 14/07/2026

The Down’s Syndrome Association is responding to the publication of the latest Learning from Lives and Deaths (LeDeR) report 2024, published on 13 July 2026. Read the full response on our website: loom.ly/LP5hhRk

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Down's Syndrome Association @dsa-uk.bsky.social · 13/07/2026

Understanding Behaviour Webinar Part 1 – an introduction. Many behaviours that we see are very helpful but sometimes cause concern. In this webinar we talk about some of them. If you would like to attend the next one in October you can register by clicking this link: loom.ly/_qQvgJk

Image of a young girl who has Down's syndrome.

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Down's Syndrome Association @dsa-uk.bsky.social · 12/07/2026

Have your say about health and social care services – Northern Ireland (NHSCT area only) Your experience matters. This short survey will help shape future health & social care services: loom.ly/K6P7258 Please take part and share with others locally. The survey closes 31 July 2026.

Image of a young man who has Down's syndrome being seen by a doctor.

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Down's Syndrome Association @dsa-uk.bsky.social · 12/07/2026

Stories can be helpful in teaching new skills or preparing someone for a situation. To learn more about how to write a story, see our resource at the link below. Link: www.downs-syndrome.org.uk/wp-conten…

Pages from our online 'Using Stories' free resource.

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Down's Syndrome Association @dsa-uk.bsky.social · 11/07/2026

The DSA have responded to the Timms Review Interim Report on the Personal Independence Payment System. Please read the full response on our website: loom.ly/EcpNYag

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Down's Syndrome Association @dsa-uk.bsky.social · 08/07/2026

Can you help with this study about pain in young adults who have Down's syndrome? If you would like to take part/know someone who would, please scan the QR code or contact the email provided on the poster for more information. *The text and poster is provided by the research team.

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Down's Syndrome Association @dsa-uk.bsky.social · 06/07/2026

People communicate through their behaviour and it is important to give everyone ways to let others know what they want/need/like/dislike. This resource contains visual supports that can be cut out and used to help with communication. You can access it here: loom.ly/vKmWZvM

Images of the front cover and pages from our resource titled: 'Listen To Me: Childhood Communication.'

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