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Down Syndrome Medical Interest Group UK & Ireland

@dsmig.bsky.social
33 followers 26 following 66 posts

We are a network of doctors whose aim is to ensure equitable provision of medical care for all people with Down syndrome in the UK and Republic of Ireland dsmig.org.uk

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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 18/09/2026
Do you look after babies, children, young people or adults with Down Syndrome? Do you live in the UK or just live the idea of visiting Edinburgh? Come along in November to our Winter Meeting ❤️❤️❤️❤️❤️ #medsky #pedsky #DownSyndrome @dsa-uk.bsky.social
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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 10/09/2026
Want to keep up to date with care of people with Down Syndrome? Come join us in #Edinburgh on the 20th of November for our Winter Meeting Tickets at dsmig.org.uk, join DSMIG at the same time and get a discounted ticket - making membership essentially free ❤️ @dsa-uk.bsky.social
dsmig.org.uk
DSMIG | Down Syndrome Medical Interest Group
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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 10/09/2026
Looking forward to the DSMIG workshop at the #BACCH Annual Scientific meeting in wonderful Cardiff next week! 🏴󠁧󠁢󠁷󠁬󠁳󠁿 @commchildhealth.bsky.social @dsa-uk.bsky.social
static.klipy.com
Waving Flag of Wales
Alt: Flag of Wales
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Down's Syndrome Association @dsa-uk.bsky.social · 04/08/2026
It can be tricky transitioning from child to adult services. Our England guide simplifies the process, sets out key timescales and links to other useful resources and organisations. You can find it here: loom.ly/OhCFyMU
Images of pages from our 'Transition To Adulthood' resource.
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Down's Syndrome Association @dsa-uk.bsky.social · 12/06/2026
Researchers from the University of Manchester are looking for adults who have Down’s syndrome between the ages of 18-50 to take part in a study about testing people’s hearing using a test called Auditory Steady State Response or ASSR. Click here to find out more/take part: loom.ly/aeKlRn8
Image of someone getting a hearing test done.
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Down's Syndrome Association @dsa-uk.bsky.social · 13/06/2026
In this article by Dr Liz Marder she explains the different immunisations and why they are important as well as a useful schedule of when they should happen. Resource link here: www.downs-syndrome.org.uk/wp-conten…
Images of pages from our immunisation online resource.
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Down's Syndrome Association @dsa-uk.bsky.social · 16/05/2026
The Timms Review of Personal Independence Payment (PIP) is open for evidence until 28 May 2026. If you support a young person or adult with Down’s syndrome, you can share your experience of the PIP process. Call for evidence: loom.ly/JEUPq80 Submit your response: loom.ly/PSMq5mc
Image of a man who has Down's syndrome on his phone, alongside images of money and government related words.
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Down's Syndrome Association @dsa-uk.bsky.social · 13/05/2026
We are looking for parents contacts (on behalf of a parent) where an adult who has Down's syndrome, has a diagnosis of Type 1 diabetes. If you can help, please email stuart.mills@downs-syndrome.org.uk Thank you. 🙂
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Lord Sedge of Sedgley @lordsedge.bsky.social · 12/05/2026
Awesome to see Dr Liz Marder receive Honorary Fellowship of @rcpch.bsky.social at #RCPCH26 @dsmig.bsky.social @dsa-uk.bsky.social
Liz Marder with Steve Turner
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Brighton & Hove Albion Foundation @bhafcfoundation.bsky.social · 21/03/2026
Today we're celebrating #WorldDownSyndromeDay! 😄 These pictures are from our DS session last Sunday, taking place every two weeks at the Elite Performance Centre. #TogetherAgainstLoneliness | #WDSD26
A girl in a blue BHAFC Foundation logo top, stands in goal and celebrates with her arms raised. During a session in the Elite Performance Centre dome.A girl goes to play a pass with an orange ball, as a coach, holding a neon bib attempts to defendA participant in a turquoise BHAFC Foundation top pumps his fist and smiles for the camera as another boy in a blue top behind him smiles
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Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026
Happy World Down Syndrome Day from all of us at the Down's Syndrome Association! 💚🧦 We hope you have a great time celebrating, however you're spending your day! Make sure to wear your #LotsOfSocks and badges to show your support for #WDSD! #WDSD26 #TogetherAgainstLoneliness #WorldDownSyndromeDay
Image of a young boy who has Down's syndrome - he is smiling on our poster for World Down Syndrome Day.
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Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026
Happy World Down Syndrome Day! Let’s look back at where our special partnership all started as we hear from Remco Norden, Vice President of UK&I Operations and Alison Thwaite, Head of Employment Services at the Down’s Syndrome Association. Please watch the full video here: loom.ly/K4k9nnk
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BAPT British Association Of Play Therapists @bapt.info · 21/03/2026
#WorldDownSyndromeDay This year’s theme: “Together Against Loneliness.” Children and young people thrive when they feel seen, valued, and included within their communities. Through play, children can build relationships, develop confidence, and express themselves in ways that feel natural to them.
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Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026
Thanks for getting your #LotsOfSocks on for #WorldDownSyndromeDay! #TogetherAgainstLoneliness
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Adam John Roberts @adamjohnroberts.bsky.social · 21/03/2026
Which odd 🧦 should I wear? 🤔 #LotsOfSocks #WorldDownSyndromeDay
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Down's Syndrome Association @dsa-uk.bsky.social · 21/03/2026
Happy #WorldDownSyndromeDay everyone! Fantastic photos...looks like everyone's having a great time.
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Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 17/03/2026
Our differences are natural and are what make this world beautiful. This World Down Syndrome Day, let’s foster neurodiversity affirming communities and work “Together Against Loneliness.” #DownSyndrome #WDSD
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BACCH @commchildhealth.bsky.social · 16/03/2026
Booking is now open for the BACCH ASM 2026 in Cardiff! Reserve your spot now - discounted rates are available for BACCH members. For ticket options and other details see www.bacch.org.uk/pages/asm.
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Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 16/03/2026
Connecting with kindred spirits, or peers with similar experiences to your own, is vital for feeling seen, understood, and valued. As we approach World Down Syndrome Day, let's build these connections and come “Together Against Loneliness.” #DownSyndrome #WDSD
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Down's Syndrome Association @dsa-uk.bsky.social · 17/03/2026
The Down Syndrome Act statutory guidance consultation is seeking good practice examples and resources that can inform future guidance on adulthood, independence and employment. If you have materials or evidence that highlight what works, please contribute. Respond here: loom.ly/XurzOHM
Image of a WorkFit candidate (a man who has Down's syndrome) with his colleagues at his place of work.
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Down's Syndrome Association @dsa-uk.bsky.social · 16/03/2026
It's the start of Down’s Syndrome Awareness Week 2026! 🧦💚 Make sure to show your support and celebrate from the 16 to 22 March 2026 (World Down Syndrome Day is on the 21 March.) Join with us and with people around the world to stand Together Against Loneliness! See more: loom.ly/KpXtcgI
Image of a boy and girl at prom on our Awareness Week poster. The boy has Down's syndrome.
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Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 19/02/2026
Coming March 2: the Spring 2026 edition of 3.21: Canada's Down Syndrome Magazine - the Healthcare Issue. Subscribe for free today to receive a free digital copy in your inbox! DSRF.org/magazine 3.21 Magazine is co-published by DSRF and the Canadian Down Syndrome Society.
promotional image for the Spring 2026 issue of 3.21: Canada's Down Syndrome Magazine, coming Mar 2; magazine cover features a brown woman with Down syndrome, with black hair and wearing a red, flowered top; title: The Healthcare Issue
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Down's Syndrome Association @dsa-uk.bsky.social · 22/02/2026
Do you want to take part in Challenge 21?! 💚 Down’s syndrome is caused by the presence of an extra copy of chromosome 21. We have therefore come up with a selection of challenges for you all based on the number 21! Go to our website to find out more about getting involved: loom.ly/J1fnOag
Image of a young woman who has Down's syndrome. She is smiling and wears glasses. She is giving a younger boy a piggy-back.
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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 04/02/2026
Join us at the RCPCH conference! The session will run jointly with the British Academy of Childhood Disability and the British Paediatric Respiratory Society “Bridging Disciplines: optimising outcomes for children with complex respiratory and neurodevelopmental needs” @bacdisability.bsky.social
media.tenor.com
a unicorn is running in a field with the words heute show on the bottom right
Alt: A very cool dancing unicorn
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Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 03/02/2026
We have another new team member to introduce - our newest Speech Language Pathologist, Aideen Sweeney! Aideen (she/her) completed her Master’s degree in Speech and Language Therapy at the University of Essex in the United Kingdom. Welcome to DSRF, Aideen!
headshot of a woman with long dark hair in a ponytail, wearing a black long-sleeve top, in front of a picture of a tree
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Down's Syndrome Association @dsa-uk.bsky.social · 04/02/2026
DSEngage Live | Dance Class 🎶 Join people who have Down’s syndrome from all over the country to Wake up and dance via Zoom! Next Session: Thursday 5 February 2026 (tomorrow.) Time: 9.30 – 10.15am. The sessions will be led by a Dance Leader from DanceSyndrome. Book here: loom.ly/fEn2yVs
Image of a teenage girl who has Down's syndrome, dancing, on our 'Wake Up and Dance' poster. She wears headphones and glasses and a striped t-shirt.
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Down's Syndrome Association @dsa-uk.bsky.social · 28/01/2026
A reminder that anyone aged 14 and over can request an annual health check at their GP practice. This should then result in any health needs being met and a plan for moving forward to ensure optimum health throughout the year. Find out more here: loom.ly/YQ8ENds
Image of a young man who has Down's syndrome at the doctor's surgery, with his doctor.
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Down's Syndrome Association @dsa-uk.bsky.social · 28/01/2026
We welcome the updated publication of the 8th LeDeR report for 2023. Although the report provides important insights, the pace of change remains far too slow. Response in full here: loom.ly/qgg6G1I
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Down's Syndrome Association @dsa-uk.bsky.social · 30/01/2026
Have you got your 'Lots of Socks' yet?! 🧦 Celebrate World Down Syndrome Day 2026 (21 March) the Lots Of Socks way! Please support the DSA and WDSD by getting your pair here: www.downs-syndrome.org.uk/product/l… #WorldDownSyndromeDay
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Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 06/01/2026
The current issue of 3.21 Magazine takes on the topic of housing for adults with Down syndrome. We asked some experts what skills are most important to maximize independence after moving out, how to cultivate them, and what forms of support can help fill the gaps. www.dsrf.org/resources/bl...
man with Down syndrome with short dark hair, black glasses, and green long-sleeve shirt takes toast out of a toaster in his kitchen
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Down's Syndrome Association @dsa-uk.bsky.social · 07/01/2026
Parents and carers of children and young people who have Down’s syndrome - your voices matter. The Department for Education (DfE) says this national conversation on SEND will influence the next Schools White Paper. Click here: consult.education.gov.uk/send-refor…
Images of young children who have Down's syndrome in their school uniforms.
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Down's Syndrome Association @dsa-uk.bsky.social · 07/01/2026
We're sorry that this week's (9 January) 'Get Moving' session has been cancelled. Get Moving is the new name for Pilates Plus. 🤸 Please join us for the next Get Moving session on Friday 16 January instead. You can sign up here: loom.ly/-T0bZlY
Poster for our 'Get Moving' session. There's an image of a girl stretching in a gym class, she has Down's syndrome.
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Down Syndrome Resource Foundation @dsrfcanada.bsky.social · 07/01/2026
We are delighted to introduce you to the newest member of the DSRF staff team: Occupational Therapist Devanshi Gupta. Welcome to the team, Devanshi!
headshot of south Asian woman with long black hair, wearing a pale blue sweater over white shirt, in front of a picture of a tree
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Down's Syndrome Association @dsa-uk.bsky.social · 03/01/2026
Supporting the well-being of adolescents and adults who have Down’s syndrome: Thursday 15 January 2026 | 10.30 to 11.45am | FREE In this webinar we will talk about what we mean by well-being. We also talk about the importance of self esteem. Book onto the webinar here: loom.ly/d5IbUjI
Image of two young women who have Down's syndrome. They are smiling and hugging and both have brown hair, fringes and glasses.
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Lord Sedge of Sedgley @lordsedge.bsky.social · 07/12/2025
The Down Syndrome Medical Interest Group no longer has a Twitter/X account, but we have moved to Bluesky ❤️ Could any lovely #paedsky #paediatrics folks give it some love? #paedsky #pediatrics It's @dsmig.bsky.social Also @rcpch.bsky.social - give it a follow 😁
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Down's Syndrome Association @dsa-uk.bsky.social · 06/12/2025
Yesterday, staff from the DSA attended The Down Syndrome Medical Interest Group UK and Ireland Winter Meeting at the Royal Society of Medicine, London. All of our staff members gave brilliant presentations - well done to all involved! @dsmig.bsky.social
Banner for the DSMIG event where the DSA gave presentations.
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Down's Syndrome Association @dsa-uk.bsky.social · 07/12/2025
Our prize draw for the chance to win a signed copy of Ellie Goldstein’s book 'Ellie' is closing on the 12 December at 12pm! 💚 The main prize will now be the book AND a Barbie doll with Down's syndrome! As well as four Barbie's with Down's syndrome to give away. Enter here: loom.ly/U3J0Ceo
Front cover of Ellie Goldstein's book: 'Ellie.'
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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025
Hey @rcpch.bsky.social - how about a follow back?
media.tenor.com
a blue and white penguin with the word hello written below it
Alt: a blue and white penguin with the word hello written below it
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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025
Good morning all! A big hello to all attending the #dsmig winter meeting at the Royal Society of Medicine
The RSM London
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Down Syndrome Medical Interest Group UK & Ireland @dsmig.bsky.social · 05/12/2025
Good morning all! A big hello to all attending the #dsmig winter meeting at the Royal Society of Medicine
The RSM London
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