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Becca Wilson

@drbeccawilson.bsky.social
441 followers 407 following 34 posts

Tenure Track Fellow on wheels Uni of Liverpool livuni-iph@bsky.social. PI #DataSHIELD datashield.org. 2016 #SSIFellow. 2020 ShawTrust #Power100. #DataPrivacy #FederatedAnalytics #HealthDataScience. #AcademicAbleism #DisabledInStem #WhiskyGeek Views own.

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Reposted by Becca Wilson
Susie Dent @susiedentwords.bsky.social · 28/02/2025
Word of the day is ‘huff-snuff’ (16th century): a hectoring bully or braggart.
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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 16/02/2025
The Covid Inquiry has revealed systemic failures that left Clinically Vulnerable families unprotected during the pandemic. Our latest update delves into these oversights and their lasting impact. Read more: www.clinicallyvulnerable.org/post/covid-i...
clinicallyvulnerable.org
How Clinically Vulnerable Families Were Left Behind
It has now been five years since the emergence of Covid, and nearly four since Boris Johnson announced what he had dubbed ‘Freedom Day’. But for some in Clinically Vulnerable Families (CVF), true rest...
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Becca Wilson @drbeccawilson.bsky.social · 14/02/2025
Thanks!
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Institute for Research Software @softwaresaved.bsky.social · 13/02/2025
👤 Our first starter pack is a handy repository for all SSI Fellows on Bluesky. Connect with them at go.bsky.app/BaXzrAh and if we've missed missed anyone, please let us know!
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Becca Wilson @drbeccawilson.bsky.social · 14/02/2025
Brilliant thanks for putting this together the other place was my main place of engagement with the ssi community. Please add me to the list - I was in the 2016 cohort.
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Becca Wilson @drbeccawilson.bsky.social · 28/01/2025
I am #recruiting an #infrastructure #RSE to work on #OpenSource #DataSHIELD for #FederatedAnalysis of health data. Experience in one of e.g. Linux server admin, database usage, Docker, Kubernetes Salary: £39,105-£58,596 Duration: 1-2 yrs dependent on salary Details: bit.ly/4ht8cUs Closes 12 Feb.
my.corehr.com
Job Specification
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Becca Wilson @drbeccawilson.bsky.social · 22/01/2025
Showing my age 😱. Not sure why we are holding onto these, but we are somewhat nostalgic about them. Does anyone else have these? What followed after this was subsequent 15 years of #Linux. #Vintage #Retro #Microsoft #Windows95 #Windows98 #WindowsNT #WindowsXP #Windows7
A black cd case holding install discs for Windows 95, Windows 98, Windows NT and Windows XP.
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Becca Wilson @drbeccawilson.bsky.social · 22/01/2025
I am also UK based so not sure about joining live chat, but would want to follow conversation/advice etc
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Greens Against Covid @greensagainstcovid.bsky.social · 17/01/2025
We are dismayed that the Health Secretary has utterly misinterpreted the evidence from the Inquiry. Although Ritchie restated her flawed beliefs, the evidence is overwhelming, and was presented to the Inquiry, that the primary mode of transmission of SarsCov2 is airborne.
Letter states: The Government understands the debilitating effect that long COVID cna have on adults and children and is committed to improving the lives of people living with the condition. As someone who has been suffering with long COVID , I understand just how debilitating it can be. Sine my appointment in July, I have held a number of meetings to look much more closely at long COVID and myalgic encephalomyelitis/chronic fatigue syndrom and how we can best support people with these conditions. As of 1 April 2024 there are over 90 adult post-COVID services acros sEngland, along with an additional ten children's and young people's hubs. These services assess people with long COVID and direct them to care pathways that provide appropriate support and treatment. GPs will assess patiehnts who have COVID-19 symptoms lasting longer than four weeks and refer them to a long-COVID service  where appropriate. I also appreciate Ms McConway's concerns about airborne transmision of COVID-19. [highlighted]Although not the primary mode of transmission [/highlighted], smaller particles can remain airborne for extended periods and travel further distances. Transmission may occur under certain conditions, such as in enclosed and poorly ventilated spaces and during specific aerosol generating medical procedures. This transmission mode has been implicated in some outbreak scenarios, including choir practices and indoor gatherings. Guidance has been published on transmission routes which can be found at www.gov.uk/government/publications/sars-cov-2-transmission-routes-and-endvironments-22-october-2020. [highlighted]In her testimony to the COVID-19 Inquiry, Dr Lisa Ritchie, NHS England's National INfection PRevention and Control LEad, reaffirmed that COVID-19 is not predominantly transmitted throug the airborne route. This position is supported by the Government [/highlighted] and
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Becca Wilson @drbeccawilson.bsky.social · 17/01/2025
A few months ago I tested the new @merseytravel.bsky.social level boarding trains for AccessAble & @lpoolcityregion.bsky.social . A very windy and rainy day, but the new trains are life-changing for #Wheelchair users. #Accessibility #Liverpool #Southport www.instagram.com/reel/DE7a2vA...
instagram.com
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Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.
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Chaminda Jayanetti @cjayanetti.bsky.social · 16/01/2025
Full report here: www.bigissue.com/news/social-...
bigissue.com
DWP's consultation on disability benefit reforms unlawful, High Court rules
The DWP's consultation into plans to slash billions from disability benefits has been ruled unlawful in a damning High Court ruling.
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Trish Greenhalgh @trishgreenhalgh.bsky.social · 14/01/2025
If only public health authorities gave the same level of emphasis to portable air filters as they do to handwashing… www.sciencedirect.com/science/arti...
sciencedirect.com
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Alice Roberts @profaliceroberts.bsky.social · 14/01/2025
In early 2020, a pandemic was spreading. The UK’s PM went on a 10 day half-term holiday during which he was uncontactable and the government went into panic mode, focusing, as Hancock related to the COVID enquiry, on buying enough body bags. 1/8
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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 11/01/2025
🧼 “You can’t hand wash your way out of this quad-demic because it is mainly spread by what you breathe in and what you breathe out." - Dr @evonnetcurran.bsky.social retired infection control nurse. inews.co.uk/news/health/...
'I was an infectious disease nurse, I've never seen a crisis like the quad-demic'

A retired infection control nurse says she has never known a situation in hospitals where four viruses are rife at such high levels

Winter flu pressures continue to rage at hospitals across England with an average of 5,408 patients a day in hospital with flu in the first week of January, new figures show (Photo: Jeff Moore/PA)

Aasma Day
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Becca Wilson @drbeccawilson.bsky.social · 09/01/2025
Brilliant substack @independentsage.bsky.social . UK is a failure of #PublicHealth policy & messaging re #covid19 #Indoor #AirQuality and #mitigations. Not even consistent with historical practice. Real life example of the allegorical film Don't look Up. open.substack.com/pub/independ...
open.substack.com
Learning lessons from the COVID pandemic…we could do SO much better.
We must mitigate, vaccinate, and communicate...
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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 06/01/2025
🚨 Clinically Vulnerable Families call for robust IPC measures in healthcare to reduce preventable infections and further lost lives. inews.co.uk/news/son-hos...
inews.co.uk
'My son has been hospitalised twice with Covid, I'm terrified by the quad-emic'
Clinically vulnerable patients delay or cancel appointments as ‘quad-demic’ of flu, Covid, Norovirus and RSV hits hospitals
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Becca Wilson @drbeccawilson.bsky.social · 03/01/2025
When your #PIP mandatory reconsideration fails and you now have to take it to #tribunal and wonder where the #Spoons will come from. I provided my #SocialCare needs assessment as evidence of the HUMAN assistance I require for daily living. #DWP can't read the evidence 🤷‍♀️. #Disabled #Welfare
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Becca Wilson @drbeccawilson.bsky.social · 20/12/2024
Well things have not improved this week. Visible App Stability score Mon-Friday 2, 2, 1, 2, 1 😭😭😭. Fatigue is my normal levels, only my heart rate is stupidly high 🤷‍♀️. Going to deep rest for the next 2 weeks while Uni is closed. #CFS #TM #disability #ChronicIllness #DisabledInSTEM
Visible app graph showing stability scores for the last month. A downward trend in the graph.
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Becca Wilson @drbeccawilson.bsky.social · 18/12/2024
I've not got the arm band, but have been using the free big of the app for 2 months. 2nd month I've had less "crashes" than the first as I started to listen to the app and adjust tasks and rest breaks. but will carry on for a few more months to see if the effect continues.
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Becca Wilson @drbeccawilson.bsky.social · 18/12/2024
I haven't actually made it into work yet! My heart rate is currently 130 BPM having done nothing except get ready this morning (over an 1.5 hours paced) and eat a banana 🤷‍♀️... I'm going to rest for 20 mins and try again.
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Becca Wilson @drbeccawilson.bsky.social · 18/12/2024
Link to the free Visible app play.google.com/store/apps/d... - it has been helping me manage / limit fatigue crashes. It predicts what you will be like that day so you have some warning to self adjust type of tasks you do, extend rest breaks etc to counter predicted bad days. Would recommend!
play.google.com
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Becca Wilson @drbeccawilson.bsky.social · 18/12/2024
I'm using the free Visible pacing app to manage #CFS like symptoms (primary & secondary #fatigue for #neuroinflammatory #disability). First time i've scored lowest value for stability. Prob should take the day off sick, but got 3 meetings today 😭🤷‍♀️ #ChronicIllness #DisabledInSTEM #DisabledAcademic
Visible App output - text reads "Score 1, out of balance. Be kind to yourself today. Your body needs rest to get back to baseline. HRV lower than average and far outside it's normal range. Resting heart rate is much higher than your recent average, and is far outside of its normal range".
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Becca Wilson @drbeccawilson.bsky.social · 12/12/2024
Who uses #DataSHIELD open source software for #FederatedAnalysis with #AutomatedSDC ? Over 180 data sites, across 5 continents, over 40 international research consortia. www.linkedin.com/posts/drbecc...
linkedin.com
Rebecca Wilson on LinkedIn: #datashield #puma #metadata #publications #research #impact #interactive…
𝗪𝗵𝗼 𝘂𝘀𝗲𝘀 𝗗𝗮𝘁𝗮𝗦𝗛𝗜𝗘𝗟𝗗?   This summer DataSHIELD undergraduate Kathryn Ward joined the DataSHIELD research project, University of Liverpool as a…
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Becca Wilson @drbeccawilson.bsky.social · 30/11/2024
This is true... Most days I am fed up with the #Spoon drain that is constant self-advocacy or dealing with societal, medical & academic #Ableism. The challenge is finding creative ways to make lemonade out of lemons on the ultra rare occasion you have capacity to do something non-life critical!
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Becca Wilson @drbeccawilson.bsky.social · 30/11/2024
#Disability is about grieving & acceptance. Acceptance was quick for me: once neurologist said spinal cord damage was permanent unlikely to improve there was nothing I could do. Grieving: 11 yrs on I still mourn the life we will never have & how hard our life is now. #ableism #TM #WheelchairUser
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Becca Wilson @drbeccawilson.bsky.social · 26/11/2024
The other place for support is your uni's disabled staff network. My uni didn't have one when I became disabled - so we set one up. There are likely those who have experienced similar issues who have found resolution / know what the uni process is. So they can give advice, advocacy and mentorship.
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Becca Wilson @drbeccawilson.bsky.social · 26/11/2024
There's different member categories for PhD. GTAs have paid work in their contract so are like staff. Some branches have a disability sub group to get involved in that you can learn from & get peer support. PGs are formally supported by uni's DSA team for adjustments incl those not in place yet.
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Becca Wilson @drbeccawilson.bsky.social · 26/11/2024
No job is worth sacrificing your health - there must be a line. For UK disabled PhD students, I recommend joining the #union @ucu.org.uk. UCU can provide resources #support and #mediation with employers about #adjustments, #workload, #discrimination, #accessibility etc relating to #disability.
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Becca Wilson @drbeccawilson.bsky.social · 25/11/2024
Is it possible to take time out/medical leave and return in a month or two? Or drop to part time for 6 months and then phase return to full time? Also do you have all your adjustments in place?
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Becca Wilson @drbeccawilson.bsky.social · 25/11/2024
Thread from #CovidEnquiry evidence from mid 1st pandemic year showed covid being airborne - but PPE e.g. FFP3 masking has never been adopted in healthcare settings and staff can work covid+ without precautions spreading it to patients and colleagues. #disabled #CV #ChronicallyIll are on their own.
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Becca Wilson @drbeccawilson.bsky.social · 23/11/2024
All in a society that believes covid19 is just a cold with no risk to anyone, where healthcare workers do not mask even when covid +ve in front of CV patients, and public believes FFP2/3 masks do nothing 🤷‍♀️. A complete failure of UK public health messaging and lack of evidence-based decision making.
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Becca Wilson @drbeccawilson.bsky.social · 23/11/2024
CV, chronically ill & disabled people were not protected then, and are not protected now. Identical to self advocacy for disability (to get diagnosis, equipment, social care, adjustments, blue badge, PIP, Access to Work) you are alone unsupported and must arrange / pay for mitigations yourself!
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Becca Wilson @drbeccawilson.bsky.social · 23/11/2024
I acquired a disability 7 years post PhD. If I was as disabled as I am now during my undergrad or lab based PhD, I would not have been able to complete either. I switched field to health data science just before disability. But I also shed PhD tears - maybe this is a special feature of lab PhDs 🙃.
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Marina Purkiss @marina-purkiss.bsky.social · 20/11/2024
Andrew Tate: I’M HERE Bluesky: No
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George Takei @georgetakei.bsky.social · 20/11/2024
I heard that Andrew Tate tried to come stretch his awkward wings here and got banned in just one day. Sorry, hate has no home here. Stay in the bad place, thanks.
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Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social · 19/11/2024
🚨ANNOUNCEMENT: Our open letter, signed by leading scientists & HCPs, urges the JCVI & UK Gov to reverse the decision denying COVID vaccines to millions of Clinically Vulnerable people who still qualify for 'flu vaccines. A "willingness-to-pay" approach puts lives at risk. 1/
Hyperlink to more accessible .pdf on the next post.

Image of first page of open letter to the JCVI and UK Government from with header image Clinically Vulnerable Families logo

Open Letter: Maintain Covid-19 Vaccine Access for All Clinically Vulnerable PeopleHyperlink to more accessible .pdf on the next post.

Image of second page of open letter to the JCVI and UK Government signed by Clinically Vulnerable Families founder Lara Wong,
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Cat in the Hat @catinthehat.bsky.social · 15/11/2024
COVID VACCINE ELIGIBILITY 🇬🇧, a thread🧵 JCVI have just advised that, going forwards, eligibility for Covid vaccination will be even more tightly restricted. But the ‘bespoke cost-effectiveness assessment’ upon which this is based is heavily flawed… gov.uk/government/p...
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WHO @who.int · 18/11/2024
Hello @bsky.app family!
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News Eye @newseye.bsky.social · 17/11/2024
With Bluesky user numbers rocketing, more official news accounts are arriving. Here is a starter pack of major media outlets. Feel free to repost, I’ll keep this updated as more arrive.
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DisabledInSTEM @disabledinstem.bsky.social · 17/11/2024
Got the #DisabledInSTEM Starter Pack up and running! Can't wait to see the list grow and meet new connections! 💜 go.bsky.app/SwJ4rFX
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Becca Wilson @drbeccawilson.bsky.social · 17/11/2024
Please add me I'm in the UK though.
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Becca Wilson @drbeccawilson.bsky.social · 14/11/2024
Until now I have only ever had a burgundy EU passport. Now I have the (pre-EU) navy blue, and am unlikely to be issued a burgundy EU one again in my lifetime. This burgundy one is also my traumatising log of post-disability travel. #EndOfAnEra #BluePassport #EU #Brexit #disability #WheelchairUser
Left: burgundy UK passport with "European Union" marked on the top of it. 
Right: new navy blue UK passport with "British Passport" marked on the top of it
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Becca Wilson @drbeccawilson.bsky.social · 13/11/2024
#Disability #ChronicIllness #Care for #elderly and #disabled family impacting low and middle income families. "Britain’s 13 million low-to-middle income families are older and more likely to suffer from poor health or a disability than three decades ago." #HealthInequality #SocialInequality
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Becca Wilson @drbeccawilson.bsky.social · 13/11/2024
Saying hello from the UK... I asked the same question 😂.
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Alt National Park Service @altnps.bsky.social · 13/11/2024
Thanks for following us on Bluesky! We’re the official resistance team for the National Park Service.
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Gwen Snyder is uncivil @gwensnyder.bsky.social · 10/11/2024
If you keep forgetting alt text, this setting is for you. It's awesome!
Turn on alt text reminder accessibility setting
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Kit Yates @kityates.bsky.social · 07/11/2024
Here's an @independentsage.bsky.social starter pack for people recently arriving over here and looking to find old friends. go.bsky.app/TbZdrEU
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Becca Wilson @drbeccawilson.bsky.social · 08/11/2024
Yay #DisabledInSTEM on blue sky 🎉
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Becca Wilson @drbeccawilson.bsky.social · 07/11/2024
The financial burden of disability is already staggering - close the Disability Pay Gap! The max UK disability benefit covers ~half these costs. I once calculated that my household has incurred £200,000 of costs for the first 10 years of my disability. #UK #Disability #PayGap #DisabledInWork
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