iiinova — where your digital self keeps evolving

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 09/06/2025

A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!

000

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 09/06/2025

It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.

000

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 09/06/2025

🗓 Date: 22 June 2025 🧠 Session: EFNA – Health literacy for patient and clinician communication 🎤 Presentation: Misdiagnosis and delays in diagnosis

000

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 09/06/2025

Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference. #ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social

021

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 06/06/2025

Was great to have Health Secretary Wes Streeting not just turn up but joined in - spoke to fellow Parkies wasn't rushed at all thank you🥊 also thank you to Gillian ( Movers & Shakers) & Gaynor Edwards (Spotlight YOPD) turn up and join in🥊 @worldpdcongress.bsky.social @parkinsons.org.uk

010

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 26/05/2025

Age of the AI - maybe this is the way forward? interesting paper on ML & DL and the possibilities @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social eurjmedres.biomedcentral.com/counter/pdf/...

010

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 05/05/2025

This paper shows the importance and difference it makes for #Parkinsons people if a interdisciplinary gastrointestinal care is in place: @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net journals.sagepub.com/doi/epub/10....

011

Reposted by Dopamine Warriors

The European Federation of Neurological Associations (EFNA) @efna.net · 09/04/2025

EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.

132

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 05/04/2025

Just waiting for my friend Neil Russell on his epic 100mile run from Oxford to Cambridge in one go 😳, will join him just under halfway mark🥊 @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social Do show your support: www.neilstillcan.run

121

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 03/04/2025

Delighted to be invited to the special screening’Worlds Toughest Drive’ by retd Col Guy Deacon - www.guydeacon.co.uk #Parkinsonsawareness @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk

030

Reposted by Dopamine Warriors

Parkinson's Europe @parkinsonseurope.bsky.social · 26/03/2025

Thank you to The Parliament for bringing us all together for such an inspiring session. 🙌 #Parkinsons #Parkinson #EUParliament 3/3

021

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 16/03/2025

According to a recent survey, 71% of people with a #neurologicalcondition have had to adjust their role or work schedule because of their condition, of which only 35% report that their employer was accommodating of this change. #BrainAwarenessWeek #BAW2025 #invisibleillness #neurology @efna.net

052

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 06/03/2025

Village health workers and medical professionals in Bududa area of #Uganda This one gets most of them PWP or not🤣 my boxing session wi testify🥊 @worldpdcongress.bsky.social @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk

021

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 05/03/2025

Introducing little aids like sticks to help with walking and using arms, natural resource to help improve QOL for PWP in #Uganda @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net @worldpdcongress.bsky.social

000

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 01/03/2025

Umpired a hockey match earlier met some friends hadn’t seen for long time, now awaiting flight to #Uganda to deliver an exercise program parkinsonssibuko.org @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net @worldpdcongress.bsky.social

020

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 27/02/2025

Survey held by @efna.net on the invisible issues faced by those of us that have a #neurology condition, do read give an insight into the many issues we face @parkinsonseurope.bsky.social @parkinsons.org.uk

011

Reposted by Dopamine Warriors

Parkinson's Europe @parkinsonseurope.bsky.social · 27/02/2025

What an emotional moment. ❤️ Birdie Belgium is releasing this beautiful song about her mum's journey with Parkinson's for #WorldParkinsonsDay. 🌷 www.youtube.com/watch?v=mp0D...

youtube.com

Parkinson Net Congres 2024 at Nieuwegein, NL

YouTube video by Birdiebelgium singer-songwriter

051

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 20/02/2025

Delighted to be a CAB member for @efna.net and help advocate for all neurological conditions🙏🏽 @parkinsonseurope.bsky.social @parkinsons.org.uk www.efna.net/about-us/cab/

032

Dopamine Warriors @dopaminewarriorsbc.bsky.social · 19/02/2025

Show your support for EU policy change for rare neurological conditions www.EFNA.net/RNC-CTA @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk #parkinsons

041

Reposted by Dopamine Warriors

Parkinson's Europe @parkinsonseurope.bsky.social · 24/01/2025

We love @parkinsons.org.uk's Race Equality in Research programme (our Strategic Dir. Amelia is a proud member of the steering group), so it was great to read their update about their 2024 achievements & hopes for the coming year. 👉 Read more: www.parkinsons.org.uk/research/rese……

251