iiinova — where your digital self keeps evolving

Reposted by Dan Lavery

Dan Lavery @djlavery.bsky.social · 01/05/2025

Congratulations to the 2025 CDKL5 Program of Excellence Pilot Grant awardees! The Loulou Foundation is excited to provide these awards, in collaboration with the Orphan Disease Center at the University of Pennsylvania Perelman School of Medicine, to support CDKL5 research. #CDKL5

CDKL5 pilot grant awardees for 2025, to support basic and therapeutics research on CDKL5 and CDKL5 Deficiency Disorder. Provided by the Loulou Foundation in collaboration with the Orphan Disease Center at the University of Pennsylvania Perelman School of Medicine.

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Dan Lavery @djlavery.bsky.social · 01/05/2025

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Reposted by Dan Lavery

Jon Brudvig @jonbrudvig.bsky.social · 09/04/2025

Francis Crick called it “impossible” in 1979. Now it’s real. A 1 mm cube of mouse brain, 200k cells, 500M synapses, all mapped alongside neuronal activity. This new MICrONS dataset maps brain structure and function in a way that we've never seen🧪 🔗 www.microns-explorer.org 📄 doi.org/10.1038/s415...

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Jon Brudvig @jonbrudvig.bsky.social · 10/04/2025

Cells are swapping their mitochondria. What does this mean for our health? Researchers are studying why the energy factories are moving between cells and whether the process can be harnessed to treat cancer and other diseases. 🧪🦠💊 www.nature.com/articles/d41...

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Dan Lavery @djlavery.bsky.social · 23/02/2025

100%. Everyone in the US please call your representatives to let them know how devastating these cuts and firings are to rare disease families who already have so many challenges.

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Dan Lavery @djlavery.bsky.social · 06/02/2025

Great funding opportunity for a rare DEE/NDD, #CDKL5 Deficiency Disorder. Send in your LOI today!

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Epilepsia Journal @epilepsiajournal.bsky.social · 24/01/2025

Key point: Cenobamate is a promising and safe treatment for SCN8A-related DEEs, even during early childhood. doi.org/10.1111/epi.... #epilepsy #ILAE #drugresistantepilepsy #geneticepilepsy #sodiumchannelopathy #DEE

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Thomas CM Lavery @thomascmlavery.bsky.social · 24/01/2025

Maybe if the NSF just stands really, really still, Trump will forget it exists

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Lindsay Wiley @lindsaywiley.bsky.social · 23/01/2025

Shutting down medical research — not just within NIH, but everywhere that’s funded by NIH — will have long-term effects on medicine & short-term effects on state, higher education & hospital budgets. This affects all of us, not just researchers.

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Audrey Vernick @audreyvernick.bsky.social · 23/01/2025

This administration's policy is effectively freezing healthcare and scientific research. Worried? I am. www.science.org/content/arti...

science.org

Trump hits NIH with ‘devastating’ freezes on meetings, travel, communications, and hiring

Researchers facing

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Paul Krugman @pkrugman.bsky.social · 21/12/2024

New evidence that it was the economic vibes, stupid open.substack.com/pub/paulkrug...

open.substack.com

A Win for the Vibecession Story

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Ana Mingorance @cnsdrughunter.bsky.social · 03/12/2024

Looking forward to getting into LAX early to catch up with the traditional #SYNGAP1 Conference by @curesyngap1.bsky.social and the #Dravet Roundtable by @curedravet.bsky.social both on December 5th just before #AES2024 Who else is coming? 💚

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Xilma Ortiz-Gonzalez MD PhD @drxilma.bsky.social · 25/11/2024

Please share-we are hosting an in person (travel support available!) for trainees who want to consider CHOP/Penn labs for postdoc. Apply to have a chance to check out our top notch science and get a trip to Philly!

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Oscar Woolnough @owoolnough.bsky.social · 27/11/2024

As I've been seeing a lot of job postings here, I've set up a NeuroJobs feed. Add #NeuroJobs to your post if you're recruiting or looking for a PhD, Postdoc, or faculty position in Neuro or an adjacent field. bsky.app/profile/did:...

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Mick Craig @mickcraig.bsky.social · 27/11/2024

PhD Alert! We have a fully funded (UK residents only, I'm afraid 😟) #NeuroSkyence PhD to move towards developing an at-home EEG system to monitor sleep oscillations for brain health monitoring and early dementia diagnosis. Please share with your network! www.gla.ac.uk/colleges/mvl...

gla.ac.uk

University of Glasgow - Colleges - College of Medical, Veterinary & Life Sciences - MVLS Graduate School - PhD Research Opportunities - College Futures PhD Programme - Projects - Advanced Diagnostics ...

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Zoltan Molnar @zoltan-molnar.bsky.social · 17/11/2024

Please keep the date for HUMAN CEREBRAL CORTEX DEVELOPMENT III - Anatomical Society Meeting 14-16th July 2025, St John’s College, Oxford Follow up to two meetings in 2010 and in 2018 issues of the Journal of Anatomy onlinelibrary.wiley.com/doi/10.1111/... and onlinelibrary.wiley.com/toc/14697580...

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Rikke S. Møller @rikkesmoller.bsky.social · 20/11/2024

Quantitative EEG biomarkers for STXBP1-related disorders 🧬 Relative Delta Power is even higher in #STXBP1-DEE than in other developmental & epileptic encephalopathies - highest in the frontal areas 🧠 For more info 👉 onlinelibrary.wiley.com/doi/10.1111/... #Epilepsy #Genetics

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Ana Mingorance @cnsdrughunter.bsky.social · 20/11/2024

🧬 If you work on a neurological #RareDisease you should be following the news around Neurogene's gene therapy for #Rett syndrome. They have very positive results in the clinic and also a really bad safety problem at a higher dose. Good chat with CEO in link: ir.neurogene.com/events/event...

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