iiinova — where your digital self keeps evolving

Anna Motyl @dibbouk.bsky.social · 02/12/2025

Doddie Aid is back!!! Do it for you, do it your way, and help fund crucial MND research 💙💛 And for researchers, join our amazing community! Sign up for our new ✨researcher league✨ and show your colleagues how it's done (it's all friendly competition... isn't it?) 💪

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Anna Motyl @dibbouk.bsky.social · 23/10/2025

Nikky, Federica and I certainly were the dream team 😁

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Anna Motyl @dibbouk.bsky.social · 23/10/2025

New paper from @tomgillingwater.bsky.social: Federica Genovese's fantastic PhD, showing reversible prenatal primary cilia defects in the Taiwanese mouse model of SMA. Lots of work still to be done to understand how low levels of SMN lead to the cellular defects we know; this project is part of it🙌

insight.jci.org

JCI Insight - Prenatal SMN-dependent defects in translation uncover reversible primary cilia phenotypes in spinal muscular atrophy

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Anna Motyl @dibbouk.bsky.social · 29/08/2025

Amazing 😍 how I wish I could have been there!! Congrats Tom - I do intend to celebrate with both of them tonight at least 😁

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Anna Motyl @dibbouk.bsky.social · 04/07/2025

Very proud to be a part of this community 💙💛 One that brings together people affected by MND, their friends and families, our supporters and fundraisers, and also our researchers ~ thank you!

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Reposted by Anna Motyl

Tom Gillingwater @tomgillingwater.bsky.social · 15/04/2025

There are still few better feelings as an academic than when your paper’s image is chosen for the front cover of a journal #ProudPI #NMJ Confocal micrograph taken by the amazing @drchayts.bsky.social

Front cover of Science Signaling journal with a micrograph of fluorescently labelled neuromuscular junctions (NMJs)

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Reposted by Anna Motyl

My Name'5 Doddie Foundation @mndoddie5.bsky.social · 11/04/2025

There’s only a few days to go until our webinar focusing on the Discovery Network and Advancing Treatments Award: 🗓️ 15 April ⏰ 12pm Researchers, if you’re thinking of applying, the webinar is a great chance to have questions answered and gain insights. Join here 👇 us06web.zoom.us/webinar/regi...

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Anna Motyl @dibbouk.bsky.social · 07/04/2025

👩‍🔬 Join Dr Olivia Bird and me on the 15th of April at 12pm and ask us all your questions about our grant calls! 📣 Please share with researchers in your network who may be interested in applying, early career researchers included 🌟

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Reposted by Anna Motyl

Dementia Researcher @dementiaresearcher.bsky.social · 30/03/2025

Applications open for @mndresearch MND Association Junior & Senior Non-Clinical Fellowships, nurturing future MND research leaders. Apply by 25 April 2025. www.dementiaresearcher.nihr.ac.uk/funding/mnd-...

dementiaresearcher.nihr.ac.uk

MND Non-Clinical Research Fellowships - DEMENTIA RESEARCHER

Applications open for MND Association Junior & Senior Non-Clinical Fellowships, nurturing future MND research leaders. Apply by 25 April 2025.

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Anna Motyl @dibbouk.bsky.social · 24/03/2025

Our Discovery Network Award is open for applications again: join a highly collaborative network of fantastic researchers and receive up to £1 million over 3 years! Please share - and get in touch if you have any questions/would like to discuss a project proposal #MND #ALS #AcademicSky

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Anna Motyl @dibbouk.bsky.social · 18/03/2025

⚠️⚠️⚠️ Our Advancing Treatments Award is open for expressions of interest again! Get in touch with the research team at the Foundation if you have a project in mind/questions! 💛💙 #MND #ALS #AcademicSky more announcements soon 🤫

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Anna Motyl @dibbouk.bsky.social · 05/03/2025

What good are remarkable scientific innovations and groundbreaking new treatments if policymakers don't follow suit, in the face of all the indisputable evidence in front of them?

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Anna Motyl @dibbouk.bsky.social · 05/03/2025

We know from many studies and peer-reviewed publications that doing so alleviates financial costs for health organisations. We know it saves lives and can massively improve quality of life.

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Anna Motyl @dibbouk.bsky.social · 05/03/2025

The fact that the UK still doesn't do newborn screening for SMA is nothing short of scandal. We have treatments we've known for years need to be administered as soon as possible. Spinal muscular atrophy in the UK: the human toll of slow decisions - The Lancet www.thelancet.com/journals/lan...

thelancet.com

Spinal muscular atrophy in the UK: the human toll of slow decisions

Spinal muscular atrophy (SMA) is a recessive condition that affects globally one in 14 800 newborns.1 Infants with SMA type 1 do not acquire motor milestones and rarely survive beyond the first year o...

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Reposted by Anna Motyl

My Name'5 Doddie Foundation @mndoddie5.bsky.social · 07/02/2025

After rolling in to Glenalmond College for the night, teams on the blue route of Doddie’s Grand Tour were greeted by Gerard Butler, who heard we were in the area and wanted to come along to support and hear about what we're up to 💪 Wonder if we can convince Gerard to join us on the ride next year?🤔

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Anna Motyl @dibbouk.bsky.social · 06/02/2025

What is the most exciting ALS/MND discovery research you've read recently/you're working on that is *not* focused on TDP43 or RNP biology? Please share some suggestions and papers!! #ALS #MND #AcademicSky

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Anna Motyl @dibbouk.bsky.social · 12/01/2025

My Name'5 Doddie is on Bluesky! 💙💛 Give us a follow ⬇️

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Anna Motyl @dibbouk.bsky.social · 02/01/2025

Lovely winter day to get started with #DoddieAid2025 - get moving this January, and join our challenge while supporting crucial research into Motor Neuron Disease #WeirInThisTogether doddieaid.com/how-to-join

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Anna Motyl @dibbouk.bsky.social · 04/12/2024

Super useful! Could you please add me too? :) MND researcher now working at My Name'5 Doddie Foundation, a research-funding charity in the UK (with international collaborations!)

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Anna Motyl @dibbouk.bsky.social · 03/12/2024

Great that you like the Nation Leagues! Thanks so much for your support 🤗

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Reposted by Anna Motyl

Tara Spires-Jones 🌈🔬 @tspiresjones.bsky.social · 28/11/2024

In case anyone on BlueSky hasn't seen it, this may be the funniest scientific study ever published. Bringing it up now as the amazing @scotsfriction.bsky.social has just issued a "teaspoon amnesty" for our common room www.bmj.com/content/331/...

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Anna Motyl @dibbouk.bsky.social · 27/11/2024

I could definitely see that play a role in your love for EM!

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Anna Motyl @dibbouk.bsky.social · 27/11/2024

Ooo, I'd love to take a peek at this one!

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Anna Motyl @dibbouk.bsky.social · 26/11/2024

If you're a researcher working on MND, we created a Researcher League in the app - join it here directly for some healthy competition and to get involved with the community who raises the funds for your research Please share! 💙💛 @ukmndri.bsky.social app.doddieaid.com/dashboard/le...

app.doddieaid.com

Doddie Aid 2025

Doddie Aid is a mass participation event, encouraging you to get active in January and raise funds to help find a cure to Motor Neuron Disease.

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Anna Motyl @dibbouk.bsky.social · 26/11/2024

There is much still to do, but with your support, we will continue to fund research and work towards finding a cure. Let’s make 2025 the biggest Doddie Aid yet - Weir in this together. Read the full announcement here: www.myname5doddie.co.uk/whats-on/art...

myname5doddie.co.uk

MNDF announces milestone £18 million of funding for MND research as Doddie Aid 2025 launches on second anniversary of Doddie's death

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Anna Motyl @dibbouk.bsky.social · 26/11/2024

Every single one of the 100,000 people who has joined us to jog, cycle or stroll over the past four years of Doddie Aid has played a role in this milestone. Two years on from Doddie’s death, we are as focused as ever on reaching his goal of a world free of MND.

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Anna Motyl @dibbouk.bsky.social · 26/11/2024

We’re officially launching Doddie Aid 2025, with the announcement that My Name’5 Doddie Foundation has so far committed £18 million to vital motor neuron disease research 🔬 Sign ups are now live, click below to get involved and download the new app 👇 doddieaid.com #DoddieAid25 #DoddieAid #MND #ALS

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