iiinova — where your digital self keeps evolving

My Name'5 Doddie Foundation @mndoddie5.bsky.social · 23/09/2026

An early announcement of results from a study of the genetic therapy ulefnersen has suggested promise for people living with FUS-MND. Here's what we know so far: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 14/09/2026

Are you a medical professional? Our free training resource developed in partnership with The International Alliance of ALS/MND Organisations can help you recognise MND symptoms sooner, speed up referrals and support earlier diagnosis. More details here: www.myname5doddie.co.uk/understandin...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 10/09/2026

"I had a conversation with Dad when I was riding, in my mind. I said: I love you, and this is for you." This year, Cammy took on 2 epic cycling challenges for MND research and in honour of his Dad, who died from MND when Cammy was just 13 Read his story: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 04/09/2026

Doddie believed in bringing people together. In our latest blog Paul, our Director of Fundraising and Engagement, shares why our community is our greatest strength, and how together we're helping to fund vital MND research. Take a read here 👇 www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 02/09/2026

Nick Apperley, who is living with MND, is determined not to let his diagnosis define him or prevent him from doing what he can. Nick has now raised over £100,000 for MND charities, and inspires everyone around him with his positivity💙💛 Read Nick's story here: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 10/08/2026

Last month Paul Choat stood at the summit of Schiehallion and bagged his final Munro, marking the end of a five-year challenge in honour of his Dad, David. David had been living with MND, and died just 15 peaks short of bagging all 282 Munros himself.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 07/08/2026

“For as long as I can, I’ll continue to support the Foundation.” 💙💛 Driven by personal connections to Doddie and MND, Anthony has completed three 100km Ultra Challenges for us. His ongoing support is helping fund vital research into the disease. Read here: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 27/07/2026

In the first half of 2026 alone, we have committed £1.8 million to four new MND research projects, which will help identify and test promising therapeutic targets and support the development of new treatments for MND. Full details here: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 16/07/2026

Despite living with bulbar MND, Mo continues to do what she loves most – dance. Her loyal dancing community are an incredible support system and together, they’ve helped raise £11,200 for MND research 💙💛

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 14/07/2026

🎉 We’ve passed the AMRC @amrc-uk.bsky.social Expert Review Audit! Meeting AMRC's six principles of expert review confirms that we use robust and rigorous research funding processes, helping us to fund the best research.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 04/07/2026

Today to mark Doddie's 56th birthday, we're reflecting on hope in the research landscape and what we are doing to accelerate progress. Together, with your help, we're carrying Doddie's legacy forward. Read 'How close are we to a cure?' below 👇 www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 30/06/2026

Congratulations to the one and only Rob Wainwright on receiving his OBE today in recognition of the millions he has helped raise for charity 👏 From leading on the pitch to leading the charge on fundraising for MND research - we are so thankful for all Rob has done for My Name'5 Doddie Foundation 💙💛

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 29/06/2026

At 78 years old, Janice Small proves that adventure & fundraising have no age limit🚲 From Arran to Africa, earlier this year Janice cycled through Malawi, Zambia & Zimbabwe in memory of her friend and fellow cyclist, Sue, who died of MND in 2022 Read more: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 22/06/2026

Lewis, we're so proud of you. 500 miles ✅, countless memories ✅, vital research funding ✅ You can still keep the donations coming: lewismoodyxv-cyclechallenge.com

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 21/06/2026

To mark this year’s Global MND Awareness Day we’re proud to share Ben Lighting’s story - a powerful and honest account of living with motor neuron disease, and focusing on what matters most. Earlier this week Ben went along to meet Lewis Moody on Day 6 of Lewis' epic 500 mile cycle challenge 🚲

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 20/06/2026

Lewis and the team have made it to Twickenham 🏁🚴 What an epic week. The commitment from everyone involved in the 500 miles to get here will help make a real impact as we work towards a world free of MND. It’s not incurable, it’s just underfunded. Keep supporting: lewismoodyxv-cyclechallenge.com

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 20/06/2026

Yesterday's highlights ✨ It's the final push today - 25 miles to go and the team will reach the finish line. We're so proud 🏁💙💛 Back Lewis and the team and donate now: lewismoodyxv-cyclechallenge.com

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 18/06/2026

“We need to do more to make this world free of MND.” A special and poignant moment at Kingsholm today. So great to be joined by Ed Slater and spend some time with the community here ❤️ The team are starting to tire now - if you can, please donate to support them: lewismoodyxv-cyclechallenge.com

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 18/06/2026

“We now have that torch and we’re going to take it, we’re going to take it a long way, and hopefully to the finish line.” What Lewis said - please continue with us on this journey. You know what to do, donate now: lewismoodyxv-cyclechallenge.com

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 15/06/2026

The Lewis Moody XV Cycle Challenge began yesterday, and is Lewis’ biggest physical challenge to date. The team are cycling 500 miles, going from Newcastle to the Allianz Stadium ahead of the Gallagher PREM Final. We can’t wait to see what this incredible group achieves over the next seven days.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 10/06/2026

“I’m not a good runner but everyone seems to think I must be to be doing all this stuff. No, it’s just the cause means a lot to me. I said I was going to do it, so I’m going to do it.” In a few days' time, Ali will set off to run the North Coast 500 in just seven days, all to raise funds for us.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 02/06/2026

🚨 Calling all researchers! There's only 1 week left to submit your application for our Advancing Treatments Award. We want to fund projects that will further the early-stage development of new treatments to slow, stop or reverse MND progression Details here: www.myname5doddie.co.uk/for-research...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 01/06/2026

“This disease affects families everywhere and we need people to rally behind the MND community in the same way rugby people always rally behind each other" The full route & rider line-up for the Lewis Moody XV Ride sponsored by Gallagher is live. Learn more: www.myname5doddie.co.uk/news-and-sto...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 28/05/2026

100+ Team Doddie runners took part in the Edinburgh Marathon Festival last weekend! Through sweltering heat, every runner had to dig deep. Some have shared their stories with us - what drove them to the start line, and carried them to the finish 💙💛 Read here: www.myname5doddie.co.uk/news-and-sto...

A woman, Charlotte Webber, in My Name'5 Doddie Foundation running top after completing Edinburgh Marathon. There is a quote on the image from Charlotte, which reads: "Knowing I was doing something to help move us closer towards a cure gave me hope that things could get better for people like Mum."

A woman, Emily Roger, and her dad Kenny Roger, in My Name'5 Doddie Foundation running tops at Edinburgh Marathon. Both are smiling at the camera as are taking a selfie. There is a quote on the image from Emily, which reads: "We knew how lucky we were to even complete a marathon and how much we wished we could have been met with grandpa's smile at the end."

A woman and a man, Gary Woods, standing side by side and smiling with their arms around each other, after completing Edinburgh Marathon. There is a quote on the image from Gary, which reads: "He was so proud. But honestly he'd probably have been up there with a Fosters and three barrels laughing his head off saying, 'look at those two neeps.'"

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 25/05/2026

We are so sad to hear of the death of Neale Daniher, our thoughts are with all his family, loved ones & our friends at FightMND during this difficult time. Neale was a true inspiration - a tireless advocate who changed the landscape of MND in Australia, seeing millions invested into research & care

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 21/05/2026

We're helping to improve access to tofersen for people living with SOD1-MND in Scotland. Too many are being prevented from accessing this treatment and that must change. We’re partnering with the MND Association to support people who are having to travel out of their area to receive tofersen.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 18/05/2026

"When our great friend Doddie was diagnosed with MND, Scott immediately stepped forward to help and played a vital role in establishing the charity. He was always on hand with ideas, providing wise counsel and using his boundless energy to enable us to grow into the charity we have become today."

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 14/05/2026

Andy, who is living with MND, is taking on the Jurassic Coast Ultra this weekend - a continuous 100km walk along the Dorset coastline. In an extraordinary show of support and friendship, 106 others are taking part with him - they are ‘Andy’s Army’ 💙💛

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 13/05/2026

📢 Calling all researchers! If you’re thinking of applying for our Advancing Treatments Award, then join our webinar on 15 May at 12pm This is your chance to hear more details about the award & gain insights on how to produce a strong application Register👇 events.teams.microsoft.com/event/bbc20d...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 08/05/2026

🚨 Our Advancing Treatments Award is OPEN for applications! We’re looking to fund projects that will further the early-stage development of new treatments designed to slow, stop or reverse MND progression. For more details and how to apply, click below 👇 www.myname5doddie.co.uk/for-research...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 07/05/2026

The #LongitudePrizeOnALS has awarded £2 million across 20 teams who'll use AI to identify & validate new drug targets for the treatment of ALS/MND We’re proud to be a funder of the Prize, alongside other key organisations Details: bit.ly/4tCWpcH @mndassoc.bsky.social @challengeworks.bsky.social

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 01/05/2026

Wishing the ROW4MND team all the best as they take on the next leg of their journey to raise £57 million to help find a cure for MND. Setting off at 8pm tonight from Port Logan, this time they’ll be rowing the choppy waters off the Scottish coastline, through the western islands 🌊🚣 www.row4mnd.com

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 28/04/2026

A huge congratulations to the 12 members of Team Doddie who took on the London Marathon for us this year, racing through the heat and raising over £30,000 for vital MND research 💙💛

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 25/04/2026

“If it gets painful, I’ll think about Scott and what he went through. It puts everything into perspective.” Tomorrow, Jonathan Beaton runs London Marathon in memory of his friend Scott Stewart, who died from MND in 2024. He’s already raised £10k+ to honour Scott’s legacy 💙💛

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 24/04/2026

We are incredibly proud and grateful that Lewis Moody has chosen to partner with us 💙💛❤️ Click here to support his epic 500-mile cycle challenge, taking place this June: uk.emma-live.com/LewisMoodyCy...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 23/04/2026

You won't have been able to go online or open a paper today without seeing the news that Lewis Moody has chosen to partner with My Name'5 Doddie Foundation to tackle MND. Lewis is a legend of a man, on and off the pitch and we could not be prouder.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 22/04/2026

📢 Calling all researchers! Applications open on 8 May for our 2026 Advancing Treatments Award, which will support the early-stage development of new treatments designed to slow, stop or reverse the progression of MND. See here for more details & how to apply: www.myname5doddie.co.uk/for-research...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 20/04/2026

Over £2 million has been raised for MND research through Doddie Aid 2026 and Doddie’s Triple Crown cycle! 👏 We can’t thank you enough for your support and efforts. You’re all still turning up, still giving, still pushing - and that means everything 💙💛 Same time, same place next year? 👀

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 14/03/2026

After four gruelling days, pedalling over 700 miles, this is the emotional moment our cyclists finally crossed the finish line at Blackrock RFC in Dublin last night. They’ve persevered through brutal weather conditions all to raise over £1.3 million and counting for MND research.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 14/03/2026

They've made it 🏁🚴‍♂️ Yesterday’s finish line might have changed, but our finish line hasn't: a world free of MND. Make those final miles and the journey to get here all the more worthwhile. Keep supporting, donate to Doddie’s Triple Crown now: www.justgiving.com/campaign/tri...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 12/03/2026

What Rob said. “We’ve set ourselves a task, and I’m not talking about riding to Dublin, I’m talking about finding a solution to MND.” Kathy, Rob and the 40+ teams of cyclists need your support more than ever. Donate to Kathy’s fundraising page here: www.justgiving.com/page/fivehea...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 12/03/2026

This is why we do it. So incredible to be joined by Lewis Moody, Ed Slater and our patron Jill Douglas this morning as the cyclists departed Gloucester. The weather is not on our side today. Show the cyclists your support by donating now: www.justgiving.com/campaign/tri...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 11/03/2026

“We can’t give them much to look forward to but we can give them hope. We are pedalling hope.” This is why these rides are so important. When you donate to Doddie’s Triple Crown, you’re helping fund vital MND research. Show your support and donate now: www.justgiving.com/campaign/tri...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 11/03/2026

In case you missed it, Raya Therapeutic Inc.'s drug smilagenin (RT1999) has been selected for the EXPERTS-ALS trial platform. Here, Professor Chris McDermott, co-lead for the EXPERTS-ALS trial, tells us more about why EXPERTS-ALS and this news is so novel and important.

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 11/03/2026

A huge thank you to PureGym Leeds for opening their doors and giving our cyclists a place to rest for the night - even turning the gym floor into a bed for the teams after a long first day A class act and brilliant partner🤝 Day 2 - let's go! Donate here: www.justgiving.com/campaign/tri...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 11/03/2026

About yesterday...what a day! 180 miles covered and £1 million already raised for MND research - but there’s still a long way to go 🚴 Your support means everything this week as the teams make their way to Dublin 💙💛 Donate now: www.justgiving.com/campaign/tri...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 10/03/2026

Here we go! Four days, 750 miles, one mission: a world free of MND. Doddie's Triple Crown has officially kicked off. Donate now: www.justgiving.com/campaign/tri...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 03/03/2026

There’s continued discussion about a perceived link between rugby and MND, but some commentary can miss key points from existing studies & data. MND research is complex & this is no exception. That's why we’re resharing this article to provide more clarity: www.myname5doddie.co.uk/whats-on/art...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 03/03/2026

MND‑SMART have confirmed amantadine is being removed from the trial as interim analysis shows it doesn't slow MND progression. Whilst disappointing, this allows MND-SMART to move on to test other treatments. Recruitment for tacrolimus continues Details here: www.myname5doddie.co.uk/whats-on/art...

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My Name'5 Doddie Foundation @mndoddie5.bsky.social · 27/02/2026

It’s great to see positive news for potential new MND treatments, this week the US biotech QurAlis have provided an interim update from their early-stage clinical trial of a gene therapy. More details here: www.myname5doddie.co.uk/whats-on/art...

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