iiinova — where your digital self keeps evolving

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Natasha Devon @natashadevon.bsky.social · 24/09/2026

George will be coming on my show this weekend to discuss this very important article.

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Lucibee @lucibee.bsky.social · 24/09/2026

If folks need an impression of how dismal things are wrt treatment of ME and LC in the NHS, you just need to look at the services stocktake that was done in January 2025. There was "no data" for ME/CFS clinic referrals.

Annex 1 - Data Dashboard - Long Covid ME/CFS Stock take December 2024.

Highlighted box shows that there is NO DATA for total referrals to ME/CFS clinics for the period examined in the stocktake.

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George Monbiot @georgemonbiot.bsky.social · 25/09/2026

Anyone who believes this bunch of con artists represents their interests is either a billionaire or seriously misinformed. leftfootforward.org/2026/09/outr...

leftfootforward.org

Outrage as Reform-run council votes to shut 10 nurseries

Members of the public shouted “you should be ashamed” as Reform councillors approved the plans

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Adam @abrokenbattery.bsky.social · 26/09/2026

Full interview (9 mins): youtu.be/H2rRf_f2hJs George’s recent article www.theguardian.com/commentisfre...

youtu.be

LBC | Natasha Devon interview with George Monbiot

YouTube video by Broken Battery

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George Monbiot @georgemonbiot.bsky.social · 02/10/2026

@davetuller1.bsky.social, a great champion of patients, interviewed me about the massive, ongoing scandal of the neglect, abuse and mistreatment of people with ME/CFS www.youtube.com/watch?v=Maae...

youtube.com

Interview with George Monbiot about Guardian column on ME/CFS

YouTube video by David M Tuller

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Adam @abrokenbattery.bsky.social · 02/10/2026

"This is the opposite of how science ought to work." George Monbiot on those pushing "false and dangerous" cures for #MECFS, "entrenched" in their beliefs and doubling down rather than admit the "great harm" to the lives of thousands of people.

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ThereForME @thereforme.bsky.social · 01/10/2026

The Guardian has published our letter responding to George Monbiot's article about how people with ME are abandoned, dismissed and gaslighted. We point out the inadequate political attention, and call for action from the Health & Social Care Select Committee. www.theguardian.com/society/2026...

George Monbiot is right to draw attention to the “shocking social crisis playing out behind closed doors” for people living with ME. Not only is ME a devastating condition, but too often those affected are failed by the very systems meant to care for them.

The level of political attention the issue has received is nowhere close to the scale of the problem. The government’s strategy on ME, published over a year ago, lacked both substantive funding and outcome targets. Its key action for those affected by the most severe form of ME – “exploring” whether a specialised service could be commissioned – is now delayed until April 2027. We hope that, as a first step, the health and social care select committee will take up this critical issue as a matter of urgency.
Karen Hargrave and Emma Gore-Lloyd
Co-founders, ThereForME charity

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Tessa Munt MP 🔶 @tessamunt.bsky.social · 02/10/2026

Thanks @thereforme.bsky.social! There must be serious review of the government’s inadequate response to #ME, with its cost to us all. Still considering best options to call for including @georgemonbiot.bsky.social proposed public inquiry, Select Committee Inquiry, a Czar or even referral to HSSIB.

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ThereForME @thereforme.bsky.social · 23/09/2026

We're excited to share something we've been working on for a while. ThereForME is now a registered charity! 🥳 1/4

We’ve got news!

ThereForME is now a registered charity.

ThereForME is a Charitable Incorporated Organisation
registered in England and Wales. Registered Charity No. 1218590.

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Cass Macdonald @cm7505.bsky.social · 02/05/2026

@status.archiveofourown.org currently getting a cloud flare SSL handshake failure message when trying to load stories - anyone else dealing with this? #AO3

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UK Politics News // Papernaut @ukpolitics.papernaut.co · 25/03/2025

THE CANARY: Labour’s DWP cuts expose the party's descent into austerity: Voices from the frontline reveal the devastating impact on disabled claimants facing a bleak future amidst looming reforms. - by Megan Miley

thecanary.co

Terrified, humiliated: three PIP claimants tell the Canary of their fears over Labour's DWP cuts

Terrified, humiliated: three PIP claimants tell the Canary of their fears over Labour's DWP cuts from Canary on 25 March 2025

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 17/04/2026

Had a meeting this week where I asked detailed questions about a team's statistical plan and the response was "we'll just use AI for it".

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Michiel @murtoz.bsky.social · 05/12/2024

I did an interview last week about living with ME. This article is the result. Pleased with it overall, no glaring errors, and most of my key messages are in the article even if she didn't put some of the more 'difficult' points in there verbatim. #mecfs #pwME www.scotsman.com/health/me-ch...

scotsman.com

'My daughter has ME, she went into appointments walking and came out in a wheelchair'

There are an estimated 1.3 million people in the UK with ME 🏥

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Edinburgh Bus Users Group @edinburghbug.bsky.social · 21/03/2026

Handy guide for Scottish election '26. 1. All good manifestos need: edinburghbususers.group/ebug-suggest... www.cpt-uk.org/media/cc4jqx... sestran.gov.uk/wp-content/u... 2. Edinburgh hustings details Links to candidate names & contact details, good Qs & As edinburghbususers.group/edinburgh-bu...

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Cass Macdonald @cm7505.bsky.social · 20/03/2026

It’s really no problem at all and please let me know if there’s anything else I can do!

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Cass Macdonald @cm7505.bsky.social · 20/03/2026

Thanks both again for coming out - I massively appreciate your time and the positive discussions we had.

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Chas Booth (he/him) @chasbooth.bsky.social · 20/03/2026

Along w ward colleague @katrinafaccenda.bsky.social I went on a walk & wheel around the Shore & Kirkgate area this morning w local resident @cm7505.bsky.social to see how completely inaccessible many of our streets are for disabled residents. I have a long list of actions as a result. 1/2

Photo showing Cass, a wheelchair user, blocked by scaffolding across the footway.

Photo showing a sign post positioned next to a kerb in such a way that it blocks wheelchair users.

Photo showing a flush kerb with tactile paving.

Photo showing a dropped kerb next to a drain and a large pothole.

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Cass Macdonald @cm7505.bsky.social · 20/03/2026

And you! It was a gorgeous day - we were very lucky with weather!

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Cass Macdonald @cm7505.bsky.social · 20/03/2026

Just home from taking local Cllrs round my ‘hood! Thanks to @chasbooth.bsky.social & @katrinafaccenda.bsky.social for taking the time to see its accessibility from a wheelchair perspective

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Cass Macdonald @cm7505.bsky.social · 02/03/2026

At least we are all suffering together….

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Cass Macdonald @cm7505.bsky.social · 09/02/2026

Thanks for everything you’re doing. I recently had an exchange over training; there is NO formal MSc in post viral conditions like MECFS and if we want properly qualified, specialist healthcare professionals for this, Long Covid, PoTS, MCAS etc, that’s what’s needed. I despair

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Michiel @murtoz.bsky.social · 09/02/2026

it's beyond pitiful. less than 0.0055% of NHS doctors & nurses with basic awareness of severe ME. This is what happens when the govt doesn't put their money where their mouth is. Just more hot air and neglect They can't be this incompetent? This has to be intentional. Protecting Sir Simon?

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Lucibee @lucibee.bsky.social · 09/02/2026

This is *pitiful*. 😞 @ashleydaltonmp.bsky.social Your department needs to try an *awful* lot harder.

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Lucibee @lucibee.bsky.social · 09/02/2026

5/n Today, I received their answer. This is the data table they sent me, of the number of people who have completed each of the 3 modules up to 20 January 2026:

Table shows the numbers completing each module, split by type of email account. An asterisk indicates there were 5 or fewer.

Module 1: An introduction to ME/CFS = 8 (.gov.uk), 51 (.ac.uk), 227 (.nhs), 85 (other).
Module 2: ME/CFS: guidance for community-based healthcare practitioners = 8 (.ac.uk), 74 (.nhs), 19 (other).
Module 3: Managing severe ME/CFS = * (.gov.uk), 7 (.ac.uk), 33 (.nhs), * (other).

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Lucibee @lucibee.bsky.social · 09/02/2026

4/n According to the Nuffield Trust, about 1.7 million people work in the NHS. This includes 188,000 doctors and around 423,000 nurses and midwives. The Royal College of Physicians has over 40,000 members. www.nuffieldtrust.org.uk/resource/the...

nuffieldtrust.org.uk

The NHS workforce in numbers

Facts on staffing and staff shortages in England.

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Lucibee @lucibee.bsky.social · 09/02/2026

3/n The UK Government stated that "The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules," and that they were working with the Royal College of Nursing.

Extract from the UK Government's ME/CFS Delivery Plan.

Attitudes and education.

Action: DHSC will ask relevant stakeholders to:
a) consider developing a shared learning resource on ME/CFS, which could be held in an education hub,
b) request that the Medical Schools Council (MSC) encourages shared learning and the NHS England e-learning package on ME/CFS to all UK medical schools and encourages medical schools to provide undergraduates with direct patient experience,
c) use its networks to raise awareness of NHS England’s e-learning module on ME/CFS.
Progress: Discussed potential education hub with the Task and Finish Group - to be explored further.
DHSC discussed raising awareness of NHS England’s e-learning with relevant professional bodies.
The Royal College of General Practitioners, the Chartered Society of Physiotherapy and the Royal College of Occupational Therapists agreed to share and promote NHS England’s e-learning modules. DHSC will continue to reach out to networks including the Royal College of Nursing to promote NHS England’s e-learning modules.
NICE has added e-learning to its tools and resources page, with further modules to be added as they become available.
DHSC to develop and run a public awareness initiative on ME/CFS, and signpost to e-learning and NICE guidelines as part of the initiative.
Timeline and measure of success: Sharing of resources with a wider stakeholder group and a public awareness initiative (by May 2026) are expected to improve both the public and professionals’ understanding of ME/CFS.
E-learning to be shared with stakeholders in July 2025.
NHS England’s user statistics and feedback on DHSC-led awareness initiative to be monitored and reviewed.

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Lucibee @lucibee.bsky.social · 09/02/2026

2/n The reason I asked was because the ME/CFS Delivery Plan makes some quite distinct promises (alright, "aims") about their e-learning package, including this item in their table of Agreed Actions. www.gov.uk/government/p...

Extract from the ME/CFS Final Delivery Plan (UK Government, 22 July 2025).

Action: The Royal College of Physicians (RCP) will ensure that its training on ME/CFS keeps pace with research and guidance in the core postgraduate training for primary and secondary care physicians.

Progress: RCP will, for now, rely on NHS England’s e-learning modules, which are considered suitable by RCP.

Timeline and measure of success: Aim for all RCP members to undertake the e-learning by the end of 2025.

My comment: This should be easily measurable. Has it been achieved?

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Lucibee @lucibee.bsky.social · 09/02/2026

About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS... 🧵 1/n

Email sent to NHS elearning enquiries on 12 January 2026.

Subject - Request for information.

Dear NHSE elearning hub,

I am making a freedom of information request (FOIA 2000) for the following data.

In 2024/5, the NHS England elfh e-learning hub introduced 3 new modules on ME/CFS:

1. An introduction to ME/CFS (May 2024).
2. ME/CFS: guidance for community-based healthcare practitioners (January 2025).
3. Managing Severe ME/CFS (September 2025).

Please can you tell me how many people have completed each module to date (from date of introduction), and what the breakdown is for logins by NHS staff (nhs.uk), and those in government (gov.uk), academic (ac.uk), and social care sectors (if available).

I am happy for your response to be sent to this email address.

Many thanks for your help,

Lucy B

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European Movement UK @europeanmovement.co.uk · 30/01/2026

Leaving the EU and walking away from frictionless trade has damaged businesses across the UK. As European companies turn to partners inside the bloc, repairing our relationship with Europe must be a priority.

How Brexit turned "made in Britain" into a hindrance. Brexit has greatly hampered UK design brands' ability to sell their products in the EU and turned the "made in Britain" label into a costly burden, industry leaders told Dezeen.

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George Monbiot @georgemonbiot.bsky.social · 30/01/2026

To those saying, "but the Greens will split the vote": 1. Things have changed. 2. It's not the Green's fault that Starmer has the Merdas Touch (turns everything to shit) 3. When the Greens offer the only inspiring option, perhaps we should see the Labour candidate as splitting the vote.

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George Monbiot @georgemonbiot.bsky.social · 30/01/2026

Oh, and 4. Despite the demand for proportional representation from Labour members, Starmer won't change our ridiculous First Past the Post system. So he's in no position to blame anyone for "splitting the vote". share.google/buxD1tZ5BfKk...

share.google

Electoral reform: Strong support for proportional representation among Labour members - LabourList

Two thirds of Labour members would back change to UK voting system towards Proportional Representation, exclusive LabourList polling reveals.

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Larry the Cat @number10cat.bsky.social · 29/01/2026

Let's hope this positive news gets as much attention as the people who try to convince us that the UK is a murder ravaged hellscape. www.bbc.co.uk/news/article...

bbc.co.uk

Homicides at lowest level in nearly 50 years, ONS statistics show

The 499 homicide cases in the year to September were the lowest in England and Wales since 1977.

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Open Britain @openbritain.bsky.social · 30/01/2026

If he’s in your corner, you’re fighting for the wrong team 💀 Tommy Robinson has endorsed Matt Goodwin, Reform UK’s candidate in the Gorton & Denton by-election.

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Good Law Project @goodlawproject.org · 29/01/2026

Rough day for Sex Matters

Image showing news where Sex Matters has lost (twice in a day)

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Media Matters for America @mmfa.bsky.social · 29/01/2026

Chaya Raichik, who runs the social media account Libs of TikTok, has spent the days following Alex Pretti’s killing doxxing ordinary working people — teachers, nurses, school board members — for speaking out against federal immigration officials or expressing sympathy for Pretti.

mediamatters.org

Libs of TikTok is doxxing teachers and nurses who support Alex Pretti or oppose ICE, trying to get them fired

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Mother Jones @motherjones.com · 30/01/2026

Thousands of obtained documents show that Clearview AI’s founders always intended to target immigrants and the political left. Now their digital dragnet is in the hands of the Trump administration.

motherjones.com

The shocking far-right agenda behind the surveillance tech used by ICE and the FBI

Clearview AI’s founders always intended to target immigrants and the political left. Now their digital dragnet is in the hands of the Trump administration.

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Equality Network @lgbtiscotland.bsky.social · 30/01/2026

We are thrilled to see that the Parliament of the Council of Europe (PACE) has voted in favour of a resolution calling for member states to ban conversion practices.

A text graphic with a purple and pink background that says 'Parliamentary Assembly of the Council of Europe Supports a Ban on Conversion Practices'

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Cass Macdonald @cm7505.bsky.social · 30/01/2026

I doubt they’ll have me - I know too much and I cause a lot of trouble 😆

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Dr Christine Peters @microlabdoc.bsky.social · 28/01/2026

Emma Harper MSP mentioned in her speech in parliament today that staff with concerns in the NHS should speak up and be listened to. No doubt intends well, but demonstrates a shallow understanding of the current state of play. Don’t ask people to speak up until you can PROVE it’s safe to do so.

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Olga Nesterova @onestpress.onestnetwork.com · 14/01/2026

Denmark confirms an expanded, more permanent Danish and NATO military presence in and around Greenland, beginning today. Deployments span land, sea, and air, including protection of critical infrastructure, fighter jets, and naval operations. Sweden has committed forces; other NATO allies may follow

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Alt National Park Service @altnps.bsky.social · 14/01/2026

Can we join Greenland 🇬🇱 instead? Asking for a friend.

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