iiinova — where your digital self keeps evolving

Claire Saxton @clarinetsax.bsky.social · 06/09/2026

Saw a black bear on my birthday eve near the #AppalachianTrail! I was sitting by this stream, when I saw it. When it saw me, it ran fast down the trail & then up the incline to the right at the end of this video. It was definitely more scared of me, but I still gave it a wide berth! #RaceBrook

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Claire Saxton @clarinetsax.bsky.social · 12/08/2026

Brady Lake, Holy Cross Wilderness, Colorado

Alpine lake with the craggy mountain ridge behind the lake reflected on its surface

Lake at the base of a craggy mountain ridge

Adult woman swimming in an icy cold mountain lake

Family selfie in front of an alpine lake and craggy mountain ridge

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Cancer Support Community @cancersupporthq.bsky.social · 10/06/2026

Today, CSC brings together leading insurance and advocacy experts for a dynamic conversation on the evolving legislative landscape, and the critical role your voice plays in shaping PBM reform. Register now: lnkd.in/g5RGKsZ7

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Cancer Support Community @cancersupporthq.bsky.social · 03/06/2026

People with cancer may be especially vulnerable because treatment-related disabilities can make it difficult to meet work and reporting requirements. See the joint statement here: www.cancersupportcommunity.org/sites/defaul...

cancersupportcommunity.org

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Claire Saxton @clarinetsax.bsky.social · 03/06/2026

If you have cancer, you shouldn't have to prove that you can't work to keep your Medicaid coverage. But starting in 2027, many will. @cancersupporthq.bsky.social is opposing this - and rightly so. This will make cancer patients lose access to the care keeping them alive. #PatientsOverPaperwork

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Claire Saxton @clarinetsax.bsky.social · 29/05/2026

www.CancerSupportCommunity.org pregamed #ASCO2026 at www.gildasclubchicago.org & now we’re off to 70+ events 🎗️ Highlights: research on treatment distance & financial toxicity + our VP of Cancer Care on www.AstraZeneca.com’s #Cancer #Survivorship panel. We’re here 2 ensure Patients are at the table.

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Cancer Support Community @cancersupporthq.bsky.social · 15/05/2026

@cancersupporthq.bsky.social believes that HEOR oncology research isn't complete until it includes the experiences of the people living with and impacted by cancer. Proud that we could contribute the patient voice to #ISPORAnnual. #CancerResearch #PatientVoice #HealthEquity

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Cancer Support Community @cancersupporthq.bsky.social · 15/05/2026

What is cancer care actually worth to patients? Contributions from CSC will presented at a workshop on novel elements of value, including real option value and the patient perspective. [bit.ly/ISPORWorkshop] #ValueAssessment #PatientVoice #ISPORAnnual

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Cancer Support Community @cancersupporthq.bsky.social · 15/05/2026

What do patients say about tolerating cancer treatment? Research from CSC's Cancer Experience Registry demonstrates that patient experiences need to be part of every cancer care conversation. [bit.ly/TolerabilityAbstract] #Tolerability #PatientReportedOutcomes #ISPORAnnual

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Cancer Support Community @cancersupporthq.bsky.social · 15/05/2026

Are cancer clinics opening where low-income patients need them most? Research by Neal Masia, PhD, Health Capital Group, and co-authored by CSC's VP, Policy and Advocacy, Daneen Sekoni, suggests many aren't. [bit.ly/340bAbstract] #340B #HealthEquity #TransportationBurden

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Cancer Support Community @cancersupporthq.bsky.social · 15/05/2026

@cancersupporthq.bsky.social co-authored two studies and is participating in one workshop bringing the patient voice to health outcomes research at #ISPORAnnual 2026 (May 17–20). #CancerResearch #PatientVoice #HealthEquity #PatientExperience #CancerCare #OutcomesResearch

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Claire Saxton @clarinetsax.bsky.social · 21/04/2026

Increased consolidation in lung cancer clinical trials poster at #AACR26. So proud of my son Luke! 🎉 His analysis from a summer internship with @lungevity.bsky.social is now live. White paper: brnw.ch/21x1LqG AACR Press Release: bit.ly/3ORZwOT #LungCancer #ClinicalTrials #ProudParent

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Claire Saxton @clarinetsax.bsky.social · 07/04/2026

Research from @cancersupporthq.bsky.social's Cancer Experience Registry on #EndometrialCancer survivors gives more evidence to the case for integrating psychosocial care into cancer care. bit.ly/3PUCEyE #WholePersonCare #NCCN2026 #SupportiveCare

Samantha Ammons, PhD, MPH standing in front of her NCCN 2026 poster entitled "Psychosocial Well-being and Barriers to Care in Endometrial Cancer: Findings from the Cancer Experience Registry."

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Claire Saxton @clarinetsax.bsky.social · 27/02/2026

Rare cancers like #CLL and #NeuroendocrineTumors demand specialized community — not just specialized care. This #RareDiseaseDay, I talk about psychosocial support as a clinical need, not a nice-to-have. Because #CommunityIsStrongerThanCancer 💙 🎙️ www.youtube.com/watch?v=O3NM... #Oncology

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Reposted by Claire Saxton

JAMA @jama.com · 05/02/2026

💬 Viewpoint: Removal of black box warnings for menopausal hormone therapy reflects evidence that the risks and benefits of MHT vary by patient context, including hormone receptor status, MHT formulation, and timing post-menopause. bit.ly/4a8qr0Z

JAMA article, published online February 5, 2026, titled: What Systemic Hormone Therapy Black Box Removal Means for Breast Cancer Survivors by Versha Pleasant, MD, MPH; Kari Ring, MD. The article discusses US FDA removal of black box warnings for menopausal hormone therapy (MHT).

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Claire Saxton @clarinetsax.bsky.social · 04/02/2026

Why do 80% of eligible patients miss out on life-saving #CARTCellTherapy? www.CancerSupportCommunty.org's research reveals real barriers—financial toxicity, travel burden, caregiver strain—that keep patients from accessing CAR T. #Tandem26, ⏰ 6:30-8p, 📅 Th, 2/5 #CART #HealthEquity bit.ly/3LRWDwh

Scientific poster explaning the findings -
CONCLUSION
For patients and caregivers, travel time and cost , difficulties with care coordination, securing a 24/7 caregiver, and the perceived risk of side effects are the most significant barriers to CAR T.
• Having to travel long distances to academic cancer centers away from patients’ primary care sites for CAR T cell therapy compounded the psychosocial and financial burden associated with receiving CAR T for patients and caregivers.
• The time, financial, and social toxicity associated with CAR T cell therapy impacts patients, caregivers, families, and communities.
• CAR T should be made available at more care sites and supportive resources should be made more widely available to reduce the financial, logistic, and psychosocial burden of CAR T and improve access to this innovative therapy

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Claire Saxton @clarinetsax.bsky.social · 11/10/2025

For #NSCLC patients, socio-demographics better predict distress levels than metastatic status—challenging common assumptions in psych-oncology. #ASCOQLTY25 #LungCancer #PsychosocialSupport www.CancerSupportCommunity.org Poster: www.cancersupportcommunity.org/sites/defaul...

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Ruth Ann Crystal @drruth.bsky.social · 22/03/2025

RCT shows that young children (age 28 days to 4 years of age) with Upper Respiratory Tract Infection (URTI) given probiotics (B breve, B lactis, and L rhamnosus) had 2 days less of fever than those on placebo. buff.ly/LeYbEeY #medsky #pedsky

buff.ly

Probiotics and Fever Duration in Children With Upper Respiratory Tract Infections

This randomized clinical trial evaluates the efficacy and safety of a probiotic mixture containing Bifidobacterium breve M-16V, Bifidobacterium lactis HN019, and Lactobacillus rhamnosus HN001 in reduc...

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Claire Saxton @clarinetsax.bsky.social · 10/03/2025

Your voice matters! With crucial Congressional decisions ahead, tell your Congressperson to protect patient access to #healthcare, especially pediatric and adult cancer patients who access care through #Medicaid. bit.ly/3Fk6mHZ #CallCongress #CancerTreatment #BudgetCuts #ThisIsNotFraudOrWaste

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Claire Saxton @clarinetsax.bsky.social · 04/03/2025

www.CancerSupportCommunity.org congratulates Tim Taggart for successfully completing the Livermore Valley Half Marathon!🏅 Thank you for running with purpose for pediatric cancer and raising over $8,000 for The Bear Fund- #FightCancerLikeABear #childhoodcancer

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Claire Saxton @clarinetsax.bsky.social · 24/02/2025

Make a difference in the lives of people facing cancer! Join www.cancersupportcommunity.org. We're #hiring 3 key roles: * VP, Helpline, Education, & Outreach: bit.ly/3XgHDtY * Manager, Program & #HealthEquity bit.ly/4bhTHksData * Manager, Research: bit.ly/3DeOcXe

bit.ly

Vice President, Helpline, Education and Outreach

Vice President, Helpline, Education and Outreach Full-time The Cancer Support Community (CSC), an international nonprofit organization headquartered in Washington, D.C., is seeking an ambitious ...

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Tatiana Prowell, MD @tmprowell.bsky.social · 05/01/2025

#MedSky #IDSky #PublicHealth There is a widespread outbreak of #norovirus, a GI virus that causes projectile vomiting & profuse diarrhea usually lasting 24-48 hrs. Wastewater levels nationwide in 🇺🇸 are high. It’s miserable & incredibly contagious. So many friends are texting SOS, so here’s a 🧵. /1

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Gabriel Bosslet @gbosslet.bsky.social · 31/12/2024

@melodyschreiber.com wrote about my recent wrangling with #PriorAuthorization in @theguardian.com It has been super frustrating

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TommyD @tommyd54.bsky.social · 19/12/2024

The USA trails developed countries in healthcare costs and outcomes for 5 key reasons:

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Claire Saxton @clarinetsax.bsky.social · 13/12/2024

Top reasons #BreastCancer patients gave CancerSupportCommunity.org for not following their treatment plan 👇👇👇 Erica Fortune, PhD, presented findings about treatment tolerability & adherence at #SABCS24. Full poster: bit.ly/3VwuXyq #bcsm #GRASP #SABCS #cansky #oncsky

Reasons for not adhering to treatment plan:

80% To avoid side effects of treatment
67% Treatment interfered with work or daily activities
62% Treatment interfered with personal life

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United Farm Workers @ufw.bsky.social · 08/12/2024

Rosa has worked in the apple harvest near Merced CA for the last 6 years. She says her shoulders and hands ache at the end of the day from the repetive motion of using the long handled shears to do her job. #WeFeedYou

A worker in an apple orchard where she is pruning the tree

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Dana-Farber News @danafarbernews.bsky.social · 12/12/2024

Patients with low-risk DCIS had comparable physical, emotional and psychological outcomes to patients who received standard treatment, according to results of the phase 3 COMET trial presented by @danafarber.bsky.social’s Ann Partridge, MD, MPH, at #SABCS24. @dfcibreastonc.bsky.social bit.ly/3ZLSgXI

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Fumiko Ladd Chino, MD FASCO @fumikochino.bsky.social · 12/12/2024

#SABCS24: 957 pts w low risk #DCIS randomized to receive “guideline-concordant care” vs active monitoring 🗝️ points @2 yrs: 1️⃣Non inferior for dx invasive #breastCancer (!!!) 2️⃣"Lived Experience” similar, QOL/anxiety not worse 3️⃣Most got ET but only 55% in GCC got surg jamanetwork.com/journals/jam...

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Ryan Marino, MD @ryanmarino.bsky.social · 12/12/2024

The American Medical Association surveyed doctors about insurance “prior authorizations” and found: 41 prior auths per doctor per week 13 hours spent per week on prior auths 24% reported hospitalizations due to delays from prior auths 8% reported disability/deaths due to delays from prior auths

Infographic summarizing negative outcomes documented from prior authorization

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Claire Saxton @clarinetsax.bsky.social · 12/12/2024

Thanks to everyone at @beigene.bsky.social for allowing me to talk about the advancements that have been made in #BreastCancer since I started in patient advocacy in 1998 as well as the many advancements that are still so needed! ow.ly/NEUA50UnQBX #CanSky #OncSky #BCSM #MedSky #Cancer #Oncology

ow.ly

Do We Still Need To Invest in Breast Cancer Research? Part I

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

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Kelly Shanahan @stage4kelly.bsky.social · 10/12/2024

The FDA Oncology’s Project Optimus aims to address dose optimization and was at least partly prompted by patients via PCDI #sabcs24 sabcs24

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Christine Hodgdon @christeeny513.bsky.social · 10/12/2024

Really proud of my work wife (@itsnotpink.bsky.social) filling the shoes of the late Anne Loeser - the driving force & founder of @therightdose.bsky.social. She leaves a legacy that improves the lives of MBC patients who are on treatment indefinitely through drug dose optimization. #SABCS2024 #bcsm

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Alvaro Alvarez Soto(he/him/his) @alvarezsoto.bsky.social · 08/12/2024

Some results from our poster using the SEER database looking into outcomes disparities by race and socioeconomic status. Low socioeconomic status (SEE) means lower survival. When we stratify by race, Low SES means higher hazard risk of death in White and Hispanics but not in Black patients. #ASH

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Senator Chris Van Hollen @vanhollen.senate.gov · 11/12/2024

Medicare coverage for telehealth is set to expire on 12/31 — increasing barriers to care for those who depend on telehealth, including seniors, people with disabilities and underserved communities. We're fighting to extend this coverage so no one loses access to the care they need.

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Claire Saxton @clarinetsax.bsky.social · 09/12/2024

What are top barriers to care & psychosocial / practical needs of CAR T patients & caregivers in CancerSupportCommunity.org’s Proactive Navigation program? Read more: bit.ly/49oimmC Or watch our lead author: postercast.com/view_postercast.php?…

Top reasons for contacting the helpline:
• CAR T Cell Therapy Education/Information
• Financial Concerns
• Need for Emotional Support
• Lodging & Transportation

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Claire Saxton @clarinetsax.bsky.social · 08/12/2024

If you’re at #ASH24, join me at 6pm tonight at poster #3716 to learn more about CancerSupportCommunity.org 's proactive CAR T patient & caregiver navigation. www.cancersupportcommunity.org/sites/defaul...

A picture of the research poster. Better view is available by downloading the pdf at the link above

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Claire Saxton @clarinetsax.bsky.social · 08/12/2024

What do patients think is most important when deciding if a treatment is tolerable to them? Read this synopsis of research presented at #ASH24 by CancerSupportCommunity.org here: bit.ly/3VqQ9pI Or listen to Erica Fortune, PhD present on it here: postercast.com/view_posterc...

bit.ly

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Claire Saxton @clarinetsax.bsky.social · 08/12/2024

If you’re at #ASH24, join me now at poster #2437 to learn more about what patients think is important when deciding if a treatment is tolerable to them.

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Claire Saxton @clarinetsax.bsky.social · 06/12/2024

CancerSupportCommunity.org is at #ASH24 to learn more and find ways to partner to ensure EVERYONE with cancer has access to care & the support they want & need. Join the conversation! #CanSky #OncoSky #EquityInCancerCare 1/

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Claire Saxton @clarinetsax.bsky.social · 04/12/2024

Did you know that the Medicare Annual Open Enrollment window closes on December 7th? CSC's new resource reviews ten tips to understanding your Medicare Part D coverage. Learn more: CancerSupportCommunity.org/Medicare-Tips

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Claire Saxton @clarinetsax.bsky.social · 02/12/2024

There are great resources for caregivers - those helping loved ones living with cancer - at CancerSupportCommunity.org/caregivers, including info on the difference between palliative care and hospice care.

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Claire Saxton @clarinetsax.bsky.social · 29/11/2024

CancerSupportCommunity.org has many different programs to help people with cancer manage depression, anxiety, & distress. Find a location near you: www.cancersupportcommunity.org/find-locatio... www-nbcnews-com.cdn.ampproject.org/c/s/www.nbcn...

www-nbcnews-com.cdn.ampproject.org

Depression affects a third of cancer patients. Experts say it’s one of the biggest gaps in oncology

Depression, anxiety and other psychiatric conditions often go undetected and undiagnosed in patients. The neglect takes a significant toll on survival.

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Tatiana Prowell, MD @tmprowell.bsky.social · 25/11/2024

#WearAMask for a healthy & #HappyThanksgiving! Syst rvw (N=15 articles, 50 flights): If no 😷 required, risk of #COVID19 ⬆️ w/ flight time, compared to flights <3 hrs: 😣 3-6 hrs: 4.7x ⬆️ 😩 >6 hrs : 25.9x ⬆️ >6 hrs flights w/ 😷 required had no transmission reported /1 #MedSky #IDSky #PublicHealth

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Amy C. Moore, PhD @acmoorephd.bsky.social · 23/11/2024

Vaccine preventable diseases and other infectious diseases on the rise. Partly from lapses in routine healthcare during pandemic. Partly because prior COVID increases chances of some illnesses, like the surge in Mycoplasma pneumonia. Partly the rise in anti-science, anti-public health fervor.

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Claire Saxton @clarinetsax.bsky.social · 23/11/2024

Young adults living with colorectal cancer have unique needs. After Cancer Support Community’s researchers documented some of their unique psychosocial needs: www.cancersupportcommunity.org/sites/defaul..., our Education Team created this resource: www.cancersupportcommunity.org/resource/col...

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