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Chronic Eileen

@chroniceileen.bsky.social
169 followers 110 following 24 posts

Eileen Davidson - Rheumatoid Arthritis Patient Advocate, Writer and Speaker. Arthritis Patient Advisory Board Member - Arthritis Research Canada Writer - CreakyJoints and blog www.chroniceileen.com

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Reposted by Chronic Eileen
Rheum Cat @rheumcat.bsky.social · 26/10/2025
I loved that a social media study made it into the #ACR25 pediatric year in review There is so much untapped potential to understand how to reach out to people living with rheumatic disease and provide education and combat misinformation
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Chronic Eileen @chroniceileen.bsky.social · 30/10/2025
Thank you <3
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CreakyJoints® @creakyjoints.bsky.social · 22/10/2025
Invisible ≠ Imaginary. “You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social 👉 Read the full story: creakyjoints.org/living-with-... #InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness
creakyjoints.org
My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out
Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.
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Chronic Eileen @chroniceileen.bsky.social · 16/10/2025
💬 #Rheumatologists Who Create Content The information goes beyond our short appointments we wait months for. Following rheumatologists who make content is a great way to get more out of your rheumatology care and understanding. 👉 Read the full list on my blog - chroniceileen.com/2025/10/16/7...
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CreakyJoints® @creakyjoints.bsky.social · 09/10/2025
You can’t see my pain — but I still feel it every day. 💔 Why living with an invisible illness is exhausting & misunderstood → creakyjoints.org/living-with-... @chroniceileen.bsky.social
creakyjoints.org
My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out
Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.
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Rheum Cat @rheumcat.bsky.social · 12/09/2025
There was also a plug for @arthritischeryl.bsky.social & @chroniceileen.bsky.social 's Rheumer Has It podcast arthritis.theenthusiasticlife.com/2025/08/21/r...
arthritis.theenthusiasticlife.com
Rheumer Has It: Axial Spondyloarthritis Myths v. Facts with Dr. Jean Liew - Arthritis Life
Listen Now: Watch Now: Summary: Curious about axial spondyloarthritis and how it affects people beyond the typical stereotypes? Join us on our latest episode of ‘Rheumer Has It’ with Dr. Jean Liew as ...
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CreakyJoints® @creakyjoints.bsky.social · 14/08/2025
Dating with a chronic illness means protecting your heart and your spoons. 💙 Read @chroniceileen.bsky.social tips here: creakyjoints.org/about-arthri... #ChronicIllness #RheumatoidArthritis #DatingWithChronicIllness
creakyjoints.org
A Sick Girl’s Guide to Navigating Dating With a Chronic Illness
Patient advocate Eileen Davidson shares strategies for dating while managing a chronic illness like rheumatoid arthritis. Read more.
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A Chronic Voice @achronicvoice.com · 27/07/2025
“Some people might criticize u for taking #medication or accuse u of complaining about your #illness ..impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues.”: buff.ly/UceEfGV via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA
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Social Media and Rheumatoid Arthritis: The Good and The Bad
Eileen Davidson shares her journey navigating both support and misinformation online while offering tips for finding reliable resources.
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A Chronic Voice @achronicvoice.com · 24/07/2025
“His understanding of #health, #kindness toward those with #disabilities, and willingness to lend a hand are qualities that many #children don’t develop unless they’ve experienced #chronicillness firsthand.": buff.ly/RLmoJbW from @creakyjoints.bsky.social / @chroniceileen.bsky.social
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Navigating Single Motherhood and Rheumatoid Arthritis
A single mom shares her journey of raising a child while managing rheumatoid arthritis, highlighting the challenges and silver linings.
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A Chronic Voice @achronicvoice.com · 13/07/2025
“ #JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Arthritis is a leading cause of #disability, making many people..no longer able to #work.": buff.ly/4eckbnV via @creakyjoints.bsky.social / @chronicEileen.bsky.social #NEisVoid
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Please Stop Saying That My Arthritis Diagnosis ‘Could Be Worse’
“Having an illness is not a competition. Comparing my illness to someone else's is dismissive and unsupportive,” says arthritis patient advocate Eileen Davidson.
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A Chronic Voice @achronicvoice.com · 30/06/2025
“ #RA makes me feel envy of those who can hold down a #FullTimeJob. I never thought I would miss #working so much. RA makes me feel envy of those who have the #support they need because their #disease has empathy.": buff.ly/ZaA4U7r from @creakyjoints.bsky.social / @chronicEileen.bsky.social
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The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them
Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.
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A Chronic Voice @achronicvoice.com · 28/06/2025
“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice.": buff.ly/LBERnjR from @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #awareness
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Navigating Life with Chronic Illness: 13 Lessons Learned
On the ninth anniversary of her rheumatoid arthritis diagnosis, patient advocate Eileen Davidson reflects on lessons learned.
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Chronic Eileen @chroniceileen.bsky.social · 17/06/2025
As always, I put my presentation into a blog post. #PatientAdvocate chroniceileen.com/2025/06/17/f...
chroniceileen.com
From Diagnosis to Treatment: How Diagnostic Medicine Can Change Rheumatoid Arthritis Care - Chronic Eileen
Presentation at the Lab Q Con in Vancouver
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A Chronic Voice @achronicvoice.com · 17/06/2025
"It might be my way of saying “Hey, don’t forget about me. I haven’t forgotten about you; I am just dealing with something at the moment.”": buff.ly/ChMNzBY via @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #InvisibleIllness #DisabilitySky #ChronicPain #ChronicallyIll
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Why I Post on Social Media About My Chronic illness
How sharing health struggles and wins on social media helps one patient advocate raise awareness, connect with peers, and stay motivated.
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Chronic Eileen @chroniceileen.bsky.social · 16/06/2025
Only returned from #EULAR2025 yesterday and today I have an early morning speech to give. The role of a #PatientAdvocate never ends, plus this is my passion, who cares about jetlag.
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Chronic Eileen @chroniceileen.bsky.social · 05/06/2025
Who will I see at #EULAR2025 next week?
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A Chronic Voice @achronicvoice.com · 04/06/2025
“I’ve learned that what works for 1 person may not work for another, which can be hard for those without a #ChronicIllness to #understand. They might think there’s a 1-size-fits-all solution.": buff.ly/a9AtWgc via @creakyjoints.bsky.social / @chroniceileen.bsky.social #RA #PainManagement #NEisvoid
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Social Media and Rheumatoid Arthritis: The Good and The Bad
Eileen Davidson shares her journey navigating both support and misinformation online while offering tips for finding reliable resources.
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Cheryl Crow, Arthritis Life @arthritischeryl.bsky.social · 29/05/2025
Ever been told “you’re too young to have arthritis”? Or heard that cracking your knuckles causes it? 😑 Check out ep 2 of Rheumer Has it where @chroniceileen.bsky.social & I bust the biggest myths about inflammatory arthritis. arthritis.theenthusiasticlife.com/2025/05/29/r...
arthritis.theenthusiasticlife.com
Rheumer Has it: Arthritis Myths, Stigmas, and Misconceptions - Arthritis Life
Listen Now: Watch Now: Summary: If you’ve ever been told you’re “too young to have arthritis,” this episode is for you! Co-hosts Cheryl & Eileen, both of whom live with rheumatoid arthritis, discuss m...
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A Chronic Voice @achronicvoice.com · 28/05/2025
“Although living on #disability pay is tough, it’s taught him valuable #LifeLessons about money, hard work, and #compassion.": buff.ly/B2u2AEy from @creakyjoints.bsky.social / @chroniceileen.bsky.social #ChronicIllness #RheumatoidArthritis
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Navigating Single Motherhood and Rheumatoid Arthritis
A single mom shares her journey of raising a child while managing rheumatoid arthritis, highlighting the challenges and silver linings.
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Chronic Eileen @chroniceileen.bsky.social · 25/05/2025
The road to a #RheumatoidArthritis diagnosis is frustrating & isolating. It took years of self-advocacy to finally be heard. I recently shared my journey with Health.com, alongside 2 others, to highlight these challenges. 🔗 www.health.com/rheumatoid-a...
health.com
My Constant Pain Went Dismissed for Years—Then I Finally Got a Diagnosis
Eileen Davidson had constant pain in her hands, knees, and feet. It made work and everyday life hard. It would be five years before her rheumatoid arthritis diagnosis.
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A Chronic Voice @achronicvoice.com · 25/05/2025
“Before my #diagnosis I had no idea what #MentalHealthcare could offer me & how much I needed that #compassion. Not all #healthcare providers who save you are patching up wounds or prescribing medication.": buff.ly/liWfUE5 via @creakyjoints.bsky.social + @chroniceileen.bsky.social #therapy
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The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them
Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.
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Cheryl Crow, Arthritis Life @arthritischeryl.bsky.social · 15/05/2025
Check out our first episode! arthritis.theenthusiasticlife.com/2025/05/15/i...
arthritis.theenthusiasticlife.com
Introducing Rheumer Has It: Busting Myths and Highlighting Evidence for Rheumatic Diseases - Arthritis Life
Episode 1: Rheumer Has It, Episode 169 – Arthritis Life Podcast Listen Now: Watch Now: Summary: Welcome to the very first episode of Rheumer Has It! Hosts Cheryl and Eileen kick things off by sharing ...
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Chronic Eileen @chroniceileen.bsky.social · 08/05/2025
Rheum-Mates unite! Chronic Eileen and @arthritischeryl.bsky.social have teamed up to bring you Rheumer Has It, a groundbreaking podcast that tackles myths, highlights the latest research, and delivers real hope for thriving with rheumatic disease. First episode out on the 15th
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A Chronic Voice @achronicvoice.com · 28/04/2025
“it’s important to stop & understand that #arthritis is serious. Assuming “it #CouldBeWorse” may prevent people fr considering what it’s like to live with arthritis, or to learn about all the comorbidities": buff.ly/X4szvZU via @creakyjoints.bsky.social & @chronicEileen.bsky.social #ChronicPain
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Please Stop Saying That My Arthritis Diagnosis ‘Could Be Worse’
“Having an illness is not a competition. Comparing my illness to someone else's is dismissive and unsupportive,” says arthritis patient advocate Eileen Davidson.
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CreakyJoints® @creakyjoints.bsky.social · 29/04/2025
"The biggest similarity between RA and OA is that they’ve both taken parts of my life that I won’t get back — a job I loved, activities I enjoyed, and simple physical freedoms." - @chroniceileen.bsky.social creakyjoints.org/support/livi...
creakyjoints.org
What It’s Like to Have Both Rheumatoid Arthritis and Osteoarthritis at Age 35
Learn what it’s like to live with both rheumatoid arthritis and osteoarthritis, chronic pain conditions that affect the body in similar and different ways.
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Chronic Eileen @chroniceileen.bsky.social · 20/04/2025
My Dad has Multiple Myeloma, blood cancer. We found out how advanced it is tomorrow. He's looking to come back to Canada to stay with me for treatment.
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CreakyJoints® @creakyjoints.bsky.social · 14/04/2025
Dear self: ‘It's not going to be easy and there is no manual on how to do this but, you want to live — not just survive, right?’ creakyjoints.org/living-with-... @chroniceileen.bsky.social
creakyjoints.org
The Letter I Wish I Sent Myself the Day I Was Diagnosed with Rheumatoid Arthritis
Read about the letter that rheumatoid arthritis patient Eileen Davidson wishes she could sent herself to read the day she was diagnosed with RA.
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CreakyJoints® @creakyjoints.bsky.social · 12/04/2025
NEVER say these to someone living with Rhreumatoid Arthritis! creakyjoints.org/about-arthri... @chroniceileen.bsky.social
creakyjoints.org
17 Things You Should Never Say to Someone Living with Arthritis
Patient advocate Eileen Davidson finds these all-too-common phrases rude, naive, judgmental, and unsupportive — and you may too.
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A Chronic Voice @achronicvoice.com · 11/04/2025
“Living with a #ChronicIllness has also helped instill #healthy habits in my son. Because I focus on eating well, he’s learned a lot about balanced #nutrition ”: buff.ly/3BbDEXw via @creakyjoints.bsky.social and @chroniceileen.bsky.social #parenting #ChronicLife
creakyjoints.org
Navigating Single Motherhood and Rheumatoid Arthritis
A single mom shares her journey of raising a child while managing rheumatoid arthritis, highlighting the challenges and silver linings.
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A Chronic Voice @achronicvoice.com · 07/04/2025
“What Google failed to prepare me for was how my #RheumatoidArthritis would affect my #mood & #MentalHealth. I wish I was more prepared for this. I wish every newly diagnosed #RA patient could be more prepared for this": buff.ly/yLmND4i via @creakyjoints.bsky.social / @chroniceileen.bsky.social
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The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them
Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.
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CreakyJoints® @creakyjoints.bsky.social · 04/04/2025
How My Cats Provide Me Relief from Rheumatoid Arthritis: creakyjoints.org/about-arthri... @chroniceileen.bsky.social
creakyjoints.org
How My Cats Provide Me Relief from Rheumatoid Arthritis
Patient advocate Eileen Davidson talks about the healing power of feline companionship in her journey with rheumatoid arthritis.
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Chronic Eileen @chroniceileen.bsky.social · 02/04/2025
My recent doctor's appointment reminded me how important it is to remain calm before, during and after. Here are my tips to ease the anxiety of appointments. chroniceileen.com/2025/04/02/c...
chroniceileen.com
Calming Your Nerves Before a Doctor’s Appointment - Chronic Eileen
Doctor appointments can be nerve wrecking, but there are ways to help those emotions.
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A Chronic Voice @achronicvoice.com · 01/04/2025
“Some people might criticize u for taking #medication or accuse you of complaining about your #illness ..Impt not to take those comments to heart — people who lash out like that are likely struggling w their own issues”: buff.ly/MtlBtAX via @creakyjoints.bsky.social and @chroniceileen.bsky.social
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Social Media and Rheumatoid Arthritis: The Good and The Bad
Eileen Davidson shares her journey navigating both support and misinformation online while offering tips for finding reliable resources.
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Chronic Eileen @chroniceileen.bsky.social · 01/04/2025
Wrote a little something - for those that need the reminder that you didn't fail your medications, the medications failed you. chroniceileen.com/2025/04/01/y...
chroniceileen.com
You Didn’t Fail Your Medications—They Failed You: Understanding Rheumatoid Arthritis Treatment Challenges - Chronic Eileen
Treatment failure in rheumatoid arthritis is not uncommon, but it’s important to remember that it’s not your fault. Medications are tools, and finding the right one can take time.
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A Chronic Voice @achronicvoice.com · 28/03/2025
“It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism ..I found myself belonging to one of the largest groups frequently subjected to #prejudice ": buff.ly/2X1SmXo from @creakyjoints.bsky.social and @chroniceileen.bsky.social #ChronicIllness
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Navigating Life with Chronic Illness: 13 Lessons Learned
On the ninth anniversary of her rheumatoid arthritis diagnosis, patient advocate Eileen Davidson reflects on lessons learned.
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CreakyJoints® @creakyjoints.bsky.social · 28/03/2025
When I truly understood the extent of ableism and the harm it can cause: creakyjoints.org/about-arthri... @chroniceileen.bsky.social
creakyjoints.org
Addressing Ableism and Arthritis
A patient advocate discusses what ableism means to those with arthritis, shedding light on this overlooked form of discrimination.
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CreakyJoints® @creakyjoints.bsky.social · 27/03/2025
Between pain, fatigue, and cognitive dysfunction, travel with RA can be difficult. Here re a few ways to navigate these challenges: creakyjoints.org/about-arthri... @chroniceileen.bsky.social
creakyjoints.org
How I Handle Traveling with Rheumatoid Arthritis
Tips for traveling with rheumatoid arthritis, including handling biologic medications, packing essentials, and prioritizing self-care.
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Nina Crittenden @ninacrittenden.bsky.social · 25/03/2025
Imagine my delight when I found two of my favorites here on bluesky today! @chroniceileen.bsky.social and @creakyjoints.bsky.social are the best!!!! RA isn't a walk in the park, it's so great to have community and advocacy online 🥰
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A Chronic Voice @achronicvoice.com · 14/03/2025
“Hearing “it could be worse”-type #comparisons can make someone doubt how serious their condition is and even question whether or how to treat it.”: buff.ly/4eckbnV via @creakyjoints.bsky.social and @chronicEileen.bsky.social #ChronicIllness #stigma #ChronicPain #InvisibleIllness
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Please Stop Saying That My Arthritis Diagnosis ‘Could Be Worse’
“Having an illness is not a competition. Comparing my illness to someone else's is dismissive and unsupportive,” says arthritis patient advocate Eileen Davidson.
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CreakyJoints® @creakyjoints.bsky.social · 13/03/2025
Wondering if alcohol and RA go together? creakyjoints.org/living-with-... @chroniceileen.bsky.social
creakyjoints.org
Before Rheumatoid Arthritis, I Could Throw Back Shots. Now, a Sip of Booze Makes Me Sick.
“I’ve heard friends say passing off a hangover gets harder the older they get, but they haven’t had to pass off a hangover while living with a chronic illness,” says Eileen Davidson, who has RA and os...
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Kerry L. Wong 🦋 Float Like a Buttahfly @buttahflyk.bsky.social · 10/03/2025
... & gotta love the "No spoons left; FORK OFF" shirt by @chroniceileen.bsky.social
Photo of me wearing a tshirt with a big spoon and text that reads
No spoons left 
FORK OFF
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Chronic Eileen @chroniceileen.bsky.social · 10/03/2025
Do I know any #Rheumatologist who would be willing to answer some written questions about vaccines and rheumatic diseases for National Immunization Awareness Week? I am working on an article on this topic. Thank you!
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Chronic Eileen @chroniceileen.bsky.social · 01/03/2025
Well this is exciting, looks like I am going to EULAR in Barcelona, Spain this June :)
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A Chronic Voice @achronicvoice.com · 01/03/2025
“"Any time u see somebody sitting on a bus or a SkyTrain & they're in a seat for #seniors or people with #disabilities, even if they're young, they may still be dealing with a #disability," she said": buff.ly/2Xpj0j8 via @chronicEileen.bsky.social #YoungAdults #InvisibleIllness
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People with invisible disabilities face constant struggle to be recognized, advocate says | CBC News
People whose disabilities are invisible to others say that one of the most common barriers they face is that people just don't believe them.
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Chronic Eileen @chroniceileen.bsky.social · 01/03/2025
Hi All! My favorite conference of the year HealtheVoices is open for registration! Luckily I started my workshop proposal a week ago so I have a head start. I felt the announcement was coming soon and I was right. More info: fs24.formsite.com/VfyxEW/Healt...
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Chronic Eileen @chroniceileen.bsky.social · 26/02/2025
This is really excited! Two of my session submissions were accepted for the 2025 American College of Rheumatology conference in Chicago this October! I am really excited to put together these sessions, last year was my first experience so this year I feel more prepared. #PatientPartner #ACR25
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Chronic Eileen @chroniceileen.bsky.social · 25/02/2025
I gave a speech at the #CTSummit2025 on why it is important to train patients involved in #ClinicalTrialTraining. I’m grateful for the opportunity to be opening night speaker, especially on a topic I am so passionate about. I turned what I said into a blog post: chroniceileen.com/2025/02/25/t...
chroniceileen.com
The Importance of Clinical Trial Training To Patients and Community - Speech - Chronic Eileen
On Monday February 24th 2025 I gave a speech at the 2025 Clinical Trials Training Summit on why it is important to train patients involved in Clinical Trials
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Linda Li @lli-1.bsky.social · 25/02/2025
Thanks @chroniceileen.bsky.social for sharing your inspiring thoughts as a patient partner keynote speaker at the 2025 #ClinicalTrialsTrainning Summit @cantrain.bsky.social #CTSummit2025.
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CANTRAIN - Clinical Trials Training Programs @cantrain.bsky.social · 31/01/2025
We are excited to announce the 2025 Clinical Trials Training Summit, advancing quality, innovation, and inclusivity in clinical trials. Feb 24-26, Vancouver, BC + virtual attendance free and open to the public. #ClinicalTrialTraining #CTSummit2025 clinicaltrailstrainingsummit2025.wecantrain.ca
Promotional image for the 2025 Clinical Trials Training Summit featuring a stylized maple leaf and hotel image. Dates: February 24-26. Location: Vancouver, BC at the Fairmount Hotel. Hosts: CANTRAIN, CAN-TAP-TALENT, STROKECOG, CBITN. Slogan: Better Prepared. Better Care. Together.
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A Chronic Voice @achronicvoice.com · 20/02/2025
“The whirlwind of #chronicillness will always exist & I can only #control so much. I must find #peace with some of it and ask for help and #support when I need it: from friends, family, or #healthcare professionals": buff.ly/4aPxg4Q from @creakyjoints.bsky.social @chroniceileen.bsky.social
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The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them
Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.
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