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Reposted by Esme's Umbrella

Visionary - Linking sight loss charities @visionaryuk.bsky.social · 24/10/2025

Visionary Online Session - Join NEW, FREE event for Visionary members: 18 Nov, 11AM to 12PM Charles Bonnet Syndrome (CBS) and the paediatric pathway – Where does CBS sit? With Judith Potts and Nina Chesworth at Esme's Umbrella #Children #YoungPeople Register: www.visionary.org.uk/events

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Esme's Umbrella @charlesbonnetsyndrome.uk · 29/10/2025

As part of our 10th anniversary and CBS Awareness Day this November, we’re joining Beacon Vision for a Breath & Sensory Meditation Workshop on 20 Nov. 🌿 Free sessions at 2.30pm & 4.30pm — come unwind and feel the difference a deep breath can make. ✨

Poster titled “Breath & Sensory Meditation Workshop.”
At the top are the Esme’s Umbrella and Beacon Vision logos.
Main text reads: “Take time to pause, breathe and reconnect.
Thursday 20th November
Sessions at 2.30pm and 4.30pm
Join Esme’s Umbrella at Beacon Vision for a gentle session of guided breathing and sensory awareness to ease tension, calm the mind and support wellbeing.
Learn how mindful breathing can help those living with Charles Bonnet Syndrome manage stress and feel more at ease.
Free sessions – everyone welcome.”
Background features a soft pattern of orange dots, with a curved orange border at the bottom framing a photo of a person holding a hand to their chest in a calm outdoor setting.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 08/10/2025

REMINDER 🔔 Tomorrow evening (Thursday 9th October, 7pm) our founder Judith Potts will be speaking about Charles Bonnet Syndrome at the UKISOP webinar, “Supporting Adults and Children with Sight Loss.” Register here: www.ukiscrs.org.uk/ukisop-webinar

ukiscrs.org.uk

UKISOP Webinar | UKISCRS

Join us 9 October 2025

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Esme's Umbrella @charlesbonnetsyndrome.uk · 07/10/2025

Layla Edey is skydiving on 19 Oct in memory of her Nan, Olwen Belcher, who lived with Charles Bonnet Syndrome. Please donate or share to power support for people affected by CBS (UK: tick Gift Aid)

justgiving.com

Layla's fundraiser for Esme's Umbrella

Help Layla Edey raise money to support Esme's Umbrella

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Esme's Umbrella @charlesbonnetsyndrome.uk · 27/09/2025

⏰ The deadline for the 2025 CBS Essay Prize is almost here! ⏰ Open to UK medical students in all years of study. Submit up to 1000 words by 1st October 2025, 11.59pm for the chance to win £500. More info: tinyurl.com/CBS-Prize-2025

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Esme's Umbrella @charlesbonnetsyndrome.uk · 26/09/2025

“Cuddle Up” is out now! ✨ Created by @peter-marsh.bsky.social (Peter Marsh) for Esme’s Umbrella, the song raises awareness of CBS in children & young people. Huge thanks to Peter & @annemcivor.bsky.social. 🎧 Listen on iTunes here: music.lnk.to/KSQIwa and youtube here: www.youtube.com/watch?v=Ex_i...

Esme's Umbrella @charlesbonnetsyndrome.uk · 26/08/2025

The next @rnib.bsky.social CPD-certified online session takes place Mon 1 Sept, 14:00–14:45. A great opportunity for professionals & anyone supporting people with sight loss. ✨ Book here: www.eventbrite.co.uk/e/rnib-intro...

eventbrite.co.uk

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Esme's Umbrella @charlesbonnetsyndrome.uk · 15/07/2025

Are you 18+ with a visual impairment? UCL is running a study on perception, emotion, and well-being. Take a 40-min online survey and enter a £25 prize draw. Questions? Email lee-jones@ucl.ac.uk. Take part here: qualtrics.ucl.ac.uk/jfe/form/SV_...

qualtrics.ucl.ac.uk

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 30/06/2025

It was a pleasure for Nina and Judith to chat with Amelia on @rnib.bsky.social Connect Radio, sharing an update on our campaign to support children and young people living with Charles Bonnet Syndrome (CBS).🎧 Listen here: lnkd.in/evmc8a_p

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Esme's Umbrella @charlesbonnetsyndrome.uk · 18/06/2025

Please will someone from @justgiving.bsky.social respond to my email. The reference is JGA0194855 (#1775425)

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Esme's Umbrella @charlesbonnetsyndrome.uk · 28/05/2025

🎉 We are pleased to announce the 2025 iteration of the CBS essay prize! 🎉 The prize is open to UK medical students in all years of study, including intercalating students. Entries are limited to 1000 words for this year's prize. We will be accepting entries until 1st October 2025 at 11.59pm. ✏️

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Esme's Umbrella @charlesbonnetsyndrome.uk · 19/05/2025

The Sheffield Star was among the @nationalworldpub.bsky.social titles to use the piece about receiving a Times Sternberg Award, written by our Founder, Judith Potts. Picture shows the page from the newspaper.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 09/05/2025

We’re thrilled to announce that Esme’s Umbrella has been nominated for the Community Organisation Award at the National Diversity Awards 2025! 🏆 Vote for us here: www.nationaldiversityawards.co.uk/awards-2025/...

nationaldiversityawards.co.uk

Esme's Umbrella

I have been voted for an Award at The National Diversity Awards 2025 in association with @itvnews. Please vote for me #NDA25 #Nominate #VotingNowOpen

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Esme's Umbrella @charlesbonnetsyndrome.uk · 01/05/2025

We're proud to announce that our founder, Judith Potts, has been awarded a Times Sternberg Active Life Award in recognition of her work with Esme’s Umbrella. Presented at 11 Downing Street—an incredible honour.👏

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Esme's Umbrella @charlesbonnetsyndrome.uk · 17/04/2025

Become an Esme’s Umbrella member and help support awareness and research into Charles Bonnet Syndrome. Membership is completely free and gives you access to our newsletter and the opportunity to take part in future research efforts.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 10/04/2025

Esme’s Umbrella & @henshaws.bsky.social invite families with children and young people to a free event with crafts, refreshments and peer support in a friendly space. Saturday 24 May, 10:30–2:30, Walthew House, 112 Shaw Heath RSVP: mel.cook@henshaws.org.uk / nina@charlesbonnetsyndrome.uk

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Esme's Umbrella @charlesbonnetsyndrome.uk · 28/03/2025

Just a few days to go! ⌛ This Sunday, Jade Marshall-Walker runs the Kew Half Marathon for Esme’s Umbrella. There’s still time to support—every donation helps raise awareness for CBS and those affected. 👉 Donate here: www.justgiving.com/page/jade-ma...

justgiving.com

Jade's fundraiser for Esme's Umbrella

Help Jade Marshall-Walker raise money to support Esme's Umbrella

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Esme's Umbrella @charlesbonnetsyndrome.uk · 18/03/2025

We’re excited to partner with @carents.bsky.social — a digital hub and supportive community for 40,000+ adults caring for elderly relatives. Connect, share, and find expert advice and support

carents.co.xn--ukthe-5u3b

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Esme's Umbrella @charlesbonnetsyndrome.uk · 17/03/2025

Judith Potts shares her CBS advocacy with @nationalvoices.bsky.social. revealing how people living with CBS are dismissed, misdiagnosed, and left without support. Despite its widespread impact, CBS continues to be overlooked. It’s time for change. Read more: www.nationalvoices.org.uk/blogpost/ado...

nationalvoices.org.uk

Adopting an orphan condition – Charles Bonnet Syndrome

Judith Potts, Founder and Trustee of Esme’s Umbrella, writes about Charles Bonnet Syndrome (CBS), its symptoms and the work of the organisation in raising awareness of and providing information about ...

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Reposted by Esme's Umbrella

Esme's Umbrella @charlesbonnetsyndrome.uk · 17/02/2025

A huge ‘thank you’ to Jade Marshall-Walker, who will be running the Kew Half Marathon for Esme’s Umbrella on 30 March. To find out why - and to donate - this is the link www.justgiving.com/page/jade-ma...

justgiving.com

Jade's fundraiser for Esme's Umbrella

Help Jade Marshall-Walker raise money to support Esme's Umbrella

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Esme's Umbrella @charlesbonnetsyndrome.uk · 06/03/2025

As the Six Nations unfolds, we’re proud to have Alex Lowe—The Times rugby correspondent and Esme’s Umbrella Ambassador—helping raise awareness of Charles Bonnet Syndrome. #SixNations #CharlesBonnetSyndrome #EsmesUmbrella

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Esme's Umbrella @charlesbonnetsyndrome.uk · 17/02/2025

justgiving.com

Jade's fundraiser for Esme's Umbrella

Help Jade Marshall-Walker raise money to support Esme's Umbrella

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Esme's Umbrella @charlesbonnetsyndrome.uk · 06/02/2025

We are so grateful to have @rebeccalowetv as our US Ambassador! 💜 Her support means the world as we raise awareness for Charles Bonnet Syndrome and ensure no one facing CBS feels alone. Rebecca, thank you for using your voice to shine a light on our work. We’re so lucky to have you by our side! 💫

The image is a screenshot from an Instagram story by the user "rebeccalowetv," who has a verified account. It features a woman with blonde hair, wearing a white short-sleeved top, smiling at the camera. She is standing in front of a colorful background with partially visible text. Below her image, there is a text overlay that reads:

"New role!! US ambassador to my Mum’s incredible charity that she started up herself in my Grannie’s name. @esmesumbrella - please take a quick second to have a look and even a follow would be absolute magic. My mum is a 👑

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Esme's Umbrella @charlesbonnetsyndrome.uk · 05/02/2025

📢 Study Opportunity for Those with Charles Bonnet Syndrome (CBS)! UCL and Moorfields Eye Hospital are exploring blood markers in CBS. Led by Prof. Mariya Moosajee and Dr. Lee Jones, the study invites individuals 18+ with CBS (1+ hallucination/week) to participate.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 25/01/2025

Now with audio description! 🗣️ Say hello to Em, the CBS monster from Esme’s Umbrella! 🧡 Em is here to help children and young people understand Charles Bonnet Syndrome (CBS) and how to manage it. Watch the video here: youtu.be/MdBBoPRStmE

youtu.be

Em, The Friendly CBS Monster - Esme's Children & Young people - AUDIO DESCRIPTION VERSION

YouTube video by Esme's Umbrella

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Esme's Umbrella @charlesbonnetsyndrome.uk · 24/01/2025

Judith Potts, joined Shaimond Foye on the Charles Bonnet Syndrome Podcast to share how her mother’s experience with CBS inspired her to create Esme’s Umbrella. Listen now to hear her mission to raise awareness, offer support, and fund research for CBS. 🎙️ 🎧 Podcast: open.spotify.com/episode/2H6r...

open.spotify.com

Episode 11: Judith Potts from Esme's Umbrella

The Charles Bonnet Syndrome Podcast · Episode

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Esme's Umbrella @charlesbonnetsyndrome.uk · 24/01/2025

Judith Potts is very much looking forward to speaking at this important Conference.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 23/01/2025

Invitation to Take Part in Research on Visual Imagination and Sight Impairment Researchers at Cardiff University are studying visual imagination in people with sight impairment to better understand why some experience visual hallucinations (Charles Bonnet Syndrome) after sight loss.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 16/01/2025

Jade Marshall-Walker is running the Kew Half Marathon on 30th March 2025 to raise awareness and funds for Esme’s Umbrella 🌟 👉 Donate here: www.justgiving.com/.../jade-mar....

justgiving.com

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Reposted by Esme's Umbrella

Carents | For anyone caring for elderly parents @carents.bsky.social · 13/01/2025

Charles Bonnet Syndrome causes visual hallucinations after sight loss. Learn about symptoms, coping strategies, and where to find help if you or a family member is affected - carents.co.uk/healthcare/s... #CBS #CharlesBonnetSyndrome @charlesbonnetsyndrome.uk

carents.co.uk

Charles Bonnet Syndrome: Visual Hallucinations After Sight Loss

Charles Bonnet Syndrome causes visual hallucinations after sight loss. Symptoms and coping strategies for you and your elderly relatives

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Reposted by Esme's Umbrella

drgmc.bsky.social @drgmc.bsky.social · 17/11/2024

I am a clinical psychologist with 20 years experience working with sight impaired folks. It is not rare. I observed one in three having Charles Bonnet syndrome. Find someone who is blind and ask them.

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Esme's Umbrella @charlesbonnetsyndrome.uk · 12/12/2024

Welcome to Esme’s Umbrella on Bluesky! We’re here to raise awareness about Charles Bonnet Syndrome (CBS) - a condition causing visual hallucinations after sight loss. Our mission is to support those affected, their loved ones, and to advocate for greater understanding and research.

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