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Reposted by The Challenging Behaviour Foundation

Chris Coghlan MP @chriscoghlanmp.bsky.social · 28/09/2026

LeDeR's national annual report, which provides crucial insight into understanding the mortality gap, will be replaced following the abolition of NHS England. I’ve written to the government calling on them to safeguard LeDeR’s principles. 2/2

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Reposted by The Challenging Behaviour Foundation

Chris Coghlan MP @chriscoghlanmp.bsky.social · 28/09/2026

LeDeR (Learning from lives and deaths – people with a learning disability and autistic people) figures show that people with a learning disability suffer nearly twice the rate of avoidable deaths and die roughly 19 years younger than the general population. 1/2

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 02/10/2026

Last week, the national Learning Disability Professional Senate hosted its second annual Listen and Learn event. The day was full of valuable information sharing between people with lived experience health professionals, researchers, and policy makers. www.youtube.com/watch?v=ob_a...

youtube.com

Learning Disability Professional Senate Learning and Listening Event “Healthy Lives Together”

YouTube video by Challenging Behaviour Foundation

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Reposted by The Challenging Behaviour Foundation

Disabled Children's Partnership @dcpcampaign.bsky.social · 11/09/2026

Yesterday 50+ organisations called on the Government to fix a social care system failing disabled children & families. Last night, that call reached a national audience on Channel 4 News channel4.com/news/its-a-p... Add your voice support.disabledchildrenspartnership.org.uk/en-gb/DCP_op...

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Reposted by The Challenging Behaviour Foundation

Green Light PBS Ltd @autismcornwall.bsky.social · 19/06/2026

Lived Experience of Pica: a parent and sister's perspective A family carer shares their lived experience of Pica www.challengingbehaviour.org.uk/news/lived-e... via @cbfdn.bsky.social

challengingbehaviour.org.uk

Lived Experience of Pica: a parent and sister’s perspective

A family carer shares their lived experience of pica, both as a parent to a daughter Erin, aged 6 and as a sister to David, aged 36.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 10/08/2026

We published our report, Building a Bridge - How to end the cliff edge of transition between children’s and adult services for young people with learning disabilities in England, at the CB-NSG meeting last month. Read more here: www.challengingbehaviour.org.uk/wp-content/u...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 13/05/2026

Forward Together is working to build stronger regional support around severe/profound learning disabilities and behaviours that challenge — led by family carers, alongside local services. www.challengingbehaviour.org.uk/what-we-do/p...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 02/04/2026

The event will be an opportunity for discussion, where you can share your views and ask questions via the moderated live chat. Date: Wednesday 15th April 2026 Reserve a spot here: www.eventbrite.co.uk/e/focus-on-s...

eventbrite.co.uk

Focus on SEND reform for parents and carers with the Schools Minister

The Schools Minister answers your questions on SEND reform.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 02/04/2026

The Schools Minister answers your questions on SEND reform. This session will provide an opportunity for parents and carers to hear from the Schools Minister, Georgia Gould, about the live consultation on the government’s plans to reform the SEND system, including the main themes we're focusing on.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 02/04/2026

Join the national Learning Disability Professional Senate on 14th May 2026 for “Healthy Lives Together: Listening and Learning to Improve Health for Children, Young People and Adults with a Learning Disability”. Tickets are £35. To sign up please click: www.ticketsource.com/ld-professio...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 12/03/2026

Our Planning for Adulthood (Wales) resource has been updated, so families and professionals can access the latest support and information. Access the updated resources here: www.challengingbehaviour.org.uk/information-...

challengingbehaviour.org.uk

Planning for Adulthood

Information packs for families faced with their relative’s transition to adult services or moving from one type of care placement to another.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/02/2026

Jacqui Shurlock, CEO of the CBF, spoke to ITV News about the impact of contact orders being applied to families, restricting their ability to see their relative, after they have raised concerns. Read our full statement here: www.challengingbehaviour.org.uk/news/itv-new...

challengingbehaviour.org.uk

ITV News highlights the punitive use of contact orders against family members

Jacqui Shurlock, CEO of The CBF, spoke to ITV News about the impact of contact orders being applied to families after they have raised concerns.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/02/2026

We are seeing a growing trend in the punitive use of contact orders due to a lack of high-quality support and services in the community which can support people with severe learning disabilities whose behaviour challenges.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/02/2026

Today, ITV News have broadcast a news story on contact orders. 45 families who have a relative with a learning disability have been banned from visiting their relative or had restrictions imposed on visits after raising concerns about the way their loved ones are being treated.

challengingbehaviour.org.uk

ITV News highlights the punitive use of contact orders against family members

Jacqui Shurlock, CEO of The CBF, spoke to ITV News about the impact of contact orders being applied to families after they have raised concerns.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 03/02/2026

Ahead of the government’s plans to reform SEND, the Disabled Children’s Partnership is calling for a system that works for children, young people and families - not against them. You can read more here: www.theguardian.com/education/20... @dcpcampaign.bsky.social #SEND #FightForOrdinary

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

If you have been affected by any of the issues raised in this report, you can call the Family Support Service on 0300 666 0126 or email us at support@thecbf.org.uk (Open: Mon -Thurs: 9am – 5pm | Friday: 9am – 3pm)

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

The Department of Health and Social Care and NHS England must take significant action to address these health inequalities, or people with learning disabilities will continue to die when they should not.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

To stop people dying too soon we must see an urgent focus on improved care and coordination for people with learning disabilities – understand how to communicate with individuals and their families, listen to what they have to say, make reasonable adjustments, and make specialist support available.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

1 in 4 deaths of people with severe or profound and multiple learning disabilities were treatable – meaning that, they could have been avoided through timely and effective healthcare interventions. This is a huge health inequality and failure of care.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

The updated report shows that 40% of deaths of people with learning disabilities were avoidable, double that of the general population.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

Following the delays to publication in the first place, this raises questions about how seriously DHSC and NHSE are taking the collection and analysis of data on the deaths of people with learning disabilities. The people who died and their families deserve better.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

The updated version of the LeDeR report has been published this week. The original report, published in September, was withdrawn because information about the cause of more than 200 deaths was missing, meaning whether they were preventable could not be analysed. www.kcl.ac.uk/research/leder

kcl.ac.uk

Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) | King's College London

The latest annual LeDeR report in collaboration with our academic partners on behalf of NHS England.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 23/01/2026

We’re calling on Government to end the cliff edge, to ensure personalised support is available to families that allows them to focus on what's possible, not just what's available.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 23/01/2026

Too many families describe the transition to adulthood as something they had to navigate alone, isolated, unprepared and without adequate support for their young persons’ transition from child to adult services. It doesn’t have to be this way.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 23/01/2026

Over 290 people have signed our open letter! Your signature can help ensure that every young person with a severe learning disability navigates the transition to adulthood with confidence and proper support. ✍ Sign the open letter bit.ly/3J9oO8u #EndTheCliffEdge #TheCBF #KIDS

bit.ly

Take action: sign our open letter to government now

Demanding change for young people with a learning disability, and their families, during their transition to adulthood.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 07/01/2026

(5/5)Action is needed now, including addressing the decline in learning disability nurse numbers, ensuring hospital passports are properly understood and used, and consistently putting reasonable adjustments in place. www.learningdisabilitytoday.co.uk/news/leder-w...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 07/01/2026

(4/5)There continues to be too many avoidable deaths, including cases where, if better care and coordination were available, people with learning disabilities would not have died. While it is vital that the report is accurate, this must not delay any action taken by the NHS and other organisations.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 07/01/2026

(3/5)Steps must be taken to ensure data issues like this do not happen again. While it is vital that the report is accurate, this must not delay any action taken by the NHS and other organisations.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 07/01/2026

(2/5)The data in the LeDeR report represents lives that have been lost, in many cases due to poor care. Given the long delay in approving the publication of the original report, the Department of Health and Social Care and NHS England must ensure the revised version is published as soon as possible.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 07/01/2026

(1/5) The most recent ‘Learning from Lives and Deaths – people with a learning disability and autistic people’ (LeDeR) report has been withdrawn so that the LeDeR team can update their analysis after information around the cause of death of some people with a learning disability was missing.

learningdisabilitytoday.co.uk

LeDeR withdraws its 2023 report due to newly discovered data issues - Learning Disability Today

LeDeR is withdrawing its 2023 annual report and an updated version will be published in January 2026 due to a technical issue within the data supplied by the South Central and West Commissioning Suppo...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 06/01/2026

Shopping the January sales? Did you know you could be helping us at the same time? Sign up to easyfundraising and over 8,000 retailers will donate to us every time you shop online without it costing you anything, including Tesco,John Lewis and many more. www.easyfundraising.org.uk/causes/cbf/

easyfundraising.org.uk

You spend, brands donate to Challenging Behaviour Foundation.

Help us when you shop with 7,000+ brands. Join now.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 22/12/2025

The DfE has published revised guidance on the use of force and restrictive interventions in schools. Whilst the CBF welcomes the changes, we are still calling for the development of mandatory national training standards as a matter of urgency. www.challengingbehaviour.org.uk/news/cbf-sta...

challengingbehaviour.org.uk

CBF Statement on DforE guidance on restrictive interventions

On Thursday 18th December, the Department for Education published updated guidance for schools in England on ‘Restrictive interventions, including use of reasonable force, in schools: Guidance for…

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 19/12/2025

We pay testament to the determined campaigning of family carers, people with learning disabilities and autistic people which has led to this change. Now the Government must begin the urgent work to co-produce and deliver good community support to make this law a reality.

challengingbehaviour.org.uk

Mental Health Bill becomes law – CBF statement

Following years of campaigning by families, people with learning disabilities and autistic people, the Mental Health Bill has finally received Royal Assent. The law will change so that people with lea...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 19/12/2025

The law will change so that people with learning disabilities and autistic people cannot be detained in mental health hospitals unless they have a mental health condition that needs treatment.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 19/12/2025

Following years of campaigning by families, people with learning disabilities and autistic people, the Mental Health Bill has finally received Royal Assent.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 10/11/2025

Our Peer Support Services are here for you. A safe, confidential space to talk, share, and connect with other family carers who truly understand. Click the link below to find our more. www.challengingbehaviour.org.uk/for-family-c...

challengingbehaviour.org.uk

Peer support at the CBF

The CBF is offering free peer support for family carers from your own homes during the Coronavirus pandemic.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 10/11/2025

For fathers, uncles, and brothers of someone with a severe learning disability, the emotional toll can be especially heavy. The love is deep, but so is the pressure. The quiet moments of worry. The feeling that you have to be the strong one — always. You don’t have to carry it alone.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 10/11/2025

🧠 November is Men’s Mental Health Month 🧠 Men are often offered less emotional support than women, and many feel they have to “just get on with it.” But mental health doesn’t discriminate — and neither should support.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 29/10/2025

The service is open to parents, carers, siblings or close relatives of children, young people and adults with severe learning disabilities who display behaviour that challenges. Because sometimes, talking to someone who truly gets it makes all the difference.

challengingbehaviour.org.uk

Listening Ear – Be heard

Book an appointment to chat or offload your worries with someone who understands.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 29/10/2025

📞 Listening ear calls – Be heard 👂 Our Listening Ear service is a free, confidential active listening service, provided by trained family carers who understand what you’re going through. This is a safe, non-judgmental space for you to offload any stresses or worries.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 24/10/2025

(2/2) The hearing has now taken place in the Supreme Court over three days. You can find out more about the hearing in the BBC article below. We will update on the judgment of the case when it is published. www.bbc.co.uk/news/article...

bbc.co.uk

Disabled people at risk from 'back door' law change, say charities

The Supreme Court has been asked to revisit a previous ruling it made on what it means to be deprived of liberty.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 21/10/2025

Independent scrutiny of restrictions that are put in place as part of a care and support plan, such as the use of restraint, are vital in order to uphold the rights of people with severe learning disabilities www.mencap.org.uk/press-releas...

mencap.org.uk

“Deeply troubling” government legal action puts disability rights at risk

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 21/10/2025

It's vital that family carers have a route to challenge their relative’s care support if they don't feel that they're in their best interest/are too restrictive. Individuals with severe learning disabilities whose behaviours challenge are at greater risk of isolation, restrictive practices & abuse.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 21/10/2025

An important court case began on Monday concerning the rights of disabled people who lack the capacity to consent to their care arrangements. We support the case made by @mencap, @mind.org.uk and @autisticsociety.bsky.social

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

We agree with NICCY & CLC the government in Northern Ireland must honour previous commitments to bring forward reformed legislation and guidance on restraint and seclusion in school. Change is essential to protect disabled children & young people from abuses in school. www.niccy.org/news/79-join...

niccy.org

Joint statement on withdrawal from Restraint and Seclusion Task and Finish Group - Niccy

"Today marks two years into my term in office as the Northern Ireland (NI) Commissioner for Children and Young People and serves as an opportunity to pause and reflect. My focus as Commissioner is sim...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

(5/5) We warmly welcome the Minister’s commitment to work with people with lived experience and other stakeholders to do this.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

(4/5) The government must ensure that this community support is developed in a timely manner, so that children, young people and adults with learning disabilities or who are autistic have the right to live in their local communities upheld.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

(3/5) Powerful campaigning from people with learning disabilities, autistic people, families and charities has got us to this point and now people’s voices are needed more than ever.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

(2/5) Without sufficient community support, the changes in the Mental Health Bill that will prevent people with learning disabilities and autistic people from being detained in hospital when they do not have a mental health condition will not be enacted.

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