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Reposted by The Challenging Behaviour Foundation

Disabled Children's Partnership @dcpcampaign.bsky.social · 11/09/2026

Yesterday 50+ organisations called on the Government to fix a social care system failing disabled children & families. Last night, that call reached a national audience on Channel 4 News channel4.com/news/its-a-p... Add your voice support.disabledchildrenspartnership.org.uk/en-gb/DCP_op...

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Reposted by The Challenging Behaviour Foundation

Green Light PBS Ltd @autismcornwall.bsky.social · 19/06/2026

Lived Experience of Pica: a parent and sister's perspective A family carer shares their lived experience of Pica www.challengingbehaviour.org.uk/news/lived-e... via @cbfdn.bsky.social

challengingbehaviour.org.uk

Lived Experience of Pica: a parent and sister’s perspective

A family carer shares their lived experience of pica, both as a parent to a daughter Erin, aged 6 and as a sister to David, aged 36.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 10/08/2026

We published our report, Building a Bridge - How to end the cliff edge of transition between children’s and adult services for young people with learning disabilities in England, at the CB-NSG meeting last month. Read more here: www.challengingbehaviour.org.uk/wp-content/u...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 13/05/2026

Forward Together is working to build stronger regional support around severe/profound learning disabilities and behaviours that challenge — led by family carers, alongside local services. www.challengingbehaviour.org.uk/what-we-do/p...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 02/04/2026

The Schools Minister answers your questions on SEND reform. This session will provide an opportunity for parents and carers to hear from the Schools Minister, Georgia Gould, about the live consultation on the government’s plans to reform the SEND system, including the main themes we're focusing on.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 02/04/2026

Join the national Learning Disability Professional Senate on 14th May 2026 for “Healthy Lives Together: Listening and Learning to Improve Health for Children, Young People and Adults with a Learning Disability”. Tickets are £35. To sign up please click: www.ticketsource.com/ld-professio...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 12/03/2026

Our Planning for Adulthood (Wales) resource has been updated, so families and professionals can access the latest support and information. Access the updated resources here: www.challengingbehaviour.org.uk/information-...

challengingbehaviour.org.uk

Planning for Adulthood

Information packs for families faced with their relative’s transition to adult services or moving from one type of care placement to another.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/02/2026

Today, ITV News have broadcast a news story on contact orders. 45 families who have a relative with a learning disability have been banned from visiting their relative or had restrictions imposed on visits after raising concerns about the way their loved ones are being treated.

challengingbehaviour.org.uk

ITV News highlights the punitive use of contact orders against family members

Jacqui Shurlock, CEO of The CBF, spoke to ITV News about the impact of contact orders being applied to families after they have raised concerns.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 03/02/2026

Ahead of the government’s plans to reform SEND, the Disabled Children’s Partnership is calling for a system that works for children, young people and families - not against them. You can read more here: www.theguardian.com/education/20... @dcpcampaign.bsky.social #SEND #FightForOrdinary

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/01/2026

The updated version of the LeDeR report has been published this week. The original report, published in September, was withdrawn because information about the cause of more than 200 deaths was missing, meaning whether they were preventable could not be analysed. www.kcl.ac.uk/research/leder

kcl.ac.uk

Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) | King's College London

The latest annual LeDeR report in collaboration with our academic partners on behalf of NHS England.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 23/01/2026

Over 290 people have signed our open letter! Your signature can help ensure that every young person with a severe learning disability navigates the transition to adulthood with confidence and proper support. ✍ Sign the open letter bit.ly/3J9oO8u #EndTheCliffEdge #TheCBF #KIDS

bit.ly

Take action: sign our open letter to government now

Demanding change for young people with a learning disability, and their families, during their transition to adulthood.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 07/01/2026

(1/5) The most recent ‘Learning from Lives and Deaths – people with a learning disability and autistic people’ (LeDeR) report has been withdrawn so that the LeDeR team can update their analysis after information around the cause of death of some people with a learning disability was missing.

learningdisabilitytoday.co.uk

LeDeR withdraws its 2023 report due to newly discovered data issues - Learning Disability Today

LeDeR is withdrawing its 2023 annual report and an updated version will be published in January 2026 due to a technical issue within the data supplied by the South Central and West Commissioning Suppo...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 06/01/2026

Shopping the January sales? Did you know you could be helping us at the same time? Sign up to easyfundraising and over 8,000 retailers will donate to us every time you shop online without it costing you anything, including Tesco,John Lewis and many more. www.easyfundraising.org.uk/causes/cbf/

easyfundraising.org.uk

You spend, brands donate to Challenging Behaviour Foundation.

Help us when you shop with 7,000+ brands. Join now.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 22/12/2025

The DfE has published revised guidance on the use of force and restrictive interventions in schools. Whilst the CBF welcomes the changes, we are still calling for the development of mandatory national training standards as a matter of urgency. www.challengingbehaviour.org.uk/news/cbf-sta...

challengingbehaviour.org.uk

CBF Statement on DforE guidance on restrictive interventions

On Thursday 18th December, the Department for Education published updated guidance for schools in England on ‘Restrictive interventions, including use of reasonable force, in schools: Guidance for…

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 19/12/2025

Following years of campaigning by families, people with learning disabilities and autistic people, the Mental Health Bill has finally received Royal Assent.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 10/11/2025

🧠 November is Men’s Mental Health Month 🧠 Men are often offered less emotional support than women, and many feel they have to “just get on with it.” But mental health doesn’t discriminate — and neither should support.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 29/10/2025

📞 Listening ear calls – Be heard 👂 Our Listening Ear service is a free, confidential active listening service, provided by trained family carers who understand what you’re going through. This is a safe, non-judgmental space for you to offload any stresses or worries.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 21/10/2025

An important court case began on Monday concerning the rights of disabled people who lack the capacity to consent to their care arrangements. We support the case made by @mencap, @mind.org.uk and @autisticsociety.bsky.social

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

We agree with NICCY & CLC the government in Northern Ireland must honour previous commitments to bring forward reformed legislation and guidance on restraint and seclusion in school. Change is essential to protect disabled children & young people from abuses in school. www.niccy.org/news/79-join...

niccy.org

Joint statement on withdrawal from Restraint and Seclusion Task and Finish Group - Niccy

"Today marks two years into my term in office as the Northern Ireland (NI) Commissioner for Children and Young People and serves as an opportunity to pause and reflect. My focus as Commissioner is sim...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 16/10/2025

(1/5) Yesterday, Stephen Kinnock, the Minister for Care, set out in Parliament the need to work with people with lived experience to coproduce a government roadmap for developing community support to prevent inappropriate detention.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 06/10/2025

(1/3) A devastating ITV news article. Adrian, Oliver and Louis all died too young. Families share their views on failures in NHS learning disability care. For over 20 years there has been a focus on how to prevent avoidable deaths.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 06/10/2025

Learning Disability Nurses play a vital role in helping children, young people and adults with severe learning disabilities to access healthcare – through personalised communication, listening to families, coordinating support, and ensuring reasonable adjustments.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 17/09/2025

(1/3)The Law Commission has published its Review of social care for disabled children in England. "The current system of support for disabled children and their families is in urgent need of reform." - Jacqui Shurlock, Chief Executive, the Challenging Behaviour Foundation

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 03/09/2025

(1/9)After a delay of almost a year, the most recent Learning from Lives and Deaths–People with a Learning Disability and Autistic People (LeDeR) report has been published. This report looks at the lives and deaths of people with a learning disability and autistic people who died in England in 2023.

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Reposted by The Challenging Behaviour Foundation

Disabled Children's Partnership @dcpcampaign.bsky.social · 01/09/2025

We are unaware of any evidence at all that backs up Richard Tice’s random assertion. Nor are we aware of Reform having a policy on special educational needs and disabilities.

Newspaper headline. Text reads "Reform UK's deputy leader claims parents are 'using and abusing' free taxis for SEND children and warns 'unsustainable' spending will bankrupt local councils"

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 21/08/2025

The CBF has signed this letter. We work with families and colleagues across the UK campaigning against restraint and seclusion in schools and support this action in Scotland.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 05/08/2025

(1/4) When Safeguarding harms. Recent coverage in The Sunday Times has exposed the devastating consequences for families traumatised by wrongful FII accusations, which has in some events lead to child removal and the withdrawal of essential care.

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Reposted by The Challenging Behaviour Foundation

Disabled Children's Partnership @dcpcampaign.bsky.social · 22/07/2025

It’s time to fix the SEND system. A whole generation of disabled children and those with additional needs are being let down by a broken education system. bit.ly/FightforOrdi... #FightForOrdinary

Textured black background. Text in the centre of the poster reads "FIGHT FOR ORDINARY" in black font with green, lilac and white background. White text below reads "Join the Fight for Ordinary and let's fix the SEND system".

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 21/07/2025

(1/3) Following the preventable death of Myles Scriven, an autistic man with a learning disability, The CBF has signed a joint letter calling on the government to publish the overdue #LeDeR report.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 14/07/2025

☀️ Our Summer edition of our newsletter Challenge is here, Good Communication for Good Lives We explore communication – why it matters, what it means and what can go wrong when poor communication practices are used. Download the digital copy here: www.challengingbehaviour.org.uk/news/challen...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 09/07/2025

(1/2) There have been lots of rumours about SEND reforms but no plans published yet. The Department for Education have made the following statement which we wanted to highlight "We have been clear that there are no plans to abolish Send tribunals” www.bbc.co.uk/news/article...

bbc.co.uk

Ministers urged to keep education plans for children with special needs

Campaigners warn thousands of children could lose access to education if the plans are abolished.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 04/07/2025

The NHS ten-year plan has been published. We understand it is a high-level plan, and we support its aims of ensuring all people can get support in their local communities. (1/3)

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 04/07/2025

As the #SummerHolidays approach, we know it can be a challenging time for families of people with severe learning disabilities. 📞 Our Family Support Service is here to listen, offer guidance, and signpost you to the right help. bit.ly/CBF-FSS ❤️You don’t have to face it on your own.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 04/07/2025

#CoProductionWeek – check out our new Podcast Episode! 🎧Tune in and listen to the first episode in our new series now! spoti.fi/44KULM8

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 27/06/2025

Its #SmallCharityWeek 2025 We want to give a heartfelt thank you to all our families, fundraisers and supporters who have donated, shared and championed our work over the past year. Thank you for being part of our community. #TheCBF #CharitySupport #LearningDisability #FamilySupport

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 18/06/2025

It’s #LearningDisabilityWeek! 🎉 We’re launching the What Matters to Me Toolkit — a powerful resource for supporting people with profound learning disabilities to be seen, heard & included. 👉 bit.ly/3TuOaPq #Inclusion #WhatMattersToMe #LearningDisabilitySupport #FamilyCarers

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 17/06/2025

We believe people with severe learning disabilities deserve support to live as independently and meaningfully as possible. Check out this practical guide for families: 🌟Living a Good and Meaningful Life 🔗 www.challengingbehaviour.org.uk/information-... #DisabilityRights #Inclusion #FamilySupport

challengingbehaviour.org.uk

Living a Good and Meaningful Life

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 17/06/2025

We believe that people with severe learning disabilities should be supported to be as independent as possible. We're sharing helpful resources for families and carers to support this: 📝 Positive Risk Taking Encouraging independence and informed decision-making: bit.ly/3Zg8K9L

bit.ly

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 17/06/2025

We believe that people with severe learning disabilities should be supported to be as independent as possible. We're sharing helpful resources for families and carers to support this: 📘 Planning for Adulthood Packs: transitions and future planning: www.challengingbehaviour.org.uk/information-...

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 17/06/2025

#LearningDisabilityWeek 2025: Do You See Me? 🔦 Being seen means being heard, having choices, and being supported to live life on your own terms. We believe that people with severe learning disabilities to live full, meaningful lives and to be part of their communities.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 13/06/2025

In commemoration of Carers Week, we are publishing our first steps towards planning for the future resource 👣: a template to help family carers to prepare for all eventualities. It brings together key information that someone will need in order to support your relative.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 13/06/2025

🌟 Peer Support Carer's Catchup! 🌟 We host twice-monthly, informal online peer support groups called Carer's Catchups — a safe and welcoming space to share experiences, find support, and feel heard. #Carers #CarersWeek #Support

A graphic announcing a virtual event titled 'Carers Catch-up!' featuring a computer screen displaying several coffee mugs. Below, text provides the date 'Wednesday 18th June 2025' and indicates it is for family carers of children The background is light blue.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 11/06/2025

#CarersWeek Empowering families to speak up Created in partnership with #FamilyCarers and professionals, our Family Carer #Advocacy Resource is here to support you with clear information and guidance if you ever need to advocate alongside or on behalf of your loved one.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 11/06/2025

🎧 This #CarersWeek2025, hear real stories & practical tips for families of children & adults with learning disabilities. 🩵Listen to our podcast 'Challenge Accepted' - created by carers, for carers. To tune in, follow the link: 🔗https://bit.ly/4kUvyEi #CarersWeek #CBFpodcast #SupportCarers

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 11/06/2025

This Carers week, we are excited to be holding the first of 3 regional community of practice events for the new Challenging Behaviour Foundation-led Forward Together project.

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 11/06/2025

Did you know it’s Carers Week 2025? This year's theme is ‘Caring about Equality’, We’re sharing key insights from the Carers UK 2025 Report, highlighting the vital statistics concerning unpaid carers are in our communities. #CarersWeek #support #UnpaidCarers #CaringAboutEquality 🤝

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 11/06/2025

Last week was Volunteers' Week 2025 - We are taking the time to thank all our volunteers, our dedicated trustees to our fantastic Local Champions who moderate the private family carer Facebook page, run Carers' Catch Up sessions and help spread the word, your contributions are invaluable

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The Challenging Behaviour Foundation @cbfdn.bsky.social · 30/05/2025

Learning Disability Nurses provide vital support. This petition calls for a full bursary and maintenance fund to support people to become Learning Disability Nurses, so that people with a learning disability can continue to access this support. petition.parliament.uk/petitions/71...

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