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Brunella Longo

@brunellalongo.bsky.social
336 followers 203 following 1.2K posts

Writer (London, UK) "The Sicca Messenger": knowledge for and about autoimmune diseases www.amazon.co.uk/dp/B0HBS1FNDW Bio at www.pantarei.it Support me and my project with a donation: square.link/u/NPVqSRrO

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Reposted by Brunella Longo
The Lancet Rheumatology @thelancetrheum.bsky.social · 7h
Read the update in full here ➡️bit.ly/4rMqjLy
bit.ly
CAR T cells for autoimmune diseases: 2026 update of the EBMT–ISCT–JACIE practice harmonisation and consensus recommendations
Autoimmune diseases are a heterogeneous group of chronic diseases characterised by loss of immune tolerance with substantial morbidity and mortality. Since 2021, chimeric antigen receptor (CAR) T cell...
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Brunella Longo @brunellalongo.bsky.social · 1h
If you are a doctor - influencer in talks with pharma representatives or other agents to raise 'awareness' or share 'hope' for cures for this or that autoimmune disease, WAIT a minute! Do not compromise your future! Not so long before you can read the next book of "The Sicca Messenger" series! 🤗
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Reposted by Brunella Longo
Max Roser @maxroser.bsky.social · 28/05/2026
here it is: ourworldindata.org/population-simulation-tool
ourworldindata.org
Population tool: How will populations across the world change in the 21st century?
We created an interactive tool that lets you test how changes in fertility rates, life expectancy, and migration rates will change future populations.
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Brunella Longo @brunellalongo.bsky.social · 05/10/2026
Pharma package www.consilium.europa.eu/en/press/pre...
consilium.europa.eu
‘Pharma package’: Council adopts new rules for a fairer and more competitive EU pharmaceutical sector
The Council has adopted the ‘pharma package’, which will make the EU’s pharmaceutical sector fairer and more competitive.
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Reposted by Brunella Longo
C&EN (Chemical & Engineering News) @cenmag.bsky.social · 05/10/2026
Optogenetics has ignited a revolution in neuroscience. Although this decree may sound like hype, researchers in the field disagree, saying the technique is allowing them to understand brain function and disorder with unprecedented precision. #NobelPrize #chemsky 🧪
cen.acs.org
How materials chemistry is advancing the optogenetics revolution
Neuroscience is getting an assist from flexible optoelectronics
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 06/09/2026
I wrote on the family of SPA diseases for which there are now many people burdened with the additional problem of "switching" among biologics on top of their symptoms. This seems very sad. Rheumatologists advice for exercise as first choice of therapy. See guideline: ard.eular.org/article/S000...
ard.eular.org
EULAR recommendations for physical activity in people with inflammatory arthritis and osteoarthritis: 2025 update
The 2018 European Alliance of Associations for Rheumatology (EULAR) recommendations for physical activity (PA) in people with inflammatory arthritis (IA) and osteoarthritis (OA) required revision as n...
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 18/09/2026
It must be the season in which the 'odyssey' myth sells quite well! Truth is Bregs cells therapies are further down the line but here is an interesting historical review... The half-century odyssey of regulatory B cells: from Breg discovery to emerging frontiers pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov
The half-century odyssey of regulatory B cells: from Breg discovery to emerging frontiers
For half a century, the quiet work of a specialized immunosuppressive B cell subset has been slowly unveiled, revealing its profound impact on immune balance. This review provides a comprehensive retr...
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 18/09/2026
Zola-cel (Bristol) and Rap-cel (Novartis) clinical trials of cell therapies targeting autoimmune and neurological disorders paused after three patients died last month. I will try to explain what I have learned and reckoned on these experimental treatments. www.reuters.com/business/hea...
reuters.com
Novartis pauses trials of experimental cell therapy after three deaths
Novartis said on Tuesday it ‌paused eight clinical trials of an experimental cell therapy, called rap-cel, targeting autoimmune and neurological disorders in late August, after three patients died.
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 01/10/2026
Do you have an autoimmune disease? do you know what the buzz of forthcoming conferences is about? Compare the agendas with the table of contents of this book! 😍 Amazing, isn't it? Step further: you will feel better if you actually read it! On your tablets, computer or phones! amzn.eu/d/0ioGklVF
Cover of ebook: What Works For You by Brunella Longo
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Brunella Longo @brunellalongo.bsky.social · 04/10/2026
very curious about the Nobel prizes in medicine and chemistry this yeat! cen.acs.org/people/nobel...
cen.acs.org
Predictions for the 2026 Nobel Prize in Chemistry are in
This year’s favorites include electron transfer in proteins, solar cells, DNA sequencing, self-assembled monolayers, and glycoprotein synthesis
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Brunella Longo @brunellalongo.bsky.social · 04/10/2026
Trying to understand where else the piece from the Moscow Times has been published so far, I see only Euronews www.euronews.com/2026/10/04/h... WHO's page on the plague: www.who.int/news-room/fa...
euronews.com
Has plague returned to Siberia? Panic after lab worker's death
A female staff member at an anti-plague institute in the Irkutsk region who died amid rumours of a "black death" outbreak was diagnosed with "pneumonia of unknown origin". Rospotrebnadzor insists that...
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Brunella Longo @brunellalongo.bsky.social · 04/10/2026
Follow me if you have an interest in autoimmune diseases, healthcare, health literacy and science communication and you want to hear the voice of a unique informed patient and independent researcher and writer, otherwise you are most welcome to follow someone else.
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Brunella Longo @brunellalongo.bsky.social · 03/10/2026
Patients organisations throughout the pharmaceutical lifecycle: financial ties should always be disclosed IMO, their purpose explained, the money accounted for. 3 articles of interest: pmc.ncbi.nlm.nih.gov/articles/PMC... pmc.ncbi.nlm.nih.gov/articles/PMC... link.springer.com/article/10.1...
pmc.ncbi.nlm.nih.gov
Commercial influences on patient and public involvement: a renewed call for research and action
Patient and public involvement is increasingly advocated in health policy, research and practice. Patients and people with lived experience, carers and the general public should have a say in how poli...
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Brunella Longo @brunellalongo.bsky.social · 03/10/2026
Very nice initiative! With hundreds of national and intnl organisations aiming at sharing knowledge and advocacy, competing for funding, sponsors, attention on rare diseases, I hope everybody understands the importance that also my independent research thrives for a more inclusive science!
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Brunella Longo @brunellalongo.bsky.social · 02/10/2026
Liked this excellent yet tough documentary about Nina Simone's life work and time! also useful to understand her bipolar disorder diagnosis www.netflix.com/gb/title/703...
netflix.com
Watch What Happened, Miss Simone? | Netflix Official Site
Using never-before-heard recordings, rare archival footage and her best-known songs, this is the story of legendary singer and activist Nina Simone.
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 22/09/2026
Rheumatologist, doctor, healthcare pro and want to empower your patients? I prefer the paperback printed on demand edition to be read slowly as a vademecum for personal self-care journeys but... I got it! Many prefer ebooks! And "What Works For You" EBOOK is here! www.amazon.co.uk/dp/1919405917
amazon.co.uk
What Works For You: Physical Exercise With Autoimmune Diseases: 1 (The Sicca Messenger)
What Works For You: Physical Exercise With Autoimmune Diseases: 1 (The Sicca Messenger) : Longo, Brunella: Amazon.co.uk: Books
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 27/09/2026
Inspired by real humans, packed with medical data, crafted through imagination, my short stories give you insight on adverse childhood experiences linked to aetiology of diseases. Discover little and big changes in life with autoimmunity for women, men, LGBTQ and even parrots! amzn.eu/d/0gXRR2V2
Thumbnails of ebooks covers
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Brunella Longo @brunellalongo.bsky.social · 01/10/2026
Do you have an autoimmune disease? do you know what the buzz of forthcoming conferences is about? Compare the agendas with the table of contents of this book! 😍 Amazing, isn't it? Step further: you will feel better if you actually read it! On your tablets, computer or phones! amzn.eu/d/0ioGklVF
Cover of ebook: What Works For You by Brunella Longo
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Brunella Longo @brunellalongo.bsky.social · 01/10/2026
So proud to lead trends and influence this big complex world of knowledge from a point of ...almost nothingness! Now you can support me and my work. Any amount you donate to me matters, from £1 to £4000! Let me know if you like a public acknowledgement of your donation square.link/u/NPVqSRrO
square.link
Support my research and science communication project on knowledge for and about autoimmune diseases "The Sicca Messenger" - Online Data Assessment by Brunella Longo
"The Sicca Messenger" is a series of books and ebooks. The project, started in 2023, is rooted in my own lived experience as an informed patient and independent researcher, and my passion for informa...
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Brunella Longo @brunellalongo.bsky.social · 30/09/2026
This is one of the dozens of practical knowledge problems we and our doctors need to sort out every month dealing with autoimmune diseases, rare or common. Be vigilant at all times! Now that I'm finalizing another book exactly on care and decision making for treatments, I couldn't be more concerned!
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 30/09/2026
link.springer.com/chapter/10.1... Supplements ok for TED + Sjogren's for me but after more than 1 year I take them shall I stop to see what's happening with blood tests? I suspect they may interfere with TSH and other values. Can't labs fix this issue themselves while I get on with my life please?
link.springer.com
Selenium and Dietary Modification in TED
Dietary modification, and particularly selenium, have become a major facet in the care of patients with thyroid eye disease (TED) over the last decade. Selenium is an important micronutrient with role...
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Brunella Longo @brunellalongo.bsky.social · 30/09/2026
link.springer.com/chapter/10.1... Supplements ok for TED + Sjogren's for me but after more than 1 year I take them shall I stop to see what's happening with blood tests? I suspect they may interfere with TSH and other values. Can't labs fix this issue themselves while I get on with my life please?
link.springer.com
Selenium and Dietary Modification in TED
Dietary modification, and particularly selenium, have become a major facet in the care of patients with thyroid eye disease (TED) over the last decade. Selenium is an important micronutrient with role...
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Reposted by Brunella Longo
ACR Journals @acr-journals.bsky.social · 29/09/2026
Data collected from 84 rheumatologists and 511 patients in the US with Sjögren's disease in 2018 shed light on the patient journey, clinical, and patient-reported burden of Sjögren's disease ACR Open Rheumatology doi.org/10.1002/acr2... Figure: Patient journey to diagnosis
Patient journey to diagnosis, physician referral patterns, and tests used for diagnosis and monitoring
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 28/09/2026
Thank you to everybody who browsed my promotions and bought my ebooks last week! And now you can also support me and my project with a donation: any amount from £1 to £4000 much appreciated! Here is the link: square.link/u/NPVqSRrO A receipt will be sent. Get in touch for any proposal or comment!
square.link
Support my research and science communication project on knowledge for and about autoimmune diseases "The Sicca Messenger" - Online data assessment
"The Sicca Messenger" is a series of books and ebooks. The project, started in 2023, is rooted in my own lived experience as an informed patient and independent researcher, and my passion for informa...
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Brunella Longo @brunellalongo.bsky.social · 28/09/2026
Thank you to everybody who browsed my promotions and bought my ebooks last week! And now you can also support me and my project with a donation: any amount from £1 to £4000 much appreciated! Here is the link: square.link/u/NPVqSRrO A receipt will be sent. Get in touch for any proposal or comment!
square.link
Support my research and science communication project on knowledge for and about autoimmune diseases "The Sicca Messenger" - Online data assessment
"The Sicca Messenger" is a series of books and ebooks. The project, started in 2023, is rooted in my own lived experience as an informed patient and independent researcher, and my passion for informa...
002
Brunella Longo @brunellalongo.bsky.social · 27/09/2026
Back in town from a long walk, thinking I spent weeks analysing data about prescriptions for specific autoimmune diseases for my next book: getting crazy at first, now I got it! doctors don't care about disease names, rightly so. They care about us!
Brunella Longo Self portrait in the woods 27 September 2026
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 26/09/2026
Still active this weekend, my big giveaway promotion! Earlier + current ebooks of many Online Data Assessment titles (by me) available for FREE or with countdown price deal for only £0.99! Unmissable. "The Sicca Messenger Teasers" included, Sunday to Monday morning only! a.co/d/06v0WeMM
cover of the The Sicca Messenger Teasers https://www.amazon.com/Sicca-Messenger-Teasers-knowledge-autoimmune-ebook/dp/B0G6K8KVHZ
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Brunella Longo @brunellalongo.bsky.social · 27/09/2026
What a fantastic yet tiring week, jiggling daily usual living self caring activities, research/writing work AND marketing! Got great ideas learninf on how to optimise time management in the future as I want to make more profits in spite of chronic diseases. And the promotions aren't over yet!
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
Only £0.99 until Sunday 27th also for my pamphlet THE END OF FREEDOM on policies for #AI! How to protect identities, freedom of expression, personality rights in a creative sector commoditised by algorithms? A pleasant, yet somehow dissonant, perhaps crip 😉 case study for all amzn.eu/d/0eZG67li
amzn.eu
The end of freedom (to write what you want): A short trip into the world of online influence powered by AI and crip autotheory (Outliers)
The end of freedom (to write what you want): A short trip into the world of online influence powered by AI and crip autotheory (Outliers) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
Be generous! Order more copies for relatives friends or colleagues. The global pharma market for autoimmune diseases will reach US$ 210 billion in 2026 ... without a cure! Here is everything you need to know and it costs only £11.99 🤗 "What Works For You" kindle www.amazon.co.uk/dp/B0HKP383YZ/
amazon.co.uk
What Works For You: Physical Exercise With Autoimmune Diseases (The Sicca Messenger)
What Works For You: Physical Exercise With Autoimmune Diseases (The Sicca Messenger) eBook : Longo, Brunella: Amazon.co.uk: Books
001
Brunella Longo @brunellalongo.bsky.social · 27/09/2026
Inspired by real humans, packed with medical data, crafted through imagination, my short stories give you insight on adverse childhood experiences linked to aetiology of diseases. Discover little and big changes in life with autoimmunity for women, men, LGBTQ and even parrots! amzn.eu/d/0gXRR2V2
Thumbnails of ebooks covers
001
Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
More marketing & offers from my research and self-publishing work next year: for now, enjoy the promotion of FREE kindle editions of my historical works on the metadata and cybercrime cancellation culture and the industry at the core of the digital economy, publishing! 📚 It ends Sunday! #booksky
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
The big Online Data Assessment promotions this week include poetry! I chose this genre to talk about the greater social determinant of health, housing, and the gap between lived experience of exocrinopathies like Sjögren's or PEI and medical knowledge Only £/$ 99 www.amazon.co.uk/Secretions-c...
Covers of 'Source' and 'Secretions' by Brunella Longo, collections of poems about aetiology of autoimmune diseases and  housing as the greater social determinant of health
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 24/09/2026
The big promotion continues! Only £/$ 0.99 for each of the titles on Amazon.com and Amazon.co.uk between 24th and 27th September *👇* www.amazon.com/dp/B0HBS1FNDW Start your journey into the aetiology and research of autoimmune diseases searching 'brunella longo short stories the sicca messenger'
Thumbnails of ebooks covers
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 05/08/2026
Teeth of Love is the short story by me focusing on this weird (or genetic) common predisposition to periodontal disease and decay in Sjogren's (ignore the metadata: the category is not psychotherapy, it should be dentistry or just fiction / short stories ) www.amazon.co.uk/Teeth-Love-s...
amazon.co.uk
Teeth of Love: A short story (The Sicca Messenger) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
Teeth of Love: A short story (The Sicca Messenger) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
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Brunella Longo @brunellalongo.bsky.social · 26/09/2026
If storytelling draws you into new learning at work or for pleasure why don't you start here? In THE SUN'S KISSES a mature lady tries to make sense of keratinization issues she's been experiencing since childhood. Google doesn't help. Can an academic lecturer solve the mystery? amzn.eu/d/02TYUqGL
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Brunella Longo @brunellalongo.bsky.social · 26/09/2026
Still active this weekend, my big giveaway promotion! Earlier + current ebooks of many Online Data Assessment titles (by me) available for FREE or with countdown price deal for only £0.99! Unmissable. "The Sicca Messenger Teasers" included, Sunday to Monday morning only! a.co/d/06v0WeMM
cover of the The Sicca Messenger Teasers https://www.amazon.com/Sicca-Messenger-Teasers-knowledge-autoimmune-ebook/dp/B0G6K8KVHZ
001
Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 21/09/2026
This is an extraordinary week in which I'm offering countdown deals, special 0.99£ offers and promotions for all the titles published so far by my imprint Online Data Assessment! With best wishes to everybody affected by, caring and researching rare and common autoimmune diseases! www.pantarei.it
Brunella Longo, self portrait 19 September 2026
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Brunella Longo @brunellalongo.bsky.social · 26/09/2026
Put off my walk today to attend an ongoing interesting webinar on signs symptoms remedies for #hypothyroidism. It's a true maze but glad I've such attention to metabolism and my "jigsaw diet", as I wrote in an article 2 years ago (now published in a.co/d/0cKzDqZD). It allowed me to reverse CKD too!
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Brunella Longo @brunellalongo.bsky.social · 25/09/2026
Only £0.99 until Sunday 27th also for my pamphlet THE END OF FREEDOM on policies for #AI! How to protect identities, freedom of expression, personality rights in a creative sector commoditised by algorithms? A pleasant, yet somehow dissonant, perhaps crip 😉 case study for all amzn.eu/d/0eZG67li
amzn.eu
The end of freedom (to write what you want): A short trip into the world of online influence powered by AI and crip autotheory (Outliers)
The end of freedom (to write what you want): A short trip into the world of online influence powered by AI and crip autotheory (Outliers) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
001
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
Be generous! Order more copies for relatives friends or colleagues. The global pharma market for autoimmune diseases will reach US$ 210 billion in 2026 ... without a cure! Here is everything you need to know and it costs only £11.99 🤗 "What Works For You" kindle www.amazon.co.uk/dp/B0HKP383YZ/
amazon.co.uk
What Works For You: Physical Exercise With Autoimmune Diseases (The Sicca Messenger)
What Works For You: Physical Exercise With Autoimmune Diseases (The Sicca Messenger) eBook : Longo, Brunella: Amazon.co.uk: Books
001
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
The big Online Data Assessment promotions this week include poetry! I chose this genre to talk about the greater social determinant of health, housing, and the gap between lived experience of exocrinopathies like Sjögren's or PEI and medical knowledge Only £/$ 99 www.amazon.co.uk/Secretions-c...
Covers of 'Source' and 'Secretions' by Brunella Longo, collections of poems about aetiology of autoimmune diseases and  housing as the greater social determinant of health
001
Brunella Longo @brunellalongo.bsky.social · 25/09/2026
More marketing & offers from my research and self-publishing work next year: for now, enjoy the promotion of FREE kindle editions of my historical works on the metadata and cybercrime cancellation culture and the industry at the core of the digital economy, publishing! 📚 It ends Sunday! #booksky
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Brunella Longo @brunellalongo.bsky.social · 24/09/2026
So tired! My fingers painfully falling asleep but not before reminding this exceptional promotion continues until Sunday 27th! FREE Kindle editions: - The Neglected Librarian (2017) - The Unfindable Explained (2022) - Book Publishing and the Internet (2023) www.amazon.co.uk/stores/autho...
Thumbnails of books covers
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Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 23/09/2026
As promised, and exceptionally only until Sunday 27th, ebooks kindle editions of my earlier studies are available for FREE from today! The promotion includes BOOK PUBLISHING AND THE INTERNET and also its Italian historical version "La nuova editoria vent'anni dopo"! 🥇 #booksky amzn.eu/d/4d8cb8F
amzn.eu
Book Publishing and the Internet (The Digital Human 1) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
Book Publishing and the Internet (The Digital Human 1) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
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Brunella Longo @brunellalongo.bsky.social · 24/09/2026
The big promotion continues! Only £/$ 0.99 for each of the titles on Amazon.com and Amazon.co.uk between 24th and 27th September *👇* www.amazon.com/dp/B0HBS1FNDW Start your journey into the aetiology and research of autoimmune diseases searching 'brunella longo short stories the sicca messenger'
Thumbnails of ebooks covers
101
Brunella Longo @brunellalongo.bsky.social · 23/09/2026
As promised, and exceptionally only until Sunday 27th, ebooks kindle editions of my earlier studies are available for FREE from today! The promotion includes BOOK PUBLISHING AND THE INTERNET and also its Italian historical version "La nuova editoria vent'anni dopo"! 🥇 #booksky amzn.eu/d/4d8cb8F
amzn.eu
Book Publishing and the Internet (The Digital Human 1) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
Book Publishing and the Internet (The Digital Human 1) eBook : Longo, Brunella: Amazon.co.uk: Kindle Store
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Brunella Longo @brunellalongo.bsky.social · 22/09/2026
I am happy to share this advert hoping endocrinologists will start to disrupt their sector! With systemic and overlapping autoimmune disease or metabolic issues an integrated field of knowledge, let's call it "endoexocrinology", would be very helpful! I say more in the comments
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Brunella Longo @brunellalongo.bsky.social · 22/09/2026
Rheumatologist, doctor, healthcare pro and want to empower your patients? I prefer the paperback printed on demand edition to be read slowly as a vademecum for personal self-care journeys but... I got it! Many prefer ebooks! And "What Works For You" EBOOK is here! www.amazon.co.uk/dp/1919405917
amazon.co.uk
What Works For You: Physical Exercise With Autoimmune Diseases: 1 (The Sicca Messenger)
What Works For You: Physical Exercise With Autoimmune Diseases: 1 (The Sicca Messenger) : Longo, Brunella: Amazon.co.uk: Books
101
Reposted by Brunella Longo
Brunella Longo @brunellalongo.bsky.social · 20/09/2026
Unmissable ebook sale 0.99£! Understand symptoms, patients, medical studies with this easy, authentic intro to exocrinology: SECRETIONS Poems about chronic diseases of the exocrine glands: With an introductory essay and an essential bibliography Reading time: 2h www.amazon.co.uk/Secretions-c...
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