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The Bottom Line IBD

@bottomlineibd.bsky.social
579 followers 344 following 77 posts

Promoting patient education in #IBD (Crohn's & UC). I help patients tell their stories. In the real world I'm Rachel, an IBD patient advocate. Also at ibdwomen.bsky.social. Based in 🇬🇧.

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The Bottom Line IBD @bottomlineibd.bsky.social · 02/07/2026
“People’s symptoms are real - they’re not imagined, they’re not invented. Just because we don’t find abnormalities on tests, it doesn’t mean there’s nothing wrong.” - Prof Peter Irving on the importance of validating IBS symptoms in #IBD. 🎧 Full podcast episode ⤵️ open.spotify.com/episode/5yrQ...
open.spotify.com
#37 Understanding IBS in IBD - with Professor Peter Irving
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 30/06/2026
A stellar episode on understanding IBS in #IBD awaits your ears later this week! Here's a snippet of our expert guest, Professor Peter Irving emphasising why Crohn's/UC patients need to be believed when discussing their gut symptoms. Patient centricity in action! open.spotify.com/show/0GgADPx...
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The Bottom Line IBD @bottomlineibd.bsky.social · 19/06/2026
I am so sorry to hear that, Peter. Even in these days of advanced medical therapies, it continues to be a dangerous disease.
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The Bottom Line IBD @bottomlineibd.bsky.social · 18/06/2026
Ha ha, you'll only learn about inflammatory bowel disease, sadly. I'm an avid listener of Evan's Bottom Line podcast, which is funny as that's exactly what I wanted to call my podcast! Haven't quite worked out the solution to that yet...! All good wishes!
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The Bottom Line IBD @bottomlineibd.bsky.social · 11/06/2026
Hi Peter - you have the wrong Bottom Line, though I am a huge fan of Evan Davis!
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Reposted by The Bottom Line IBD
NIHR Biomedical Research Centre: Oxford @oxfordbrc.bsky.social · 16/02/2026
Last year, Prof James East led a team who published major new guidelines for the monitoring of patients with # IBD to prevent them going on to develop #BowelCancer. Listen to him speaking about the risks and how to minimise them on the Wrestling the Octopus podcast: open.spotify.com/episode/0Oq8...
open.spotify.com
#27 Understanding colorectal cancer risk in IBD - with Professor James East
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The Bottom Line IBD @bottomlineibd.bsky.social · 27/11/2025
* COMING SOON * To support our fellow #IBD patients, Nigel & I are adding a new feature to our Wrestling the Octopus IBD podcast - The Octopus Mailbag (TOM). IBDers - you'll be able to use TOM to submit your questions or dilemmas. We'll offer our patient perspectives - and some useful signposting.
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The Bottom Line IBD @bottomlineibd.bsky.social · 26/10/2025
Thanks so much, Peggy! Nice to hear from you. Hope all is well in your world.
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The Bottom Line IBD @bottomlineibd.bsky.social · 26/10/2025
🎧 Drug withdrawal in #IBD: a patient's perspective. open.spotify.com/episode/3Tcf... #crohns #crohnsdisease #ulcerativecolitis #inflammatoryboweldisease #infliximab
open.spotify.com
#19 Rachel reflects on staying in Crohn's remission, four years after stopping infliximab
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The Bottom Line IBD @bottomlineibd.bsky.social · 25/09/2025
Let's talk about diet in #IBD! Our new podcast episode does just that with our special guest, principal gastro dietitian, Dearbhaile O'Hanlon. Hope you enjoy it! open.spotify.com/episode/3Uwq...
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#16 Learning the basics of diet in IBD - with dietitian Dearbhaile O'Hanlon
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The Bottom Line IBD @bottomlineibd.bsky.social · 15/09/2025
Bile acid diarrhoea / malabsorption can be a big problem for Crohn's patients who've had their terminal ileum removed. Professor Julian Walters (@jrfw51.bsky.social) joins our latest #IBD podcast episode to give us concise and up-to-date information on BAD/BAM. 🎧 Listen here: pod.link/1798553243
pod.link
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The Bottom Line IBD @bottomlineibd.bsky.social · 29/08/2025
Really enjoyed recording this #IBD podcast episode on bile acid diarrhoea / malabsorption with Prof Julian Walters and Nigel. I learnt so much from both the clinical and patient perspective. Thanks to both of them. ⭐ #wrestlingtheoctopusibd
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The Bottom Line IBD @bottomlineibd.bsky.social · 12/08/2025
Our #IBD patient podcast, Wrestling the Octopus, has just notched up its 1000th download! To mark this milestone, we've just published an episode on tackling mental health challenges in Crohn's and UC - with IBD clinical psychologist, Dr Stacey Boardman. Lots of top tips! ⤵️ tinyurl.com/459d97vn
open.spotify.com
#12 Mental Health and IBD with Clinical Psychologist, Dr Stacey Boardman
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 08/08/2025
Thanks so much, Jan! What fabulous encouragement for Nigel and I to receive. Truly appreciated. 😊 We have an episode on diet and #IBD in September. We will keep you posted on a release date. Thanks for the recommendation even so!
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The Bottom Line IBD @bottomlineibd.bsky.social · 04/08/2025
I do!
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The Bottom Line IBD @bottomlineibd.bsky.social · 19/07/2025
Meet Rob, a UK lawyer now living in the US who developed Crohn’s disease 3 years ago. Rob joined Nigel and me on our #IBD patient podcast to discuss why he actively pursued early surgery - and just how important family support has been to him in managing his IBD. open.spotify.com/episode/69OY...
open.spotify.com
#8 From Birkenhead to Philadelphia - an IBD Patient's Story
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 17/06/2025
* NEW IBD PATIENT PODCAST EPISODE * Check out Part 2 (Episode 6) of our #IBD patient podcast with Dr Mark Samaan. ⭐️ Dr Samaan returns to answer another set of our common patient questions on Crohn's and UC - we hope you'll find it an informative and educational listen! open.spotify.com/epi...
open.spotify.com
#6 Part 2 - More IBD patients' questions answered by Dr Mark Samaan
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 12/06/2025
Episode 6 of our #IBD patient podcast, "Wrestling the Octopus" gets expert answers to some common questions on Crohn's disease and ulcerative colitis. Joining us in this special two-parter is consultant gastroenterologist, Dr Mark Samaan from Guy's & St Thomas'. ⭐ open.spotify.com/episode/6Adm...
open.spotify.com
#6 Part 1 - IBD patients' questions answered by Dr Mark Samaan
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 10/06/2025
Coming soon... a consultant gastroenterologist answers some common questions on inflammatory bowel disease for our #IBD patient podcast, Wrestling the Octopus. While that's cooking, check out our other episodes here: wrestlingtheoctopusibd.buzzsprout.com #crohnsdisease #ulcerativecolitis
wrestlingtheoctopusibd.buzzsprout.com
Wrestling the Octopus (IBD)
Two long-term IBD patients, Rachel and Nigel, share their experiences and perspectives on living with inflammatory bowel disease (Crohn's disease and ulcerative colitis).
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The Bottom Line IBD @bottomlineibd.bsky.social · 19/05/2025
* NEW IBD PODCAST EPISODE * It's #WorldIBDDay - which surely calls for us to shoot the breeze on various #IBD topics! Nigel & I chat ideas for beating fatigue, the cost of Crohn's, crazy things steroids made us do 🙃 and why neither of us are keen on wearables. open.spotify.com/episode/3nV3...
open.spotify.com
#4 World IBD Day special - Shooting the breeze on IBD
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 14/05/2025
The highlight of May for me each year is the blooming of my favourite rose, Ebb Tide. Though purple is usually my least chosen colour in flowers, this one is a gorgeous smoky shade of it. And the smell is just sublime... 😍
Ebb Tide rose - purple
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The Bottom Line IBD @bottomlineibd.bsky.social · 20/03/2025
Episode 2 of our #IBD patient podcast, Wrestling the Octopus is live! What factors should IBD healthcare professionals take into account when helping patients choose how they take their drugs: orally, IV or injections? Listen here: open.spotify.com/epi... #crohns #crohndisease #ulcerativecolitis
open.spotify.com
#2 How Do You Like Your IBD Medication Served... Oral, IV or Injection?
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 12/03/2025
The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision. #ibd #crohns #crohnsdisease www.mdpi.com/2624-5647/7/...
mdpi.com
The Dilemmas of Disclosing Crohn’s Disease at Work and the Factors Impacting the Decision
Background/Objectives: Individuals with Crohn’s disease often experience challenges at work and are confronted with the decision of whether to disclose their health status in their workplace. This stu...
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The Bottom Line IBD @bottomlineibd.bsky.social · 08/03/2025
We don't have all the answers when it comes to cracking the mysteries of #IBD, but we should never forget the privilege of modern medicine. I'm keeping this front of mind today on #InternationalWomensDay in remembering our bygone IBD sisters who had fewer treatment options than us. To their memory.
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The Bottom Line IBD @bottomlineibd.bsky.social · 06/03/2025
I - like many others - cannot believe what we are seeing and hearing at the moment. Sending you love and heartfelt support.
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The Bottom Line IBD @bottomlineibd.bsky.social · 05/03/2025
Thanks so much for your kind support, Peggy. @crohnoid.bsky.social and I are gearing up for the next subjects! I hope all is well with you.
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The Bottom Line IBD @bottomlineibd.bsky.social · 05/03/2025
Thanks so much, Richard - really appreciate your support. Hope all is well in your world.
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The Bottom Line IBD @bottomlineibd.bsky.social · 22/02/2025
Hope you had a good time. What were your favourite bits of Berlin (outside conference)?
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The Bottom Line IBD @bottomlineibd.bsky.social · 20/02/2025
No, thank YOU!!
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The Bottom Line IBD @bottomlineibd.bsky.social · 20/02/2025
All these exotic names you're giving me, I've never heard of any of them! 😁 Anyway, here's the RSS feed for you... feeds.buzzsprout.com/2453562.rss
feeds.buzzsprout.com
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The Bottom Line IBD @bottomlineibd.bsky.social · 20/02/2025
No, I was just too lazy to list the rest! What app are you on?
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Reposted by The Bottom Line IBD
Nigel H 🎸🎸🎸🎸🥁 @crohnoid.bsky.social · 19/02/2025
My compatriot and fellow Crohn’s patient suggested we should make a podcast about IBD, so we did. First episode is now up on Spotify - open.spotify.com/show/0GgADPx... We had fun making it and I’ve learnt a lot about editing. There may be a few rough edges for this first one!
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The Bottom Line IBD @bottomlineibd.bsky.social · 18/02/2025
Welcome to mine and @Crohnoid's new 8-episode #IBD patient podcast, "Wrestling the Octopus" (title pinched from Nigel's book of the same name!). In this episode, we're debating the hot topic of starting and stopping IBD medication. We hope you enjoy it! 🎧 🥂 open.spotify.com/episode/06rH...
open.spotify.com
#1 To start or stop IBD medication? We debate this hot topic!
Wrestling the Octopus (IBD) · Episode
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The Bottom Line IBD @bottomlineibd.bsky.social · 03/02/2025
It's hard to imagine being at peak performance, I agree.
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The Bottom Line IBD @bottomlineibd.bsky.social · 03/02/2025
Seems like there's a disproportionately high number of sports people who end up with #IBD. Possibly my imagination, but it certainly feels that way... www.bbc.com/sport/articl...
bbc.com
Jarl Magnus Riiber to retire aged 27 after Crohn's disease diagnosis
Jarl Magnus Riiber, the most successful Nordic combined athlete of all time, will retire at the end of the season aged 27 after being diagnosed with Crohn's disease.
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The Bottom Line IBD @bottomlineibd.bsky.social · 22/01/2025
Offering #IBD patients a place of psychological safety in clinic is one of the most critical things their doctor can do. Preferably early on. Everything else that might benefit a patient - from tests to treatments to behavioural changes - should queue up behind this pivotal thing, in my view.
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Shellie Radford @shelliejradford.bsky.social · 12/01/2025
new article from Nottingham BRC and @spmic-uon.bsky.social "Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception" In JCC! academic.oup.com/ecco-jcc/adv...
academic.oup.com
Deconditioning in quiescent Crohn’s Disease patients with heightened fatigue perception
AbstractBackground & Objective. IBD fatigue aetiology is poorly understood. This study quantified body composition and physical function alongside prot
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The Bottom Line IBD @bottomlineibd.bsky.social · 01/01/2025
Happy New Year to you all! 🎉🥂 The terrible weather has given me a free pass to sit here with a glass of wine and a bag of prawn crackers! 🙃 New resolutions can kick in tomorrow... 😁 Hope you all have a great year ahead! 🧡
Tower Bridge at New Year 2025.
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The Bottom Line IBD @bottomlineibd.bsky.social · 22/12/2024
Season's greetings, #IBD-ers, and also random non-IBD people who've probably followed me by accident! 😁🎄 Thanks for all your support this year. Hope you have yourselves a great festive break! 🥂🧡
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The Bottom Line IBD @bottomlineibd.bsky.social · 12/12/2024
Thanks! 😊
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Pearl Avery @pearlavery.bsky.social · 11/12/2024
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions #Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
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The Bottom Line IBD @bottomlineibd.bsky.social · 11/12/2024
Thanks Pearl. It's a good Q, and a timely one as I gave a talk to some early career researchers today on this very topic. We need to be selective about the things we chase, without giving up on ambition. HCPs can help patients by using the biopsychosocial model to illustrate balance and intersection
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The Bottom Line IBD @bottomlineibd.bsky.social · 08/12/2024
Excellent news, Peggy. Keeping everything crossed for you.
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The Bottom Line IBD @bottomlineibd.bsky.social · 07/12/2024
#CrohnsAndColitisAwarenessWeek Day 7 A few observations from me on 25 years living with #IBD: 🔸Hope is the most potent drug of all 🔸Time, outcome and experience will enrich your perspective 🔸Keep sight of life outside IBD 🔸Don't follow the herd. Pursue what matters to you
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The Bottom Line IBD @bottomlineibd.bsky.social · 06/12/2024
Well done, Pearl!
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The Bottom Line IBD @bottomlineibd.bsky.social · 06/12/2024
Sorry to hear this - wishing you well soon...
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The Bottom Line IBD @bottomlineibd.bsky.social · 06/12/2024
#CrohnsAndColitisAwarenessWeek Day 6 We don't talk enough about the importance of soft skills when #IBD specialists are treating patients. I truly believe these skills play the starring role when it comes to positive and durable outcomes for those of us with Crohn's or UC. What's your view?
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The Bottom Line IBD @bottomlineibd.bsky.social · 05/12/2024
#CrohnsandColitisAwarenessWeek Day 5 #IBD patients - did you know that 30-40% of people with Crohn's and UC also have IBS? So how are you supposed to know when it's your IBD kicking off and when it's #IBS? One way: ask your IBD team for a calprotectin test. Levels are not ⬆️ in IBS.
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The Bottom Line IBD @bottomlineibd.bsky.social · 04/12/2024
Wonderful stuff! 👏
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The Bottom Line IBD @bottomlineibd.bsky.social · 04/12/2024
Fantastic news! Here's to you! 🥂
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