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Pearl Avery

@pearlavery.bsky.social
219 followers 343 following 56 posts

Grandmother mother wife and PhD candidate @BU #IBD #GASTRO #ANP #Medsmanagement #DigitalHealth views my own #NHSCEP @CrohnsColitisuk Nurse @BJNursing GI/IBDNurse 2018 #NHS 🌈

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Pearl Avery @pearlavery.bsky.social · 07/05/2026
This #WorldIBDDay, Crohn’s & Colitis U.K. are here to share real experiences that will help reshape how the world sees Crohn’s and Colitis. Your support helps to continue work in driving change, so that everyone living with #IBD gets high-quality care www.crohnsandcolitis.org.uk/get-involved...
crohnsandcolitis.org.uk
World IBD Day 2026
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Pearl Avery @pearlavery.bsky.social · 06/03/2026
thanks guys 🙏 if that completed the advice line survey can complete that's 177 we can do this All #IBDnurses and not just service leads it’s about individual case loads complete and shareAdult nurses www.surveymonkey.com/r/adultIBD And children and young people Nurses www.surveymonkey.com/r/IBDPaeds
media.tenor.com
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Royal College of Nursing Library and Museum @rcnlibraries.bsky.social · 23/11/2025
Happy #NursingSupportWorkersDay! 🎉 Today we shine a light on nursing support workers and the essential care they provide to patients and their families. Join the celebrations – tag or send this to your colleagues to say thank you #NSWD25 bit.ly/3gdE0Cu
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Pearl Avery @pearlavery.bsky.social · 04/10/2025
The working group ☎️ aim to understand the advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all 🙏 92 already 💥 keep them coming ✔️ Deadline 31st October 2025. 📆 Don’t put it off do it now 👇 forms.cloud.microsoft/r/peWjupJjr5o
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Pearl Avery @pearlavery.bsky.social · 03/10/2025
@ukibdnrn.bsky.social is proud to support the advice service working group in this project understating advice service provision in the UK now this is open to all #IBD Nurses not just service leads we need to hear from you all !!! forms.cloud.microsoft/r/peWjupJjr5
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Pearl Avery @pearlavery.bsky.social · 19/05/2025
#WorldIBDDay it takes courage #ibdawareness to talk about the hidden symptoms of #IBD and courage to live with the conditions Crohn's & Colitis UK crohnsandcolitis.org.uk/get-involved.... Have many ways you can support awareness #Courage
crohnsandcolitis.org.uk
World IBD Day
On 19 May, we come together for World IBD Day. It is an opportunity to shine a light on Crohn’s and Colitis and the impact these lifelong conditions have on people’s lives.
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Royal College of Nursing @rcn.org.uk · 13/05/2025
Read more ⬇️ #RCN25
rcn.org.uk
Mental health wait times in A&E a ‘scandal in plain sight’, says RCN | News | Royal College of Nursing
We're calling for significant investment in mental health nursing, as an RCN Freedom of Information request shows at least 1.3 million people have presented to A&E in a mental health crisis in the las...
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Royal College of Nursing @rcn.org.uk · 13/05/2025
New data shows that A&E waits for those in a mental health crisis have risen substantially. Additionally, the mental health workforce has not grown enough to keep up with demand for services. Hear from members at #RCN25 on how this impacts them and those they care for. #MentalHealthAwarenessWeek
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Pearl Avery @pearlavery.bsky.social · 12/05/2025
#HappyInternationalnursesday to colleagues old and new its a privalge to be a nurse the career & opportunities I've had have been amazing now as a highly trained professional who also cares about the people I support grateful to support others in their journey when ever I can #RCN25 @rcn.org.uk
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Pearl Avery @pearlavery.bsky.social · 22/04/2025
Well I’ve kept it to myself for a while but I’m now very happy to share that I’m taking up the role of IBD Nursing lead with #Crohns&ColitisUK their #IBDNursing programme has supported my own advancing nursing journey so it’s fantastic to be able to support other #IBDnurses
media.tenor.com
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Pearl Avery @pearlavery.bsky.social · 19/02/2025
@D_ECCO_IBD Education #IBD #Nurses at #ECCO following excellent talks from @Y_ECCO_IBD showing the value of collaboration and #MDT working
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Pearl Avery @pearlavery.bsky.social · 19/02/2025
#ECCO25 good sessions at #NECCO school this morning some good reminders from us all. increasing research into the importance of vitamin D replacement and a reminder of the Importance of managing fatigue note of value of nutritional optimisation and fatigue improvement
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Pearl Avery @pearlavery.bsky.social · 31/12/2024
#HappyNewYear2025 the years fly by
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Pearl Avery @pearlavery.bsky.social · 12/12/2024
This report speaks for itself highlights the challenges faced by patients it’s clear the state of the #NHS impacts the ability to Deliver the #IBDUK standards #Facethefacts @IBDUKTEAM @rthonwesstreeting.bsky.social investing in diagnosis & management improves outcomes ibduk.org/reports/2024...
ibduk.org
2024 IBD UK Report: The State of IBD Care in the UK | IBD UK
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Pearl Avery @pearlavery.bsky.social · 12/12/2024
listening to the #ibduk report sobering information on delays in diagnosis worse in #crohnsdisease due to subtle presentation recommending the use of what’s up with my gut in primary care #FacetheFacts #IBDUK #CrohnsandColitisUK www.whatsupwithmygut.org.uk
whatsupwithmygut.org.uk
The path to a correct diagnosis | What's up with my gut?
Worried about symptoms? Find support through diagnostic pathways for lower gastrointestinal (GI) symptoms. For adults, parents, and healthcare professionals.
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Pearl Avery @pearlavery.bsky.social · 11/12/2024
#IBD people can you help
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kankemp.bsky.social @kankemp.bsky.social · 11/12/2024
Are you age 16-18yrs living with Crohn’s Disease and moving from paediatric to adult care? Do you want to shape the future of care? We are looking for people to take part in a 40min zoom interview to of transition services. If interested please contact karen.kemp@mft.nhs.uk
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Pearl Avery @pearlavery.bsky.social · 11/12/2024
Can you help !!!
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Pearl Avery @pearlavery.bsky.social · 11/12/2024
It’s easy to forget the challenges #IBD patient’s face when it comes to the routine things in life we all have aspiration to work live provide for our families it’s not so easy with #Longtermhealthconditions #Society makes it hard to function @bottomlineibd.bsky.social how can we help change this
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Slighe gu Slàinte 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @slighe-gu-slainte.bsky.social · 06/12/2024
Finally, I started infliximab infusions - absolutely brilliant - but had to stop because surgery for #CrohnsAbscesses left me with open wounds so I can't sit down to get to hospital (transport) or for the infusions (3hrs). So, back to square one. Waiting to hear what's next. #CrohnsColitis
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Slighe gu Slàinte 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @slighe-gu-slainte.bsky.social · 06/12/2024
My truth? 17 years of symptoms; 17 years of dismissal by medicos resulting in scarring that is now irreversible. Not until my private insurance (through my employer) and the death of an uncle from colon cancer was I taken seriously and was tested. Final diagnosis: #CrohnsColitis
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Slighe gu Slàinte 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @slighe-gu-slainte.bsky.social · 06/12/2024
Various meds over the years that didn't work. Steroids for flares resulting in #Type2Diabetes Best thing I did during that time was have my periods stopped (thank you Mirena coil) as that reduced the number of flares. Left England, relocated to Scotland. Was assigned my first #IBDNurse
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Pearl Avery @pearlavery.bsky.social · 06/12/2024
This #CrohnsandColitisAwarenessWeek has been a reminder to me why I campaign and advocate for #IBD patients and on that note I’m delighted to have been voted to the #N-ECCO committee for 25-28 #IBDEducation done globally.
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Pearl Avery @pearlavery.bsky.social · 04/12/2024
Naughty elf and gorgeous kid want to be a #CrohnsandColitisNurse @CrohnsColitisUK she put my lanyard on and said she was off to work … The elf well not sure what he’s up to !!
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Pearl Avery @pearlavery.bsky.social · 02/12/2024
crohnsandcolitis.org.uk/news-stories...
crohnsandcolitis.org.uk
Meet Sheila, the very first IBD Nurse who paved the way for better Crohn's and Colitis care
Sheila Phillips was the very first IBD Nurse specialist. She set up her clinic in Weymouth in 1993 and changed the face of IBD care forever. Sheila tells us her story.
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Pearl Avery @pearlavery.bsky.social · 27/11/2024
Next week sees the start of #CrohnsandColitisawarenessweek It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening 👂
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Pearl Avery @pearlavery.bsky.social · 01/12/2024
@actionhappiness.bsky.social
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Pearl Avery @pearlavery.bsky.social · 01/12/2024
Literally just thinking how the PhD process is a training tool and that the end result thesis or publications is just a part of the outputs and @stearnslab.bsky.social post popped up on my feed
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Pearl Avery @pearlavery.bsky.social · 30/11/2024
@paulamcgowan.bsky.social glad your here too
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The U.K. IBD Nurse Research Network @ukibdnrn.bsky.social · 29/11/2024
Migrating from the darkness into the light. The new Bluesky #UK #IBDNurse #ResearchNetwork page Currently recruiting UK NHS sites to #ATIBD Advanced Therapies in IBD monitoring access and beyond still time to take part if Interested DM
media.tenor.com
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Create the Ripple @createtheripple.bsky.social · 28/11/2024
Be an encourager. The world has plenty of critics already. 🧡 (Picture by TinyBuddha)
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Create the Ripple @createtheripple.bsky.social · 28/11/2024
The wonder of #gratitude! Take a dose every morning. 🧡 #Thanksgiving #kindness
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Pearl Avery @pearlavery.bsky.social · 28/11/2024
Happy thanksgiving 🇺🇸
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Beatriz Gros @bealoquebea.bsky.social · 27/11/2024
🎉The latest IBD-Ell newsletter is out! - New trials added 🌟We've far surpassed 400 summarized trials🌟 - New guidelines - New cheat sheet with lymphocyte trafficking and anti-integrins Thanks for following along! www.ibd-eii.com Subscribe for free anytime 📩 #IBD
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Florence Nightingale Foundation @fnightingalef.bsky.social · 27/11/2024
🎉 #FNF90at90 Celebrating 90 years of FNF! Greta Westwood, FNF's Chief Executive Officer, shares her ongoing admiration for the nursing & midwifery community and proves that anything is possible! "From rejected FNF scholarship application, to scholar, to FNF CEO!" #FNFLeadershipImpact ⭐❤️
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RCN Lothian and Borders @rcnlandb.bsky.social · 27/11/2024
❤️ MEMBERS ❤️ Making your voice heard as an RCN member is easy. Explore our live consultations, surveys, and elections all in one place on our website ➡️ www.rcn.org.uk/Get-Involved...
rcn.org.uk
Have your say | Royal College of Nursing
Use your voice in consultations, ballots, surveys, elections and resolutions.
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Royal College of Nursing @rcn.org.uk · 27/11/2024
Our annual Congress returns between 12-15 May. #RCN25 Have you considered becoming a voting member? This is a great way to be immersed in the action of Congress - you'll be at the heart of hot-topic debates put forward by members. Plus, your expenses will be covered. ✅ Apply now: bit.ly/3H9aitR
A square graphic with a megaphone
Text reads: Become a voting member. Be the voice of nursing. 
Logo: Congress 25: Debates, learning, exhibition, 12-15 May 2025, Liverpool
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Pearl Avery @pearlavery.bsky.social · 27/11/2024
Oh that’s music to My ears however PhD write up Looms ahead … 🤯
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ianoc.bsky.social @ianoc.bsky.social · 27/11/2024
The truth I found is; no matter how bad it gets IT WILL IMPROVE, it might take a while, but it will improve. Trust me, I've been there
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Pearl Avery @pearlavery.bsky.social · 27/11/2024
Next week sees the start of #CrohnsandColitisawarenessweek It’s a crucial opportunity to share facts about #IBD #crohnandcolitisuk are not here yet but as one of the nurse specialists they have supported m I’ll share their message in this nice positive space #TellyourIBDTruth I’m listening 👂
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Pearl Avery @pearlavery.bsky.social · 27/11/2024
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Pearl Avery @pearlavery.bsky.social · 26/11/2024
Spent some time this week reviewing the #IBDStandards what an amazing bit of work they are !!! The original effort that went into these is a testament to the dedication of the original #MDT working on them
media.tenor.com
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Pearl Avery @pearlavery.bsky.social · 26/11/2024
88 followers in a day things move quickly here #Gastro #IBD #Nurses #Primarycare 👩‍⚕️ #Patientexperience 🗣️ #Collaboration 🤗 #Research 📕 #PhDLife 😭 #MedsManagemet 💊 #PatientSafety ⛑️🥽 #NHS 💙 #Improvemnet 📈 #IBDSky
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Heather Yeo MD @heatheryeomd.bsky.social · 26/11/2024
Please follow and help me compile a list of surgery and related journals. go.bsky.app/JTrsF1L
https://go.bsky.app/JTrsF1L
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Some Broad Thinking @somebroadthinking.bsky.social · 25/11/2024
Today is the International Day for the Elimination of Violence Against Women and available data show an average of 140 women and girls worldwide lost their lives every day at the hands of their partner or a close relative. We must demand action. www.unwomen.org/en/digital-l...
unwomen.org
Femicides in 2023: Global estimates of intimate partner/family member femicides
Concerted, urgent action is needed to improve the knowledge base and strengthen responses to gender-related killings (femicides/feminicides) and other forms of gender-based violence against women and ...
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Royal College of Nursing @rcn.org.uk · 26/11/2024
Add your name to our open letter to MPs. 📝 Nursing staff, and all NHS workers, need direct negotiations with government ➡️ bit.ly/4g6AnIa
bit.ly
Tell your MP they can support NHS pay today
Add your name to nursing's open letter to MPs, calling on their support for direct negotiations that restore value to NHS pay. Together, the voice of nursing can be stronger than ever.
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Katrina Ray @heykatray.bsky.social · 23/11/2024
NEW in #NatureReviewsGastroHep! This Review on gut-brain axis & pain signalling in the gut By Kim Meerschaert & Isaac Chiu www.nature.com/articles/s41... 🔓 rdcu.be/d1dFo 🧪 #gastrosky #GIsky
nature.com
The gut–brain axis and pain signalling mechanisms in the gastrointestinal tract - Nature Reviews Gastroenterology & Hepatology
Visceral pain is a major clinical issue, most commonly associated with gastrointestinal disorders. This Review discusses molecular mechanisms by which neurons are sensitized in the gut, outlining sign...
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Royal College of Nursing @rcn.org.uk · 26/11/2024
Today, along with @unisontheunion.bsky.social and @unitetheunion.bsky.social we tell Wes Streeting to abandon the time-consuming NHS pay review body (PRB) process and hold direct pay talks in England to fix NHS. ⬇️ bit.ly/4eHnCD3
bit.ly
Hold direct pay talks to fix NHS, RCN tells health secretary | News | Royal College of Nursing
The RCN – and 2 other leading health unions – wants Wes Streeting to abandon the time-consuming NHS pay review body process and begin talks in England.
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Pearl Avery @pearlavery.bsky.social · 26/11/2024
Thanks @lizdobsonuk.bsky.social for starting this useful list #IBD
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Liz Dobson @lizdobsonuk.bsky.social · 26/11/2024
go.bsky.app/9UXtjWW let me know if you find any more UK and NHS IBD people arriving here in the blue place
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