iiinova — where your digital self keeps evolving

Reposted by Bonnielin Swenor

Anjali Forber-Pratt, Ph.D. @anjalifp.bsky.social · 29/07/2025

‼️Save the Date!‼️The 2025 #Disability Health #Research Network (DHERN) annual conference, “Global Perspectives on Disability Equity”, will be held September 16 from 10am to 2pm ET. This virtual conference is **free** & open to all! ASL & CART will be provided. Register: jhuson.zoom.us/meeting/regi...

Flyer for a virtual conference titled "Global Perspectives on Disability Equity." The event is presented by The Disability Health Equity Research Network and will take place on September 16th from 10am to 2pm ET.

The schedule is as follows:

10:00-11:00AM: Keynote by Kaloyan Kamenov, Technical Officer - Disability Programme at World Health Organization.

11:15-12:00PM: Session 1 - Advancing Global Disability Data Equity
- Anjela Jenkins, Senior Director Global Inclusive Health Advocacy, Special Olympics
- David Duncan, Global Athlete Leadership Council, Special Olympics

12:15-1:00PM: Session 2 - How Data Informs Global Disability Rights and Participation
- Lorne Farovitch, Founder and Executive Director of Global Deaf Research Institute

1:15-2:00PM: Session 3 - Disability, Global Development, and Systems Change
- Sara Rotenberg, Research Fellow, London School of Hygiene and Tropical Medicine

Contact email: DHERN@jh.edu. ASL and CART provided. The background is a gradient of yellow to green.

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Reposted by Bonnielin Swenor

The Partnership for Inclusive Disaster Strategies @disasterstrat.bsky.social · 03/04/2025

Disabled, impacted by tornadoes need help? Discapacitade, afectade por tornados y necesita ayuda? Try | Trate 211, 311, 800.733.2767 Call/text (llame) Disability & Disaster Hotline 800-626-4959 o hotline@disasterstrategies.org Be ready today for more possible tornadoes in the heartland.

(English) English on left, Spanish on right side. (Spanish/español) Inglés en la izquierda, español a la derecha. English image description first, español más abajo
English: An ominous tornado funnel touches down in a field. Typography in the foreground reads: Disabled, impacted by tornadoes, and need help? Call/text the Disability & Disaster Hotline, 800-626-4959 or hotline@disasterstrategies.org #DisabLedResponse
Spanish: Un siniestro embudo de tornado en un campo abierto. La tipografía en primer plano dice: ¿Discapacitade, impactade por tornados, necesita ayuda? Llame/text a la Línea Directa de Discapacidad y Desastre, 800-626-4959 o hotline@disasterstrategies.org #DisabLedResponse

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Reposted by Bonnielin Swenor

Stand Up for Science! @standupforscience.net · 10/03/2025

Our work is far from done—science is still under attack. We’ve got ideas, but we want to hear from you. What’s worrying you most? What should we do next? How can we grow this movement together? Fill out this quick form to share your thoughts & stay connected: forms.gle/7EEQMZUveXN9...

forms.gle

How do we keep Standing Up for Science?

A heartfelt thank you for everyone that Stood Up for Science with us on March 7th—whether it be volunteering, donating, sharing, or attending in event, we're forever indebted to people like you who ca...

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Bonnielin Swenor @bonnieswenor.bsky.social · 06/03/2025

An honor to be in this speaker line up! Tomorrow is the day to #StandUpForScience2025! Join the fight to help ensure everyone can benefit from and succeed in science. Thank you to this amazing group of organizers who are uniting the scientific community to meet this historic moment.

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Bonnielin Swenor @bonnieswenor.bsky.social · 28/02/2025

Huge kudos to @standupforscience.bsky.social for many reasons, including that the DC event will have "accessible restroom facilities, seating areas, and ASL interpretation throughout the event." Thank you to all the amazing organizers and all putting in time to fight for science!

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Bonnielin Swenor @bonnieswenor.bsky.social · 22/02/2025

"Scientists with disabilities are also worried about what the clampdown on accessibility will mean for both their own careers and those of the next generation." Quotes from @kimkdc.bsky.social, @bakingsodavolc.bsky.social, Alyssa Paparellal on this important issue: www.nytimes.com/2025/02/22/s...

nytimes.com

Accessibility Is Taking a Hit Across the Sciences (Gift Article)

Confusion has ensued about the future of programs and research supporting people with disabilities as a result of President Trump’s executive order.

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Reposted by Bonnielin Swenor

Meredith Wadman @meredithwadman.bsky.social · 14/02/2025

@altnih4science.bsky.social if you are a probationary NIH employee who is losing your job today, reach out to me on Signal meredithwadman.13 to help @science.org tell this important story.

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Bonnielin Swenor @bonnieswenor.bsky.social · 26/01/2025

The future of disability health equity research is uncertain, but philanthropy has an opportunity to keep this essential work moving forward. Too often funders invest in academic centers & efforts not led by disabled people - that must change to address layered inequities disabled people face.

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Reposted by Bonnielin Swenor

Hansi Lo Wang (he/him) @hansilowang.bsky.social · 19/12/2024

NEW: The Census Bureau is adding five members to its Census Scientific Advisory Committee, which is set to meet next in March 2025 www.census.gov/newsroom/pre...

The new CSAC members are:
- Kristine J. Ajrouch, research professor, Research Center for Group Dynamics at the Institute for Social Research, University of Michigan.
- Sara Curran, professor, International Studies, and professor of Sociology and professor of Public Policy & Governance at the University of Washington.
- Andrew J. Houtenville, professor of Economics and director of the Institute on Disability at the University of New Hampshire.
- Bonnielin K. Swenor, endowed professor of Disability Health and Justice, and director of the Johns Hopkins Disability Health Research Center, Johns Hopkins.
- Jonathan Ullman, associate professor, the Khoury College of Computer Sciences at Northeastern University.

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Reposted by Bonnielin Swenor

Holden Thorp @holdenthorp.bsky.social · 16/12/2024

Good talking to @cenmag.bsky.social and @kvasquez.bsky.social about neurodivergence in STEM. Great article. My callout is to neurotypical folks to learn more so they can provide supports to students. #ActuallyAutistic cen.acs.org/careers/dive...

cen.acs.org

The challenge of being neurodivergent in STEM

Neurodivergent scientists say STEM isn’t built for them, despite the contributions they bring

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Reposted by Bonnielin Swenor

Collective for Racial and Disability Justice @crdjustice.bsky.social · 04/12/2024

Data can drive justice or deepen inequities. Join CRDJ Director of Research & Policy, Kate Caldwell, and a powerhouse panel featuring Bonnielin Swenor, Rylin Rodgers, Elizabeth Lockwood, Charlotte McClain-Nhlapo to discuss the intersection of disability data justice, AI, and global technology.

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Bonnielin Swenor @bonnieswenor.bsky.social · 31/10/2024

📣 Disability Community: The Government Accountability Office (GAO) is conducting a survey to understand the barriers to accessing healthcare that disabled people experience. These stories will inform a forthcoming GAO report! The survey is open until Nov 30th. gaosurvey.gao.gov/jfe/form/SV_...

gaosurvey.gao.gov

GAO Survey on Disabilities and Health Care

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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Bonnielin Swenor @bonnieswenor.bsky.social · 13/09/2024

🎉Big news from NIH to advance disability-inclusive research: -Develop agency-wide NIH Strategic Plan for Disability Research -Engage with disability community to discuss needs, challenges, and goals -Establish Council of Councils Disability Research Working Group dpcpsi.nih.gov/sites/defaul...

dpcpsi.nih.gov

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Bonnielin Swenor @bonnieswenor.bsky.social · 30/05/2024

Disabled people face profound inequities, but disability data gaps have erased opportunities to make change for far too long. Now is your chance to inform a Federal Evidence Agenda on Disability Equity & improve disability data! www.federalregister.gov/d/2024-11838 RFI responses are due July 15th.

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Reposted by Bonnielin Swenor

Mlle Defarge ♿ @hearing-girl.bsky.social · 06/02/2024

Major shout-out to @bonnieswenor.bsky.social (and the Disability Health Equity Research Network folks who *aren't* on Bsky) for their fierce advocacy and leadership around both this and the NIH's designation of people with disabilities as a population experiencing health inequities.

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Reposted by Bonnielin Swenor

Hansi Lo Wang (he/him) @hansilowang.bsky.social · 06/02/2024

BREAKING: The Census Bureau is not moving forward with a proposed change to the American Community Survey's disability questions that could've shrunk a key estimated rate of disability in the U.S. by about 40%, Director Robert Santos says in a blog post www.census.gov/newsroom/blo...

The Census Bureau and the National Center for Health Statistics (NCHS) have carefully reviewed the public feedback. Based on that feedback, we plan to retain the current ACS disability questions for collection year 2025. Along with our colleagues at OMB, NCHS and other statistical agencies, we will continue our work with stakeholders and the public to better understand data needs on disability and assess which, if any, revisions are needed across the federal statistical system to better address those needs.

Before the Census Bureau submits the final proposal for the 2025 ACS content for OMB’s approval, it will offer another opportunity for the public to provide feedback. As mentioned above, in spring 2024, the Census Bureau will publish a 30-day Federal Register notice summarizing the proposed 2025 ACS content, which will not include any changes to the existing disability questions. The Census Bureau will then review the feedback and submit the final proposed content for OMB review and approval.

The Census Bureau also wants to engage further with the public on the disability topic specifically. A significant theme in the Federal Register notice comments is a desire for more comprehensive engagement. In the spirit of a whole-of-government approach, the Census Bureau, NCHS, OMB and other federal partners are working together to make that happen...

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Reposted by Bonnielin Swenor

Hansi Lo Wang (he/him) @hansilowang.bsky.social · 19/12/2023

A controversial Census Bureau proposal could shrink the rate of disability in the U.S. by about 40%. Public comments on this potential change are due Tuesday, Dec. 19, but NPR has confirmed there will be another opportunity to give feedback in the spring… www.npr.org/2023/12/18/1...

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