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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 14/10/2026

It’s not just the disease: it’s the conditions surrounding the disease. Supportive family, food, clothing, shelter, social systems.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 14/10/2026

Some people have reactions to medical products. Clinically, they present to the ER. If this occurred immediately following a vaccine, it is up to the clinician to treat. I am less concerned with “the apparatus” and more concerned with people that aren’t receiving care.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 13/10/2026

Depression was not the cause of this suicide. He was having severe neurological problems that were unbearable. I understand “depression” occurs in neuro degenerative diseases

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 13/10/2026

Robin Williams had Lewy body dementia not “depression”. Despite the best doctors in the world they could not diagnose his symptoms of this brain disease 🦠

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 13/10/2026

It isn’t a conspiracy. People sometimes have reactions to medical interventions. They need help.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 13/10/2026

It’s not tracked in clinical medicine. Most ER docs call the patient crazy and tell them to see a psychiatrist. Your faith in clinical medicine is admirable.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 13/10/2026

If a patient goes to the ER after a reaction to a COVID vaccine they are dismissed as crazy. No VERS entry. This is not an anti-vax position. Clearly, people who get vaccinated are not ani-vax. My position is that gaslighting in clinical medicine is the problem. 👍

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 13/10/2026

Do you actually think ANY medical professional is tracking closely what may have been caused by a vaccine or even using VAERS? Do you recall any COVID vaccines causing blood clots? Strokes? Were some halted entirely? We need to leave room for vax injured people to get care.

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Reposted by #LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵

Miles W. Griffis @mileswgriffis.bsky.social · 12/10/2026

"It might be more accurate to view Long COVID not as a single disease episode but as a long term condition, punctuated by periods of remission and relapse." A BMJ opinion by Charlie Dennis and @nisreenalwan.bsky.social on defining Long COVID "recovery". www.bmj.com/content/393/...

A screen shot of a BMJ print article, reading, "Opinion: Charlie Dennis and NIsreen A. Alwan.

If you have long covid, how can you tell if you have fully recovered? Six years of evidence and collective lived experience show us that this is not an easy question to answer. Yet if we do not define recovery, we cannot properly count the number of people living with long covid, and its present and future impact on the population’s wellbeing, economic productivity, and health systems.

Long covid remains a substantial global health problem. A recent report estimated that this condition will cost countries in the Organisation for Economic Cooperation and Development (OECD) $11bn (£8.3bn; €9.6bn) a year in healthcare costs over the next decade. The projected economic costs are $135bn a year.1

Since the start of the pandemic, clinicians, researchers, and health organisations have devoted substantial effort to defining and measuring long covid. In 2020, one of us (NAA) proposed that long covid be defined largely by what it is not: recovery from acute covid-19.2 This approach was reflected later in the World Health Organization’s definition, which describes long covid (post-covid-19 condition) as a condition following confirmed or probable SARS-CoV2 infection with symptoms that persist for at least two months, and cannot be explained by alternative diagnoses.3

Seven years into this pandemic, however, a critical question remains largely underexplored: what does it mean to be recovered from long covid?

Initially, recovery seems self-evident: a person’s eventual return to their pre-infection health status, albeit months or years later than expected. Yet the lived experiences of people with long covid challenge this assumption. Long covid is characterised by fluctuations, relapses, new symptoms developing, and periods of apparent improvement, all of which make it far harder to distinguish genuine recovery from temporary remission.456

A striking feature of the literature on lo…

fails to differentiate between relatively brief symptom remittance and true long term recovery. This lack of precision matters. If we can’t separate people experiencing a temporary remission from those who’ve fully recovered, then public health estimates of disease burden will become unstable and difficult to interpret. It also obscures the lived reality of patients whose health might cycle unpredictably between improvement, the hope of recovery, and the return of symptoms.

Moreover, as we move into an age of research being done in partnership with patients rather than just on them, it is important to examine patients’ perspectives on recovery. Through this lens we can better understand the way changes in a person’s experience of symptoms can affect their sense of self. When people who consider themselves recovered from long covid were asked how long they were symptom-free before reaching that conclusion, their answers ranged from a few weeks to over six months.4 Such variation likely reflects the cumulative experience of relapse and people’s answers may be dependent on the overall duration of their illness: people who had long covid for longer may learn not to trust short periods of improvement and therefore recalibrate what “recovered” means to them.

One response might be to formalise recovery by using a standardised minimum duration of symptom absence. Yet even this approach runs into difficulty when reinfection is considered. Evidence from a patient led survey suggests that a majority of people who thought they had recovered from long covid experienced a return of symptoms after subsequent SARS-CoV-2 infections.10 In such cases, it might be more accurate to view long covid not as a single disease episode but as a long term condition, punctuated by periods of remission and relapse.

This raises important questions. Should we adopt the language of remission rather than recovery, as is common in other chronic conditions? This could improve conceptual clarity, but…

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 12/10/2026

This is a ridiculous oversimplification! Were vax injured meticulously tracked during COVID? NO Full stop.

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Reposted by #LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵

Hazie @hazie.bsky.social · 12/10/2026

“Among the changes associated with long-Covid symptoms, was an over-abundance of bacteria that produce lactic acid, and this was also linked to signs of inflammation found in samples of patients' blood.” www.news-medical.net/news/2026101...

news-medical.net

Severe long Covid associated with distinct oral and lung microbiomes

A study of more than 700 people has shown that those with long Covid have distinct differences in the mix of bacteria that live in their mouths and lungs, according to a study published today (Monday)...

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Reposted by #LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵

Chronic Illness Humor @chronicillness.bsky.social · 10/10/2026

froody
Sep 18 doctors will be like. yeah. there’s something so so so so wrong with you. idk what and I don’t really care

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 09/10/2026

There’s nothing like being invalidated by a doctor to add a twinge of emotional abuse to an already difficult situation.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 09/10/2026

And or, this “phantom” condition could be and is often a lack of sophistication in clinical medicine. Surprisingly, before the advent of the MRI machine women were reporting all sorts of “phantom complaints” called “hysterical paralysis” now known as MS.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 09/10/2026

Yikes: “Patients who are told that there is no underlying physical cause for their condition typically become very upset, feeling they are being accused of ‘making it up’ or of being crazy [7]. This leads to a pathological, obsessive search for phantom physical conditions.”

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 09/10/2026

Imagine brain fog literally feeling like actual dementia mixed with psychosis

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 09/10/2026

Subjective psychological symptoms are also frequent, with studies highlighting ‘brain fog’, depression, anxiety, mood and psychotic disorders, perceived cognitive decline and distractibility. Because the brain has blood vessels in it? academic.oup.com/braincomms/a...

academic.oup.com

A cognitive architecture for Long COVID: the interplay of brain fog, fatigue, attention and memory

Higgins et al. report findings from a large dataset of COVID-19 patients. The findings show deficits in memory and attention specific to patients with Long

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 08/10/2026

For the medically fragile, the absence of active protection and care is a hostile force that inflicts catastrophic strain on a vulnerable body. It is systemic violence.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 07/10/2026

It’s how they make their money. They will out frustrate you until you give up.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 07/10/2026

Palliative care covered by insurance in the United States so seriously sick people can afford housing AND medical care.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 06/10/2026

These days AI denials. How can a sick patient spend the majuog their time filing appeals? They can’t.

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Reposted by #LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵

Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 06/10/2025

Fun fact: thanks to #TeamClots many of us have heard of activated platelets. Ever wondered what they look like? ↙️ Resting platelet Activated platelet ↘️ They are about 0.0015 to 0.002 mm wide (face on) iopscience.iop.org/article/10.1...

First panel shows grey image of circular discs. Second image shows these disks have grown prongs

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 05/10/2026

“To be more specific, I believe the high rates of bullying and abuse are a direct result of people misunderstanding autism and autistic people.” Ive always thought it isn’t misunderstanding, just that people see a vulnerability in some way — a good target.🎯 They see us as not likely to defend

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 05/10/2026

“Autistic persons without intellectual disability were more than five times more likely to die by suicide compared to non-autistic persons.” Why do you think this is?

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 04/10/2026

Penrose is looking too low—at the wet meat in our heads. What if quantum physics plays an entirely different role? philarchive.org/rec/WOLTCA-7

philarchive.org

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 04/10/2026

It’s good to mention, that sometimes what causes the 🩵 isn’t the disease itself, but the relational support around it: family support, stable housing, adequate medical care, systemic oppression.

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 03/10/2026

Well, you’re attempting to understand violence. The fact that you can’t understand it, means you’re not a psychopath. So, thats good. 🩵

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#LongCovid + #Philosophy (Wild Strain 2020) 🏳️‍⚧️🏳️‍🌈🩵 @be-herenow.bsky.social · 03/10/2026

Because raping someone isn’t about being turned on or having things be sexy. It’s about power and control.

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