iiinova — where your digital self keeps evolving

ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 22/09/2026

Yvonne Diaz & Ken Culver of ALK Positive Inc (US) with John & Jon, coming together at #WCLC26 in Seoul. ALK Positive Australia was just an idea 4 years ago, and now here we are at the global table working for better outcomes for all ALKies.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 16/09/2026

Congratulations to Jon & Chanelle as recipients of a 'Patient Advocate Eduction Award', taking them both to Seoul where they proudly represented ALK Positive Australia. 100% of the funds donated to ALK Positive Australia are used for high-impact research to improve ALK+ patient outcomes.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 15/09/2026

Our Chairperson Jon with Dr Mark Adams at #WCLC26. Dr Mark is doing research on resistance drivers for TKI's. This is truly exciting discovery science being done here in Australia, looking to answer the question of 'Why some ALK+ patients do not respond well to TKI's?'. Go Research!

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 15/09/2026

ALK Positive Australia members John, Anita & Jon with Dr. Christine Lovly at WCLC in Seoul. Dr Lovly did a fabulous ALKtALK session about ALK+ research developments in June this year from ASCO. (Link to presentation:https://www.youtube.com/watch?v=5Di1aiUqPWU )

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 14/09/2026

The 2026 World Conference on Lung Cancer is underway in Seoul! Pictured are ALK Positive Australia board members Jon, John & Chanelle with Dr Venessa Chin - our 2025 recipient of the ALK+/TOGA Inspirational Grant. Applications for the 2026 grant close soon: thoraciconcology.org.au/inspirationa...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 14/08/2026

WHAT DOES LIVING WITH LUNG CANCER MEAN TO YOU? Dr. Laura Petrillo will be opening at World Lung 2026, and she wants to begin with the patient view. Please create a post like the one here with your story. Please include the phrase and hashtags “What #LivingWithLungCancer means to me #WCLC26”.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 17/07/2026

ALK Positive Australia represents at the @togaanz.bsky.social ASM in Melbourne! From left we have Peter, John, Jon, Lisa & Chanelle from our Executive team. Thank you for volunteering your time & working hard for better outcomes for our community.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 16/07/2026

Our Chairperson Jon speaking at the @togaanz.bsky.social ASM this morning about the side effects of treatment, alongside Prof. Ben Solomon and A/Prof. Malinda Itchens.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 26/06/2026

Today is Rare Cancers Awareness Day, a fitting day to share a story of hope. alkpositive.org.au/2026/06/25/1...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 09/06/2026

We are delighted to congratulate our co-founder & chairperson, Dr Jon Graftdyk, who yesterday was awarded an Order of Australia Medal (OAM) in the King's Birthday Honours for his service to the community through cancer support groups. Bravo Jon! Well earned.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 29/05/2026

ALK+ Community! Many businesses make notable donations to charities at this time of year, for tax benefits & to demonstrate corporate social responsibility. If you know a decision maker in a the corporate world please reach out & put forward our charity for their consideration. #moreresearchmorelife

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 13/05/2026

Congratulations to our Chairperson Jon who has been selected as a recipient of a 2026 IASLC Patient Advocate Educational Award. This educational opportunity in Seoul will undoubtedly only drive Jon further in his relentless work in patient advocacy for those with ALK Positive lung cancer.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 29/01/2026

Why does resistance develop in ALK+ lung cancer, and how might it be prevented? Please join our webinar with Dr Vassiliadis, recipient of the 2026 ALK+ Inspirational Research Grant. This research goes directly to the question at the core of our community. REGISTER NOW: forms.gle/HL6MHup8UB5S...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 02/12/2025

Do you have Lung Cancer and are taking a Targeted Treatment? A research project is being conducted seeking to understand the experience. It takes about 20 minutes - please consider sharing your story: mquni.au1.qualtrics.com/jfe/form/SV_... Your journey is unique. Your insights are powerful.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 28/11/2025

As Lung Cancer Awareness month comes to a close please consider buying a pair of laces & supporting much needed research into the leading cause of cancer deaths worldwide & in Australia. docs.google.com/document/d/e...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 18/11/2025

The '4' in Laces4Lungs represents both AJ's age - 4 months old - and the stage of his Mums ALK+ lung cancer, at diagnosis. What a powerful fundraising drive this has become. Order your laces today: docs.google.com/document/d/e...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 12/11/2025

Identifying ALK+ resistance pathways is at the very core of what is important to us all. That makes the announcement of Dr Vassiliadis as the recipient of the ALK Positive Australia/TOGA Inspirational Grant for 2026 so thrilling. Every $ donated to ALK Positive Australia goes towards research.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 02/11/2025

Buy your @laces4lungs today! Bling up your shoes whilst supporting ALK Positive Australia & standing with us for Lung Cancer Awareness month. Buy your Laces4Lungs today! ORDER HERE: docs.google.com/forms/d/e/1F...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 31/10/2025

Lung cancer is the leading cause of cancer death in Australia but receives less than 6% of the research funding. 35% of women & 15% of men diagnosed with lung cancer have never smoked. Help us drive research this November: alkpositive.org.au/donate/

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 10/10/2025

Our website got a glow-up! Launching in the next few days — same mission, fresh new look. Got feedback or ideas? Drop us a message here or email secretary@alkpositive.org.au

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 25/08/2025

"WHAT IS IT REALLY LIKE TO LIVE WITH ALK ON TKI'S IN AUSTRALIA?" Share your story in this important study. This is open to any Australian ALKie at Stage IIIB or IV on a TKI for more than 12 months. It will be an online interview for 30-60 minutes. Email alkpositive@sjog.org.au to share your story.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 01/08/2025

- 36 Australians are diagnosed with lung cancer every day. - Lung cancer is the leading cause of cancer death in Australia, but attracts less than 6% of cancer research funding. Today we acknowledge those raising awareness & working towards better outcomes for lung cancer patients.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 31/07/2025

Our Chair Jon & Dep Chair Lisa with Prof Nick Pavlakis, Prof Ben Solomon & Prof Tom John at the @togaanz.bsky.social ASM - working together for better outcomes for ALK Positive patients.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 30/07/2025

We could not be prouder of our Dep Chair & friend Lisa Briggs - the recently announced recipient of the 2025 Jeannie Ferris Award. Bravo Lisa - thank you for all that you do. You are a force!

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 03/07/2025

The ALK+ Australia & TOGA Inspirational Research Grant applications are now open! We are proudly seeking innovative research that makes a real difference for people living with ALK-positive lung cancer. thoraciconcology.org.au/inspirationa...

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 16/06/2025

ALK+ Community - many businesses make notable donations to charities at this time of year, for tax benefits & to demonstrate corporate social responsibility. If you know a decision maker in a the corporate world please put forward our charity for their consideration. More Research = More Life.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 23/05/2025

CALLING RESEARCHERS! The ALK Positive Australia & TOGA Inspirational Research Grant for ALK+ NSCLC is back. We are seeking innovative research that makes a real difference for people living with ALK-positive lung cancer. Now is the time to prepare a proposal. Further information coming soon.

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ALK Positive Australia Inc. @alkpostitiveaust.bsky.social · 24/04/2025

A must watch for anyone interested in ALK+ Lung Cancer & the advances being made in personalising treatment plans & understanding the behaviour of this cancer. A/Prof Chin talks about her incredible research project (funded by the TOGA/ALK+ Australia Inspirational grant). youtu.be/w9M-4M9fNT8

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