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Alice Beck

@aliceebeck.bsky.social
142 followers 146 following 14 posts
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Reposted by Alice Beck
Jaime Manzano @jaimemanzano.bsky.social · 03/07/2025
📢 Curious about what’s worked — and what hasn’t — in medicine transparency initiatives? /1 Join us next week as we explore lessons from Europe and Africa on how to make medicine pricing systems more transparent and accountable: shorturl.at/mv8YD #GlobalHealth #WHA78 #IDsky 💊🌐
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 18/06/2025
Last week, reports circulated of the risks of misuse of data by period tracking apps. In a new blog, @aliceebeck.bsky.social and @hvkolfschooten.bsky.social argue that the #EU must do more to protect consumers (and their private data) from harmful practices. Read it here: haiweb.org/period-track...
haiweb.org
Period Tracking Apps and Consumer Protections  - Health Action International
Last week, reports emerged in the UK of concerned public health experts calling for public alternatives to commercial period tracking apps
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 16/06/2025
A big thank you to all who joined us and @wemos.org in The Hague last week for the Netherlands launch of our joint report "Pharmaceutical transparency: from resolution to reality" looking at the state of implementation of WHO transparency resolution WHA72.8. Read it here: haiweb.org/publication/...
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Alice Beck @aliceebeck.bsky.social · 11/06/2025
www.bbc.com/news/article... The research team called for better governance of the "femtech" industry, improved data security of these apps and the introduction of "meaningful consent options".
bbc.com
Menstrual tracking app users cautioned by Cambridge researchers
Women deserve better than to have their menstrual data treated as consumer data, say researchers.
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Reposted by Alice Beck
Wim Vandevelde @wimvandevelde.bsky.social · 30/05/2025
"Gilead is employing evergreening tactics to extend its monopoly on lenacapavir. This involves staggering patent filings and securing additional patents on modifications, different forms or new uses of an existing compound to prolong rights beyond the primary patent." www.twn.my/title2/brief...
twn.my
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Alice Beck @aliceebeck.bsky.social · 28/05/2025
Just a few days left to provide input to EMA's survey on a key information section on medicine package leaflets, see here: ec.europa.eu/eusurvey/run...
ec.europa.eu
Consultation on a potential Key Information Section in the Package Leaflet of centrally authorised medicinal products
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Reposted by Alice Beck
Aliénor Devaliere @alienordevaliere.bsky.social · 27/05/2025
There is no #equity in #access to basic #health care. The latest biennial report on #UHC reported that in 2021 4·5 billion people—about half the world's population—had no access to basic health services, and progress has stalled since 2019. @thelancet.com www.thelancet.com/journals/lan...
thelancet.com
Accelerating progress on essential medicines: a new Lancet Commission
There is no equity in access to basic health care. The latest biennial report on universal health coverage reported that in 2021 4·5 billion people—about half the world's population—had no access to b...
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Alice Beck @aliceebeck.bsky.social · 22/05/2025
Discussions on transparency continuing today through an event organised by @keiwashdc.bsky.social - great to hear national experiences from South Africa. #WHA78
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Alice Beck @aliceebeck.bsky.social · 22/05/2025
Insightful and interesting event from @gchalliance.bsky.social on how to break free from fossil fuel influence - important reflections to take forward on effective communication strategies. #ClimateAndHealth #WHA78
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 21/05/2025
In the six years since its adoption, what is the state of implementation of @who.int transparency resolution WHA72.8? In a report launched today at #WHA78, HAI and @wemos.org take stock, assess progress and give recommendations for stakeholders. Read the report here: haiweb.org/publication/...
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 14/05/2025
Join HAI and @wemos.org during #WHA78 for a side event to mark the launch of our joint report 'Pharmaceutical transparency: from resolution to reality', highlighting steps taken to implement WHA resolution 72.8. 📆21 May, 07.30-09.00, Warwick Hotel, Geneva. Register here: forms.gle/Vdg6gsr7PqVM...
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Reposted by Alice Beck
Hannah van Kolfschooten @hvkolfschooten.bsky.social · 07/05/2025
In a @bmj.com Response, @nicolegross.bsky.social, @aliceebeck.bsky.social &I argue that important gaps remain in the EU AI Act when it comes to the protection of patients' rights. Such regulatory pitfalls risk undermining public trust, safety, and equity ➡️ Read lnkd.in/eedZMKZY @hai-org.bsky.social
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Reposted by Alice Beck
Follow the Money EU @ftm.eu · 06/05/2025
Investors who opt for ‘ethical’ or ‘socially responsible’ plans may end up funding firms linked to Israeli human rights violations in the occupied Palestinian territories. Two advisory firms, under pressure from pro-Israel lobbying, no longer flag allegations of such violations in their assessments.
ftm.eu
Your ‘ethical’ pension plan could be funding Israeli human rights abuses
Investors who choose to put their money in ‘ethical’ or ‘socially responsible’ plans could be directly funding Israeli human rights abuses in Gaza and the West Bank. This is because major advisory fir...
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Reposted by Alice Beck
Hannah van Kolfschooten @hvkolfschooten.bsky.social · 22/04/2025
Out now in EYHR: 𝐀 𝐇𝐮𝐦𝐚𝐧 𝐑𝐢𝐠𝐡𝐭𝐬-𝐁𝐚𝐬𝐞𝐝 𝐀𝐩𝐩𝐫𝐨𝐚𝐜𝐡 𝐭𝐨 𝐀𝐫𝐭𝐢𝐟𝐢𝐜𝐢𝐚𝐥 𝐈𝐧𝐭𝐞𝐥𝐥𝐢𝐠𝐞𝐧𝐜𝐞 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞: 𝐀 𝐏𝐫𝐨𝐩𝐨𝐬𝐚𝐥 𝐟𝐨𝐫 𝐚 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬’ 𝐑𝐢𝐠𝐡𝐭𝐬 𝐈𝐦𝐩𝐚𝐜𝐭 𝐀𝐬𝐬𝐞𝐬𝐬𝐦𝐞𝐧𝐭 𝐓𝐨𝐨𝐥. How can doctors & informal carers make informed decisions about AI tools in a way that respects patients’ rights? papers.ssrn.com/sol3/papers....
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 16/04/2025
HAI welcomes the conclusion of negotiations on the #PandemicAgreement. However, this is not the end of the process and efforts from all parties will now be needed to ensure ratification, implementation and adaptation to local and regional realities. Read our statement: haiweb.org/media-resour...
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Alice Beck @aliceebeck.bsky.social · 08/04/2025
It is good to be reminded that genetic data also forms part of health data under the European Health Data Space, hence it is of upmost importance that Member States take strong steps to ensure the privacy of such unique data. www.theguardian.com/science/2025...
theguardian.com
Genetic data is an another asset to be exploited – beware who has yours | John Naughton
The bankruptcy of genealogy company 23andMe has resulted in a fire sale of millions of people’s genetic information – and there’s no shortage of eager buyers with questionable motives
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 08/04/2025
As technology evolves, the use of chatbots for mental health support is gaining traction. But what do people really think? We took to the streets of Amsterdam to gather genuine opinions. Check out some of their thoughts and watch the full video from 16 April: lnkd.in/eKqn3dNU
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Alice Beck @aliceebeck.bsky.social · 02/04/2025
"There are, though, concerns that these models could “hallucinate” and come up with responses that are misleading and inaccurate. And with both predictive and generative #AI, how well the models work depends on what data they were trained on". edition.cnn.com/2025/03/27/h...
edition.cnn.com
Doctor explains how artificial intelligence is already being deployed in medical care | CNN
The use of AI applications in medical care is growing. Dr. Leana Wen explains the uses of AI that could improve care — and the reasons for continued caution.
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Reposted by Alice Beck
Medicines Law & Policy @medslawpolicy.bsky.social · 28/03/2025
medicineslawandpolicy.org
Will Europe block the Pandemic Agreement because of one word?
This commentary originally appeared in the Brussels Times, and is available here. The Pandemic Agreement negotiations began in December of 2021. Sufficiently motivated by the devastation brought by the COVID-19...
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Alice Beck @aliceebeck.bsky.social · 19/03/2025
" #AI systems designed to predict the likelihood of a hospitalized patient dying largely aren't detecting worsening health conditions, a new study found". www.axios.com/2025/03/12/a...
axios.com
AI failed to detect critical health conditions: study
AI systems designed to predict the likelihood of a hospitalized patient dying aren't detecting worsening health conditions.
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 18/03/2025
Devastating cuts to aid budgets by the US and others will lead to avoidable deaths, increase the risk of pandemics, sow unrest, instability and insecurity, and ultimately mean a less safe world for us all. The HAI team comments on recent seismic shifts in global health: haiweb.org/global-healt...
haiweb.org
Global Health and Development Under Attack - Health Action International
US President Donald Trump has unleashed an unprecedented assault on global health and development. We explore the potential consequences.
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 13/03/2025
Mental health chatbots are just one example of growing investments and innovations in AI used in mental healthcare. This trend raises a number of concerns & risks, prompting important questions about what drives these developments. Find out more in our new page: healthai.haiweb.org/ai-in-mental...
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 20/02/2025
Climate was high on the agenda at the WHO Executive Board earlier this month as Member States gear up towards agreeing the global action plan on climate change and health. Our new blog argues for putting equity and climate justice at the centre of the ongoing discussion: haiweb.org/upholding-eq...
haiweb.org
Upholding equity and justice in climate change and health - Health Action International
The start of this month was marked by animated discussions at the 156th Session of the WHO Executive Board. Among the many topics up for discussion, the World Health Organization’s draft Global Action...
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 13/02/2025
Are you concerned about how #AI in healthcare affects fundamental rights, and how tech regulation in Europe could address the risks? Read all about our work to ensure trustworthy algorithms and their responsible use in healthcare: ➡️ www.healthai.haiweb.org/
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Reposted by Alice Beck
European Public Health Alliance @epha-eu.bsky.social · 10/02/2025
📣 The #EU4HealthCSA is concerned about restrictions of activities under the #LIFE programme, and potential spillover effects this could have on CSOs from other sectors, including #health. 🔗Read more: eu4health.eu/letter-of-co... @vonderleyen.ec.europa.eu
eu4health.eu
Letter of concern: restrictions on civil society’s activities in the new mandate - EU4health
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 10/02/2025
Climate change is already having a huge impact on health. While #WHO's global action plan on climate and health is a step in the right direction, more specific action is needed to protect populations, especially those already enduring the brunt of climate breakdown. Our statement to #EB156.
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Reposted by Alice Beck
Thiru Balasubramaniam @thirugeneva.bsky.social · 06/02/2025
Constituency statement of Knowledge Ecology International, Health Action International, World Council of Churches, World Blind, Union, and Oxfam: WHO’s work in health emergencies. (Photo taken by Pedro Villardi, Population Services International). @who.int #EB156
keionline.org
EB 156 - Constituency statement of Knowledge Ecology International, Health Action International, World Council of Churches, World Blind, Union, and Oxfam: WHO’s work in health emergencies - Knowledge ...
On Thursday, 6 February 2025, Knowledge Ecology International (KEI) delivered this constituency statement on behalf of KEI, Health Action International, World Blind Union, World Council of Churches an...
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Reposted by Alice Beck
Ellen 't Hoen @ellenthoen.bsky.social · 04/02/2025
My latest blog on the Trump administration's assault on life-saving health programmes and Europe's silence. medicineslawandpolicy.org/2025/02/trum...
medicineslawandpolicy.org
Trump Administration poses an unprecedented threat to life-saving health programmes  | Medicines Law & Policy
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Alice Beck @aliceebeck.bsky.social · 03/02/2025
Also on the EU's focus on competitiveness, great blog by @elstorreele.bsky.social www.friendsofeurope.org/insights/cri... "Innovation and competitiveness in the health sector must be measured in terms of patient and public health benefits, [...] not in terms of economic competitiveness."
friendsofeurope.org
Reclaiming medicines and health innovation for our health - Friends of Europe
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Alice Beck @aliceebeck.bsky.social · 03/02/2025
"While the newly unveiled EU Competitiveness Compass might spell good news for the pharma industry, health experts and unions warned it is pointing in the wrong direction for public health." www.euractiv.com/section/heal...
euractiv.com
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Reposted by Alice Beck
Shailly Gupta @shaillygupta.bsky.social · 23/01/2025
www.theguardian.com/global-devel...
theguardian.com
With the knives out on development spending, have we reached ‘peak aid’? | Nilima Gulrajani and Jessica Pudussery
From Trump’s Project 2025 to a huge aid cut by the Dutch, donors are turning their backs on the developing world
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Reposted by Alice Beck
Thiru Balasubramaniam @thirugeneva.bsky.social · 23/01/2025
bloomberg.com
UN Official Slams World Bank-Funded Private Hospitals at Davos
The executive director of UNAIDS denounced the role of for-profit health care companies in low-income countries, saying that in some cases it led to denial of emergency care and patient detentions.
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 21/01/2025
In Zambia, the #SHARP project works closely with adolescents, religious leaders and others in the community to improve the health and lives of young people. In this picture essay, we shine a spotlight on the tireless efforts of 3 of these Champions. See it here: haiweb.org/championing-...
haiweb.org
Championing Adolescent SRH in Zambia - A picture essay - Health Action International
Shining a spotlight on the tireless efforts of three Champions working to improve adolescent SRH in Zambia.
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 05/12/2024
Medicines shortages are increasingly common, causing widespread concern & need for intervention. Join us on Wednesday 11 December for a roundtable discussion on the issue, and how to ensure availability and access to medicines for everyone. Register here: us02web.zoom.us/meeting/regi...
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Reposted by Alice Beck
Patrick Durisch @dbdurisch.bsky.social · 04/12/2024
The 🇨🇭 Parliament has been debatting for >2 years whether to legalise secret rebates on new pricey drugs - i.e. exclude them from the FOI law. @publiceye.ch is vehemently opposed as this is yet another gift to #BigPharma and will only lead to even higher drug prices 👉 www.publiceye.ch/en/topics/ph...
publiceye.ch
No secret discounts for the pharma industry!
Switzerland wants to legalise secret discounts on medicine prices and exclude them from the Law on Transparency. By doing so, Switzerland breaches its international commitments and sets a dangerous po...
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 26/11/2024
Transparency is an essential aspect in the quest for equitable access to medicines. Our policy brief - a precursor to a larger report to be launched in 2025 - is an overview of risks & opportunities emerging from the resolution: haiweb.org/publication/...
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Alice Beck @aliceebeck.bsky.social · 20/11/2024
"The climate crisis makes more children vulnerable to disease. Rising average temperatures have led to an increase in mosquito populations and greater risks of the diseases they transmit, such as malaria, dengue, Zika and West Nile virus". www.theguardian.com/global-devel...
theguardian.com
Eight times more children will face extreme heatwaves by 2050s, Unicef says
Without action on climate crisis, far greater numbers of children will also experience floods, wildfires and droughts, according to report
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Reposted by Alice Beck
Health Action International @hai-org.bsky.social · 20/11/2024
Mark your calendars! Our new film, which shines a spotlight on efforts to improve access to #diabetes care in Kyrgyzstan and Tanzania, will premiere on YouTube at 1200 CET on Friday 29 November. For more information, and how to watch the premiere live, follow this link: youtu.be/cwQ_Tf2awKk
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Reposted by Alice Beck
WHO @who.int · 19/11/2024
What does #AntimicrobialResistance (AMR) mean to you and me? 💊 AMR happens when dangerous bacteria become resistant to life-saving medicines, making treatment difficult or even impossible 💊 AMR means the medicines we rely on may stop working bit.ly/4fy6yAo
What does antimicrobial resistance mean for everyone? It means that most medicines we rely on to save lives may stop working.

An image showing pills and explaining what antimicrobial resistance is.
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Reposted by Alice Beck
Jaime Manzano @jaimemanzano.bsky.social · 19/11/2024
Let’s see how this works and how useful it is: I’ve created a feed to compile content related to access to medicines. To have your posts featured in this feed, include #a2m or 💊🌐 (together) in your post. The emojis can also be reversed (🌐💊), and 💊💸 will work too. bsky.app/profile/did:...
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Alice Beck @aliceebeck.bsky.social · 14/11/2024
HAI's Monitoring Access to Insulin (MAIn) tool online portal is now live! Working with country partners, we have collected data on prices, availability & expenditure on #insulin and related products at both facility and household level. Check it out here: accisstoolkit.haiweb.org/monitoring-a...
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