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Ellen 't Hoen

@ellenthoen.bsky.social
2.7K followers 143 following 120 posts

X-Twitter refugee looking for a safer place. I spend most of my time working on access to medicines and intellectual property at www.medicineslawandpolicy.org. If not, I cook.

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Ellen 't Hoen @ellenthoen.bsky.social · 21/07/2026
Goed stuk van @ellaweggen.bsky.social waarin ze uitlegt waarom voorwaarden aan publieks financiering van medicijn onderzoek toegang tot medicijnen kan verbeteren: www.nrc.nl/nieuws/2026/...
nrc.nl
Opinie | Wetenschappelijk succes meet je óók af aan de vraag wie ervan profiteert
Medicijnontwikkeling: Medicijnonderzoek wordt vaak betaald met publiek geld. Nederland en Europa hebben nu de kans om te bepalen dat gesubsidieerde medicijnen te allen tijde betaalbaar worden voor wie...
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Ellen 't Hoen @ellenthoen.bsky.social · 10/07/2026
Here is the solution to the stalled WHO PABS negotiations, needed to clear the last roadblock to ratification and entering into force of the Pandemic Agreement. @jamielove.bsky.social www.keionline.org/41368
keionline.org
De-linking equitable sharing of Pandemic production obligations from access to PABS materials and data - Knowledge Ecology International
I’m in Geneva this week and next, and Brussels on Monday. The WIPO General Assembly meets this week. A two week WHO negotiation on an Annex to the Pandemic Agreement on Pathogen Access and Benefit Sha...
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Ellen 't Hoen @ellenthoen.bsky.social · 06/07/2026
This morning at the opening session of the 6th session of the WHO PABS negotiations we supported this proposal made by @keiwashdc.bsky.social #pandemicagreement
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Reposted by Ellen 't Hoen
Tedros Adhanom Ghebreyesus @drtedros.who.int · 15/06/2026
On the Occasion of the #G7 Summit An Open Letter to the Leaders of the G7, the G20, BRICS & All Nations On finalizing the Pathogen Access & Benefit-Sharing annex of the WHO Pandemic Agreement ⬇️ @lulaoficialbluesky.bsky.social President of #Brazil Dr Tedros Adhanom Ghebreyesus DG of @who.int
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Financial Times @financialtimes.com · 27/05/2026
FT Exclusive: Four months after its establishment, the organisation’s financial fund set up by the World Bank has received no money from donors, according to four people familiar with the matter. ft.trib.al/LQLpKfw
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Ellen 't Hoen @ellenthoen.bsky.social · 29/05/2026
This is an interesting new @medicinespatentpool.org licence. Generic manufacturers, anywhere in the world, interested in producing baloxavir marboxil should contact the MPP through its expression of interest portal: medicinespatentpool.org/partners/how...
medicinespatentpool.org
How to Give or Get a Licence - MPP
MPP licence agreements’ aim is to make safe, effective and affordable essential medicines available in low- and middle-income countries.
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Ellen 't Hoen @ellenthoen.bsky.social · 06/05/2026
Our blog on the state of play in the @who.int PABS negotiations. medicineslawandpolicy.org/2026/05/worl...
medicineslawandpolicy.org
World Health Organization Members ask for more time to solve difficult negotiations on access and benefit sharing | Medicines Law & Policy
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Wemos @wemos.org · 19/02/2026
📢 Maak #geengeheim van mijn medicijn. @ellenthoen.bsky.social is expert patentrecht en directeur van @medslawpolicy.bsky.social. Zij ondertekende de open brief aan de regering en Tweede Kamer voor meer transparantie in de farma-sector. ✍ Lees en onderteken de brief op www.wemos.org/geengeheim.
Een afbeelding met een foto van Ellen 't Hoen, expert patentrecht en directeur van Medicines Law & Policy, met daarnaast deze quote van haar: "Het is hoog tijd dat de regering uitvoering geeft aan de door Nederland gesteunde WHO-resolutie voor grotere transparantie in de farma-sector. Transparantie van onderzoekskosten en prijzen is essentieel om tot eerlijke medicijnprijzen te komen."
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Thiru Balasubramaniam @thirugeneva.bsky.social · 03/02/2026
When the @who.int Executive Board discusses agenda item 14 on the draft updated global action plan on antimicrobial resistance (perhaps tomorrow), VMAT may crop up as a point of contention. @who.int #EB158
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Ellen 't Hoen @ellenthoen.bsky.social · 28/01/2026
Just out: our overview of over two decades of the use of TRIPS flexibilities to access medicines in BMJ Global Health gh.bmj.com/content/11/1...
gh.bmj.com
TRIPS flexibilities help change policy and practice to increase access to medicines: evidence from 2001 to 2024
Introduction Millions of people lack access to safe and effective pharmaceuticals because they are unaffordable or unavailable, particularly in ‘developing’ and ‘least-developed’ countries (DCs, LDCs)...
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Ellen 't Hoen @ellenthoen.bsky.social · 28/01/2026
Met dank aan @wemos.org om mij hierbij te betrekken. Transparantie is de basis van een democratische samenleving en het vertrouwen in de instituties en bedrijven die er actief zijn. Dat geldt ook voor de farmaceutische industrie.
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Ellen 't Hoen @ellenthoen.bsky.social · 23/01/2026
Meanwhile: US has now left the @who.int “The U.S. flag had been removed from outside the WHO headquarters in Geneva on Thursday, according to witnesses.” www.reuters.com/business/hea...
reuters.com
US withdraws from the World Health Organization
The United States officially left the World Health Organization on Thursday after a year of warnings that doing so would hurt public health in the U.S. and globally, saying its decision reflected fail...
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Ben Phillips @benphillips76.bsky.social · 19/01/2026
New Oxfam Inequality report just dropped: Billionaire wealth has grown by 80% since 2020. The world’s 12 richest billionaires have more wealth than the poorest half of humanity. Elon Musk is the first ever person to have over half a trillion dollars wealth.
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Ellen 't Hoen @ellenthoen.bsky.social · 19/01/2026
US pharma threaten to withhold products from Europe over prices giftarticle.ft.com/giftarticle/...
giftarticle.ft.com
US drugmakers threaten to withhold products from Europe over prices
Pharmaceutical companies seek to make up any lost revenue after striking deals with Donald Trump to lower costs in US
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Ellen 't Hoen @ellenthoen.bsky.social · 06/01/2026
Nice tribute to David Mitchell, a US drug pricing advocate who recently passed away. @statnews.com www.statnews.com/2026/01/05/d...
statnews.com
With political savvy and outrage over drug prices, advocate David Mitchell was ahead of his time
David Mitchell, who helped launch Patients for Affordable Drugs to raise awareness of high drug prices and seek to bring them down, died at age 75.
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Thiru Balasubramaniam @thirugeneva.bsky.social · 24/12/2025
Apparently non-State actors in official relations and relevant stakeholders are not welcome (physically) at the resumed session of #IGWG4 in January 2026: "Please also note that Relevant Stakeholders are invited to participate in the meeting virtually."
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Ellen 't Hoen @ellenthoen.bsky.social · 16/12/2025
Here is my end of the year blog with a highly biased listing of noteworthy medicines law and policy events of 2025: medicineslawandpolicy.org/2025/12/wrap...
medicineslawandpolicy.org
Wrapping up 2025: A tumultuous year for global public health law & policy | Medicines Law & Policy
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Ellen 't Hoen @ellenthoen.bsky.social · 03/12/2025
I am looking forward to being part of the launch event of the Centre on Knowledge Governance tonight at the @gvagrad.bsky.social docs.google.com/document/d/1...
docs.google.com
Draft Program - Centre Launch 3 Dec
Centre on Knowledge Governance Launch Event and Reception Wednesday 3 December 2025, 6.00pm - 9.30pm, including reception Auditorium A-2, Petal 2, Graduate Institute, Chem. Eugène-Rigot 2, 1202 Genèv...
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Thiru Balasubramaniam @thirugeneva.bsky.social · 01/12/2025
reuters.com
WHO backs use of GLP-1 therapies for obesity, warns access will remain limited
The World Health Organization on Monday issued its first guideline on the use of GLP-1 therapies for obesity, conditionally recommending them as part of long-term treatment for the condition, which af...
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Kaitlin E Mara @kaitlinemara.bsky.social · 26/11/2025
“Transitioning to self-reliance sounds good but what is happening today is not a transition. It is a shock to the system of which the most vulnerable will carry the brunt”, says @ellenthoen.bsky.social in a new @thelancet.com here:
thelancet.com
Global health aid cuts: WHO urges urgent action to protect vulnerable populations
With drastic reductions in health aid threatening essential services and millions of lives, WHO issues new guidance for countries to safeguard health budgets, limit out-of-pocket payments, and mobilis...
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Jaime Manzano @jaimemanzano.bsky.social · 10/11/2025
France is killing it - net price transparency now, ammendment tabled and adopted ! @healthlawadamh.bsky.social @mattherder.bsky.social
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Ellen 't Hoen @ellenthoen.bsky.social · 07/11/2025
Fully support this morning’s statement by @theindpanel.bsky.social at the #PABS talks at the WHO. It relates to the news broken by @healthpolicywatch.bsky.social that the US is seeking access to pathogen information in exchange for health funding. healthpolicy-watch.news/exclusive-us...
healthpolicy-watch.news
EXCLUSIVE: US Ties Global Health Aid To Data Sharing On Pathogens – Undermining WHO Talks - Health Policy Watch
The United States (US) aims to compel countries that receive its aid to fight HIV, tuberculosis and malaria to share all information about “pathogens with
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Ellen 't Hoen @ellenthoen.bsky.social · 07/11/2025
on.ft.com/493t0RL War is pushing us to a drug resistance tipping point by @gardp.bsky.social
on.ft.com
War is pushing us to a drug resistance tipping point
Failure to prevent the rise and spread of infections in conflict zones imperils health security everywhere
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Ellen 't Hoen @ellenthoen.bsky.social · 13/10/2025
Last chance to register for the Amsterdam Medicines Justice Conference. registration closes tomorrow: www.aanmelder.nl/medicinesjus...
aanmelder.nl
Medicines justice - Registration
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Ellen 't Hoen @ellenthoen.bsky.social · 18/09/2025
Meanwhile on the dark side:
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Ellen 't Hoen @ellenthoen.bsky.social · 17/09/2025
The @wto.org just published its 2025 World Trade Report on trade and AI to the benefit for all: www.wto.org/english/res_...
wto.org
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Ellen 't Hoen @ellenthoen.bsky.social · 12/09/2025
Because “contraception is not life-saving” www.nytimes.com/2025/09/11/h...
nytimes.com
$10 Million in Contraceptives Have Been Destroyed on Orders From Trump Officials
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Ellen 't Hoen @ellenthoen.bsky.social · 10/09/2025
Next week, at the @who.int the second meeting of the Intergovernmental Working Group (IGWG) tasked with negotiating the PABS Instrument will take place. We just published this brief on the subject: medicineslawandpolicy.org/2025/09/who-...
medicineslawandpolicy.org
WHO Members meet to finalise the Pathogen Access and Benefit Sharing Instrument | Medicines Law & Policy
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Ellen 't Hoen @ellenthoen.bsky.social · 09/09/2025
The WHO Foundation should clean up its act. And so should member states by supporting the @who.int with core financing. www.theguardian.com/world/2025/s...
theguardian.com
Alarm as WHO accepts increasing amount of dark money from corporate donors
Experts say millions in corporate funding and concealment of donors’ identities raises key conflict-of-interest concerns
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Ellen 't Hoen @ellenthoen.bsky.social · 06/09/2025
GLP-1 drugs have been on the Medicines Patent Pool priority list for a while. Time for the companies to come forward now @who.int labeled them essential @thirugeneva.bsky.social @medicinespatentpool.org
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Ellen 't Hoen @ellenthoen.bsky.social · 05/09/2025
Here is our blog on the new WHO Essential Medicines List : medicineslawandpolicy.org/2025/09/trea...
medicineslawandpolicy.org
Treatment for cystic fibrosis added to Essential Medicines List by the World Health Organization: A victory for campaigners, though prices still ‘toxic’ | Medicines Law & Policy
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Ellen 't Hoen @ellenthoen.bsky.social · 05/09/2025
Here you can find the new Model lists of Essential Medicines.
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Ellen 't Hoen @ellenthoen.bsky.social · 05/09/2025
The WHO just published its new Model List of Essential Medicines list. Pleased to see cystic fibrosis meds included. Thanks to the great work of the Right to Breathe campaign. However, Vertex's high prices will continue to be a barrier. www.righttobreathe.net/post/a-huge-...
righttobreathe.net
A huge turning point: CF medicine’s Trikafta/Kaftrio added to WHO Essential Medicines List
Today marks a historic breakthrough in the fight for global access to lifesaving cystic fibrosis (CF) treatment.The World Health Organization (WHO) has officially added elexacaftor/tezacaftor/ivacafto...
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Ellen 't Hoen @ellenthoen.bsky.social · 04/09/2025
Not sure that this will do a great deal for increasing confidence in vaccines. www.statnews.com/2025/09/03/p...
statnews.com
Pfizer’s CEO defends Covid vaccines, suggests Trump may deserve a Nobel Peace Prize
Pfizer CEO Albert Bourla defended the development of Covid vaccines and suggested President Trump may deserve a Nobel Peace Prize because of Operation Warp Speed.
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Thiru Balasubramaniam @thirugeneva.bsky.social · 04/09/2025
reuters.com
White House drops World Trade Organization from list of funding cuts
The White House has quietly dropped the World Trade Organization from a list of $4.9 billion in foreign aid cuts announced last Friday after the move sparked concern among lawmakers, trade groups and the head of the global trade body.
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Wemos @wemos.org · 19/08/2025
💊💰 In een opiniestuk voor @zorgvisie.bsky.social betoogt @ellaweggen.bsky.social van Wemos dat de overheid nu eindelijk grenzen moet stellen aan prijzen van nieuwe medicijnen. Buitensporige medicijnprijzen verdringen andere belangrijke zorg. Lees: www.zorgvisie.nl/blog/opinie-...
zorgvisie.nl
Opinie | Overheid moet grenzen stellen aan medicijnprijzen - Zorgvisie
Mag een farmaceutisch bedrijf buitensporige prijzen voor medicijnen vragen en daarmee het Nederlandse zorgstelsel op onnodig hoge kosten jagen?
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Ellen 't Hoen @ellenthoen.bsky.social · 12/08/2025
Pharmaceutical Accountability Foundation is recruiting: www.pharmaceuticalaccountability.org/2025/08/07/p...
pharmaceuticalaccountability.org
PAF is Recruiting: Database Assistant. Apply by 20 August. | The Pharmaceutical Accountability Foundation
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Thiru Balasubramaniam @thirugeneva.bsky.social · 09/08/2025
wsj.com
Trump Administration Threatens to Take Over Harvard’s Patents
The move is the latest escalation in the White House’s battle with the Ivy League school.
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Ellen 't Hoen @ellenthoen.bsky.social · 25/07/2025
This should be an interesting panel on voluntary licensing and socially responsible licensing by academia. English/Spanish translation will be available.
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Ellen 't Hoen @ellenthoen.bsky.social · 19/07/2025
on.ft.com/4m1YquY US rejects World Health Organization pandemic response measures (this refers to the amendements to the International Health Regulations)
on.ft.com
US rejects World Health Organization pandemic response measures
Decision could hamper global co-operation for future health crises
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Financial Times @financialtimes.com · 08/07/2025
Save the Children suspends BCG partnership over Gaza work on.ft.com/40JPe67
on.ft.com
Save the Children suspends BCG partnership over Gaza work
Charity’s chief ‘appalled and deeply disturbed’ by FT reporting on consultancy’s involvement
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Ellen 't Hoen @ellenthoen.bsky.social · 08/07/2025
Naar verwachting doet morgen de rechtbank uitspraak ik de zaak die de Stichting Farma Ter Verantwoording heeft aangespannen tegen AbbVie vanwege een te hoge prijs voor het medicijn Humira (adalimumab). www.nrc.nl/nieuws/2025/...
nrc.nl
Is een duur medicijn een schending van mensenrechten? Woensdag spreekt de rechter zich daarover uit
Farmacie: Het reumamedicijn Humira werd lange tijd voor een hoge prijs verkocht. Was die prijs ook buitensporig hoog?
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Ellen 't Hoen @ellenthoen.bsky.social · 26/06/2025
He is a danger to the world’s children’s health www.nytimes.com/2025/06/25/h...
nytimes.com
Kennedy Withdraws U.S. Funding Pledge to International Vaccine Agency
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Ellen 't Hoen @ellenthoen.bsky.social · 25/06/2025
As if high medicines prices and inequitable access is not an issue in the EU ….
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Ellen 't Hoen @ellenthoen.bsky.social · 19/06/2025
I just published a brief blog on the USFDA's approval of long-acting lenacapavir for #PrEP and the potential to end HIV: medicineslawandpolicy.org/2025/06/fda-...
medicineslawandpolicy.org
FDA approval of injectable lenacapavir for Pre-Exposure Prophylaxis (PrEP) opens the road to ending HIV | Medicines Law & Policy
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Ellen 't Hoen @ellenthoen.bsky.social · 13/06/2025
Just out: the latest @gvagrad-ghc.bsky.social Snapshots on the @who.int Pandemic Agreement with my contribution on the Agreement's provisions for technology transfer. www.governingpandemics.org/gp-snapshot
governingpandemics.org
GOVERNING PANDEMICS SNAPSHOT | Governing Pandemics
An overview of important issues in the global governance of pandemics as well as important reforms recommended by international panels.
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Thiru Balasubramaniam @thirugeneva.bsky.social · 22/05/2025
Featuring Dr. Anban Pillay, Michelle Childs, Roz Scourse, Jaume Vidal, and James Love. Moderated by Dr Tido von Schoen-Angerer. #WHA78 @keiwashdc.bsky.social
keionline.org
Save the Date - 22 May 2025 - Workplan for WHO and member states to improve the Transparency of the Value Chain for Biomedical Products - Knowledge Ecology International
On Thursday, 22 May 2025, Knowledge Ecology International (KEI) will convene a side event entitled, “Workplan for WHO and member states to improve the Transparency of the Value Chain for Biomedical Pr...
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Ellen 't Hoen @ellenthoen.bsky.social · 22/05/2025
The EU has agreed to an EU-wide mechanism for compulsory licensing to access technologies needed in crisis situations. Ironically, a day after the WHO pandemic agreement was adopted during which negotiations the EU objected vigorously to non-voluntary measures. www.europarl.europa.eu/news/en/pres...
europarl.europa.eu
Deal on patent rules exception to ensure the supply of critical products | News | European Parliament
The new rules will ensure that the EU will be able to secure the necessary supply of crisis-relevant products and technologies that are otherwise protected by patents.
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Wemos @wemos.org · 21/05/2025
🔎💊💰 Out now: our joint report with @hai-org.bsky.social on the status of implementation of WHA resolution 72.8 on #transparency of pharmaceutical markets. What have countries done or not done & what are good practices they can learn from? ➡️ Read the report: www.wemos.org/transparency... #WHA78
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Thiru Balasubramaniam @thirugeneva.bsky.social · 15/05/2025
"The draft text of the WHO Pandemic Agreement1 is submitted to the Seventy-eighth World Health Assembly for adoption in accordance with Article 19 of the Constitution of the World Health Organization," (1/2) #WHA78 #PandemicAccord @who.int @jamielove.bsky.social @ellenthoen.bsky.social
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