iiinova — where your digital self keeps evolving

Amber - About IBD @aboutibd.bsky.social · 17/08/2026

“It’s not your fault. [Fistulas are] a very unfortunate complication, and incredibly isolating.” —Alicia Aiello (President, Girls With Guts) You didn't make yourself sick, & you don't have to carry it alone. 💜 🎧 Get this episode of About IBD Podcast: bit.ly/AIBD207 #IBD #Crohns #GirlsWithGuts

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Amber - About IBD @aboutibd.bsky.social · 14/08/2026

"I said, 'I'm done.'" ⌛ People with #IBD deserve to be heard and to receive compassionate care. In Episode 207 of #AboutIBDPodcast, Alicia Aiello, president of Girls With Guts, shares why she fired a surgeon and how to advocate for yourself with #IBD. #Fistula Listen or watch: bit.ly/AIBD207

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Reposted by Amber - About IBD

IBD Doctor @ibddoctor.bsky.social · 10/07/2026

Pain, especially residual pain after the 'target' of endoscopic healing is achieved in #IBD, is difficult for patients and for providers. Dr. Jessica Sheehan addresses this important symptom in IBD School 211 @bottomlineibd.bsky.social @aboutibd.bsky.social www.youtube.com/watch?v=xHtt...

youtube.com

IBD School 211 - Pain in IBD

YouTube video by Peter Higgins

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Amber - About IBD @aboutibd.bsky.social · 01/07/2026

Moving forward with a dynamic illness means defining your capacity. That sucks, but it can also open up opportunities. Listen to this episode of #AboutIBDPodcast with Andrew Giffen & learn about his anonymous peer-support app, Brown Note, on Apple Podcasts, Spotify, YouTube, or at: bit.ly/AIBD204! 🎧

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Amber - About IBD @aboutibd.bsky.social · 25/06/2026

What if you had an anonymous place to send and receive nuggets of support about #IBD? 📛 It's called Brown Note, and it exists! Learn more about Brown Note on episode 204 of About IBD Podcast, in all podcast apps, on the YouTube for the video, or at bit.ly/AIBD204.%E2%...

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Amber - About IBD @aboutibd.bsky.social · 12/06/2026

🗻 Let's not lose sight of dreams. Let's figure out how to make them realities. On Ep 203 of #AboutIBDPodcast, we talk about travel with IBD or other chronic conditions. We have to do it differently, which sucks. But we can do it! Catch it in any podcast app, on the YouTube, or bit.ly/AIBD203! 🌟

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Amber - About IBD @aboutibd.bsky.social · 10/06/2026

🗺️ How can we travel with #IBD? Like so many things, it doesn't mean giving up. But it does mean doing it differently. Sarah McGovern, certified travel advisor of Halcyon Travel, teaches us how on Episode 203 of #AboutIBDPodcast. Get it in any podcatcher, on the YouTube, or at bit.ly/AIBD203!

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

Oh no, I'm "running out of time" to complete a survey sent by the health insurance company. Let me get right on that, instead of working to pay the medical bills they refuse to pay.

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

🧑🏽‍💻 You are not inconsistent. Your IBD is. In episode 202 of About IBD, Katie Neu and I discuss professional challenges and data from the recent IBD Social Circle survey, which show how many patients feel unsupported. We came up with 5 ideas to consider in building a community:

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Amber - About IBD @aboutibd.bsky.social · 01/06/2026

😶‍🌫️ Did you know that in one survey, 84% of adults with IBD said they feel stigma in their lives? I sat down with Katie Neu (Badass With a Bad Ass) to talk about how IBD affects relationships and mental health. 🎧 Get it on Ep 202 of About IBD, in podcast apps, YouTube, or my website: bit.ly/AIBD202

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Amber - About IBD @aboutibd.bsky.social · 20/05/2026

🪤 We have tied human value to productivity. Add in a chronic illness like #IBD, and it becomes a setup for failure. Bari Gratton joins #AboutIBDPodcast to talk about breaking free from the "push through" trap. 🎧 Stream Ep 201 on your favorite #podcast app, YouTube, or at my website: bit.ly/AIBD201

"We have associated people's value with the level of productivity they have in society. Add in somebody with a chronic illness, and we have set everyone up for failure." —Bari Gratton

After a devastating Crohn’s flare led to three surgeries and a temporary ostomy, marketing executive Barrie Gratton traded the high-stress world of New York City for the healing path of yoga therapy in California. In this episode, Barrie joins Amber Tresca to discuss the "Five Layers of Being," the toxic myth of "pushing through," and how she is building a community for the next generation of IBD patients through Girls with Guts and the Crohn’s & Colitis Foundation.

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Amber - About IBD @aboutibd.bsky.social · 15/05/2026

So excited! If you’re in LA, I hope you can make it! 💜

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Amber - About IBD @aboutibd.bsky.social · 05/05/2026

🙄 Yes. Even your eyes. On Ep 200 of #AboutIBDPodcast, I go over some eye problems connected to IBD. They range from annoying to potentially sight-destroying. It's good to be aware, but remember everyone has a different risk level. Ask your healthcare providers to put your situation into context.

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Amber - About IBD @aboutibd.bsky.social · 30/04/2026

It's the last day of voting in the Women Podcasters Awards! About IBD is nominated in the "Wellness" category. I'd be grateful if you'd consider voting here: www.womenpodcasters.com/awards-voting #IBD #Crohns #UlcerativeColitis #Podcast

womenpodcasters.com

Voting for the Women Podcasters Awards

Open from April 1 - 30,2026 at 6PM:

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Amber - About IBD @aboutibd.bsky.social · 29/04/2026

Did you know #IBD can attack your vision? #Crohns & #UlcerativeColitis are immune-mediated, which means inflammation doesn't always stay in the gut. Even in remission, it can attack other parts of the body. I break down 3 eye conditions on #AboutIBDPodcast episode 200! Get it here: bit.ly/AIBD200

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Amber - About IBD @aboutibd.bsky.social · 10/04/2026

"Toughing it out" can be common in endurance sports, but it almost cost T.L. Wright her life. After years of undiagnosed Crohn's, she had to completely pivot her diet and athletic goals to heal. Hear to her journey on the latest #AboutIBDPodcast: bit.ly/AIBD199 #CrohnsDisease #IBD #SCDDiet

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Reposted by Amber - About IBD

IBD Pro @ibdpro.bsky.social · 08/04/2026

#IBD patients are living longer — are our care models keeping up? Explore #geriatric-focused longevity clinics and real-world pharmacist innovations at the 2026 IBD #Pharmacist Virtual Symposium. Join us May 30: bit.ly/4kYXE2C

A graphic for the "IBD Pro: IBD Pharmacist Symposium" on May 30, 2026, hosted by the Crohn's & Colitis Foundation. It's a virtual event from 10:30 AM to 2:15 PM.

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

🎯 What are your goals? Remission isn't the only one. I sat with Drs Sonia Grandi and Cristina Longo to discuss the BIONIC Study on #AboutIBDPodcast, which uses data to learn how immune-mediated conditions affect pregnancy & babies. We have 5 tips for navigating health conditions & family planning.

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Amber - About IBD @aboutibd.bsky.social · 06/04/2026

You’re more than a diagnosis. You’re an expert. 🧬 In #AboutIBDPodcast Ep 198, Dr. Longo explains how the BIONIC Study is using data to keep mothers in remission & babies safe—by listening to experts: YOU. 👩🏼‍🍼✅ 🎧 Listen on Apple, Spotify, YouTube, or AboutIBD.com: bit.ly/AIBD198 #IBD #MaternalHealth

"Patients are the experts in their own disease trajectory, the healthcare system, and the challenges that they face. This is an expertise that most, if not all, research projects need." — Dr. Cristina Longo

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Amber - About IBD @aboutibd.bsky.social · 03/04/2026

"What do I do now?" 🤰🏾 IBD pregnancy planning brings up questions because trials exclude pregnant people. Dr. Sonia Grandi’s team is using data to give patients the confidence to stay in remission while keeping babies safe. 🚼 Get the whole story on Ep 198 of About IBD: bit.ly/AIBD198 #IBD #Science

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Reposted by Amber - About IBD

Dan Collins, APR, ABC @dccfencerman1962.bsky.social · 30/03/2026

Prevention & screening are key when it comes to ulcerative colitis & its association w/#colon cancer risk. Tune in "The Woman's Doctor" tonite Mon., March 30th, 5:25pm as Mercy gastroenterologist Dr. Raymond Cross appears on #WBAL-TV11 to discuss. @wbaltv11.bsky.social www.wbaltv.com/article/heal...

wbaltv.com

Doctors emphasize UC screening amid higher risk for cancer

Prevention and screening are key when it comes to ulcerative colitis and its association with a slightly higher risk for colon cancer.

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Amber - About IBD @aboutibd.bsky.social · 30/03/2026

❌🤰 Pregnancy is often excluded from drug development, leaving moms in a "data vacuum." In Ep. 198, Dr. Sonia Grandi & Dr. Christina Longo share how the BIONIC Study uses 30 years of data to help #moms stay healthy & keep babies safe. 👩🏼‍🍼✅ Listen: bit.ly/AIBD198 #IBD #MedicalResearch

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Epidemiology, Big Data, and Biologics in Pregnancy — About IBD Podcast Episode 198 - About IBD

What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a...

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

Struggling to build up a better feed here with content focused on health, especially digestive health. I'm not sure whether discovery is more difficult or is a function of my not yet knowing how to use the platform well, but I appreciate any leads on who to follow!

media.tenor.com

a man wearing a yellow shirt with the letter a on the front

ALT: a man wearing a yellow shirt with the letter a on the front

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

🤖 Everyone likes to use AI to make cartoons. But there are ways that AI can actually help you with your health! Here are 5 Tips to Safely Use AI to Manage Your Health Information from About IBD Podcast episode 196.

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Amber - About IBD @aboutibd.bsky.social · 11/03/2026

😒 Have you heard of artificial intelligence (AI) "hallucinations"? It says what you want to hear rather than the truth. ✅ Learn more about AI & how it could benefit patients on About IBD, especially if you aren't using AI. Get About IBD Ep 196 in your podcast app, on YouTube, or at bit.ly/AIBD196

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Amber - About IBD @aboutibd.bsky.social · 10/03/2026

Should we use AI to manage #IBD? The answer: Maybe. For #AboutIBDPodcast, I asked my husband, Mike, to explain how AI works, how to use it responsibly, and where it may not be ready for prime time. Get Episode 196 in your podcast app, on YouTube, or on my website: bit.ly/AIBD196

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Amber - About IBD @aboutibd.bsky.social · 26/02/2026

🚦Pressure and expectations get in the way of connection and pleasure for people living w/ #IBD. Intimacy is about communication, closeness, and finding what works for you & your partner. Learn more on About IBD Podcast Ep 195 w/intimacy coach @drstacyfriedman.bsky.social at: bit.ly/AIBD195

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Amber - About IBD @aboutibd.bsky.social · 23/02/2026

🪞Body image issues are common in #IBD. Symptoms change our bodies & stigma doesn’t help with dating and intimacy. On #AboutIBDPodcast Ep 195, sex coach Dr Stacy Friedman shares how to build a better relationship with your body & your partner. Listen, watch, or read on my website: bit.ly/AIBD195

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Amber - About IBD @aboutibd.bsky.social · 18/02/2026

💟 63% of women, 34% of men & 75% of LGBTQ+ people with IBD struggle w/ intimacy. If you are dissatisfied with your intimate life, please know help is available! Learn from #intimacy coach @drstacyfriedman.bsky.social how you can bring sexy back on #AboutIBDPodcast ep. 195: bit.ly/AIBD195

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Amber - About IBD @aboutibd.bsky.social · 09/01/2026

💭 I’m inspired by the idea of leaving people better than we find them. On Episode 193 of #AboutIBDPodcast, Lisa Zawrotny of Positively Productive Systems shares her philosophy: improve the things and people she touches. Find this episode in any podcast app, on the YouTubes, or here: bit.ly/AIBD193

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Amber - About IBD @aboutibd.bsky.social · 19/12/2025

🚨Reminder for all the #chronicillness besties to get some labs or med refills done now, before the end of the year, to take advantage of any flexible spending dollars, or if you've met your deductible for the year! #IBD

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Amber - About IBD @aboutibd.bsky.social · 12/12/2025

🌟 She makes a good point! We're not talking about denying reality. It's about going into a situation with optimism. Because the truth is that most of the things we worry about never happen. 🧠 Kinsey explains it best on episode 191 of About IBD: bit.ly/AIBD191

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Amber - About IBD @aboutibd.bsky.social · 09/12/2025

My newsletter is cued up. Usually I send in the morning, but having IBD means I need to be flexible! In this edition: links to content from The Global Healthy Living Foundation, IBD Connect, Badass With a Bad Ass, and The Job Hopper. Get it by only providing your email: aibdnewsletter.aboutibd.com

aibdnewsletter.aboutibd.com

Subscribe to the About IBD Newsletter!

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Amber - About IBD @aboutibd.bsky.social · 25/11/2025

⚡Katryna, my guest for About IBD Podcast Ep 190, points out how life with #IBD is distracting. After #colectomy with #ileostomy placement, she was more present in her relationships. Get the whole episode (audio, video, transcript) with more wisdom (plus some laughs) on my website: bit.ly/AIBD190

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Amber - About IBD @aboutibd.bsky.social · 24/11/2025

🍾 #IBD shows up even on our biggest days. In Episode 190 of #AboutIBDPodcast, Katryna Loewen shares how she navigated #UlcerativeColitis, flare-ups, a colectomy, and an ileostomy during major life milestones. Her courage, creativity, and community spirit shine through. Get it here: bit.ly/AIBD190

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Amber - About IBD @aboutibd.bsky.social · 22/11/2025

🚽 New symptoms are frustrating. Whether it’s brand new or something your team hasn’t diagnosed yet, getting help takes time. But ignoring it risks an emergency. On #AboutIBDPodcast, Samantha Sauer of G-PACT reminds us: keep advocating! 🌟 Ep 189 is out now! bit.ly/AIBD189

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Amber - About IBD @aboutibd.bsky.social · 20/11/2025

🌼 You deserve respect, answers, & proper care. On #AboutIBDPodcast: Samantha Sauer, BCPA of G-PACT, shares why self-advocacy is key for people with digestive conditions. If you're not being heard, keep pushing & seek other opinions. Episode 189 is live now in podcast apps, YouTube, & bit.ly/AIBD189

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Amber - About IBD @aboutibd.bsky.social · 18/11/2025

🍽️ Gastroparesis can cause nausea, fullness, and vomiting. Samantha Sauer, BCPA, president of G-PACT, helps us understand gastroparesis, how it differs from #IBD, and whether it's common to have both. 💕 Episode 189 of #AboutIBDPodcast is in your podcast app, on YouTube, or at bit.ly/AIBD189.

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Amber - About IBD @aboutibd.bsky.social · 13/11/2025

The haphazard comments regarding acetaminophen open pregnant women to stigma about medication use. Listen, watch, or read episode 188 of #AboutIBDPodcast with Mariah Leach, JD, MS of Mamas Facing Forward. See the show notes for info, incl the FDA letter & medical society statements: bit.ly/AIBD188

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The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS - About IBD

Amber and Mariah discuss how women with chronic illnesses cope with advice on medication use in pregnancy—especially in light of the confusion around acetaminophen. Mariah shares her experiences with ...

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Amber - About IBD @aboutibd.bsky.social · 14/10/2025

🪫 Staying active with #IBD is challenging, but it’s possible! Join me on #AboutIBDPodcast as I chat with Sean Lochran, an #ostomy fitness coach who shares practical tips for managing nutrition, hydration, and exercise. 🌿Listen, watch, or read here: bit.ly/AIBD187

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Amber - About IBD @aboutibd.bsky.social · 13/09/2025

I’m so excited to be at Mercy University today for the Bridging Autoimmunity: Patient Forum with IMIDeology! Lots of great talks and also innovative solutions coming out of this one of a kind event! #IMIDeology www.imideology.com/event-detail...

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Amber - About IBD @aboutibd.bsky.social · 27/08/2025

🫥 #IBD is invisible, so people don't understand. Stories like “The Mouse Who Couldn’t Eat Cheese,” help kids (& grown-ups) feel seen. 📖 Learn more about the book, who inspired it, and author MB Mooney on #AboutIBDPodcast 181! Get it any podcast app, or watch the VIDEO on the YouTube! bit.ly/AIBD181

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Amber - About IBD @aboutibd.bsky.social · 26/08/2025

My email newsletter goes out today (Tuesday)! In it is the latest from me and more from around the IBD community, including Lights, Camera, Crohn's, @crohnscolitisfdn.bsky.social, IMIDeology, and other folks not on this app. Get subscribed with only an email address: aibdnewsletter.aboutibd.com

aibdnewsletter.aboutibd.com

Subscribe to the About IBD Newsletter!

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Amber - About IBD @aboutibd.bsky.social · 06/08/2025

🧐 Curious about IBD research? On #AboutIBDPodcast, I talk with Propel a Cure president & CEO, Angela Clark. Propel a Cure funds research into causes of Crohn's and updates the community on progress. Listen in any podcast app, see a video on YouTube, or use my website to choose either: bit.ly/AIBD180

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Amber - About IBD @aboutibd.bsky.social · 05/08/2025

🤩 I have a great podcast for you! I'm a big fan of Lisa Zawrotny and the Positively LivingⓇ Podcast, so we worked together to put together an episode of self-care tips that aren't trivial! Get it in your #podcast app or at my website: bit.ly/AJTPods #IBD #MentalHealth #Crohns #colitis #SelfCare

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Amber - About IBD @aboutibd.bsky.social · 23/07/2025

I can’t wrap my brain around this.

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Amber - About IBD @aboutibd.bsky.social · 16/07/2025

🎙️ On the latest About IBD Podcast, Dr Navidi of GI Psychology and I dive into the critical link between #mentalhealth and GI disorders like IBD. It's an eye-opening discussion you won’t want to miss! 💡 Get it here: bit.ly/AIBD178 Also, watch the whole video on YouTube! youtu.be/k9TAupEcRtk

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Amber - About IBD @aboutibd.bsky.social · 10/07/2025

🫁 How do you get started with breathwork? I was wondering too! That's why I welcomed Elizabeth Coldrick of Wildly Brave Wellness to Episode 177 of About IBD. We talked about her life in Bali, living with an ostomy, and -- breathwork! Here are 5 tips from our conversation.

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Amber - About IBD @aboutibd.bsky.social · 25/06/2025

🌟 Breathwork isn’t only about breathing. It's also a journey into emotional release, making space for clarity. I was thrilled to welcome breathwork facilitator Elizabeth Coldrick of Wildly Brave Wellness to Ep 177 of About IBD Podcast! Hear our talk in your podcast app or get it here: bit.ly/AIBD177

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