iiinova — where your digital self keeps evolving

Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 08/10/2026

Traveling with IBD can bring a worry many people don't talk about: needing a restroom, fast. ✈️🚻 Our Chief Education, Support and Advocacy Officer, Laura Wingate, spoke with @usatoday.com about how people with IBD can plan ahead and travel with more confidence. Read more: bit.ly/4i9M3xF

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 02/10/2026

The Foundation offers a support group for IBD patients conducted entirely in Spanish. Meetings provide a space for Spanish-speaking patients to connect, ask questions, and share experiences with others managing Crohn's disease and ulcerative colitis. Learn more and join: bit.ly/3RtkXoB

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 29/09/2026

Thanks to the Foundation’s advocacy, California just became the second state in the nation to pass a law making it easier for many IBD patients to get timely medication dose changes without extra insurance hurdles! Let’s help more states follow suit—join our advocacy team: bit.ly/4r3PRTt

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 23/09/2026

Pro pickleball player & Foundation social media ambassador Rob Nunnery looked like the picture of health. But behind the scenes, he was battling severe, invisible chronic pain while competing on the global circuit. We teamed up w/ @everydayhealth.bsky.social to share his story bit.ly/4y5NgvD

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 21/09/2026

This National APP Week, Foundation board member Rocio Castrillon and her nurse practitioner, Janette Villalon, share what it means to have a true partner in IBD care. Thank you to our sponsor, AbbVie, for helping us spread awareness this National APP Week.

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 14/09/2026

It's Malnutrition Awareness Week - learn why IBD increases the risk of malnutrition, what signs to watch for, and how patients, dietitians, and care teams can work together to catch and manage it early. bit.ly/4dviDY4

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 10/09/2026

📣 Kids with IBD deserve better treatment options. Tell your member of Congress to call on the FDA to speed up its review and approval process for pediatric IBD treatments. It takes 30 seconds 👇 🔗 bit.ly/3TnjnYw

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 03/09/2026

Not every stomachache is cause for concern. But recurring digestive symptoms diarrhea, fatigue, abdominal pain, or rectal bleeding could be your body signaling something more. Dr. Moss breaks down the signs of IBD, including Crohn's disease & ulcerative colitis symptoms. bit.ly/45n8JDF

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 01/09/2026

Big news for the IBD community: UnitedHealthcare will drop prior authorization for many services starting Oct. 1 — including colonoscopies. This builds on advocacy the Foundation has led, including a 2023 rally outside UnitedHealthcare to protest barriers to preventive care. 🙌

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 31/08/2026

Imagine hiding a part of yourself every day. That's IBD stigma for so many people. 🏕️ Camp Oasis campers: less embarrassed about their IBD 💬 96% of Support Group members talk more openly 📱 Half of Let's Go There viewers are more open Every number = someone who feels less alone bit.ly/4vZ0Nnk

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 19/08/2026

Today is National Patient Advocacy Day! 🏛️💙 Every call and every voice moves the needle for the 1 in 100 Americans living with IBD. Join us: bit.ly/4r3PRTt Thank you to our sponsor, AbbVie, for helping us spread the word!

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 17/08/2026

What if you didn't have to hide your IBD because of stigma? We're building that future. Watch how 👇 bit.ly/4g3Upol

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 10/08/2026

Traveling with Crohn's disease or ulcerative colitis this summer? ✈️ A little planning can make a big difference. Explore tips for packing medications, finding restrooms, navigating travel, and more so you can travel with greater confidence. Learn more: bit.ly/3ON1pcY

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 09/08/2026

🍉 Summer meals just got a little brighter. This Watermelon Salad with Feta and Pumpkin Seeds is light, colorful, and ready in just 15 minutes, making it an easy addition to your next lunch, picnic, or backyard barbecue. bit.ly/4z18T1c

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 07/08/2026

Did you know your IBD diagnosis can actually change over time. Alan Moss, MD, the Foundation's Chief Scientific Officer, explains why some people are reclassified from Crohn's disease to ulcerative colitis, or vice versa, as more information becomes available.

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 04/08/2026

Sleep and stress can have a big impact on life with Crohn's disease or ulcerative colitis. Join our free MyIBD Learning webinar to learn practical strategies for improving sleep, managing stress and anxiety, and building healthy routines that support your overall well-being. bit.ly/4vIxHry

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 31/07/2026

Flares under control. Pain isn't. That's the reality for nearly half of people with IBD, even in remission. Researchers backed by Foundation funding are chasing down the science behind chronic pain in IBD and the treatments that could finally target it. bit.ly/4yLRoS8

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 21/07/2026

"Realizing you are not alone." "Not being judged." These are the moments that break IBD stigma — and the Foundation is creating these moments for you. 👉 bit.ly/4vZ0Nnk

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 21/07/2026

"Realizing you are not alone." "Not being judged." These are the moments that break IBD stigma — and the Foundation is creating these moments for you. 👉https://bit.ly/4vZ0Nnk

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 20/07/2026

Join the Crohn's & Colitis Foundation and The Stephanie A. Wynn Foundation on August 19 for From Food to a Flare: Nutrition and IBD in the Black/African American Community. bit.ly/fromfoodtoaflare

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 17/07/2026

💜 Meet Burke Barr, our Team Challenge Cycle Honored Hero. For 35 years, Burke has lived with Crohn's disease. She rides to stay strong, fight fatigue, and support a future free from IBD. Support Burke and Team Challenge at the Spellbound Century on July 25. bit.ly/4audvlG

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 16/07/2026

Yesterday, 100 Foundation volunteers & staff came to Washington, D.C. to stand up for the 1 in 100 Americans living with IBD. 💙 We met with Congress to push for the Safe Step Act, protect IBD research funding, and expand access to pediatric IBD treatments. #IBDinDC

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 15/07/2026

Meet Kaylaa' and Isabelle, tow of our National Council of College Leaders! They're in DC today for the Crohn's & Colitis Foundation's Day on the Hill, standing alongside 100+ volunteers and staff advocating for the IBD community. 💙 #IBDinDC

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 15/07/2026

Hear from Michael Osso, President and CEO of the Crohn's & Colitis Foundation - we're in DC today for Day on the Hill, standing with 100+ volunteers from across the country to fight for the IBD community. 💙 #IBDinDC

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 15/07/2026

Tonight, we brought volunteers to D.C. for our Congressional Champions Celebration — honoring Members of Congress who show up for the IBD community. Behind every bill is a real person fighting Crohn's disease or ulcerative colitis. Supported in part by Pfizer & Takeda. Pic: CEO Michael Osso #IBDinDC

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 12/07/2026

“I was only 12 years old when I was diagnosed with Crohn’s disease. After months of symptoms and time away from the pool, I leaned on my teammates, coaches, friends, and family to help me keep going.” 💜 Meet Aleca a swimmer, scholar-athlete, and Crohn’s warrior. bit.ly/4vIPa4a

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 10/07/2026

Fatigue. Brain fog. Mental health struggles. Joint pain. Skin & eye complications. These extraintestinal manifestations reach beyond the gut. Crohn's & Colitis 360, a journal from the Crohn's & Colitis Foundation, features research highlighting the whole-body burden of IBD. bit.ly/4gMwdc3

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 09/07/2026

When the Foundation takes on IBD stigma, things change. 96% of support group members open up more. Camp Oasis campers are 48% less embarrassed. You don’t have to hide what you are going through. Find out how we can help. 👉 bit.ly/4vZ0Nnk

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 08/07/2026

You can’t always see IBD—but it’s always there. Sara Levitt is a content creator and model living with Crohn’s disease and a permanent ostomy—sharing what life really looks like beyond the highlight reel. She’s opening the door to conversations most people avoid. bit.ly/4eAta44

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Spill Your Guts: Sara Levitt: How Chronic Illness Evolves With You #crohnsdisease #ostomy

What is it like growing up with an ostomy and living with Crohn's d...

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 08/07/2026

Living with Crohn’s disease or ulcerative colitis? You don’t have to navigate it alone. The Power of Two connects people with IBD to trained volunteer mentors who share their lived experience to provide real-world guidance. Applications are open for mentors and mentees. bit.ly/3CSjqn5

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 06/07/2026

The 2026 Team Challenge jerseys are here! 🚴💜 On July 25, our team of 20 will take on the Spellbound Century in New Jersey, already having raised more than $55,000 to support those affected by IBD.

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 06/07/2026

Get to know our tools designed to support you at every stage of life with IBD—from prepping for an endoscopy to aging with IBD. Read more about these powerful new resources and tap the link to start building your IBD toolkit today. bit.ly/3POJLJ5

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 04/07/2026

Happy Independence Day! Whether you're firing up the grill or gathering with family and friends, delicious food should be part of the celebration. Explore Gut Friendly Recipes, our free recipe finder featuring 500+ dietitian-approved dishes designed for people with IBD. bit.ly/3PQEUE0

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 01/07/2026

You can’t always see IBD—but it doesn’t stay offstage. Saxl Rose is a musician living with Crohn’s disease who has performed with artists like Paramore and Wiz Khalifa—while managing the realities of an invisible illness. Watch his story and visit bit.ly/4v4edOQ for more stories.

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 24/06/2026

Got questions about Crohn's disease or ulcerative colitis? Alan Moss, MD, Chief Scientific Officer at the Crohn's & Colitis Foundation, is launching a new series, Crohn's & Colitis Mythbusting, to separate fact from fiction. What questions do you want answered? Comment 👇

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 24/06/2026

You can’t always see IBDm but for Rob Nunnery, it’s part of every day. A professional pickleball player living with Crohn’s disease and a permanent ostomy, Rob is redefining what strength looks like while opening up about the realities of life with an invisible illness: bit.ly/4vonJfE

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Spill Your Guts Rob Nunnery: The Hidden Challenges of Playing Sports with an Ostomy #proathlete

What does it take to compete at a high level while living with Croh...

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 23/06/2026

New data from a Foundation survey reveals young adults with IBD face growing barriers to care, including step therapy requirements. Nearly 1 in 5 report taking on extra work to afford care, highlighting the financial strain during this life stage. Learn more: bit.ly/4tvMXah

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 17/06/2026

You can’t always see IBD—but it impacts everything. Victoria Tyler is an influencer and patient advocate living with ulcerative colitis and a permanent ostomy—and she’s using her platform to speak openly about what life with IBD really looks like. Watch her story: bit.ly/4v4edOQ

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 16/06/2026

IBD doesn’t stop at borders—and now, research won’t either. Through the Global IBD Registry (GLIDE), the Foundation is uniting data from diverse patients and health systems worldwide to drive smarter care for IBD. Read more about this Foundation-supported registry: bit.ly/4uxjiyj

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 09/06/2026

Foundation-supported scientists are uncovering early signals in the gut, immune system, & environment to predict risk & inform earlier action. Learn how the Foundation is helping shape a future where IBD can be detected sooner, stopped from progressing, & ultimately prevented. bit.ly/3R6Uv5N

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 04/06/2026

When your UC treatment stops working, it's not you who's failing — it's the medicine. In this Everyday Health Expert Access video, Dr. Alan Moss, Chief Scientific Officer at the Foundation, breaks down what treatment failure really means, the warning signs, and next steps: bit.ly/42L87Xe

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 02/06/2026

Get to know our tools designed to support you at every stage of life with IBD—from prepping for an endoscopy to aging with IBD. Explore our trusted app list for symptom, diet, and mental health support, plus expanded MyIBD Connections programs for diverse communities. bit.ly/3POJLJ5

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 28/05/2026

Which tests check for UC remission? In this Everyday Health Expert Access video, Alan Moss, MD, Chief Scientific Officer at the Foundation, explains the key tests used to check what’s really happening beneath the surface—and why they matter, even when symptoms improve. bit.ly/4wBciCx

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 27/05/2026

BlackDoctor covered our MyIBD Connections event for the Black/African American community in Birmingham, AL, supported by our CDC Improving Health Outcomes grant, highlighting how IBD disproportionately impacts Black communities: bit.ly/4uiYHOC

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What Black Americans Need to Know About IBD - BlackDoctor - Where Culture Meets Care

For World IBD Day, learn how IBD affects Black Americans and why early diagnosis and better access to care are so important.

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 27/05/2026

New data from the Foundation shows that our Camp Oasis campers were nearly 50% less likely to feel embarrassed about their IBD after attending. Read more about how Camp Oasis is building confidence, connection, and belonging for kids with IBD. bit.ly/4flvjm3

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 27/05/2026

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 24/05/2026

Meet Simran, a teen with Crohn’s disease who expected her first Take Steps walk to be quiet and serious—but instead found music, energy, and a sea of bright green T‑shirts that made her feel part of something bigger for the first time since her diagnosis. Read her story: bit.ly/4vbOHXJ

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Crohn's & Colitis Foundation @crohnscolitisfdn.bsky.social · 22/05/2026

IBD stigma thrives in silence—and too many people are left carrying it alone. In this Everyday Health article by Dr. Riehl, it unpacks what stigma really looks like—and shares 5 ways to cope, advocate for yourself, and push back. Read more: bit.ly/4nLCpmo

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Inflammatory Bowel Disease (IBD) and Stigma: 5 Ways to Cope

Most people with Crohn’s disease or ulcerative colitis report experiencing some form of stigma, or unfair treatment due to their condition.

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