iiinova — where your digital self keeps evolving

Amber - About IBD @aboutibd.bsky.social · 13/09/2026

Why is it “Stuf”? Is that an inside joke I don’t get???

Amber - About IBD @aboutibd.bsky.social · 17/08/2026

“It’s not your fault. [Fistulas are] a very unfortunate complication, and incredibly isolating.” —Alicia Aiello (President, Girls With Guts) You didn't make yourself sick, & you don't have to carry it alone. 💜 🎧 Get this episode of About IBD Podcast: bit.ly/AIBD207 #IBD #Crohns #GirlsWithGuts

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Amber - About IBD @aboutibd.bsky.social · 14/08/2026

"I said, 'I'm done.'" ⌛ People with #IBD deserve to be heard and to receive compassionate care. In Episode 207 of #AboutIBDPodcast, Alicia Aiello, president of Girls With Guts, shares why she fired a surgeon and how to advocate for yourself with #IBD. #Fistula Listen or watch: bit.ly/AIBD207

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Reposted by Amber - About IBD

IBD Doctor @ibddoctor.bsky.social · 10/07/2026

Pain, especially residual pain after the 'target' of endoscopic healing is achieved in #IBD, is difficult for patients and for providers. Dr. Jessica Sheehan addresses this important symptom in IBD School 211 @bottomlineibd.bsky.social @aboutibd.bsky.social www.youtube.com/watch?v=xHtt...

youtube.com

IBD School 211 - Pain in IBD

YouTube video by Peter Higgins

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Amber - About IBD @aboutibd.bsky.social · 08/07/2026

That was us. We needed some giveaways for our panels GenCon. Although I may keep some things for myself…

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Amber - About IBD @aboutibd.bsky.social · 01/07/2026

Moving forward with a dynamic illness means defining your capacity. That sucks, but it can also open up opportunities. Listen to this episode of #AboutIBDPodcast with Andrew Giffen & learn about his anonymous peer-support app, Brown Note, on Apple Podcasts, Spotify, YouTube, or at: bit.ly/AIBD204! 🎧

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Amber - About IBD @aboutibd.bsky.social · 25/06/2026

What if you had an anonymous place to send and receive nuggets of support about #IBD? 📛 It's called Brown Note, and it exists! Learn more about Brown Note on episode 204 of About IBD Podcast, in all podcast apps, on the YouTube for the video, or at bit.ly/AIBD204.%E2%...

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Amber - About IBD @aboutibd.bsky.social · 12/06/2026

🗻 Let's not lose sight of dreams. Let's figure out how to make them realities. On Ep 203 of #AboutIBDPodcast, we talk about travel with IBD or other chronic conditions. We have to do it differently, which sucks. But we can do it! Catch it in any podcast app, on the YouTube, or bit.ly/AIBD203! 🌟

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Amber - About IBD @aboutibd.bsky.social · 10/06/2026

🗺️ How can we travel with #IBD? Like so many things, it doesn't mean giving up. But it does mean doing it differently. Sarah McGovern, certified travel advisor of Halcyon Travel, teaches us how on Episode 203 of #AboutIBDPodcast. Get it in any podcatcher, on the YouTube, or at bit.ly/AIBD203!

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

Oh no, I'm "running out of time" to complete a survey sent by the health insurance company. Let me get right on that, instead of working to pay the medical bills they refuse to pay.

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

🎧 Get Episode 202 of the About IBD Podcast to hear our full, unfiltered conversation on navigating corporate barriers and workplace stigma. Available on Apple Podcasts, Spotify, YouTube, or at my website: bit.ly/AIBD202

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

📌 5. Expand Your Definition of Support Remember that community isn't only patients. Your personal "IBD Social Circle" includes the friends, family members, and partners who hold spaces of care for you.

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

📌 4. Define Your Boundaries Partners, friends, and other connections should understand the unpredictable nature of IBD and respect your needs in prioritizing your health.

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

📌 3. Be Open to Connecting Reach out to an advocate or a fellow patient whose story resonates. Most advocates are eager to help, share insights, or connect you to someone with similar experiences.

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

📌 2. Lean into Inclusive Spaces Engage with low-pressure entry points such as the IBD Social Circle, which brings together patient advocates, healthcare professionals, and care partners.

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

📌 1. Build Your Community Connecting with others who truly understand your experience can significantly improve your mental health and help you feel less alone as you navigate challenges

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Amber - About IBD @aboutibd.bsky.social · 08/06/2026

🧑🏽‍💻 You are not inconsistent. Your IBD is. In episode 202 of About IBD, Katie Neu and I discuss professional challenges and data from the recent IBD Social Circle survey, which show how many patients feel unsupported. We came up with 5 ideas to consider in building a community:

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Amber - About IBD @aboutibd.bsky.social · 01/06/2026

😶‍🌫️ Did you know that in one survey, 84% of adults with IBD said they feel stigma in their lives? I sat down with Katie Neu (Badass With a Bad Ass) to talk about how IBD affects relationships and mental health. 🎧 Get it on Ep 202 of About IBD, in podcast apps, YouTube, or my website: bit.ly/AIBD202

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Amber - About IBD @aboutibd.bsky.social · 20/05/2026

🪤 We have tied human value to productivity. Add in a chronic illness like #IBD, and it becomes a setup for failure. Bari Gratton joins #AboutIBDPodcast to talk about breaking free from the "push through" trap. 🎧 Stream Ep 201 on your favorite #podcast app, YouTube, or at my website: bit.ly/AIBD201

"We have associated people's value with the level of productivity they have in society. Add in somebody with a chronic illness, and we have set everyone up for failure." —Bari Gratton

After a devastating Crohn’s flare led to three surgeries and a temporary ostomy, marketing executive Barrie Gratton traded the high-stress world of New York City for the healing path of yoga therapy in California. In this episode, Barrie joins Amber Tresca to discuss the "Five Layers of Being," the toxic myth of "pushing through," and how she is building a community for the next generation of IBD patients through Girls with Guts and the Crohn’s & Colitis Foundation.

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Amber - About IBD @aboutibd.bsky.social · 15/05/2026

So excited! If you’re in LA, I hope you can make it! 💜

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Amber - About IBD @aboutibd.bsky.social · 05/05/2026

In the meantime, I pack a lot about Crohn's disease, ulcerative colitis, and your eyes into 1 episode of About IBD! Get it on YouTube, Apple, Spotify, and at my website: bit.ly/AIBD200

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Amber - About IBD @aboutibd.bsky.social · 05/05/2026

🙄 Yes. Even your eyes. On Ep 200 of #AboutIBDPodcast, I go over some eye problems connected to IBD. They range from annoying to potentially sight-destroying. It's good to be aware, but remember everyone has a different risk level. Ask your healthcare providers to put your situation into context.

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Amber - About IBD @aboutibd.bsky.social · 04/05/2026

And as always, we have to keep in mind that charging someone with something doesn't mean they're ever actually found guilty of it. People forget that part a lot.

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Amber - About IBD @aboutibd.bsky.social · 30/04/2026

It's the last day of voting in the Women Podcasters Awards! About IBD is nominated in the "Wellness" category. I'd be grateful if you'd consider voting here: www.womenpodcasters.com/awards-voting #IBD #Crohns #UlcerativeColitis #Podcast

womenpodcasters.com

Voting for the Women Podcasters Awards

Open from April 1 - 30,2026 at 6PM:

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Amber - About IBD @aboutibd.bsky.social · 29/04/2026

Did you know #IBD can attack your vision? #Crohns & #UlcerativeColitis are immune-mediated, which means inflammation doesn't always stay in the gut. Even in remission, it can attack other parts of the body. I break down 3 eye conditions on #AboutIBDPodcast episode 200! Get it here: bit.ly/AIBD200

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Amber - About IBD @aboutibd.bsky.social · 10/04/2026

"Toughing it out" can be common in endurance sports, but it almost cost T.L. Wright her life. After years of undiagnosed Crohn's, she had to completely pivot her diet and athletic goals to heal. Hear to her journey on the latest #AboutIBDPodcast: bit.ly/AIBD199 #CrohnsDisease #IBD #SCDDiet

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Reposted by Amber - About IBD

IBD Pro @ibdpro.bsky.social · 08/04/2026

#IBD patients are living longer — are our care models keeping up? Explore #geriatric-focused longevity clinics and real-world pharmacist innovations at the 2026 IBD #Pharmacist Virtual Symposium. Join us May 30: bit.ly/4kYXE2C

A graphic for the "IBD Pro: IBD Pharmacist Symposium" on May 30, 2026, hosted by the Crohn's & Colitis Foundation. It's a virtual event from 10:30 AM to 2:15 PM.

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

🎧 Catch the full interview on YouTube, any podcast player, and at my website AboutIBD.com. (short link: bit.ly/AIBD198)

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

5️⃣ Recognize Your Lived Experience You are the expert on your body and your disease journey. Look for opportunities to participate in patient advisory committees to help scientists ask the right questions! #Patients

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

4️⃣ Address Your Needs Expressing worries can feel intimidating, but coming to appointments with data helps replace fear with confidence and encourages true shared decision-making. #Pregnancy

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

3️⃣ Define Your Goals Define what a good quality of life looks like for you (or your child) and make that goal the focal point of your treatment plan. #Asthma

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

2️⃣ Prioritizing Your Health It is natural to worry about how biologics may affect a baby. However, keeping mom's inflammation controlled is one of the best ways to protect a baby. #Arthritis

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

1️⃣ Start the Conversation Early Ask your healthcare team about medication safety before considering a pregnancy. Early conversations give time to build a safe, evidence-based plan without feeling rushed. #IBD

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Amber - About IBD @aboutibd.bsky.social · 08/04/2026

🎯 What are your goals? Remission isn't the only one. I sat with Drs Sonia Grandi and Cristina Longo to discuss the BIONIC Study on #AboutIBDPodcast, which uses data to learn how immune-mediated conditions affect pregnancy & babies. We have 5 tips for navigating health conditions & family planning.

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Amber - About IBD @aboutibd.bsky.social · 06/04/2026

You’re more than a diagnosis. You’re an expert. 🧬 In #AboutIBDPodcast Ep 198, Dr. Longo explains how the BIONIC Study is using data to keep mothers in remission & babies safe—by listening to experts: YOU. 👩🏼‍🍼✅ 🎧 Listen on Apple, Spotify, YouTube, or AboutIBD.com: bit.ly/AIBD198 #IBD #MaternalHealth

"Patients are the experts in their own disease trajectory, the healthcare system, and the challenges that they face. This is an expertise that most, if not all, research projects need." — Dr. Cristina Longo

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Amber - About IBD @aboutibd.bsky.social · 03/04/2026

"What do I do now?" 🤰🏾 IBD pregnancy planning brings up questions because trials exclude pregnant people. Dr. Sonia Grandi’s team is using data to give patients the confidence to stay in remission while keeping babies safe. 🚼 Get the whole story on Ep 198 of About IBD: bit.ly/AIBD198 #IBD #Science

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Amber - About IBD @aboutibd.bsky.social · 30/03/2026

"GI Issues" is not a diagnosis. Who fact-checked this?

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Reposted by Amber - About IBD

Dan Collins, APR, ABC @dccfencerman1962.bsky.social · 30/03/2026

Prevention & screening are key when it comes to ulcerative colitis & its association w/#colon cancer risk. Tune in "The Woman's Doctor" tonite Mon., March 30th, 5:25pm as Mercy gastroenterologist Dr. Raymond Cross appears on #WBAL-TV11 to discuss. @wbaltv11.bsky.social www.wbaltv.com/article/heal...

wbaltv.com

Doctors emphasize UC screening amid higher risk for cancer

Prevention and screening are key when it comes to ulcerative colitis and its association with a slightly higher risk for colon cancer.

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Amber - About IBD @aboutibd.bsky.social · 30/03/2026

❌🤰 Pregnancy is often excluded from drug development, leaving moms in a "data vacuum." In Ep. 198, Dr. Sonia Grandi & Dr. Christina Longo share how the BIONIC Study uses 30 years of data to help #moms stay healthy & keep babies safe. 👩🏼‍🍼✅ Listen: bit.ly/AIBD198 #IBD #MedicalResearch

bit.ly

Epidemiology, Big Data, and Biologics in Pregnancy — About IBD Podcast Episode 198 - About IBD

What does a pregnant woman do when they need a biologic medication, but pregnancy isn't included in drug trials? Dr. Sonia Grandi and Dr. Christina Longo talk to Amber Tresca about the BIONIC study, a...

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

Struggling to build up a better feed here with content focused on health, especially digestive health. I'm not sure whether discovery is more difficult or is a function of my not yet knowing how to use the platform well, but I appreciate any leads on who to follow!

media.tenor.com

a man wearing a yellow shirt with the letter a on the front

ALT: a man wearing a yellow shirt with the letter a on the front

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

I always feel this way about the tigers!

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

Learn more about how you can use AI to work for you and possibly make your life a little easier on About IBD Podcast episode 196. In your podcast app, on the YouTube, or at AboutIBD.com. bit.ly/AIBD196

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

5. Be Skeptical and Check Sources AI can give outdated or incorrect information. Always check where the information is coming from, and consult with your healthcare team before making changes to your care.

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

4. Understanding Medical Terms When test results are confusing, AI can define terms or explain concepts. Always double-check with your healthcare provider before making any changes or decisions.

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

3. Tracking Symptoms and Diet An AI-powered app can track symptoms and diet. Ensure the tool is reputable, respects privacy, and doesn’t recommend non-evidence-based information.

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

2. Drafting Questions Use AI to brainstorm and organize questions to ask healthcare providers, so you can make the most of your appointment time.

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

1. Organize Information Patients might use AI tools to keep track of appointments, medications, and test results, ensuring everything is organized for the next appointment.

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Amber - About IBD @aboutibd.bsky.social · 25/03/2026

🤖 Everyone likes to use AI to make cartoons. But there are ways that AI can actually help you with your health! Here are 5 Tips to Safely Use AI to Manage Your Health Information from About IBD Podcast episode 196.

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Amber - About IBD @aboutibd.bsky.social · 11/03/2026

😒 Have you heard of artificial intelligence (AI) "hallucinations"? It says what you want to hear rather than the truth. ✅ Learn more about AI & how it could benefit patients on About IBD, especially if you aren't using AI. Get About IBD Ep 196 in your podcast app, on YouTube, or at bit.ly/AIBD196

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