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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 18/03/2025

We were trending on Twitter/X earlier! Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 18/03/2025

TWITTER INSTRUCTIONS 7PM TONIGHT #LongCovid #Covid #MECFS

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 15/03/2025

An incredible group of people I met today! Everyone was so nice and even though the public weren’t the most receptive to the leaflets (to be fair I think any leaflet campaign is tough) none of the volunteers complained! Hope to meet everyone again! ❤️❤️

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 15/03/2025

We handed out leaflets for @longcovidkids.bsky.social and a clean air petition as well as testimonials of those with #LongCovid too!

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Long Covid SOS @longcovidsos.bsky.social · 15/03/2025

Thanks to our amazing @LongCovidSOS volunteer @sarahbarleymc.bsky.social as well as peerless #LongCovid advocates @aaronca11.bsky.social & Margaret O’Hara for sharing their stories and calling for change in this excellent article for #LongCovidAwarenessDay 👏 🩵🩶🖤

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 14/03/2025

#LongCovid anyone in North West of England willing to be interviewed on camera for ITV News?

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 11/03/2025

outside the pub The Swan on the north west exit from the Piccadilly / District line station. (Or on the corner of King St / Hammersmith Grove) from 11am-12:30pm. 46 Hammersmith Broadway, Greater, London W6 0DZ’ Please take along any banners, leaflets, merchandise etc!

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 11/03/2025

#LongCovid PLEASE SHARE @DeniseColliver (Twitter) will be holding up a banner and placards this Saturday for #LongCovidAwarenessDay and anyone who can go along and show support and solidarity would be appreciated! Details next post -

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 11/03/2025

Final graphic of the four leaflet drops for #LongCovid awareness! Volunteers welcomed! EDINBURGG WARWICKSHIRE CHISWICK LONDON CENTRAL LONDON

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 08/03/2025

And another leaflet group!! Anyone in Kenilworth?! #LongCovid

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 04/03/2025

Thank you @BFWoodburn for making this for us! If anyone wants to share this graphic across social media (if someone could post on Reddit it would be amazing) or if they want to print it out and leave in a doctors office, hospital waiting area, library etc then feel free!

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 03/03/2025

LONDON VOLUNTEERS NEEDED Due to the demand for home delivered leaflets and the number of responses to our Edinburgh campaign we have decided to run another leaflet campaign in London!

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Raoul Schendel @raoullucas.bsky.social · 02/03/2025

A new phase II RCT for #LongCOVID / #PostCOVID in the US by the company BioVie with their drug Bezisterim. clinicaltrials.gov/study/NCT068... Bezisterim is currently also being studied in Alzheimer’s and Parkinson’s. This is what it says on BioVie’s website about their LC trial.

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Long Covid SOS @longcovidsos.bsky.social · 02/03/2025

Excellent article encompassing individual stories, input from Dr Heightman @uclh with insights from their #LongCovid clinic & Stimulate-ICP research, @LaylaMoran speaking up for #pwLC & health workers, the lack of treatment & support, & #LongCovidKids www.theguardian.com/society/2025...

theguardian.com

‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten

Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic neve...

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 01/03/2025

I wonder how the event organisers feel about him appearing on their panel and telling lies to the host and audience members. 🤔

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 01/03/2025

Paul Garner and his #LongCovid story being quoted for the 50th time in mainstream media. The same Paul Garner who attended a panel in October where the subject was researchers being ‘silenced’ by the media. www.theguardian.com/society/2025...

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 28/02/2025

The Lightning Process is back! ‘This study suggests that the lightning process is a promising and safe intervention for symptoms of long COVID’ journals.lww.com/jfmpc/fullte...

media.tenor.com

a kermit the frog is sitting on a ledge with his arms outstretched

Alt: kermit jumping from a building

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 27/02/2025

ah man, uhh i’ll go for Premium! If it’s not here for Awareness Day I can just wear it to other leaflet events anyway. Even said to Helen it looks so good i’d probably wear it all the time anyway 🤣

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 27/02/2025

oh f**k 🤣🤣🤣 as long as its here for Awareness Day I can wait lol

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 27/02/2025

waiting until i get paid at midnight and that hoodie is in my basket 😂😂😂

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 27/02/2025

says the people behind these beauties www.longcovidsos.org/merch

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 27/02/2025

says the people behind these beauties www.longcovidsos.org/merch

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 27/02/2025

Keep the photos/stories coming. #LongCovid #MECFS March 15th main leaflet distribution in London and Edinburgh. You can also order leaflets for free if you want to do your own handout in your local town/city. Let us know! More to come from @lcmebillboards.bsky.social regarding a Digivan too

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 27/02/2025

The Ship Builders at Port Glasgow will be lighting up on March 15th for Long Covid Awareness Day too. Thank you @vickuk2000vicky on Twitter for this!

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 26/02/2025

Hey guys, Could you please let me know if you would be happy to have your photo printed out on a basic A4 piece of paper with a short summary of your life with #LongCovid or #MECFS and a plea to the public to help? I can staple them to leaflets and hand them out next month.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 25/02/2025

Hey guys Is there anyone who would like to come along to a #LongCovid leaflet handout on March 15th at Waverly Station in Edinburgh? We can provide hundreds of leaflets and are trying to get merch to represent the LC charities while we’re there too.

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Long Covid UK @longcoviduk.bsky.social · 21/02/2025

📣 We’re coming together on #LongCovidAwareness Day to reflect on progress and shape what’s next. We’d love you to join us - in person or online! When: 15th March 2025, 2pm GMT Where: Lyric Theatre, Hammersmith, W6 0QL Sign up now! Link below ⬇️ #LongCovid

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ThereForME @thereforme.bsky.social · 25/02/2025

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

Community campaigning together. Campaign update #14. Concerns about lack of funding for the Delivery Plan for ME. How to join #FundThePlan. Long Covid awareness day. New #ThereForME Substack post. A phone displays on its screen: Get involved! #FundThePlan.

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COVID-19 Longhauler Advocacy Project @c19lap.bsky.social · 24/02/2025

Calling all International #LongCOVID orgs & groups! Contribute to an international calendar for #LongCOVIDAwareness2025 Day | Week | Month! -Add Events: bit.ly/LCAD2025AE -Sign on: bit.ly/LCAD2025SO #UnitedForLongCovid #PreventandCureLongCOVID #COVID #PublicHealth

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 23/02/2025

😨😂 you got me here too 😂😂😂 thank you melissa it’s much appreciated. Alex and I are a great time and work well together and none of it would be possible without his efforts! i’m just the mouthy one that spams people publically while he does all the work behind the scenes 😁

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 23/02/2025

Very severe #MECFS patient in Poland desperately needs help Please share or reach out if you can help. x.com/interestingd...

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Long Covid SOS @longcovidsos.bsky.social · 22/02/2025

Calling #pwLC in Cheshire & Merseyside - please share your feedback about the closure of the NHS Cheshire & Merseyside #LongCovid clinic via their survey here: www.cheshireandmerseyside.nhs.uk//your-health... @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social

cheshireandmerseyside.nhs.uk

Long COVID

Update on Long Covid services

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