iiinova — where your digital self keeps evolving

lcmebillboards.bsky.social @lcmebillboards.bsky.social · 18/03/2025

Our Digivan has started its journey! First stop Department of Work and Pensions! It’s carrying 1,000 #LongCovid leaflets on board so please come along and take some! 😃 Full route in photo attached.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 16/03/2025

Part 2 of our Long Covid Awareness campaign below! __________ VOLUNTEERS NEEDED!! Update on our plans for #LongCovidAwareness on March 18th. We are announcing our #WhereIsIt campaign.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 16/03/2025

Part 2 of our Long Covid Awareness campaign below! __________ VOLUNTEERS NEEDED!! Update on our plans for #LongCovidAwareness on March 18th. We are announcing our #WhereIsIt campaign.

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Inclusive New Normal @inclusivenew.bsky.social · 15/03/2025

@lcmebillboards.bsky.social Edinburgh leafletting action today, to raise awareness of the lives & livelihoods still being destroyed by Long Covid & ME/CFS, unforgivable lack of action by Government & failure to inform the public of continuing real risks to health. #LongCovidAwarenessDay2025

Photo shows a group of people, most wearing masks, holding leaflets, in front of Waverly Station, Prince's Street, Edinburgh. They are gathered in front of a big placard saying "Long Covid and ME/ CFS destoy lives, No help, no treatment, no cure. We demand clinical trials now! Not Recovered UK www.notrecovereduk.org .

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 15/03/2025

Some pics from the Edinburgh #LongCovid leaflet handout today!!!

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 15/03/2025

We handed out leaflets for @longcovidkids.bsky.social and a clean air petition as well as testimonials of those with #LongCovid too!

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 11/03/2025

‘It’s marking 5 years of Long Covid for many people and there are still no approved treatments, the Long Covid clinics are shutting down, the condition is widely mocked and criticised and there’s very poor recognition of what Long Covid actually is’ #LongCovid www.deadlinenews.co.uk/2025/03/10/c...

deadlinenews.co.uk

Campaigners to hand out thousands of leaflets to raise awareness about long COVID, five years since the pandemic began - Deadline News

CAMPAIGNERS will be handing out thousands of leaflets at Edinburgh Waverley to raise awareness about long COVID.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 08/03/2025

And another leaflet group!! Anyone in Kenilworth?! #LongCovid

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 07/03/2025

More volunteers needed!! (Chiswick, London) DM if interested! #LongCovid

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 05/03/2025

One year since the @LCMEBillboards campaign hit the TV screens. This billboard and coverage wouldn’t have been possible without @GarethEvans1977 @long_covid and the generous donations from the community! More billboards to come in 2025 lets go #LongCovid #MSCCS Video - x.com/aaronca11/st...

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 04/03/2025

Thank you @BFWoodburn for making this for us! If anyone wants to share this graphic across social media (if someone could post on Reddit it would be amazing) or if they want to print it out and leave in a doctors office, hospital waiting area, library etc then feel free!

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 03/03/2025

LONDON VOLUNTEERS NEEDED Due to the demand for home delivered leaflets and the number of responses to our Edinburgh campaign we have decided to run another leaflet campaign in London!

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Long Covid UK @longcoviduk.bsky.social · 27/02/2025

Thank you @adrianramsay.bsky.social for attending the #LongCovid APPG meeting this week. It was a pleasure to meet you and be able to share an array of evidence on various issues. We look forward to supporting the APPG with all the work ahead! #CovidIsNotOver

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 27/02/2025

The Ship Builders at Port Glasgow will be lighting up on March 15th for Long Covid Awareness Day too. Thank you @vickuk2000vicky on Twitter for this!

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ME Foggy Dog @mefoggydog.bsky.social · 26/02/2025

'Formal Complaint: Negligence in Patient Safety Regarding Non-Pharmaceutical Treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)' www.mefoggydog.org/2025/02/26/s... #pwME #MEcfs #Health #Politics

mefoggydog.org

Shake It UP - Formal Complaint re Negligence in Patient Safety | ME Foggy Dog

Shake It Up demands the creation of a reporting system to report adverse events from non-pharmaceutical 'treatments'. This formal complaint is the next step.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 26/02/2025

Hey guys, Could you please let me know if you would be happy to have your photo printed out on a basic A4 piece of paper with a short summary of your life with #LongCovid or #MECFS and a plea to the public to help? I can staple them to leaflets and hand them out next month.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 25/02/2025

Hey guys Is there anyone who would like to come along to a #LongCovid leaflet handout on March 15th at Waverly Station in Edinburgh? We can provide hundreds of leaflets and are trying to get merch to represent the LC charities while we’re there too.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 25/02/2025

Mike runs marathons all around Europe to raise awareness/funds for #MECFS research. Give him a follow and a share!

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 25/02/2025

credit - alexandrite113 on Twitter ‘The Toast podcast recently shared a clip mocking ppl w/ Long C0vid, saying we are “sick in the head.” Pls click the link and type your name to send a quick pre-written email to their sponsors.’ mailxto.com/thetoast #LongCovid

mailxto.com

Cut Ties With "The Toast": Harmful Health Misinformation

Dear Sponsor, In the February 14, 2025 episode of The Toast podcast, “Game Tunes in the Big City,” the hosts made shameful remarks, mocking chronically ill and disabled people by referring to them as...

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 25/02/2025

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Long Covid Advocacy @longcovidadvoc.com · 25/02/2025

🌟Super article out from #ThereForME covering the momentum for #FundThePlan & the community campaigning together for Long Covid Awareness including: 💙 Our #Postcards4LC 💙 The @lcmebillboards.bsky.social Light Up Challenge 💙 @longcovidsupport.bsky.social banner & launch event

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ThereForME @thereforme.bsky.social · 25/02/2025

New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...

Community campaigning together. Campaign update #14. Concerns about lack of funding for the Delivery Plan for ME. How to join #FundThePlan. Long Covid awareness day. New #ThereForME Substack post. A phone displays on its screen: Get involved! #FundThePlan.

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 23/02/2025

James shared his story of living with #MECFS in the Sunday Times today. There’s now a fundraiser set up by his girlfriend to raise money for @actionforme.bsky.social Please share if you can! Article below - www.printfriendly.com/print?url=ht...

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 22/02/2025

Hey guys, we’ve now created a Google Doc for the #LongCovid Light Up Challenge. We hope this makes it easier for people to follow and share to other platforms. docs.google.com/spreadsheets...

docs.google.com

Long Covid Challenge

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 21/02/2025

LONG COVID AWARENESS DAY LIGHT UP CHALLENGE!! Hi guys, we have attached screenshots of the idea. Unfortunately due to character limits on Blue Sky (we have Premium in Twitter) we’re unable to post all the text here but hope you can still share and join in with the campaign. #LongCovid #MECFS

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 20/02/2025

(update from our Space will be posted ASAP) @HelenMMGoss onTwitter had the awesome initiative to email Edinburgh Castle to see if they could light up in support of #LongCovid awareness day next month. Are there any other landmarks or buildings we could contact to do the same?

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A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social · 20/02/2025

HAPPENING NOW #LongCovid #MECFS x.com/lcmebillboar...

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 19/02/2025

Tomorrow at 7PM (GMT) we will be hosting a Space to share ideas for #LongCovidAwarenessDay and give updates on the LCMEBillboards campaign. Please come along if you can and give feedback and share suggestions! #LongCovid #MECFS (link below) x.com/lcmebillboar...

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 19/02/2025

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Long Covid UK @longcoviduk.bsky.social · 19/02/2025

🗞️This week members of the #LongCovid community including our Trustee Yanto Evans, were at @senedd.wales to hand over a petition submitted by @charleswaltz.bsky.social to tackle the social & economic crisis caused by Long Covid. Diolch! 🙏 Watch here: www.youtube.com/watch?v=fAm-... #CovidIsNotOver

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lcmebillboards.bsky.social @lcmebillboards.bsky.social · 19/02/2025

We’re now on Blue Sky! Hoping to make new connections here and further support all the awesome #LongCovid and #MECFS charities and advocates in the community. For those who don’t know us we’ve attached some of our work! Billboards, leaflets and car stickers. The latter two are free! DM us!

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