ME Foggy Dog @mefoggydog.bsky.social · 28/09/202631 days to go until #BedForSevereME! Check out the annual awareness and fundraiser event on our website. 020
ME Foggy Dog @mefoggydog.bsky.social · 27/09/202631 days to go until #BedForSevereME! Check out the annual awareness and fundraiser event on our website. mefoggydog.org #pwME #MEcfs #SevereME 010
ME Foggy Dog @mefoggydog.bsky.social · 24/09/2026BED for Severe M.E. 2026 is coming soon! 29th October, here we come! This year, our two fundraising beneficiaries are @smileformeuk.bsky.social & @meresearchuk.bsky.social Please take part and help us to raise more funds and awareness than ever before! www.mefoggydog.org/bed-for-seve... #MEcfsmefoggydog.orgBED for Severe M.E. | ME Foggy Dog29th October is the annual date for this new awareness day for Severe M.E. 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound a... 011
Reposted by ME Foggy DogJohn Reed Music 🎼 and Radio 📻 @johnreed.bandcamp.com · 24/09/2026Superb work @georgemonbiot.bsky.social "of the tens of thousands of practitioners who would benefit from it, after a year, only 74 had completed the new learning module on ME/CFS guidance." Read the whole article: www.theguardian.com/commentisfre...theguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 162
ME Foggy Dog @mefoggydog.bsky.social · 04/11/2025After years of juggling 6-7 social media channels, I’m prioritising my #health. It’s time to simplify, refocus, and reconnect. Read why I’m scaling back and how you can stay in the loop 💌 #ChronicIllness #SocialMedia #MEcfs #pwME www.mefoggydog.org/2025/11/04/f...mefoggydog.orgFrom Seven Platforms to Four: A Health-First Social Media Reset | ME Foggy DogThis shift is part of a broader effort to protect my health and redirect energy toward my own initiatives, including a much-needed review of ME Foggy Dog’s social media strategy. 020
ME Foggy Dog @mefoggydog.bsky.social · 03/11/2025We're closing our Bluesky account at the end of the week 💙 Keep supporting ME Foggy Dog via X, Facebook, YouTube, and/or our e-newsletter (sign up in our website footer). The work (and adventuring) continues, and we’re so grateful you’re part of it! #pwME #MEcfs #SocialEnteprise 112
ME Foggy Dog @mefoggydog.bsky.social · 31/10/2025Get cozy for our Foggy Halloween Storytime at 8pm tonight! 🎃 We're reading 'Toby and the Silver Blood Witches' by Sally Doherty. We chose it to support a fellow #pwME & for its M.E.-friendly "gentle spookiness." Watch here - www.youtube.com/@MEFoggyDog #Halloween 092
ME Foggy Dog @mefoggydog.bsky.social · 30/10/2025Get cozy, Foggy Followers! 🎃 Our special Halloween Storytime is TOMORROW (8pm YouTube) We'll be reading a "gentle spooky" story from a wonderful #IndieAuthor (www.sallydohertyauthor.com/shop) who also lives with M.E. See you then! #pwME #Halloween #MEcfssallydohertyauthor.comShop | The Toby Bean Trilogyby Sally Doherty 033
ME Foggy Dog @mefoggydog.bsky.social · 30/10/2025Thank you to everyone who supported BED for Severe M.E. yesterday! The JustGiving pages will remain open for a few more weeks. Please encourage others to support this cause. Thank you. JustGiving links can be found here - www.mefoggydog.org/bed-for-seve... #BEDForSevereME #pwME #PJsAndProtocol 000
ME Foggy Dog @mefoggydog.bsky.social · 30/10/2025Going 'live' on FB and YouTube in 2 minutes. Doing a 'wash up' of yesterday. See you over there! #pwME #BEDforSevereME 000
ME Foggy Dog @mefoggydog.bsky.social · 30/10/2025For those of you who posted PJ pics yesterday, I'll do the 'draw' live (on one platform or another 🤷♀️ and share it EVERYWHERE 😆) in a bit. I'll be in touch with the winner on whatever platform they posted the pic with #BedForSevereME. #PwME 010
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025BED for Severe M.E. is powerful awareness campaign highlighting the realities of Severe M.E. and the urgent need for better healthcare provision. 29th October is the date for the annual campaign. Thank you for participating. www.mefoggydog.org/bed-for-seve... #BedForSevereME #pwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 030
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025Supporting BED for Severe M.E. is about understanding, recognition, and inclusion in healthcare. Let's make our voices heard! #BedForSevereME #PJsAndProtocol #MEAwarenessHour 011
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025Thank you to those who have already posted tributes to this 'In Loving Memory' board. Add your tribute here- www.mefoggydog.org/bed.../in-lo... #BedForSevereME #PjsAndProtocol #pwME #SevereME 010
Reposted by ME Foggy DogHippymum @hippymum.bsky.social · 29/10/2025This is my life for up to 22 hours a day, every day. I can't tolerate bright lights or noise. Raising awareness of Severe M.E. on BED For Severe ME Day with ME Foggy Dog and Stripy Lightbulb CIC #BEDForSevereME #PyjamasAndProtocol #PyjamasForSevereMe #SevereME 1174
Reposted by ME Foggy DogHippymum @hippymum.bsky.social · 29/10/2025www.justgiving.com/page/bedcureme #BEDForSevereME #pwMEjustgiving.comBED for Severe M.E - Fundraising Page for CureMEHelp ME Foggy Dog raise money to support London School of Hygiene & Tropical Medicine 021
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025Update - Croaking has started. #BedForSevereME continues for the rest of today, but it might be without further input from me. Please continue participating, donating, and helping to mark Bed for Severe M.E day 2025. #pwME #MEcfs 000
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025We went 'live' this morning youtube.com/live/CMfh-W0... #BedForSevereME #PJsAndProtocol #pwME #MEcfsyoutube.comBED for Severe M.E Begins!YouTube video by M.E Foggy Dog 000
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025Not sure what to post about #BedForSevereME? Don't forget I've created a social media toolkit that contains shareable graphics (if you don't want to post a photo) and template posts for you to copy and paste. Resources- www.mefoggydog.org/bed-for-seve... #pwME #MEcfsmefoggydog.orgBED 'Party' on Social Media! | ME Foggy DogThis October, we’re inviting everyone living with M.E., their families, carers, and allies to take part in a powerful awareness campaign. 000
ME Foggy Dog @mefoggydog.bsky.social · 29/10/2025Today is #BedForSevereME Day. 25% of people with M.E. are severely affected. They are often bedbound, hidden, and suffering. No treatments. No cure. You can help. 💙 Smile for M.E. (Support): www.justgiving.com/page/bedsmil... 🔬 CureME (Research): www.justgiving.com/mefoggydog #SevereME #MECFSjustgiving.comBED for Severe M.E. - Fundraising Page for Smile For MEHelp ME Foggy Dog raise money to support Smile For ME 021
ME Foggy Dog @mefoggydog.bsky.social · 28/10/2025Right now, the JustGiving totals stand at: Cure ME - £13 www.justgiving.com/page/bedcureme @smileformeuk.bsky.social - £25 www.justgiving.com/page/bedsmil... Tomorrow is #BedForSevereME day!! www.mefoggydog.org/bed-for-seve... Please donate & participate if you are able to. #pwME #MEcfs 032
Reposted by ME Foggy DogSmile For ME @smileformeuk.bsky.social · 27/10/2025Got my pjs ready for Wednesday 29th Oct for #BEDForSevereME @mefoggydog.bsky.social awareness fundraiser We’re asking for support from ME sufferers, their families, carers & allies to take part to help spotlight the 1 in 4 people with ME who are severely affected: www.mefoggydog.org/bed-for-seve... 032
ME Foggy Dog @mefoggydog.bsky.social · 28/10/2025BED for Severe M.E. is tomorrow!!! Please donate and participate if you are able to 💙 #BedForSevereME #PjsAndProtocol #pwME #MEcfs #Charity 041
ME Foggy Dog @mefoggydog.bsky.social · 27/10/2025Your voice matters. If you live with Severe M.E., share your BED story on 29th October 2025. Let the world see your daily reality. #BEDforSevereME #pwME #PJsAndProtocol www.mefoggydog.org/bed-for-seve...mefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 053
ME Foggy Dog @mefoggydog.bsky.social · 27/10/2025Energy is precious. That’s why we created a social media toolkit with easy-to-use templates. Whether you post yourself or ask someone to help, your voice matters. #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwME #MEcfs 041
ME Foggy Dog @mefoggydog.bsky.social · 26/10/2025Your voice matters. If you live with Severe M.E., share your BED story on 29th October 2025. Let the world see your daily reality. #BEDforSevereME #pwME #PJsAndProtocol www.mefoggydog.org/bed-for-seve...mefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 010
ME Foggy Dog @mefoggydog.bsky.social · 26/10/2025BED = sanctuary. For those with Severe M.E., BED is where life happens. Eating, bathing, connecting - often all from bed. Let’s honour that. #BEDforSevereME - www.mefoggydog.org/bed-for-seve... #Health #pwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 010
ME Foggy Dog @mefoggydog.bsky.social · 26/10/2025Gentle advocacy is powerful. If you’re too ill to post, your loved ones can help raise awareness. Use our toolkit to make it simple and stress-free. #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwME #MEcfs 143
ME Foggy Dog @mefoggydog.bsky.social · 25/10/2025Participation doesn’t have to be loud. A quiet repost, a shared memory, or a loved one posting for you - all count. BED for Severe M.E. is about honouring your reality. #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwME #SevereMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 073
ME Foggy Dog @mefoggydog.bsky.social · 25/10/2025No NHS protocol. No cure. Severe M.E. is devastating, yet still overlooked. Help us push for change this 29th Oct. #BEDforSevereME - www.mefoggydog.org/bed-for-seve... #PJsAndProtocol #pwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 030
ME Foggy Dog @mefoggydog.bsky.social · 24/10/2025Why BED? For those with Severe M.E., BED is where life happens - rest, care, connection (when possible). It’s time we recognised its significance. Campaign info - www.mefoggydog.org/bed-for-seve... #BEDforSevereME #PwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 020
ME Foggy Dog @mefoggydog.bsky.social · 24/10/2025Participation doesn’t have to be loud. A quiet repost, a shared memory, or a loved one posting for you - all count. BED for Severe M.E. is about honouring your reality. #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwME #MEcfs 031
ME Foggy Dog @mefoggydog.bsky.social · 24/10/2025Your voice matters. If you live with Severe M.E., share your BED story. Let the world see your lived experience. 29th October 2025- www.mefoggydog.org/bed-for-seve... #BEDforSevereME #SevereME #pwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 000
ME Foggy Dog @mefoggydog.bsky.social · 24/10/20255 ways to support BED for Severe M.E. Wear PJs, buy a badge, donate, join the online party, and honour loved ones. Get involved this 29th Oct! #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwME 000
ME Foggy Dog @mefoggydog.bsky.social · 23/10/20255 ways to support BED for Severe M.E. Wear PJs, buy a badge, donate, join the online party, and honour loved ones. Get involved this 29th Oct! #BEDforSevereME www.mefoggydog.org/bed-for-seve... 020
ME Foggy Dog @mefoggydog.bsky.social · 23/10/2025SAVE THE DATE! Mark your calendar! 29th October is BED for Severe M.E. Day. Let’s raise awareness, show solidarity, and support those who often live life from bed. Campaign info - www.mefoggydog.org/bed-for-seve... #BEDforSevereME #pwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 011
ME Foggy Dog @mefoggydog.bsky.social · 23/10/2025Too unwell to join in? That’s okay. BED for Severe M.E. is about you. Loved ones can take part for or with you. We’ve made it easy with templates in our social media toolkit. #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwMEmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 010
ME Foggy Dog @mefoggydog.bsky.social · 23/10/2025Knowledge is power. Learn about the realities of Severe M.E. and why BED matters. Read and engage with posts from those with Severe M.E (and their loved ones) on Oct 29th. Share what you discover. #BEDforSevereME #PJsAndProtocol #Health #PwME Campaign info - www.mefoggydog.org/bed-for-seve...mefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 000
ME Foggy Dog @mefoggydog.bsky.social · 23/10/2025Energy is precious. That’s why we created a social media toolkit with easy-to-use templates. Whether you post yourself or ask someone to help, your voice matters. #BEDforSevereME - www.mefoggydog.org/bed-for-seve... #pwME #MEcfs 010
ME Foggy Dog @mefoggydog.bsky.social · 22/10/20255 ways to support BED for Severe M.E. Wear PJs, buy a badge, donate, join the online party, and honour loved ones. Get involved this 29th Oct! #BEDforSevereME - www.mefoggydog.org/bed-for-seve... #MEAwarenessHour #pwME 021
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025Remembering with love. Add a name to our ‘In Loving Memory’ board to honour those lost to Severe M.E. Their stories matter. Link to board - www.mefoggydog.org/bed-for-seve... #BEDforSevereME #MEAwarenessHour #pwMEmefoggydog.org'In Loving Memory' Board | ME Foggy DogThis remembrance board is a space to honour and reflect on the lives of those who have sadly passed away with Severe M.E., seen through the heartfelt 021
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025Tiny badge, big impact. Buy a BED for Severe M.E. badge and help raise vital funds for TWO M.E orgs. Wear it with pride this 29th Oct! Buy here - www.mefoggydog.org/bed-for-seve... #pwME #BEDforSevereME #MEAwarenessHour 021
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025You don’t have to do it alone. If you’re unable to participate in BED for Severe M.E., ask a friend or family member to post on your behalf. We’ve got ready-made templates to help. #BEDforSevereME - www.mefoggydog.org/bed-for-seve... #pwME #MEAwarenessHourmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 021
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025Let’s party from bed! Join our online BED ‘Party’ on 29th Oct. Post your cosiest setup, share stories, and increase understanding. More info - www.mefoggydog.org/bed-for-seve... #BEDforSevereME #MEAwarenessHour #pwME 000
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025PJs for a purpose! On 29th Oct, wear your pyjamas to work to honour those with Severe M.E. whose BED is their everyday reality. Snap a pic, post about the campaign, & tag Info - www.mefoggydog.org/bed-for-seve... #BEDforSevereME #PJsAndProtocol #MEcfs 010
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025BED for Severe M.E is next week!! (29th Oct) Buy your badge here - www.mefoggydog.org/bed-for-seve... #pwME #MEcfs 041
ME Foggy Dog @mefoggydog.bsky.social · 22/10/2025Too unwell to join in? That’s okay. BED for Severe M.E. is about you. Loved ones can take part for or with you. We’ve made it easy with templates in our social media toolkit. #BEDforSevereME - www.mefoggydog.org/bed-for-seve... #pwME 050
ME Foggy Dog @mefoggydog.bsky.social · 22/10/20255 ways to support BED for Severe M.E. Wear PJs, buy a badge, donate, join the online party, and honour loved ones. Get involved this 29th Oct! #BEDforSevereME www.mefoggydog.org/bed-for-seve... #pwME #Health 000
ME Foggy Dog @mefoggydog.bsky.social · 21/10/2025BED is more than furniture. For those with Severe M.E., it’s a sanctuary, a lifeline, a world. Join us on 29th Oct to raise awareness. See all campaign info here - www.mefoggydog.org/bed-for-seve... #BEDforSevereME #PwME #MEcfs #PJsAndProtocolmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound… 040
ME Foggy Dog @mefoggydog.bsky.social · 21/10/2025Getting there. The #BedForSevereME 'social media toolkit' is now 2025-ready for those of you who wish to schedule posts for the 29th. mefoggydog.org/bed-for-seve... #pwME #MEcfsmefoggydog.orgBED for Severe M.E. | ME Foggy Dog8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound and... 000