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Reposted by The Brain Tumour Charity

Wales Cancer Alliance @walescanceralliance.org · 04/02/2026

As of today, World Cancer Day, Wales in the only UK nation without a long-term plan to drive improvements in cancer care and outcomes. With cancer incidence in Wales rising – adding pressure to an already stretched system – the next Government must urgently address this...

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The Brain Tumour Charity @braintumourcharity.bsky.social · 18/12/2025

We were in Westminster on Monday to launch our latest report: The Cost of a Brain Tumour: The Economic Case for Urgent Action. The report reveals something shocking: brain tumour diagnoses in 2025 will create a financial burden of £18.7 billion for the UK.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 27/11/2025

Following this week’s Budget, we’re calling on the brain tumour community to help MPs understand the financial realities of a diagnosis — and the urgent need for national action. #BrainTumourCharity #NationalStrategy #TheBudget

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The Brain Tumour Charity @braintumourcharity.bsky.social · 15/10/2025

1/3 Today’s draft guidance by NICE to not recommend vorasidenib for use on the NHS is disappointing. It highlights broader challenges of bringing new treatments to people affected by brain tumours — challenges that are made more urgent by the lack of existing options.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 30/09/2025

Brain tumours are consistently falling through gaps in policy. As a proud member of the Wales Cancer Alliance, we've joined together to call on all parties in Wales to commit to implementing our recommendations to improve cancer care should they form the next Welsh Government. See below for more.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 03/09/2025

Future Leader, @alvarezprado.bsky.social's research has revealed a protein that can inhibit glioblastoma cell growth and help the immune system attack the tumour. Ángel and his team are now evaluating different drugs that inhibit this protein, which could lead to new therapies. bit.ly/3Vx9IvS

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The Brain Tumour Charity @braintumourcharity.bsky.social · 27/08/2025

We’re proud to stand with #OneCancerVoice today, joining 60+ charities to call on the UK Government for a bold, fully funded National Cancer Plan. It must meet six essential tests to truly improve the lives of people affected by cancer.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 13/08/2025

Research funded by our Quality of Life award hopes to test whether SpoonieKids, based on the spoon theory, is effective and practical to help manage fatigue in children who are living with the effects of brain tumours. Find out more: bit.ly/4ov64jD

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The Brain Tumour Charity @braintumourcharity.bsky.social · 06/08/2025

What is translational research? (thread)🧵 Only 10% of all research breakthroughs in the laboratory actually make it through to viable treatments. In most cases, this is due to a lack of translational research. 👇

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The Brain Tumour Charity @braintumourcharity.bsky.social · 23/07/2025

On the London to Brighton bike ride, you're not just doing a 55-mile challenge. You're riding to pick up the pace of change for everyone affected by brain tumours every year. Join our 2025 team for just £10 and cross the finish line on Sunday 14 Sept. bit.ly/4kYeL2W

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London to Brighton Cycle 2025

Join The Brain Tumour Charity team at the ultimate cycling challenge at L'Étape du Tour de France 2025!

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The Brain Tumour Charity @braintumourcharity.bsky.social · 08/07/2025

“Glynwen was looking down on every step of the way.” To remember her and raise funds, Trefor, Glynwen’s husband, and Brenda, her friend, walked 127 miles in May, along the pilgrimage trail from Twywn to Aberdaron in North Wales. Read more: bit.ly/4nKeOlB

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The Brain Tumour Charity @braintumourcharity.bsky.social · 19/06/2025

New scanning technology, developed by ‪@uniofaberdeen.bsky.social‬, can detect subtle differences in tumour growth, without the need for injected dyes - a positive step for those diagnosed with GBM, an aggressive brain cancer.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 11/06/2025

You might not see yourself as a carer—just someone helping a loved one. But if you provide unpaid support to someone with a brain tumour, you are a carer—and you deserve support too.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 03/06/2025

Yesterday, @clivejonesmp.bsky.social submitted an Early Day Motion calling for earlier brain tumour diagnosis, following the launch of our Exploring GP Access to Brain Scans report. A big thank you to Clive and his office for supporting this important issue. Read the EDM: bit.ly/3FDqipC

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Brain tumour diagnosis - Early Day Motions - UK Parliament

That this House recognises the urgent need to improve diagnostic pathways for brain tumours, the largest cancer killer of the under 40s; notes with concern the findings of The Brain Tumour Charity’s A...

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The Brain Tumour Charity @braintumourcharity.bsky.social · 21/05/2025

An ultra-rapid method of genetically diagnosing brain tumours has been developed, cutting the classification time from 6-8 weeks, to as little as two hours. This could remove the uncertainty that those face waiting weeks for their diagnosis and prognosis. Read more: bit.ly/3YU9Qbb

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The Brain Tumour Charity @braintumourcharity.bsky.social · 01/05/2025

Our new report reveals a third of respondents didn’t know they could directly request brain scans for suspected brain tumours. Even among those who did, many weren’t clear on how to use this guidance. 🧵

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The Brain Tumour Charity @braintumourcharity.bsky.social · 04/04/2025

After his glioblastoma diagnosis, John took on Everest in the Alps, climbing Everest’s height on skis with his daughter Belle, raising £300K for research into childhood brain tumours. Watch Belle share their story. bit.ly/429wqi5

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Everest in the Alps: The height of fundraising

Read about Everest in the Alps and the emotional journey of a father and daughter raising funds for brain tumour research.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 01/04/2025

Today marks the start of Teen and Young Adult Cancer Awareness Month, a time to raise awareness about the specific challenges teenagers and young adults face when coping with a cancer diagnosis and treatment.🧵

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The Brain Tumour Charity @braintumourcharity.bsky.social · 26/03/2025

During the Spring Statement today, the Government has proposed significant changes to the welfare system that's left many people in the brain tumour community feeling anxious.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 26/03/2025

Melissa’s husband Matt has two brain tumours. Their story began when an MRI showed lesions on Matt's brain, eventually leading to a glioblastoma diagnosis. The journey has been tough, but they’ve found strength in each other and in The Brain Tumour Charity. #BrainTumourSupport

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The Brain Tumour Charity @braintumourcharity.bsky.social · 25/03/2025

For years, people diagnosed with a brain tumour have fallen through the cracks—too often pushed into the ‘too difficult’ pile. That’s why we’re encouraged to hear Ashley Dalton MP recognise the unique nature of brain tumours & ensure they’re included in the National Cancer Plan.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 21/03/2025

The #TwilightWalk London is TOMORROW! We can't wait to see everyone striding through the capital as we reflect, remember and raise awareness of brain tumours. Will you be joining us?

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The Brain Tumour Charity @braintumourcharity.bsky.social · 20/03/2025

We fund research that changes lives—driving kinder treatments, better options & cures. For every £1 we spend, we invest 50p+ in research—because that’s how we’ll find cures, faster. This #BTAM, help us go further, faster. 💙 #AcceleratingCures

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The Brain Tumour Charity @braintumourcharity.bsky.social · 18/03/2025

Researcher Dr @alvarezprado.bsky.social, one of our Future Leaders' grant holders, has recently become the group leader of his own research team at the Luxembourg Institute of Health! Find out more about Angel’s research and his new lab: bit.ly/3DZW6UN

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Future Leader Spotlight: Dr Ángel Álvarez-Prado

One of our Future Leaders, Dr Ángel Álvarez-Prado, is now leading his own research group at the Luxembourg Institute of Health. Read more.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 17/03/2025

“I think dealing with the unknown was the hardest part…” When Simrat was diagnosed with an astroblastoma, her hospital had never seen a case like hers before. With little information available, she searched for answers—but found almost nothing. Research changes that.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 14/03/2025

🎉 The Rare Cancers Bill has passed its second reading! In an emotional debate, MPs shared personal stories, making it clear: we must do better. Huge thanks to @drscottarthurmp.bsky.social for leading this. As it moves to Committee Stage, we’ll keep pushing for change.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 13/03/2025

“An unforgettable experience” Last month, our Young Ambassadors visited Parliament for a Q&A session with two MPs – Tom Rutland and Jess Asato – before then having a tour of the Parliament building.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 12/03/2025

The Rare Cancers Bill was published this week - a crucial step forward for people with rare cancers! Alongside 30 charities, we've been working to build cross-party support for this vital legislation ahead of Second Reading in Parliament on Friday. #RareCancersBill

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The Brain Tumour Charity @braintumourcharity.bsky.social · 07/03/2025

Join us on 22 March for The Twilight Walk London! Choose a 5km or 10km route past iconic landmarks like Buckingham Palace & Big Ben. Sign up today and get your Twilight Walk t-shirt and medal! bit.ly/4hjN2Yp

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Reposted by The Brain Tumour Charity

Jess Asato MP @jessasatomp.bsky.social · 05/03/2025

Did you know... Brain tumours are the biggest killer of children and adults under 40 in the UK? This #BrainTumourAwarenessMonth I am helping @braintumourcharity.bsky.social raise awareness of this complex and often left behind disease.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 05/03/2025

As a member of Cancer 52, we support the findings of their new report published today to help guide and drive improvements in early diagnosis policy in England for people with rare and less common cancers. Read more: bit.ly/earlcandiag

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Reposted by The Brain Tumour Charity

AlisonTaylor,MP Paisley & Renfrewshire North @alisonstaylormp.bsky.social · 04/03/2025

I stand with those impacted by brain tumours and more research is urgently necessary. Thank to @braintumourcharity.bsky.social for having me along today.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 04/03/2025

We launched Better Safe Than Tumour in 2022 to raise awareness of brain tumour symptoms. Since then, awareness has risen by 26%, with over 50% of people now able to name a symptom. Order your community door drop pack today and help spread the message! bit.ly/4bvqqmz

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The Brain Tumour Charity @braintumourcharity.bsky.social · 03/03/2025

Did you know… We’re the only UK charity changing lives for people affected by a brain tumour diagnosis on all three fronts: funding cutting-edge research, campaigning for change and giving crucial support and information. Find out more: bit.ly/3QFHf4z

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Reposted by The Brain Tumour Charity

Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @drscottarthurmp.bsky.social · 28/02/2025

Rare Cancers Bill - @braintumourcharity.bsky.social is supporting my bill as they feel it will "transform the rare cancers landscape". If you don't live in Edinburgh South West, details are below regarding what you've to do to ensure your MP is backing: www.thebraintumourcharity.org/news/blog-po...

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The Brain Tumour Charity @braintumourcharity.bsky.social · 27/02/2025

📢 On 14 March, the Rare Cancers Bill will have its second reading in Parliament. This Bill could drive vital improvements for those affected by rare cancers like brain tumours. Find out how you can help by getting your MP to attend: bit.ly/4ih0Dkl

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Rare Cancers Bill: How you can make a difference

The Rare Cancers Bill could open access to clinical trials. Your support would be a huge help in its success. Here's how to get involved!

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The Brain Tumour Charity @braintumourcharity.bsky.social · 26/02/2025

Yesterday our policy team visited Westminster as a result of our 'Write to MP' action, meeting with @chrisbloore.bsky.social and Euan Stainbank, to share our policy asks for a National Brain Tumour Strategy. We’re excited to work with them and for their support for the brain tumour community.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 25/02/2025

Great to join charity colleagues in Westminster yesterday for a roundtable discussing efforts to acheive a faster, better diagnosis. Thank you to @clivejonesmp.bsky.social for sponsoring and chairing this crucial event ahead of the government's upcoming 10-year health and cancer plans.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 20/02/2025

*A huge thank you to the incredible team who ran a 10k at Tatton Park for their friend Rachel, who is living with a brain tumour. 💖 With 30 runners & nearly 800 donors, they’ve raised over £28,000 for The Charity! 🌟 Thank you for our determination

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The Brain Tumour Charity @braintumourcharity.bsky.social · 18/02/2025

Rob and his friend Bates ran 300 miles along Cornwall’s rugged southwest coastal path in memory of their friend Guy, who died from a brain tumour at 43, just eight months after diagnosis. Their incredible challenge raised £5,144 to help those affected by this disease live longer & better. 💙

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The Brain Tumour Charity @braintumourcharity.bsky.social · 17/02/2025

1/4 This week is Cancer Prevention Action Week and is all about empowering the public to make changes to their daily habits, and that of their families, to reduce their risk of preventable cancers.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 13/02/2025

Today, we’re joining 50+ cancer charities with #OneCancerVoice, calling on the UK Government to fully fund the National Cancer Plan. It’s a crucial chance to improve care for cancer patients and those affected by brain tumours—but proper funding is essential to make a real difference. bit.ly/3Qi9mXo

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The Brain Tumour Charity @braintumourcharity.bsky.social · 11/02/2025

Today is #InternationalDayOfWomenAndGirlsInScience! We're celebrating our female researchers who pave the way for better brain tumour treatments. We're proud to fund such talented #WomeninScience who are accelerating a cure for brain tumours.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 05/02/2025

We were delighted to hear that @drscottarthurmp.bsky.social daughter Ruth, is training to run a marathon in aid of the Charity. We wish Ruth the best of luck and will be sure to cheer her along all the way!

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Reposted by The Brain Tumour Charity

Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @drscottarthurmp.bsky.social · 04/02/2025

It was great to be in the chamber today to hear about the launch of the National Cancer Plan from @gwynnemp.bsky.social. Of course, I had to mention the work of @braintumourcharity.bsky.social @braintumourrsch.bsky.social, & @pancreaticcanuk.bsky.social... & my daughter! youtu.be/PF5v7JGz2bc?...

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Dr Scott Arthur MP on the UK Gov's National Cancer Plan.

YouTube video by Dr Scott Arthur MP

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The Brain Tumour Charity @braintumourcharity.bsky.social · 05/02/2025

We have awarded £150,000 as part of our Expanding Theories grant to Dr Elizabeth Cooper and her team at the CRUK Cambridge Institute. They are trying to find better ways to treat ependymoma – the third most common childhood brain tumour. Find out more 👉 bit.ly/416nI2n

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The Brain Tumour Charity @braintumourcharity.bsky.social · 04/02/2025

This World Cancer Day, we welcome @gwynnemp.bsky.social announcement in parliament that there will be a consultation for the government’s upcoming cancer plan. We were pleased to see his recognition of brain tumours in particular being an area where more must be done to improve outcomes.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 04/02/2025

1/3 On #WorldCancerDay, we’re reminded of the importance of seeing the person behind the diagnosis and ensuring they get the support they need to live longer and better lives.

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The Brain Tumour Charity @braintumourcharity.bsky.social · 04/02/2025

We know the devastating impact receiving a brain tumour diagnosis can have, whether that be your own or a loved ones. Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG

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The Brain Tumour Charity @braintumourcharity.bsky.social · 03/02/2025

This #ChildrensMentalHealthWeek, Our children and families service supports those with children under the age of 18, affected by a brain tumour diagnosis. With lots of resources and helpful advice, we can support you and your children through their or a loved one's diagnosis: bit.ly/3CMvvKe

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Children and Families Service

We offer a range of support for families with a child or parent living with a brain tumour. Learn more.

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