iiinova — where your digital self keeps evolving

Replies

Anna Holmes @annabookwriter.bsky.social · 10h

I have no fucking idea why this keeps happening, but I got my umpteenth “you can’t be hypermobile, you’re overweight” and I just would like to know what it is that makes people think EDS is the purview of skinny women (usually white)? We zaftig queers can absolutely have it too.

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Els @geekingthething.bsky.social · 9h

... What?!

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Anna Holmes @annabookwriter.bsky.social · 10h

It’s not like EDS is known to be comorbid with autoimmune stuff, which actively causes weight fluctuations. Or MCAS, which produces bloating and tightens the range of foods that are safe. Or ME/CFS and long COVID, which largely preclude exercise. Or POTS, which is all water retention all the time.

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series of gj tubes @ozarkhowling.bsky.social · 10h

just a guess as someone with marfanoid habitus cEDS but maybe bc before the last few years, the collagen disorder associated with hypermobility that most people have heard of was marfan’s, which usually IS the purview of tall skinny people?

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ech0reads.bsky.social @ech0reads.bsky.social · 6h

i know this isnt the main point of the post but overweight by what metric? BMI? the thing rooted in eugenics and white supremacy?!

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Some Random Susan @anysusan.bsky.social · 10h

Turns out ankles that sprain while walking on a flat paved road at a normal pace are not conducive to maintaining “healthy” levels of regular exercise. Also having knees that just give up trying to be straight make things like jogging impossible. Why am I overweight? It’s a mystery

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Library Yeti, Ice Cream Connoisseur @libraryyeti.bsky.social · 10h

My fat ass is so hEDS, my knees think being right side out is for cowards. I miss hiking. 🤦‍♀️

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Maaike @maaikeverbruggen.bsky.social · 6h

It makes no frequent sense. But ableism rarely does

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Kit @a11yartificer.com · 10h

Ooooof, I get this and variants of it. Along with "you can't be hypermobile, your fingers". Yeah, do you know why my legs are so messed up and I manage to fail at walking because my legs cross over each other sometimes? -.- Solidarity. But yeah.

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🏳️‍⚧️Sidian Sonne🏳️‍⚧️ @sidiansonne.bsky.social · 8h

I actually didn’t consider I might have EDS until I lost a ton of weight on Ozempic and my right ribs decided to start hanging down bc they didn’t have fat support anymore.

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Elderest Millennial @ebwell.bsky.social · 10h

A friend had emergency surgery and had an ileostomy for a year. She was 300 lbs at the start of all of it and due to her inability to ingest much food (or process protein) she is malnourished. She lost 150 pounds and it finally took meeting with nutritional specialist at Vanderbilt to figure it out.

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