ME/CFS Science @mecfsscience.org · 29/09/20262) Registration is non-binding and offers the opportunity to be informed about suitable biomedical research projects that come to patients home and is suitable for people with severe ME/CFS (roughly a Bell score of 20 or lower). 190
ME/CFS Science @mecfsscience.org · 29/09/20263) So if you register there, it's mainly to be informed: it does not constitute automatic consent to participate in a study, only that you're interested. 160
ME/CFS Science @mecfsscience.org · 29/09/20264) Researchers can submit requests to the registry for projects in which people with severe and severe ME are to be included. Looks like 762 people have already registered, most from Germany. 182
