ME/CFS Science @mecfsscience.org · 29/09/20263) So if you register there, it's mainly to be informed: it does not constitute automatic consent to participate in a study, only that you're interested. 160
ME/CFS Science @mecfsscience.org · 29/09/20264) Researchers can submit requests to the registry for projects in which people with severe and severe ME are to be included. Looks like 762 people have already registered, most from Germany. 182
ME/CFS Science @mecfsscience.org · 29/09/20265) The registry is supported by multiple patient organisations. More info can be found here:severe-me-registry.deSevere & Very Severe ME Research RegistryDas Severe and Very Severe ME Research Registry verbindet ME Schwer- und Schwerstbetroffene mit biomedizinischer, häuslicher Forschung. 0113
