ME/CFS Science @mecfsscience.org · 29/09/20261) An initiative worth sharing: The Severe & Very Severe ME Research Registry. It's a website that provides access to research for severely and severely affected ME/CFS patients from Germany, Austria and Switzerland (DACH region). 23616
ME/CFS Science @mecfsscience.org · 29/09/20262) Registration is non-binding and offers the opportunity to be informed about suitable biomedical research projects that come to patients home and is suitable for people with severe ME/CFS (roughly a Bell score of 20 or lower). 190
ME/CFS Science @mecfsscience.org · 29/09/20263) So if you register there, it's mainly to be informed: it does not constitute automatic consent to participate in a study, only that you're interested. 160
