ME/CFS Science @mecfsscience.org · 01/09/20263) Dys-autonomia suggests there is a known, measurable defect in the autonomous nervous system - something we don't fully know yet. POTS was originally coined for patients with orthostatic intolerance but few signs of clear autonomic dysfunction. 170
ME/CFS Science @mecfsscience.org · 01/09/20264) IMHO the core problem is what to do with patients who have orthostatic intolerance symptoms and disability without a known cause and without clear signs of dysautonomia. The distinction between those with and without orthostatic tachycardia (POTS or not) may be less important 270
valebodi.bsky.social @valebodi.bsky.social · 01/09/2026The cause of this specific type of dysautonomia which causes orthostatic intolerance, even seated, is quite clear if CBF was properly measured. See van Campen, Visser & Rowe studies and P. Novak too. 010
ME/CFS Science @mecfsscience.org · 01/09/20265) You can see this in the consensus statement which argue that both groups may have similar impairments, symptoms and that the same treatments may be useful for both. Orthostatic tachycardia is a useful clinical feature but perhaps not sufficient to base a syndrome on. 170