ME/CFS Science @mecfsscience.org · 01/09/20262) In the paper they call this group "Non-POTS dysautonomia" but explain that this is just a preliminary description. I personally do not like this term because it still referring to POTS and the term dysautonomia is problematic in itself. 1110
ME/CFS Science @mecfsscience.org · 01/09/20263) Dys-autonomia suggests there is a known, measurable defect in the autonomous nervous system - something we don't fully know yet. POTS was originally coined for patients with orthostatic intolerance but few signs of clear autonomic dysfunction. 170
ME/CFS Science @mecfsscience.org · 01/09/20264) IMHO the core problem is what to do with patients who have orthostatic intolerance symptoms and disability without a known cause and without clear signs of dysautonomia. The distinction between those with and without orthostatic tachycardia (POTS or not) may be less important 270
