Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long C

CDO, Digital Transformation & Innovation Advisor, Mobility of the Future, Enterprise Architect, Program & Project Manager. Born CO2 Level was @322 ppm. #AITask.

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery

Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging

NZ museums and heritage aficionado, shoe fancier, curator baiter, demure chocoholic, and all-round-caffeine fiend. Personal views; Not those of my employer.

I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.

Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino,

Waiting to see the end of the greatest MEdical scandal of the century

Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.

Six SF novels. Environmental engineer. Spousal unit. Genderqueer motherbeast. Hatch green, Chimayo red—NM nerd, born & bred. Severe MEcfs. Black Lives Matter, n

#slavaukraini Don't hate humans, don't hurt humans, and don't kill humans. Is that really to much to ask for?

Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @Fenla

Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.

95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severe ME 32 years. @IrishMECFSAssoc trustee 29 years 26 publ

🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋smash the motherfucking white supremacist patriarchy on the right AND the left🍋

Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research NB: Posts ≠ advice. Registered Charity RCN 20100254.