iiinova — where your digital self keeps evolving

VoiceForIBD @voiceforibd.bsky.social · 02/10/2026

Surgery can bring questions & fear when you’re living with #IBD Join me & colorectal surgeon Dr. Vilchez on 10/13 for a conversation on surgery myths in the Hispanic/Latino community + live Q&A 🙋🏻‍♂️🙋🏻‍♀️ 📅 Oct. 13 | 4 PM PT / 7 PM ET 🇺🇸 English | 🇪🇸 Spanish captions Regístrate 🔗 bit.ly/HispanicLati...

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VoiceForIBD @voiceforibd.bsky.social · 01/10/2026

Oct 1 is #NationalLatinoPhysicianDay & I’m proud to share my letter written to ALL Latino physicians on behalf of ABIM! Gracias por TODO lo que hacen por los pacientes y por la representación que brindan el campo médico💞 Click 👇🏼 to read the article: bit.ly/3Y9oc7C

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VoiceForIBD @voiceforibd.bsky.social · 29/09/2026

#HispanicHeritageMonth is also about community 🇵🇪 Finding someone who speaks your language & gets it can make all the difference with IBD. El #MesDeLaHerenciaHispana también es comunidad. Encontrar a alguien que hable tu idioma y entienda la EII puede marcar la diferencia🤗

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VoiceForIBD @voiceforibd.bsky.social · 16/09/2026

Hispanic Heritage Month starts Sept. 15th - Oct. 15th🗓️Being Peruvian 🇵🇪 is an important part of who I am & being a #Latina living with #IBD has shaped how I advocate🥹 That’s one of the reasons I created @voiceforibd.bsky.social to make IBD more visible, more understood & more inclusive👊🏼

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VoiceForIBD @voiceforibd.bsky.social · 17/07/2026

This week, I had the privilege of representing the @crohnscolitisfdn.bsky.social Studies as an Advocacy Champion & National Trustee at Day on the Hill 2026, joining 100+ advocates from across the 🇺🇸 to meet with 108 offices of lawmakers & share why people living with IBD deserve better👏🏼 Watch now👇🏼

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VoiceForIBD @voiceforibd.bsky.social · 06/07/2026

La #saludmental también forma parte de vivir con la #EII Acompáñanos en nuestro #grupodeapoyo virtual en #español del @crohnscolitisfdn.bsky.social con Dra. Sandra Quezada para hablar sobre la conexión entre la mente y el intestino! 📅 Lunes, 20 de julio 🕓 4 PM PT | 7 PM ET #IBD #MentalHealth

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VoiceForIBD @voiceforibd.bsky.social · 22/06/2026

The @crohnscolitisfdn.bsky.social Spanish virtual #supportgroup is on Monday 6/22. Nuestro #grupodeapoyo para la #EII en #español es este lunes 22 de junio! Click for more info 👇🏼 Haz clic para más información 👇🏼 🔗 bit.ly/3PgXNis

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VoiceForIBD @voiceforibd.bsky.social · 21/05/2026

#Mentalhealth matters…especially for those of us living with #IBD 🧠The journey can be heavy, but finding moments of peace can help us reconnect with ourselves. La #saludmental importa, especialmente para quienes vivimos con la #EII #MentalHealthAwarenessMonth

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VoiceForIBD @voiceforibd.bsky.social · 19/05/2026

#WorldIBDDay | #DíaMundialDeLaEII #IBD has no borders🌎 La #EII no tiene fronteras🌎 As a #Latina living w/ #Crohns I know advocacy can bridge what borders often divide-through languages & across cultures. Let’s build a 🌎 w/out borders in care, compassion & understanding!

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VoiceForIBD @voiceforibd.bsky.social · 15/05/2026

This #WorldIBDDay the @crohnscolitisfdn.bsky.social created a free guide-More Than the Gut-to help navigate the mental & emotional side of living w/ #IBD En honor al Día Mundial de la #Ell la Fundación creó una guía gratuita-Más allá del intestino-para ayudarnos a enfrentar la Ell.

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VoiceForIBD @voiceforibd.bsky.social · 08/05/2026

I spoke with Dr. Bruce Sands, Chief of Gastroenterology, at Mount Sinai about a potential new #IBD treatment that targets TWO pathways in ONE injection 💉 It could be a game-changer for patients who’ve run out of options for both #Crohns & #UC Watch the highlights ⬇️

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VoiceForIBD @voiceforibd.bsky.social · 02/05/2026

Reporting from #DDW2026 Day☝🏼as a #JNJPartner for #IBDSocialCircle Starting w/Safety of Therapies in #IBD & #RSV risk in patients: ⬆️in active disease 🚨systemic steroid exposure⬆️risk 🟰 no longer significantly⬆️in vaccinated 💡suggest vaccination for IBD patients

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VoiceForIBD @voiceforibd.bsky.social · 01/05/2026

Honored to be at #DDW2026 as an #IBD #patientadvocate Looking forward to powerful conversations, meaningful collaborations & connecting with HCPs and leaders driving the future of IBD care! Let’s connect 🤝🏼

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VoiceForIBD @voiceforibd.bsky.social · 15/04/2026

I wasn’t sure this would be possible anymore. After 20+ years with Crohn’s disease, surgeries & a spinal injury…I’m hiking Machu Picchu with Team Challenge to raise funds for a cure⛰️🥾 This climb isn’t just mine. 🎯 Goal: $10,000 👉🏼 Donate / share: bit.ly/RocioHikesMa...

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VoiceForIBD @voiceforibd.bsky.social · 10/04/2026

Living w/ #IBD can feel isolating. Vivir con la enfermedad de #Crohn o #colitisulcerosa no siempre es fácil-uno se puede sentir muy solo. Por eso existe un #grupodeapoyo virtual en #español para la #EII Si tú, o alguien que quieres, vive con la EII, te invitamos a acompañarnos👇🏼

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VoiceForIBD @voiceforibd.bsky.social · 09/04/2026

Today, I joined a #CMS #roundtable as part of the #Medicare Drug Price Negotiation Program, where my lived experience as a patient will help shape decisions that impact millions 💰 This is yet another way of what #IBD #patient #advocacy looks like behind the scenes 👊🏼

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VoiceForIBD @voiceforibd.bsky.social · 07/04/2026

In spaces led by #science I bring lived #IBD #patient experience. As a #Crohns patient for 20+ yrs, it’s an honor to serve as a @crohnscolitisfdn.bsky.social Grants Committee Stakeholder reviewer helping evaluate what #research moves forward & why it matters because this work changes lives👊🏼

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VoiceForIBD @voiceforibd.bsky.social · 01/04/2026

#AprilFoolsDay is for jokes. #IBD isn't one 😏 Because 💩 isn't funny when it's a disease... #IBDAwareness

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VoiceForIBD @voiceforibd.bsky.social · 31/03/2026

El cáncer colorrectal no tiene idioma 🗣️Ni cultura. Ni fronteras. Es global. 🌍 Este 31 de marzo 🗓️ Hazte el chequeo 🥼🩺 No esperes 🙅🏻‍♀️ Colorectal cancer has no language 🗣️No borders. No boundaries. It’s global. 🌍 Get screened 🥼🩺 Don’t wait 🙅🏻‍♀️ #ColorectalCancerAwareness

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VoiceForIBD @voiceforibd.bsky.social · 30/03/2026

Today, March 30th, is #NationalDoctorsDay 🥼but the gratitude lives far beyond ☝🏼 day. Living w/ #IBD has shown me what it truly means to be cared for by a team. None of them treated just a disease. They treated me. To every doctor who has carried me through this life… THANK YOU 🙏🏼

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VoiceForIBD @voiceforibd.bsky.social · 25/03/2026

My dad knew he needed a #colonoscopy He scheduled it. And canceled😞That decision changed everything. We lost him to #liver & #colorectal #cancer 😢 I live with #Crohns so I don’t skip mine. If you’ve been putting it off, this is your reminder. #ScreeningSavesLives #CRC

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VoiceForIBD @voiceforibd.bsky.social · 23/03/2026

At the @crohnscolitisfdn.bsky.social #MyIBDLearning #OrangeCounty conference, we heard from #IBD experts from @ucihealth.bsky.social @ibdcedarssinai26.bsky.social , Hoag and CHOC 🏥 ✨Managing Flares & New Technologies ✨How To Live Happy & Healthy w/IBD ✨Surgical Management ✨Mental Health & IBD

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VoiceForIBD @voiceforibd.bsky.social · 08/03/2026

On this #InternationalWomensDay we celebrate the women of the #IBD community 👊🏼Patients living the reality of IBD 👊🏽Clinicians & researchers working to improve care 👊🏾Advocates & caregivers strengthening this community Each plays a role in the future of IBD care #IWD2026

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VoiceForIBD @voiceforibd.bsky.social · 27/02/2026

In Jan, while battling COVID & Influenza A, I ended up in the ED & learned I was experiencing symptomatic #gallstones As someone w/ #Crohns (and prior ileal resection), we’re at higher risk 😱 Patients: Have you discussed w/your GI? HCPs: Are you discussing w/your patients?

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VoiceForIBD @voiceforibd.bsky.social · 11/02/2026

On Sat, 3/21, our #IBD community is coming together in #OC for a full day of #education I’ll be moderating a special session: MyIBD Connections for the #Hispanic & #Latino Community 📍: Courtyard Marriott Irvine Spectrum 📅: Sat, 3/21 ⏰: 9 AM–2 PM 🔗 bit.ly/MyIBDLearnin...

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VoiceForIBD @voiceforibd.bsky.social · 09/02/2026

Moments of representation matter-on a global stage & in #healthcare Seeing culture celebrated openly is a reminder of how important #language #identity & feeling understood are. That’s why our virtual Spanish-language #IBD #supportgroup exists👇🏼 Please share! For more info: bit.ly/3PgXNis

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VoiceForIBD @voiceforibd.bsky.social · 30/01/2026

Reflecting on my time at #CCCongress26 in Las Vegas💙As a #patient #advocate & someone living w/ #IBD it’s a privilege I don’t take lightly🥹To witness cutting-edge research🔬emerging treatments🧬 & the commitment of clinicians & researchers who care about patients is powerful💥

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VoiceForIBD @voiceforibd.bsky.social · 23/01/2026

As a #fistula patient myself, I know all too well the trauma that #IBD patients go through when living w/ #perianal disease. So valuable for the patient perspective & mental health recommendations to be shared & discussed at #CCCongress26 @amergastroassn.bsky.social @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 23/01/2026

So insightful to hear Dr. Marla Dubinsky summarize the the right drug at the right time in #IBD So many considerations for patients & clinicians #CCCongress26 @amergastroassn.bsky.social @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 23/01/2026

Grateful for Dr. Larry Kim’s leadership of the @amergastroassn.bsky.social 🎉 Beyond appreciative of the @crohnscolitisfdn.bsky.social incredible commitment to #IBD patients. Thank you Dr. Alan Moss (Chief Scientific Officer) for leading IBD scientific advancements at the Foundation🥹 #CCCongress26

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VoiceForIBD @voiceforibd.bsky.social · 22/01/2026

Key summaries of all of the latest advancements in treatment for both #CD and #UC at #CCCongress26 at #IBD 101, including bone marrow transplant success for CD (in Europe)🎉 @amergastroassn.bsky.social @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 07/01/2026

Patient voices in #IBD #research matter. Both @ownyourcrohns.bsky.social & @voiceforibd.bsky.social had the honor to contribute to a @bmj.com State of the Art Review on IBD medical mgmt, written for clinicians & including a patient perspective section to ground PROs👇🏼 🔗 bit.ly/MedicalMgmtO...

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VoiceForIBD @voiceforibd.bsky.social · 05/01/2026

This Saltado de Vegetales is personal-a Peruvian dish I grew up with🇵🇪adapted to be gut-friendly👏🏼 Proud to see it featured on the @crohnscolitisfdn.bsky.social Gut Friendly Recipes, a 🆓 dietitian-reviewed resource expanding cultural representation🌎#IBD #Nutrition 🔗 bit.ly/SaltadoDeVeg...

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VoiceForIBD @voiceforibd.bsky.social · 23/12/2025

Flavor doesn’t have to disappear when living with IBD. Here’s how to add it back…safely👇🏼 🌿Green herbs & milder spices during flares 🌿Wider range of spices & flavors when in remission 📉Turmeric & ginger may offer anti-inflammatory properties ☕️Decaf herbal teas are a flavorful, gut-friendly option

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VoiceForIBD @voiceforibd.bsky.social · 07/12/2025

IBD looks like strength, resilience & HOPE💛IBD looks like all of us…showing up, speaking up & believing in what’s possible. Hope lives here. And we’re just getting started. La esperanza también vive aquí y lo mejor todavía está por venir #IBDLooksLike #CCAwarenessWeek @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 07/12/2025

#IBDLooksLike advocacy📣 Because raising our voices is how we create change - for ourselves, for our communities & for the future of IBD care👊🏼 Watch below to see what my advocacy looks like 👇🏼 @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 05/12/2025

IBD looks like community. Because none of us should navigate this disease alone. On day 4 of Crohn’s & Colitis Awareness Week, I’m sharing glimpses into the power of #IBD community in my journey. #IBDLooksLike community…together we are stronger 💪🏼 🤍 @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 04/12/2025

#IBD looks like more than anyone realizes 👀 It’s the complications that show up beyond the digestive system or #extraintestinal manifestations😔This Awareness Week, I’m sharing what #IBDLooksLike so more patients feel seen & clinicians understand the full picture #EIMs @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 03/12/2025

IBD Looks Like Strength You Don’t See. Most people don’t see what living with IBD really looks like. We carry so much…quietly😔 #IBD looks like me🙋🏻‍♀️It looks like you🫵🏼 It looks like millions of us doing our best every single day🙌🏼 🔗Awareness Week: bit.ly/CrohnsColiti... @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 02/12/2025

As a Social Media Ambassador & National Board of Trustees member for the @crohnscolitisfdn.bsky.social I’m sharing what #IBDLooksLike 🙋🏻‍♀️But #IBD isn’t one story…it’s millions around the 🌍 Share your story w/#IBDLooksLike & donate $50+ to get the 2025 Awareness 👕 🔗 bit.ly/2025CCAWShirt

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VoiceForIBD @voiceforibd.bsky.social · 01/12/2025

Crohn’s & Colitis Awareness Week runs from Dec 1st-Dec 7th🗓️ To kick things off, I want to highlight a powerful free resource from the @crohnscolitisfdn.bsky.social - the 🆓 Real Life with IBD Guide🗒️ designed to help patients navigate realities of #IBD DOWNLOAD 🔗 bit.ly/CrohnsColiti...

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VoiceForIBD @voiceforibd.bsky.social · 29/11/2025

The IBD Social Circle recently released a white paper on the “Power of Community” in #IBD If you’ll be at #AIBD and/or already live in Orlando, join us next Sat, Dec. 6, for a live panel discussion on key topics from the white paper 📄 RSVP to 📧 IBDSocialCircle@its.jnj.com

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VoiceForIBD @voiceforibd.bsky.social · 24/11/2025

Extraintestinal manifestations can appear before an #IBD diagnosis & are underrecognized in #Hispanic #Latino patients. I moderated a @crohnscolitisfdn.bsky.social webinar w/Latina GIs Dr. Priscila Santiago & Dr. Sandra Quezada who shared insights on #IBD & #EIMs Watch 👇🏼 🔗 bit.ly/HoraDeComuni...

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VoiceForIBD @voiceforibd.bsky.social · 07/11/2025

Join the @crohnscolitisfdn.bsky.social & Team Challenge OC on Sat, 12/20 @ the Great Park as we walk OR run the Run for a Claus 5K🎅🏼We're an official charity team so you can register w/a discount & fundraise for #IBD cures💙 Connect with your local OC #IBD community! REGISTER: bit.ly/RunForAClaus...

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VoiceForIBD @voiceforibd.bsky.social · 27/10/2025

When @congressmin.bsky.social wants to meet w/you, you don't hesitate as it's a chance to use my voice at a time when #healthcare access is at risk. Insurance coverage isn't just about numbers. It’s about people, like me🙋🏻‍♀️Cuts to insurance subsidies don't just affect budgets-they affect lives😞

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VoiceForIBD @voiceforibd.bsky.social · 14/10/2025

The heaviest #IBD symptoms aren’t always visible - #anxiety #fatigue #fear💜 Support & self-care matter👊🏼 Los síntomas más pesados de la #EII no siempre se ven - #ansiedad #cansancio #miedo 💜 El apoyo y el autocuidado importan👊🏼 #HispanicHeritageMonth #MentalHealth #SaludMental

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VoiceForIBD @voiceforibd.bsky.social · 13/10/2025

During #HispanicHeritageMonth I want all #Hispanic #Latino #IBD patients to know we offer a Spanish speaking virtual support group. Durante el Mes de la Herencia Hispana, quiero que todos los pacientes hispanohablantes con la #EII sepan que ofrecemos un grupo de apoyo EN ESPAÑOL.

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VoiceForIBD @voiceforibd.bsky.social · 06/10/2025

Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference. Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...

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VoiceForIBD @voiceforibd.bsky.social · 04/10/2025

Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025 #WorldOstomyDay #OstomyLife @uoaa-ostomy.bsky.social @crohnscolitisfdn.bsky.social

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VoiceForIBD @voiceforibd.bsky.social · 01/10/2025

Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social Read 🗒️ 👉🏼 bit.ly/3Y9oc7C

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