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Vivli

@vivli.bsky.social
93 followers 183 following 303 posts

We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Visit us at vivli.org for more information.

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Vivli @vivli.bsky.social · 26/02/2026
Did you know that #AntimicrobialResistance has been designated as a global #publichealth threat? Learn more about how researchers are using data from the Vivli AMR Register and making an impact in the fight against #drugresistantinfections: wellcomeopenresearch.org/collections/...
Image showing the Wellcome Open Research collection for Vivli AMR Open Data Reuse Data Challenge
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Vivli @vivli.bsky.social · 25/02/2026
Interested in finding a generalist repository to share and preserve your research data? The Generalist Repository Comparison Chart provides guidance and is updated regularly with new information and specifications: zenodo.org/records/1731... #datasharing #datareuse #DMSP
An image showing a thumbnail of the Generalist Repository Comparison Chart
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Vivli @vivli.bsky.social · 24/02/2026
A strong Data Management & Sharing (DMS) Plan is essential for NIH compliance—and for making research discoverable. Join us for the finale of our webinar series tomorrow Wednesday, February 25, at 1 PM ET, “Strengthening Your DMS Plans with GREI’s Practical Guide”: cos-io.zoom.us/webinar/regi...
A graphic providing information on a webinar called "Strengthening Your DMS Plans with GREI’s Practical Guide" scheduled for Wednesday Feb 25 at 1pm ET
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Vivli @vivli.bsky.social · 23/02/2026
Thinking about requesting to reuse data from Vivli? Get tips and tricks on how to complete your Data Request Form: youtu.be/Kt_ECYv2Mi8 Have you got tips for preparing a data request form? Let us know! #DataSharing #DataReuse
youtu.be
Vivli Data Request Form Training Video
YouTube video by Vivli Org
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Vivli @vivli.bsky.social · 20/02/2026
Wondering how the Vivli platform works for #DataSharing or #DataReuse? Browse the Training playlist on our YouTube channel and learn how it can help accelerate your research: www.youtube.com/playlist?lis...
An image showing the YouTube listing of the playlist for Vivli Training Videos
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Vivli @vivli.bsky.social · 19/02/2026
Vivli is hiring! Come work with us as part of a growing, mission-focused organization: vivli.org/vivli-is-hir...
vivli.org
Vivli is hiring a Manager of Operations - Vivli
Manager of Operations We are seeking a Manager of Operations to join our team and help support our continued growth. About Vivli Vivli is a ...
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Vivli @vivli.bsky.social · 18/02/2026
A strong Data Management and Sharing (DMS) Plan is essential for NIH compliance—and for making your research discoverable. Join us for the finale of our webinar series on Wednesday, February 25, at 1 PM ET, “Strengthening Your DMS Plans with GREI’s Practical Guide”: cos-io.zoom.us/webinar/regi...
A graphic saying "Streamlining Data Sharing—Practical Tools and Researcher Stories from the NIH GREI"
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Vivli @vivli.bsky.social · 17/02/2026
Did you know that the Vivli repository now has 8,000+ trials with data from nearly 60 contributing members? Explore today how #DataSharing can accelerate your next research project: search.vivli.org #DataReuse #DataRepository
A graphic showing key metrics relevant to the Vivli platform
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Vivli @vivli.bsky.social · 13/02/2026
Where’s the data? During #LoveData26, you can unlock your healthdata’s full potential by sharing it! Find out more about #DataSharing on Vivli’s secure, user-friendly platform: youtu.be/NVqK8VCnk9Y
A graphic saying: "Love Data Week | February 9-13, 2026"
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Vivli @vivli.bsky.social · 12/02/2026
The theme of #LoveData26 is “Where’s the data?” Find out how to share your clinical research data on Vivli and you’ll be ready to answer—and help accelerate scientific knowledge: vivli.org/resources/sh... #LoveDataWeek #ClinicalTrialData
A graphic saying: "Love Data Week | February 9-13, 2026"
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Vivli @vivli.bsky.social · 11/02/2026
During #LoveData26, learn about how one research team gathered data from multiple trials to better understand how to anticipate and manage #stroke recurrence vivli.org/vivli-resear... Where’s your data? Tell us about how you’re sharing data or using shared data to accelerate discovery!
A graphic saying: "Love Data Week | February 9-13, 2026"
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Vivli @vivli.bsky.social · 10/02/2026
We're collaborating with our NIH GREI colleagues on a free, 3-part webinar series - learn how to prepare your data for repository submission and you’ll be ready to answer when asked, “Where’s the data?” Register for tomorrow's session at bit.ly/GREIWebinars2026 and celebrate #LoveData26!
A graphic saying: "Love Data Week | February 9-13, 2026"
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Vivli @vivli.bsky.social · 09/02/2026
Where’s the data? This #LoveDataWeek, you can unlock your clinical research data’s full potential by sharing it! Our Vivli Study Submission Guide will take you through the process step by step: vivli.org/wp-content/u... #LoveData26 #DataSharing
A graphic saying: "Love Data Week | February 9-13, 2026"
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Vivli @vivli.bsky.social · 06/02/2026
Thinking about your next research project? Find out how accessing Vivli's clinical trial data repository can help: youtu.be/NVqK8VCnk9Y Have you used Vivli's data repository on a recent project? Tell us about your experience!
youtu.be
About Vivli
YouTube video by Vivli Org
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Vivli @vivli.bsky.social · 05/02/2026
Vivli's Annual Report for 2025 is now available! Learn more about our key achievements from the past year, and what's happening in 2026: vivli.org/annualreport...
Graphic reading: "Vivli 2025 Progress Report | Making a Global Impact"
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Vivli @vivli.bsky.social · 04/02/2026
Are you preparing a Data Management and Sharing Plan as part of your grant application? Vivli has a guide to help you understand and complete each step! vivli.org/wp-content/u...
Graphic showing the cover of a Vivli resource titled "Elements of an NIH Data Management and Sharing Plan—Vivli Repository"
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Vivli @vivli.bsky.social · 03/02/2026
We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.
A graphic showing information and dates for the 3-part "Streamlining Data Sharing" webinar series
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Vivli @vivli.bsky.social · 02/02/2026
Save the date! Love Data Week is February 9-13, 2026. Sign up for email updates at myumi.ch/ICPSRLoveDat.... #LoveData26
Graphic saying: "Save the Date! Love Data Week February 9-13, 2026"
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Vivli @vivli.bsky.social · 30/01/2026
Are you ready to unlock your clinical research data’s full potential? Share it with the research community! Our Vivli Study Submission Guide will take you through the process step by step: vivli.org/Study-Submis...
A graphic showing the four steps to submit data to Vivil: 1. Create an account on Vivli 2. Provide information about your study 3. Sign the Vivli Data Contribution Agreement 4. Upload anonymized data
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Vivli @vivli.bsky.social · 29/01/2026
We're delighted to be part of today's Clinical Trial Transparency Tip of the Day - head over to the poll and make your best guess! www.linkedin.com/posts/holtzo...
linkedin.com
Today's CTT Tip of the Day is about value created by Clinical Trial Transparency and the sharing of clinical data by sponsors in support of secondary research Vivli. One key metric to help captur...
Today's CTT Tip of the Day is about value created by Clinical Trial Transparency and the sharing of clinical data by sponsors in support of secondary research Vivli. One key metric to help capture th...
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Vivli @vivli.bsky.social · 28/01/2026
Researcher teams who submit and store their clinical research data on the Vivli #datarepository can now receive CRedIT on their ORCID profiles. Find out more information about how #DataSharing can contribute to your CRedIT: vivli.org/vivli-update...
A graphic illustration showing how researchers can get CRedIT on their ORCID profiles for using Vivli as part of their research project
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Vivli @vivli.bsky.social · 27/01/2026
Interested in learning more about how the Vivli #AMR Surveillance Data Challenge works? Watch the video of this session from our recent Annual Meeting to find out how the Challenge started and where it's going: youtu.be/H9wF1mgWjJQ?...
youtu.be
Data Challenge – Lessons Learned from AMR Data Challenges
YouTube video by Vivli Org
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Vivli @vivli.bsky.social · 26/01/2026
Feeling overwhelmed by data repositories? Let GREI help - Webinar this Wednesday, January 28, at 1 PM ET! Get more information and register at: cos-io.zoom.us/webinar/regi...
cos-io.zoom.us
Welcome! You are invited to join a webinar: Streamlining Data Sharing: Practical Tools and Researcher Stories from the NIH GREI. After registering, you will receive a confirmation email about joining ...
Join GREI for a three-part series showcasing tools and examples that make it easier to plan, share, and submit data under the NIH Data Management and Sharing Policy. Register for the specific session(...
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Vivli @vivli.bsky.social · 23/01/2026
Are you wondering how your research could benefit from #DataSharing or #DataReuse? Check out our Case Studies page and learn about some of the innovative ways researchers are using the Vivli data repository to accelerate their projects: vivli.org/case-studies/
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Vivli @vivli.bsky.social · 22/01/2026
Vivli is hiring! Have a look at our current listings and come join our mission-focused remote team working to share clinical research data to advance human health: vivli.org/news/news/
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Vivli @vivli.bsky.social · 21/01/2026
We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.
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Vivli @vivli.bsky.social · 20/01/2026
Vivli Researcher Spotlight: 🔦 Check out our newest update, with researcher Byeongzu Ghang on using Vivli to help answer key questions in managing chronic kidney disease (CKD) in patients with gout: vivli.org/vivli-resear...
vivli.org
Vivli Researcher Spotlight: Dr. Byeongzu Ghang on investigating whether urate-lowering therapy (ULT) is effective in delaying the progression of chronic kidney disease (CKD) in patients with gout - Vi...
Byeongzu Ghang is an Associate Professor and Rheumatology Specialist in the Jeju National University School of Medicine, Jeju, Korea. His primary research and clinical focus ...
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Vivli @vivli.bsky.social · 16/01/2026
For Dr. Youssef Zeidan, data sharing and reuse via the Vivli platform has been an essential mentoring tool that has helped launch his medical students’ careers. Read more about his work in our newest Vivli case study: vivli.org/case-studies/
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Vivli @vivli.bsky.social · 15/01/2026
Vivli's Annual Report for 2025 is now available! We're thrilled to share our key achievements from the past year, and what we're looking forward to in 2026: vivli.org/annualreport...
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Vivli @vivli.bsky.social · 14/01/2026
Vivli's global data-sharing and analytics platform is enabling access to research data on a wide range of conditions. Learn more about how we're accelerating the progress of research through #DataSharing and #DataReuse:
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Vivli @vivli.bsky.social · 13/01/2026
Vivli is delighted to be part of this important initiative led by PHUSE: advance.hub.phuse.global/wiki/spaces/...
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Vivli @vivli.bsky.social · 12/01/2026
Thinking about requesting to reuse data from Vivli? Get tips and tricks on how to complete your Data Request Form: youtu.be/Kt_ECYv2Mi8 Have you got tips for preparing a data request form? Let us know! #DataSharing #DataReuse
youtu.be
Vivli Data Request Form Training Video
YouTube video by Vivli Org
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Vivli @vivli.bsky.social · 09/01/2026
Vivli is hiring a Marketing and Communications Lead. Come join our mission-focused remote team working to share clinical research data to advance human health: vivli.org/vivli-is-hir...
lnkd.in
LinkedIn
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Vivli @vivli.bsky.social · 08/01/2026
Did you know that the Vivli repository now has 8,000+ trials with data from nearly 60 contributing members? Explore today how #DataSharing can accelerate your next research project: search.vivli.org #DataReuse #DataRepository
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Vivli @vivli.bsky.social · 07/01/2026
Are you looking to get your data organized and ready for sharing? GREI has the resources to help you get there - register today for the 2026 webinar series on Streamlining #DataSharing: cos-io.zoom.us/webinar/regi...
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Vivli @vivli.bsky.social · 06/01/2026
Vivli Researcher Spotlight: 🔦 Check out our newest update, with researcher Youssef Zeidan on using Vivli to help answer key questions in radiation therapy research that are relevant to #breastcancer patients: vivli.org/vivli-resear... #DataSharing #DataReuse
vivli.org
Vivli Researcher Spotlight: Improving mentorship and clinical practice in breast cancer care with Vivli - Vivli
Dr. Youssef Zeidan is a radiation oncologist, using Vivli to help answer key questions in radiation therapy research that are relevant to breast cancer patients.
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Vivli @vivli.bsky.social · 05/01/2026
Wondering how the Vivli platform works for #DataSharing or #DataReuse? Browse the Training playlist on our YouTube channel and learn how it can help accelerate your research: youtube.com/playlist?lis...
youtube.com
Training Videos - YouTube
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Vivli @vivli.bsky.social · 22/12/2025
All of us at Vivli wish you a peaceful and healthy holiday season, and good things to come in 2026!
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Vivli @vivli.bsky.social · 12/12/2025
Congratulations to Joel Skaistis of Corewell Health on your public disclosure, “Tafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial.” We’re proud to facilitate your access to data. #ClinicalResearch
doi.org
Tafamidis treatment and neuropsychiatric dysfunction in patients with cardiac aTTR: a post-hoc analysis of the ATTRACT trial
Published in Amyloid: The Journal of Protein Folding Disorders (Ahead of Print, 2025)
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Vivli @vivli.bsky.social · 12/12/2025
Antimicrobial Resistance is a global threat to #PublicHealth. With the Vivli AMR Register, researchers worldwide are uncovering new insights using AMR surveillance data. Explore our collection of articles on Wellcome Open Research. #AMR #HealthResearch
wellcomeopenresearch.org
Articles from collection Vivli AMR Open Data Reuse Data Challenge - Wellcome Open Research
Read the latest peer reviewed Vivli AMR Open Data Reuse Data Challenge articles and more on Wellcome Open Research
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Vivli @vivli.bsky.social · 11/12/2025
Congrats to Gus Slotman on your public disclosure, “Increased Mortality Among Study Drug Non-Responders Erases Beneficial Treatment Effects & Causes Randomized Clinical Trials Of New Molecules For Septic Shock & Severe COVID-19 To Fail.” We’re proud to facilitate your access to data. buff.ly/uuNf2zp
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Vivli @vivli.bsky.social · 11/12/2025
We're thrilled to collaborate with our NIH Generalist Repository Ecosystem Initiative (GREI) colleagues on a free, 3-part webinar series showcasing tools & examples that make it easier to plan, share, & submit data under the NIH Data Management & Sharing Policy. Register at bit.ly/GREIWebinars2026.
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Vivli @vivli.bsky.social · 10/12/2025
Congrats to Frank Doyle of RCSI on your public disclosure, “Evaluating the psychometric structure of the Hamilton Rating Scale for Depression pre- and post-treatment in antidepressant randomised trials.” We’re proud to facilitate your access to data.
doi.org
Evaluating the psychometric structure of the Hamilton Rating Scale for Depression pre- and post-treatment in antidepressant randomised trials: Secondary analysis of 6843 individual participants from 20 trials
The 17-item Hamilton Rating Scale for Depression (HRSD-17) is the most popular depression measure in antidepressant clinical trials. Prior evidence in…
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Vivli @vivli.bsky.social · 10/12/2025
On Friday, the NIH Office of Data Science Strategy is hosting a data sharing & reuse seminar focused on clinical data standardization. The session will be of interest to data scientists, clinical researchers, & others working on data infrastructure challenges. Register here ➡️ bit.ly/4rRO3xG.
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Vivli @vivli.bsky.social · 09/12/2025
Congrats to João Pedro Ferreira of Porto University on your public disclosure, “Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions.” We’re proud to facilitate your access to data.
onlinelibrary.wiley.com
Sodium–glucose co‐transporter 2 inhibitors in severe estimated glomerular filtration rate deterioration across cardiovascular‐kidney‐ metabolic conditions: A pooled analysis of randomized trials
Aims The efficacy of sodium–glucose co-transporter 2 inhibitors (SGLT2i) among patients with cardiovascular-kidney-metabolic (CKM) conditions who experience severe estimated glomerular filtration…
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Vivli @vivli.bsky.social · 09/12/2025
People who have a stroke are at risk for a second one. Using Vivli, Dr. James Brorson (University of Chicago) found that stroke recurrence is best described by a 2-state kinetic model, which could impact clinical treatments for stroke prevention. Read our newest case study. vivli.org/case-studies/
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Vivli @vivli.bsky.social · 08/12/2025
Congratulations to Aryelly Rodriguez of @edinburgh-uni.bsky.social on your public disclosure, “Are anonymised datasets from clinical trials truly anonymous?” We’re proud to facilitate your access to data. #ClinicalResearch
doi.org
Are anonymised datasets from clinical trials truly anonymous?
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Vivli @vivli.bsky.social · 08/12/2025
On Wednesday, the National Cancer Institute will be hosting a webinar about cancer data sharing at 1 p.m. ET. Vivli Senior Program Manager Amanda Skarlupka will be presenting briefly as part of her work with the NIH Generalist Repository Ecosystem Initiative. Register today: bit.ly/4pUO0PA.
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Vivli @vivli.bsky.social · 05/12/2025
Congrats to Frank Doyle of Royal College of Surgeons Ireland on “An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data.” We’re proud to facilitate your access to data.
doi.org
An exploratory graphical analysis of the Montgomery-Åsberg Depression Rating Scale pre- and post-treatment using pooled antidepressant trial secondary data
The 10-item Montgomery-Åsberg Depression Rating Scale (MADRS) is a commonly used measure of depression in antidepressant clinical trials. Numerous stu…
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Vivli @vivli.bsky.social · 05/12/2025
Unlock the full potential of your #HealthData by sharing it! Learn how you can accelerate scientific research by sharing your data on Vivli’s secure, user-friendly platform. #DataSharing #DataReuse
youtu.be
About Vivli
Vivli is a global clinical research data sharing platform. Learn more about our organization.
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